<div dir="ltr"><div class="gmail_default" style="font-family:tahoma,sans-serif;font-size:small">Hello all:</div><div class="gmail_default" style="font-family:tahoma,sans-serif;font-size:small"><br></div><div class="gmail_default" style="font-family:tahoma,sans-serif;font-size:small">Just passing along information concerning a study on genetic counseling. I am not affiliated with this, just sending this out, :) </div><div><div dir="ltr" class="gmail_signature" data-smartmail="gmail_signature"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div><b>Stacie Leap, CPE, CPS</b><br></div><div><a href="mailto:stacie.leap@gmail.com" target="_blank">stacie.leap@gmail.com</a> | 215.776.6741<br></div><div><br></div><div>Board Member, National Federation of the Blind of Pennsylvania: Keystone Chapter <br></div><div>Cambodian (Khmer) Interpreter</div><div>Intern, 3S Technologies LLC<br></div><div>Mental Health First Aid USA Instructor</div><div>Volunteer, Eyes Like Mine INC<br></div><div>WRAP (Wellness Recovery Action Plan) Facilitator</div></div></div></div></div></div></div></div></div></div></div></div></div></div><br><br><div class="gmail_quote"><div dir="ltr" class="gmail_attr">---------- Forwarded message ---------<br>From: <strong class="gmail_sendername" dir="auto">Blake, Lou Ann via NFBNet-Members-List</strong> <span dir="auto"><<a href="mailto:nfbnet-members-list@nfbnet.org">nfbnet-members-list@nfbnet.org</a>></span><br>Date: Tue, Dec 14, 2021 at 9:55 AM<br>Subject: [Nfbnet-members-list] Blind and low-vision adults needed for research study to learn about your experience with genetic counseling<br>To: <a href="mailto:nfbnet-members-list@nfbnet.org">nfbnet-members-list@nfbnet.org</a> <<a href="mailto:nfbnet-members-list@nfbnet.org">nfbnet-members-list@nfbnet.org</a>><br></div><br><br>
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<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif">The below research participant solicitation is being provided for informational purposes only. The National Federation of
the Blind has no involvement in this research.<b><span style="color:#222222"><u></u><u></u></span></b></span></p>
<p class="MsoNormal" style="background:white"><b><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><u></u> <u></u></span></b></p>
<p class="MsoNormal" style="background:white"><b><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Have you ever had genetic counseling? We are looking to learn from you.</span></b><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><u></u><u></u></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">We are conducting interviews to better understand the genetic counseling experience of patients who are blind
or low vision. Through this research, we’ll explore what educational methods are best for working with this patient population within the genetic counseling setting. Our hope is that this research betters the genetic counseling experience for patients who
are blind or low vision, and promotes equitable genetic counseling.<u></u><u></u></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Participants are asked to complete a 5-minute screening phone call and a 40 to 60-minute interview via Zoom
about their genetic counseling experience. All participants will receive a $25 Amazon eGift Card.<u></u><u></u></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Requirements for participation:<u></u><u></u></span></p>
<p style="margin-right:0in;margin-bottom:0in;margin-left:.5in;margin-bottom:.0001pt;background:white">
<span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">· Identify as blind or low-vision, with limited or no usable sight<u></u><u></u></span></p>
<p style="margin-right:0in;margin-bottom:0in;margin-left:.5in;margin-bottom:.0001pt;background:white">
<span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">· Received genetic counseling in-person, for any reason within the past 8 years<u></u><u></u></span></p>
<p style="margin-right:0in;margin-bottom:0in;margin-left:.5in;margin-bottom:.0001pt;background:white">
<span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">· Over 18 years old<u></u><u></u></span></p>
<p style="margin-right:0in;margin-bottom:8.0pt;margin-left:.5in;background:white">
<span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">· Able to participate in an interview in English<u></u><u></u></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Please reach out to Helen Dellas via email (</span><span style="font-size:14.0pt;font-family:"Arial",sans-serif"><a href="mailto:hdellas@brandeis.edu" target="_blank"><span style="color:#0563c1">hdellas@brandeis.edu</span></a><span style="color:#222222">)
if you think you meet these criteria and are interested. If comfortable doing so, leave your phone number and a good time of day to call so that we can reach out and schedule an interview.<u></u><u></u></span></span></p>
<p class="MsoNormal" style="background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">This study has been approved by the Brandeis University Human Research Protection Program.<u></u><u></u></span></p>
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<p class="MsoNormal"><span style="font-size:14.0pt;font-family:"Arial",sans-serif"><u></u> <u></u></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">Lou Ann Blake, J.D.<u></u><u></u></span></p>
<p class="MsoNormal">Director of Research Programs, Blindness Initiatives<u></u><u></u></p>
<p class="MsoNormal"><span style="font-size:12.0pt">200 East Wells Street, Baltimore, MD 21230<u></u><u></u></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">(410) 659-9314, extension 2221 |
<a href="mailto:lblake@nfb.org" target="_blank">lblake@nfb.org</a> <u></u><u></u></span></p>
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