[stylist] Comments about the request by the sighted writer

[Lynda Lambert]

Jackie - you are my hero!
You have an amzing spirit of tenacity!

Lynda
----- Original Message ----- 
From: "Jacqueline Williams" <jackieleepoet at cox.net>
To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
Sent: Friday, February 17, 2012 5:23 PM
Subject: Re: [stylist] Comments about the request by the sighted writer


> Donna,
> I did not thank you for your offer of help yet. Robert, and several others
> have also offered. I am shy about it because I know the pressures on all,
> and often have contest guidelines also that prevent the time I want to 
> take
> at the moment for new learning. I did not learn computer skills until a 
> very
> advanced age, like 65, and it was on a Macintosh which I loved. When I 
> lost
> my sight six years ago, I attended classes in Phoenix Center for the Blind
> once a week for about two hours a day. A snail's pace. I could not hear 
> the
> instructors, had to pass typing skills first, which I could also not hear
> clearly (the letters). Then it was Microsoft Word, and finally, JAWS.
> Totally frustrated, at age 76, I applied to the state for Voc Rehab. They
> sent me to the Tucson Veteran's School for the Blind where I had to waste
> time learning all the basic skills I already had, cooking, white cane, but
> also, fortunately, a beginning of Braille. The computer classes were a
> disaster for it took them two months to get my computer hooked to use 
> there
> system. It was a Dell, and had to be replaced twice.
> When I returned home they gave me a home teacher, again, just once a week
> for two hours, with three different teachers over a year. Finally, I got a
> good one and started learning. She used my interest in poetry to teach me
> many of the skills. But a result of the mish-mash is that, at 83, I have
> spotty   skills. My faulty hearing in just one ear keeps me from wanting 
> to
> advantage of people who want to help me by phone, though I may try it 
> again
> with Robert. The semi-circular canals were removed in my left ear because 
> of
> Menieres Syndrome. As a result, I no longer have constant vertigo, but
> balance and my gyroscope for listening and moving is gone.
> I love my JAWS voice, and I do not even know his name!
> Short answer, yes, I may ask for help when I have tried all the other
> suggestions embedded in my other e-mails that I am slowly working through.
> Thanks,
> Jackie
>
>
> -----Original Message-----
> From: stylist-bounces at nfbnet.org [mailto:stylist-bounces at nfbnet.org] On
> Behalf Of Donna Hill
> Sent: Monday, January 30, 2012 8:24 PM
> To: 'Writer's Division Mailing List'
> Subject: Re: [stylist] Comments about the request by the sighted writer
>
> Jackie,
> You're welcome. I started using a computer 6 years ago at age 56, and I 
> had
> 3 different machines in less than a year, because of technical problems. 
> It
> was a baptism by fire. If there's something I can help you get a handle 
> on,
> contact me off list at:
> dwhill at epix.net
>
> Writing in MS Word is far easier than navigating the internet which, as 
> you
> know, has a lot of pitfalls for those of us using screen readers, but 
> there
> is a lot to learn in either case, and it's often not straight-forward or
> logical.
> Donna
>
> -----Original Message-----
> From: stylist-bounces at nfbnet.org [mailto:stylist-bounces at nfbnet.org] On
> Behalf Of Jacqueline Williams
> Sent: Monday, January 30, 2012 10:13 PM
> To: 'Writer's Division Mailing List'
> Subject: Re: [stylist] Comments about the request by the sighted writer
>
> Donna,
> Yes, do work on an article that is not an interview with another.
> By the way, I promise not to use "the blind" when referring to our group
> again.
> Also, I like the idea of dipping my foot in fiction and I like the 
> outline.
> As always, time is the factor, and my limited level of computer skills. I
> should spend 2 hours a day going through all the tutorials, but since I
> choose to respond, and also to continue to write and enter contests, I
> stumble on.
> Perhaps things will simplify after taxes are done, and I downsize a bit
> more.
> I truly do not know how all of you do the amount of writing that you do. 
> It
> seems like a full time job for many of the list group, and that is over 
> and
> above what their other jobs require.
> At any rate, thank you for the detailed suggestions. There is that 
> wonderful
> word:  prioritize.
