[stylist] consternation! and befuddlement!<sp>

Fri Mar 27 13:02:31 UTC 2009

Right on Barbara!  JB
----- Original Message ----- 
From: "Barbara Hammel" <poetlori8 at msn.com>
To: "NFBnet Writer's Division Mailing List" <stylist at nfbnet.org>
Sent: Thursday, March 26, 2009 11:03 PM
Subject: Re: [stylist] consternation! and befuddlement!<sp>


>I never had much vision at all and yet I used it to the best of my ability. 
>There are many days when I sit and have pity parties for myself because I 
>totally lost it about nine years ago.  But where has the self-pity gotten 
>me?  Sometimes I think I'm losing my mind because although I know all the 
>blindness skills--I learned them as a small child--fear rules.  It's not my 
>blindness that limits me from doing anything and I know it.  It's fear that 
>rules what I will or won't, can or can't do.  And yet, if I had that little 
>bit of vision I'd probably still be a stay-at-home mom.
> Some years ago I would have opted for that surgery if it were available, 
> also.  As John said before, you'd surely be disappointed by what you saw. 
> I'm glad I can't watch movies, your imagination is greatly hindered by 
> what visually plays out before you.
> It's hard some days.  I really miss seeing the sun but I can feel it and I 
> can smell it in the hair sun-warmed children.
> I'm glad there are people out there to help us get to the place where they 
> are.
> Barbara
>
> If wisdom's ways you wisely seek, five things observe with care:  of whom 
> you speak, to whom you speak, and how and when and where.
>
> --------------------------------------------------
> From: "Frank Lordi" <timber_wolf899 at yahoo.com>
> Sent: Thursday, March 26, 2009 6:08 PM
> To: "NFBnet Writer's Division Mailing List" <stylist at nfbnet.org>
> Subject: [stylist] consternation! and befuddlement!<sp>
>
>>
>> Pardon but i'm still hugely confused.     Blindness is not a sever 
>> disability?    I guess that boils down to what you mean by disability.
>>
>>
>> For me, can i function with my poor sight?  yes
>> has it been a major factor in making me who i am today?  yes
>> Have i adapted?  yes
>>
>> If a surgeon offered me a safe ethical procedure to repair all damage and 
>> give me 20/20 vision, would i take it?  Good grief yes!
>>
>>
>> --- On Thu, 3/26/09, helene ryles <dreamavdb at googlemail.com> wrote:
>>
>>> From: helene ryles <dreamavdb at googlemail.com>
>>> Subject: Re: [stylist] Does anyone want to be blind?
>>> To: "NFBnet Writer's Division Mailing List" <stylist at nfbnet.org>
>>> Date: Thursday, March 26, 2009, 11:43 AM
>>> Judith and Alan:
>>> Thanks for the advise. Dad was better then he was last
>>> year, but there
>>> is still a long way to go. I've accepted blindness.
>>>
>>> Yes, I think doctor's have got it wrong. I think that
>>> they see
>>> blindness as something to be cured from (if possible)
>>> because their
>>> perseption of blindness is of a severe disability which it
>>> isn't. With
>>> the right kind of training a blind person only has a minor
>>> disability
>>> not a severe one.
>>>
>>> Say take a child who is born with ROP who has EVERYTHING
>>> done to save
>>> what little vision they've got. They spend their
>>> childhood struggling
>>> with very severe sight loss but since the parents put such
>>> a lot of
>>> effort into saving that little sight, they want the child
>>> to be as
>>> 'normal' as possible which means no braille, no no
>>> cane. That kid is
>>> relying on their weakest sense. Then their retina detaches
>>> itself
>>> completely. They are no longer at the stage where braille
>>> can be
>>> learnt quite as easily. They are say in 11th grade and are
>>> supposed to
>>> be studying but now they have this problem of not being
>>> able use
>>> vision any more. Having to learn braille by touch. Having
>>> to learn
>>> long cane, all that on top of studying. If they fail then
>>> they might
>>> blame this on the sight lose, but that wouldn't be
>>> true. They failed
>>> because the family and their doctor clung too much on their
>>> sight. So
>>> once it went. Their whole way of life went too.
>>>
>>> If Their parents hadn't done that. Hadn't spent so
>>> much time and
>>> effort at the eye doctors to make the child have better
>>> vision. Put
>>> all that effort into learning braille, long cane, daily
>>> living etc...
>>> They really wouldn't have needed to fail.
>>>
>>> Of course a 3rd option could have been to have the best of
>>> both
>>> worlds. But that's another problem. The fact that so
>>> few low vision
>>> kids learn braille or other blind skills.
