[Ohio-talk] QRE: FW: Low Vision Support

[Suzanne Turner]

JW

The Cleveland Chapter has several members who have Charles Bonnet Syndrome.
Some have been diagnosed and others were introduced to it by one of our own.
I too have this Syndrome, and I did not learn of it until last year while
sitting in a training session for my former employer on "First Aid Mental
Health".  

Incidentally over the course of time, there have been several people
wrongfully admitted into psychiatric institutions with the Charles Bonnet
Syndrome, due to the fact that not enough information or research was
available.  Everyone copes and reacts differently while living with the
disorder.  

Consequently, it has not affected my productivity.  However, others take
medication or see a therapist on a continuous basis.  I realized now that I
have been coping with the disorder since the age of 12.  I thought I was
seeing spirits and knew that if I told, I would been seen as crazy.  I was
elated to know that it had a name.  

 Charles Bonnet Syndrome can be crippling and quite disruptive for those who
are awake or at sleep.  If you do not know about Charles Bonnet Syndrome, I
advise you to read about it.  Rosa Jones will be presenting on this subject
at the convention.  She has educated and enlighten us on how to live and
move forward as well as, how to aid others with the disorder.

Just thought I would share.

	Suzanne   



-----Original Message-----
From: Ohio-talk [mailto:ohio-talk-bounces at nfbnet.org] On Behalf Of Barbara
Pierce via Ohio-talk
Sent: Tuesday, October 07, 2014 2:51 PM
To: Smith, JW; NFB of Ohio Announcement and Discussion List
Subject: Re: [Ohio-talk] FW: Low Vision Support

The Cleveland chapter has at least two people with this disorder. They can
probably help.

Barbaa
Barbara Pierce
President Emerita
National Federation of the Blind of Ohio bpierce at oberlin.net
440-774-8077

On Oct 7, 2014, at 10:49 AM, Smith, JW via Ohio-talk <ohio-talk at nfbnet.org>
wrote:

> Colleagues:
> 
> I received this inquiry below.
> 
> Any thoghts or suggestions for her?
> 
> Jw
> 
> Dr. JW Smith
> Associate Professor
> School of Communication Studies
> Lasher Hall, Rm. 112
> Athens, OH 45701
> smithj at ohio.edu<mailto:smithj at ohio.edu>
> T: 740-593-4838
> F: 740-593-4810
> 
> *Ask me about the newly revised Ohio Fellows Program or visit 
> http://www.ohio.edu/univcollege/ohiofellows.cfm
> 
> "Regarding the past, change what you can, and can what you can't."
> "Our minds are like parachutes. They work best when they are open."
> 
> From: Cheryl Covington [mailto:cherylcov at yahoo.com]
> Sent: Tuesday, October 07, 2014 8:33 AM
> To: jsmith1 at ohio.edu
> Subject: Low Vision Support
> 
> Dr. Smith,
> 
> I found your NFB support group listing and would like some 
> information.  My father has extremely low vision and has now been 
> diagnosed with Charles Bonnet Syndrome.  He is having a difficult time 
> and feels it would help him to speak with others suffering from this.  
> Does your support group have members with this affliction?  If not do 
> you know of any other local groups who might be able to help?  We live 
> in Marietta.  Thank you,
> 
> Cheryl Covington
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