> Jackie
>
> -----Original Message-----
> From: stylist-bounces at nfbnet.org [mailto:stylist-bounces at nfbnet.org] On
> Behalf Of Donna Hill
> Sent: Monday, January 30, 2012 3:51 PM
> To: 'Writer's Division Mailing List'
> Subject: Re: [stylist] Comments about the request by the sighted writer
>
> Hi Jackie,
> Thank you for your encouragement. I'm going to put this letter into a
> document and take a look at it to see what I can make of it. I generally
> tend to publish articles that are interviews with another person, throwing
> some other facts in as I see fit, but I have thought of writing from the
> perspective of someone who has done all of these interviews using quotes
> from previous articles. Recycle, recycle, recycle, as they say.
>
> I like your idea of a fictional story about using blindness skills to 
> solve
> a crime. You should work on that. Write out an idea of what the story is
> about, like an outline. If you find yourself thinking of details of a 
> scene
> or dialog go ahead and write it up. Just go for it. Don't correct 
> anything.
> If it occurs to you that something you just wrote won't work, just write
> about that till you sort it out. In the end, you'll have something that is 
> a
> cross between an outline, a synopsis and a rough draft. Just see where it
> takes you without putting any pressure on yourself. If you come up with a
> poem along the way, just write it down like everything else. I had to 
> write
> 6 poems for my novel because the kids are taking creative writing. It was
> quite an adventure to try to get into each of their heads and see what 
> came
> out.
>
> My fantasy novel has a bit of the idea of using blindness skills to
> investigate in terms of my character doing research online using her 
> screen
> reader, but in the end, the solution to the book's major mystery comes to
> her as a bit of an accident thanks to her guide dog.
> Donna
>
> -----Original Message-----
> From: stylist-bounces at nfbnet.org [mailto:stylist-bounces at nfbnet.org] On
> Behalf Of Jacqueline Williams
> Sent: Monday, January 30, 2012 4:41 PM
> To: 'Writer's Division Mailing List'
> Subject: Re: [stylist] Comments about the request by the sighted writer
>
> Donna,
> This is an exceptional array of comments on the blind. This, in itself,
> should be one of your  submitted articles, wherever you can find a market
> for it.
> You need to put it in a form wherein you can sign and copyright it.
> You inspire me to want to write a "Whodunit" using blindness skills to 
> solve
> a murder. However, I have never tried fiction.
> I remember in the movie about Helen Keller, the story that Annie told
> Helen's father about her early childhood in a school for the blind. It was
> horrific.
> You do so much to further understanding of our community.
> Thank you.
> Jackie
>
>
> -----Original Message-----
> From: stylist-bounces at nfbnet.org [mailto:stylist-bounces at nfbnet.org] On
> Behalf Of Donna Hill
> Sent: Saturday, January 28, 2012 8:20 PM
> To: Writer's Division Mailing List
> Subject: [stylist] Comments about the request by the sighted writer
>
> Hi Friends,
>
> I have written to Rachel Peterson after reading her letter to David. I
> thought some of you might like to read my comments. Perhaps, you will take
> acception to some of what I have said, or you will have something else to
> add. At any rate, it's pretty long, but it's under my name.
>
> Donna
>
>
>
> Hi Rachel,
>
>
>
> My name is Donna W. Hill, and I am a blind writer of articles and fiction. 
> I
> am 62, and I am currently writing about blindness issues, chocolate and
> knitting for the online magazine Suite 101. I am also preparing to publish
> my first novel "The Heart of Applebutter Hill," which features a blind 
> teen.
> I read your letter to David Andrews on the NFB's Writers' Division e-mail
> list. I also visited your blog and read several entries.
>
>
>
>
>
>
>
> Initially, I would just like to toss out some thoughts. I don't know how
> informed you are about the realities for blind people nowadays, so forgive
> me if you are already familiar with the following stats. 70% of blind
> Americans of working age are unemployed. This is not for lack of skills. 
> Tim
> Cordes graduated from medical school in 2010, and he was not the first 
> blind
> man to do so. Blind people work successfully in fields like engineering,
> law, mechanics and in a host of professions that most people generally
> believe to be off-limits without sight.
>
>
>
>
>
>
>
> Despite studies showing that Braille literacy is a major factor in the
> likelihood that a blind person will complete an advanced degree, obtain
> full-time employment and earn over $50,000 a year, only 10% of the 
> nation's
> blind kids are taught to read it. This is down from around 50% in the 
> '60s.
> In fact, technology has blown the lid off what is available in Braille and
> made it possible for college students to carry their textbooks in a device
> not much bigger than a calculator.