>>>
>>> Helene.
>>>
>>> On 26/03/2009, Judith Bron <jbron at optonline.net>
>>> wrote:
>>> > Perhaps we should be sending this thread to doctors.
>>> As medical
>>> > professionals they are committed to saving as much
>>> sight as possible.
>>> > According to this thread some of their treatments and
>>> procedures are wrong.
>>> > Do any of us have the right to tell them not to do
>>> what they strive to do?
>>> > Judith
>>> > ----- Original Message -----
>>> > From: "James Canaday M.A. N6YR"
>>> <n6yr at sunflower.com>
>>> > To: "NFBnet Writer's Division Mailing
>>> List" <stylist at nfbnet.org>
>>> > Sent: Wednesday, March 25, 2009 10:29 PM
>>> > Subject: Re: [stylist] Does anyone want to be blind?
>>> >
>>> >
>>> >> yes,
>>> >> reading with my one squinty eye gave me headaches
>>> too.
>>> >> personally I think far far too often the educrats
>>> resort to "sight saving"
>>> >>
>>> >> techniques when they should push braille and other
>>> blindness methods and
>>> >> skills.
>>> >> jc
>>> >>
>>> >> Jim Canaday M.A.
>>> >> Lawrence, KS
>>> >>
>>> >> At 07:06 PM 3/25/2009, you wrote:
>>> >>>Jim: I can identify with that since I was glad
>>> to lose the rest of my
>>> >>>hearing for similar reasons. Being presurized
>>> into verbal
>>> >>>communication methods that I struggled with
>>> with powerful migrane
>>> >>>inducing hearing aids. Phew! I was glad when
>>> that was over.
>>> >>>
>>> >>>Helene
>>> >>>
>>> >>>On 26/03/2009, James Canaday M.A.  N6YR
>>> <n6yr at sunflower.com> wrote:
>>> >>> > once I became blind I was then taught
>>> braille and the audio reading
>>> >>> > methods.  that made reading much much
>>> more pleasurable and
>>> >>> > easier!  "sight saving" meant I
>>> was reading with my one squinty eye
>>> >>> > peering through jewelers' loop
>>> magnification lenses that came down in
>>> >>> > front of my glasses lense.  I would not
>>> have gone to college if I had
>>> >>> > not lost my sight at age thirteen.
>>> >>> > jc
>>> >>> >
>>> >>> > Jim Canaday M.A.
>>> >>> > Lawrence, KS
>>> >>> >
>>> >>> > At 06:38 PM 3/25/2009, you wrote:
>>> >>> >>I wasn't really thinking of people
>>> already blind although I've heard
>>> >>> >>of blind people saying that blindness
>>> was the best thing that happened
>>> >>> >>to them. Wasn't that a line at the
>>> end of one of Robert's thought
>>> >>> >>provokers?
>>> >>> >>
>>> >>> >>I was thinking more of sighted people
>>> with a disorder called BIID
>>> >>> >>where people want to be disabled:
>>> Usually amputee's but I've heard
>>> >>> >>some of them wanting to be deaf or
>>> blind.
>>> >>> >>
>>> >>> >>Also I know of someone who was born
>>> blind, regained his sight and is
>>> >>> >>now losing it again due to Glycoma and
>>> he says he is glad to be blind
>>> >>> >>as he says he was meant to be blind.
>>> >>> >>
>>> >>> >>As for me, I make deafblindness part
>>> of my lifestyle. It's been a
>>> >>> >>concious choice for me to fully
>>> embrace being a deafblind person and
>>> >>> >>move on. It's not easy to begin
>>> with, but once one fully adapts it's
>>> >>> >>no big deal. I believe that humans are
>>> a very adaptible species that
>>> >>> >>can manage perfectly well minus one or
>>> two senses. It's not the
>>> >>> >>tragedy that people make of it.
>>> It's no worse or better then being
>>> >>> >>sighted. Just differance and it's
>>> the differances that are hard at
>>> >>> >>first, not the blindness
>>> >>> >>
>>> >>> >>Helene
>>> >>> >>
>>> >>> >>On 25/03/2009, LoriStay at aol.com
>>> <LoriStay at aol.com> wrote:
>>> >>> >> > Not if they aren't there
>>> already.   What does wanting have to do
>>> >>> >> > with
>>> >>> >> > it?
>>> >>> >> > Lori
>>> >>> >> > In a message dated 3/24/09
>>> 8:15:48 PM, timber_wolf899 at yahoo.com
>>> >>> >> > writes:
>>> >>> >> >
>>> >>> >> >
>>> >>> >> >>
>>> >>> >> >> does anyone want to be
>>> blind?