>
>
>
>
>
>
>
> Myths persist in the sighted world -- even among teachers of the visually
> impaired -- that Braille is unnecessary, a relic of a bygone era. Children
> with limited vision are forced to read large print, even when doing so 
> means
> that they will suffer from headaches and eye strain, have no time for
> extracurriculars and recreation, and fail to keep up with their peers
> academically and socially. Falling behind is expected.
>
>
>
>
>
>
>
> Audio books are given to those who can no longer see large print, but 
> audio
> learning has been shown to result in a poor understanding of language,
> spelling and sentence structure, and it results in substandard thinking 
> and
> writing. Parents would be justifiably outraged if their sighted child came
> home with the news that they didn't have to learn to read and were getting
> all of their books in an audio format, but this happens to blind kids 
> every
> day. Braille and blindness itself are seen as failures.
>
>
>
>
>
>
>
> I have interviewed mothers who fought the system on this. Even when the
> child was diagnosed as legally blind and the prognosis was for total
> blindness by early adulthood, Braille and other nonvisual skills were not
> taught.
>
>
>
>
>
>
>
> The dichotomy between the successes of some blind people and the overall
> condition for blind Americans is largely due to social prejudice. Laws
> governing discrimination against people on the basis of disability are not
> written to the standards set for discrimination against other groups. I am
> currently doing a series of articles on web and digital accessibility 
> based
> on a new academic study published in the First Monday Journal (U. of IL,
> Chicago) in November. The study, written by three Maryland professors who
> are sighted, contends that the laws are creating a permanent underclass 
> and
> fostering a "separate but not equal" online environment in which 80% of 
> the
> internet is not fully accessible. The technology to make software, 
> websites
> and digital products accessible has been around for over a decade, but
> manufacturers are not required to use it.
>
>
>
>
>
>
>
> Blind people, who used to be able to use their laundry machines, stoves,
> entertainment systems, thermostats and other household and office 
> equipment
> independently are now finding their independence eroded because the new
> touch-screen technology is inaccessible to them. Apple's iPhone, which has 
> a
> built in screen reader and can be used independently right out of the box,
> proves that this problem need not exist.
>
>
>
>
>
>
>
> My first article on this issue is an interview with a legally blind senior
> information management specialist with the federal government. I will
> include links to the study and my article below.
>
>
>
>
>
>
>
> I think you should also be aware that many blind people in the movement 
> for
> equality are more than a little hesitant about sighted writers who portray
> blind characters. The Nobel Prize winning author Jose Saramago in his book
> "Blindness" presents newly blinded adults literally as not being able to
> wipe themselves. Meirelles, the director of the movie based on this book,
> when confronted with the opposition to his characterization of blind 
> people
> by the NFB,
>
>
>
> Dismisses us saying, ".this organization don't really work for blind 
> people.
> It's more like a PR organization." I'll put the link to his comments below
> my name.
>
>
>
>
>
>
>
> In fact, we run 3 training centers and the only research and training 
> center
> operated by blind people. Many nasty comments about blind people appear on
> the internet, yet few blind people respond, because the online comment 
> forms
> either don't work with our screen readers or the form requires the solving
> of a graphic security Captcha -- something screen readers can't access.
>
>
>
>
>
>
>
> Additionally, the blind characters who have made it into the mainstream
> literature are stereotypes. Blind women are portrayed as vulnerable and 
> need
> protecting, though they may have almost super-human powers. If you'll 
> think
> about it, you'll realize that blind women, unlike women from other
> minorities, are not present in the mainstream. When I do presentations for
> sighted groups, I often ask them to name some famous blind people. They
> think of Stevey Wonder, Ray Charles and the former NY governor David
> Paterson. I then ask about blind women. They can only recall Helen Keller.
> Ms. Keller, as you may know, died over 50 years ago. No minority has been
> welcomed into the mainstream without the help of prominent women from that
> minority.
>
>
>
>
>
>
>
> There are few blind authors whose fiction is published by mainstream
> publishers. Deborah Kent (now Debbie Kent Stein) who has written many 
> books
> for young adults, has a book called "Belonging." If you haven't read it, I
> suggest you do so. It was written several decades ago, but the truths it
> addresses have not changed much. Debbie is now the editor of Future
> Reflections, the magazine of the National Organization of Parents of Blind
> Children.
>
>
>
>
>
>
>
> I know several blind authors who report that agents and publishers claim
> that their blind characters are unrealistic. We are not deemed capable of
> telling our own stories.
>
>
>
>
>
>
>
> As far as your specific questions about life for blind women in the 40s, I
> am a bit young to have direct knowledge about that. I was part of the
> initial wave of integrating blind kids into the public schools in the 
> early
> '50s. I did, however, have a couple older blind women in my life who told 
> me
> about those days, and I interviewed Doc Watson, the acclaimed flat-picking
> guitarist from North Carolina. Doc went to school in the '30s and '40s. 
> The
> interview was conducted in the mid '70s. He attended the NC school for the
> blind. At some point, he begged his father not to send him back, saying 
> that
> they treated the students worse than animals. He overheard his father tell
> his mother that, if half of what he had told him was true, he would not
> allow him to return. In fact, Doc did not return to the school for the
> blind. Doc has always been willing to share details and has a kind and
> forgiving heart, but he could not speak about the specifics, and I saw a
> hurt and anger in him that I've never seen even after his son died.
>
>
>
>
>
>
>
> My dear friend Marion, whom I knew when she was in her 50s in the '70s, 
> told
> me stories about life at the Overbrook School for the Blind in 
> Pennsylvania.
> Marion had some vision in one eye. She said that the staff used the
> "partials" like slaves, making them "watch out" for the totally blind 
> kids.
> She loved kids and was heartbroken by how many blind children were dropped
> off at the school at the age of two or three by parents who would never 
> see
> them again or even contact the school to see how they were. The kids slept
> in dormitories and had very little personal space or private time. The
> message was that blind people should stick to themselves and "know their
> place," which was not with the sighted world. Some went home for holidays
> and summer vacation, but many weren't ready for or accepted by the real
> world. Some sadistic staff members used to scar the kids by saying that
> demons were around every corner. Children were also impacted by the 
> beliefs
> of their parents about the reason the child was blind. I've heard many
> people say that their parents believed God had sent them a blind child to
> punish them.
>
>
>
>
>
>
>
> Those who were exceptionally intelligent went to college. I knew a woman
> named Dr. May Davido in this age group who had a doctorate in math. She
> taught at Overbrook. The brightest blind kids were encouraged even in the
> '60s to pursue careers within the blindness system rather than attempting 
> to
> enter the mainstream job market. Very few broke out of this. If you have
> seen the movie "Children of a Lesser God," it contains many truths about
> society's feelings toward deaf people that resonate with me as a blind
> person.
>
>
>
>
>
>
>
> May used to talk about her days as a student in a residential school for 
> the
> blind. She said that every night, her house mother would come to check on
> the girls in her dorm to make sure they were all lying on their backs with
> their hands folded over their stomachs. For some reason, that image always
> stuck with me. May always traveled with a sighted companion rather than
> using a cane or guide dog.
>
>
>
>
>
>
>
> Blind people like Marion and Doc learned Braille and used white canes,
> though I don't know at what age or how much practice they had traveling
> around away from the schools. Despite the conditions in the residential
> schools, many people found lifelong friends there and felt that the
> education was superior to what mainstreamed blind kids receive today.
>
>
>
>
>
>
>
> To sum up my answer to many of the questions you raise, blind people are
> first and foremost people. Blindness itself is not the same for each 
> person.
> Some are totally blind; others have enough vision to see print; some have
> severe field restrictions while others have no central vision. Some see 
> only
> a tiny bit of light; others have vision that changes depending on the 
> amount
> of light they have available or whether the light is changing, as happens
> when clouds pass over the sun. I knew a man who was blinded in a welding
> accident and continually saw a blinding brightness; another was blinded in 
> a
> fall and saw only a red glow. Some are born blind; some are legally blind,
> but their vision is stable, while others have degenerative conditions that
> worsen over time. Some diagnoses are absolute while others have uncertain
> prognoses.
>
>
>
>
>
>
>
> Some will learn better than others. Some will pour themselves into 
> learning
> what they need to survive, while others will have little interest in
> learning. Some of us are type As, while others are type Bs. Some will have
> fiery personalities and find it hard to maintain the methodical approach 
> to
> mobility necessary to avoid running into things. Some are shy and would 
> wait
> to be told where things were in a new environment, while others would set
> off and explore on their own. Some will not want to accept the truth that
> they are and will remain blind, and this will limit their ability to learn
> the nonvisual skills they need. Some will be broken by the lack of
> acceptance. Some will experience massive amounts of bullying in the 
> sighted
> world and it will impact their entire lives.
>
>
>
>
>
>
>
> In short, your character is whoever you think she is, and she will bring 
> her
> basic personality, her intelligence level, her emotional adjustment and 
> her
> secret dreams into her experience as a blind person. As with any other
> writing project, your job is to know who your character is and then make 
> her
> actions conform to that vision.