>>> >>> >> >>
>>> >>> >> >>
>>> >>> >> >>
>>> >>> >> >
>>> >>> >> >
>>> >>> >> >
>>> >>> >> >
>>> >>> >> > **************
>>> >>> >> > Feeling the pinch at the grocery
>>> store?  Make dinner for $10 or
>>> >>> >> > less.
>>> (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000001)
>>> >>> >> >
>>> _______________________________________________
>>> >>> >> > Writers Division web site:
>>> >>> >> >
>>> http://www.nfb-writers-division.org
>>> >>> >> >
>>> <http://www.nfb-writers-division.org/>
>>> >>> >> >
>>> >>> >> > stylist mailing list
>>> >>> >> > stylist at nfbnet.org
>>> >>> >> >
>>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> >>> >> > To unsubscribe, change your list
>>> options or get your account info
>>> >>> >> > for
>>> >>> >> > stylist:
>>> >>> >> >
>>> >>> >>
>>> >>>
>>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/dreamavdb%40googlemail.com
>>> >>> >> >
>>> >>> >>
>>> >>>
>>> >>_______________________________________________
>>> >>> >>Writers Division web site:
>>> >>> >>http://www.nfb-writers-division.org
>>> >>>
>>> >><http://www.nfb-writers-division.org/>
>>> >>> >>
>>> >>> >>stylist mailing list
>>> >>> >>stylist at nfbnet.org
>>> >>>
>>> >>http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> >>> >>To unsubscribe, change your list
>>> options or get your account info for
>>> >>> >> stylist:
>>> >>>
>>> >>http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/n6yr%40su
>>> >>> nflower.com
>>> >>> >
>>> >>> >
>>> >>> >
>>> _______________________________________________
>>> >>> > Writers Division web site:
>>> >>> > http://www.nfb-writers-division.org
>>> >>> >
>>> <http://www.nfb-writers-division.org/>
>>> >>> >
>>> >>> > stylist mailing list
>>> >>> > stylist at nfbnet.org
>>> >>> >
>>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> >>> > To unsubscribe, change your list options
>>> or get your account info for
>>> >>> > stylist:
>>> >>> >
>>> >>>
>>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/dreamavdb%40googlemail.com
>>> >>> >
>>> >>>
>>> >>>_______________________________________________
>>> >>>Writers Division web site:
>>> >>>http://www.nfb-writers-division.org
>>> <http://www.nfb-writers-division.org/>
>>> >>>
>>> >>>stylist mailing list
>>> >>>stylist at nfbnet.org
>>> >>>http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> >>>To unsubscribe, change your list options or get
>>> your account info for
>>> >>>stylist:
>>> >>>http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/n6yr%40sunflower.com
>>> >>
>>> >>
>>> >> _______________________________________________
>>> >> Writers Division web site:
>>> >> http://www.nfb-writers-division.org
>>> <http://www.nfb-writers-division.org/>
>>> >>
>>> >> stylist mailing list
>>> >> stylist at nfbnet.org
>>> >>
>>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> >> To unsubscribe, change your list options or get
>>> your account info for
>>> >> stylist:
>>> >>
>>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/jbron%40optonline.net
>>> >>
>>> >
>>> >
>>> > _______________________________________________
>>> > Writers Division web site:
>>> > http://www.nfb-writers-division.org
>>> <http://www.nfb-writers-division.org/>
>>> >
>>> > stylist mailing list
>>> > stylist at nfbnet.org
>>> >
>>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> > To unsubscribe, change your list options or get your
>>> account info for
>>> > stylist:
>>> >
>>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/dreamavdb%40googlemail.com
>>> >
>>>
>>> _______________________________________________
>>> Writers Division web site:
>>> http://www.nfb-writers-division.org
>>> <http://www.nfb-writers-division.org/>
>>>
>>> stylist mailing list
>>> stylist at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>>> To unsubscribe, change your list options or get your
>>> account info for stylist:
>>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/timber_wolf899%40yahoo.com
>>
>>
>>
>>
>> _______________________________________________
>> Writers Division web site:
>> http://www.nfb-writers-division.org 
>> <http://www.nfb-writers-division.org/>
>>
>> stylist mailing list
>> stylist at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> stylist:
>> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/poetlori8%40msn.com
>>
>
> _______________________________________________
> Writers Division web site:
> http://www.nfb-writers-division.org <http://www.nfb-writers-division.org/>
>
> stylist mailing list
> stylist at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/stylist_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> stylist:
> http://www.nfbnet.org/mailman/options/stylist_nfbnet.org/jbron%40optonline.net