>
>
>
>
>
>
>
> I hope you find this information useful, and feel free to contact me, if 
> you
> want more feedback.
>
>
>
> Blessings,
>
>
>
> Donna
>
>
>
> The study is:
>
>
>
> Retrofitting accessibility: The legal inequality of after-the-fact online
> access for persons with disabilities in the United States by Brian Wentz,
> Paul T. Jaeger, and Jonathan Lazar, published in the November 2011 issue 
> of
> the First Monday Journal, U of Il, Chicago.
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> http://www.uic.edu/htbin/cgiwrap/bin/ojs/index.php/fm/article/view/3666/3077
>
>
>
>
>
>
>
> My first accessibility article is:
>
>
>
> U.S. Federal Government Already Limits Web Access | Suite101.com
>
>
>
> Jan. 19, 2012
>
>
>
> Is internet access a civil right? Apparently not for all Americans. A
> federal worker explains how the U.S. is ensuring a "separate but not 
> equal"
> policy.
>
>
>
> http://donna-w-hill.suite101.com/us-federal-government-already-limits-web-ac
> cess-a401448
>
>
>
>
>
>
>
> A few articles on Braille literacy, blind kids and their parents
>
>
>
>
>
>
>
> Braille Literacy: For the Love of Reading, A Mother's Struggle with
> America's Special Education System
>
>
>
> May 25, 2009
>
>
>
> http://www.americanchronicle.com/articles/view/103762
>
>
>
> If you were a modern American educator would you expect a legally blind
> child to rely upon his remaining vision to use power tools or go snow
> tubing? How slow would a child have to read print for you to consider
> teaching him Braille? How bent over would he have to be, before it 
> occurred
> to you that he might benefit from a white cane? Now that Carrie Gilmer's 
> son
> is headed off to college, she can talk about their ten-year ordeal. As
> President of the Minnesota chapter of the National Organization of Parents
> of Blind Children, she knows that her experiences are unfortunately all 
> too
> common. From her initial reactions to learning that her son was legally
> blind to the mistakes she hopes other parents won't make, she is candid
> about the fight she has just been through. Carrie's story is a must read 
> for
> anyone with a friend or loved one dealing with poor vision.
>
>
>
>
>
>
>
> Braille Literacy: Lessons from a Right-Handed World
>
>
>
> May 18, 2009
>
>
>
> http://www.americanchronicle.com/articles/view/102885
>
>
>
> Anna Walker is a legally blind eight-year-old second-grader who is fully
> mainstreamed in her public school. She has finished at the top of her 
> grade
> level for two years in a row in a national Braille reading contest. In
> Pennsylvania, where the Walkers live, advanced certification for Braille
> instructors is not required as it is in some states. This means that many
> low vision children are expected to accept a substandard education. But
> Pennsylvania has Anna's Mom, a lawyer and president of the Pennsylvania
> chapter of the National Organization of Parents of Blind Children, who
> volunteers to help parents of blind and low vision children obtain the
> education their children deserve. Carlton Ann Cook Walker shares valuable
> insights into the special education system and the often overlooked issues
> facing students with severe visual limitations who are not totally blind.
>
>
>
>
>
>
>
> Nebraska's Braille Law Tabled Despite Taxpayer Benefits
>
>
>
> July 24, 2010
>
>
>
> http://blind-students.suite101.com/article.cfm/nebraskas-braille-law-tabled-
> despite-taxpayer-benefits
>
>
>
>
>
>
>
>
>
>
>
> Braille Literacy: Insights from a Michigan Home School
>
>
>
> June 10, 2009
>
>
>
> http://www.americanchronicle.com/articles/view/105637
>
>
>
> Michigan psychologist and Christian homeschool Mom Beth Brown shares her
> views on Braille. She has a wealth of experience which highlight the
> advantages of teaching Braille to students with visual impairments. She 
> has
> witnessed first hand the increased independence experienced by Braille
> readers, as well as the struggles, limitations and dependence encountered 
> by
> people who are trained to rely on faulty vision. Her recommendations are a
> must read for families who have a child with low vision. Other families 
> will
> enjoy a look at the Brown's thriving home school.
>
>
>
> Link to the comments by director of the movie Blindness, Mireles:
>
> http://www.indielondon.co.uk/Film-Review/blindness-fernando-meirelles-interv
> iew
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
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