[stylist] dividing blind people into groups
Bridgit Pollpeter
bpollpeter at hotmail.com
Sun Mar 16 03:18:32 UTC 2014
I was sighted until the age of 22. I lost my sight through a viral
infection, pneumonia and uraceptus all at the same time. At one point,
my parents were told to prepare for my death. The meds weren't working,
and my organs were shutting down. Obviously I'm alive and well, but I
did lose my sight as a result.
I think because of my experience, I've never gone through the rage or
depression I hear many go through when losing sight. At first, the loss
was gradual. Things just looked like an Impressionist painting, a little
fuzzy around the edges, but I could see relatively well. Within a year
though, I lost it all except light perception and I can see shadowy
movement. But since I almost died and didn't, I think this has always
stoppered some of those initial emotions most go through.
This doesn't mean I enjoyed losing my sight or it was easy, but I just
haven't struggled the way many have, including my husband. He went
through a point where blindness was just the worse thing he could
imagine, and I've never understood this position. Blindness has always
been low on my list of worse things.
Actually, I didn't really have feelings of hate towards my blindness
until my son was born, oddly. I just want to experience the world he
does, when he does, and I want to see him. Nonetheless, my burdens come
more from how others view my blindness then me feeling it holds me back
or limits me.
I also have visual memories of things I haven't actually seen. Personal
moments, films, pictures, I retain visual memories as though I saw them,
and they typically are the same visual each time I think of a given
thing. Not sure if others experience this too.
So yes, I understand the world visually as well as tactilely, and I
still am very much a visual person.
I wear make-up and usually know what look I'm going for depending on
what I wear. I shop only with my mom or sister because I know their
sense of fashion and trust them. I buy clothes based on how they look on
me as opposed as to how they feel. Even my pajamas have to go together
or my yoga clothes, grin. Nothing mismatched; no plaid with polkadots or
burnt red with pastel pink, smile. I also am very involved in how my
home décor looks visually. I have the advantage of understanding colors
and patterns and styles, so I not only know what I want, but understand
most visual descriptions of items.
I've never been a fan of touching things, so that sucks, grin. And I
also have a small fear of germs, so touching isn't a great experience
for me. Ross and I lived in this apartment when we were first married,
and the kitchen cupboards had this texture, and I couldn't stand to
touch it. The texture for some reason grossed me out. Visually, I was
told it looked fine, but when touching, it had rough bumps. I had to use
a towel or something to open, LOL! I also hate touching things out in
public because I instantly feel dirty. Okay, I'm officially crazy,
smile.
Bridgit
-----Original Message-----
From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Miss Thea
Sent: Saturday, March 15, 2014 9:15 PM
To: Writer's Division Mailing List
Subject: Re: [stylist] dividing blind people into groups
Hi, Bridgit. I'm as blind as it gets and always have been.
I totally don't understand color, depth perception, or even light. I'm
the
blindest of the blind, LOL, and am therefore, a touch freak.
I often wonder what it would be like to live in a city with people just
like
me--people who've never seen a speck of light, maybe even have
prosthetic
eyes. What would it be like to live in a city where everyone was not
only
totally blind, no light perception, but who had been born that way. How
would we run government? What laws would be enforced? What sort of
culture would be uniquely ours?
I wonder what such a community would be like.
Thea
-----Original Message-----
From: Bridgit Pollpeter
Sent: Saturday, March 15, 2014 10:04 PM
To: 'Writer's Division Mailing List'
Subject: Re: [stylist] dividing blind people into groups
I'm with Lynda. Despite losing all my sight, I still think very
visually. I actually don't like touching things, grin, but when
selecting clothes, décor, etc., I am still very visual, and usually have
exactly in mind what I want. Sparkly, glitterly, pretty, tactile or not,
I love it, LOL!
Bridgit
-----Original Message-----
From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Miss Thea
Sent: Saturday, March 15, 2014 8:17 AM
To: Writer's Division Mailing List
Subject: Re: [stylist] dividing blind people into groups
I like it. Only I will make mine out of fur. All textures, no colors.
Sleek, slinky-smooth fur. This is the land of Touch and See Not. The
land of complete and total blindness--sensuous blindness. Thea
-----Original Message-----
From: Lynda Lambert
Sent: Saturday, March 15, 2014 6:09 AM
To: Writer's Division Mailing List
Subject: Re: [stylist] dividing blind people into groups
I do not want to be in a plastic bin! Hmmmm, what are my options? Make
my bin out of soft fiber, in fact, I can knit my own bin. I'll do it in
luscious yarns of orange, yellow, and pinks. Yes, I'll felt it to give
it stability and I'll make a nice lid for it. Oh, certainly, I'll do
encrusted beadworking all over it. It has to be a bin that is glitzy and
sparkly, soft and warm, and smart looking. Nice to the touch! Yes, a
succulent bin will be just perfect! One with no labels on it at all.
Lynda
----- Original Message -----
From: "Applebutter Hill" <applebutterhill at gmail.com>
To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
Sent: Friday, March 14, 2014 9:25 PM
Subject: Re: [stylist] dividing blind people into groups
> Are they plastic bins? Do they come with lids? Can I pick my favorite
> color?
> *grin*
> Donna
>
> -----Original Message-----
> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Atty
> Rose
> Sent: Friday, March 14, 2014 3:29 PM
> To: Writer's Division Mailing List
> Subject: Re: [stylist] dividing blind people into groups
>
> Put us into bins, I loved that visual!
> ----- Original Message -----
> From: "Jacobson, Shawn D" <Shawn.D.Jacobson at hud.gov>
> To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
> Sent: Friday, March 14, 2014 2:13 PM
> Subject: Re: [stylist] dividing blind people into groups
>
>
>> What I remember from the braille school was that there was a pecking
>> order
>
>> by how much you could see. The high partials were generally on top
>> with the totally blind on the bottom. When we had mobility training
>> there were
>
>> the totally blind (Rams) and the partially sighted (Ramblers) and
>> they were in different classes for our mobility milers contest.
>>
>> And then there were the religious differences (mostly Catholic or
>> Protestant or Jewish).
>>
>> Point being, sighted folk will put us into bins according to their
>> own tastes.
>>
>> Shawn
>>
>> -----Original Message-----
>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Atty
>> Rose
>> Sent: Friday, March 14, 2014 2:46 PM
>> To: Writer's Division Mailing List
>> Subject: [stylist] dividing blind people into groups
>>
>> I really don't think I can add anything to Donna's remarks, she said
>> it so
>
>> well. I just want to say that there is power in numbers. I am one of
>> those
>
>> who write letters and call my senators and congress-people. Sometimes
>> when we feel isolated we can feel like we're the only ones,
>> but there is a
>
>> whole vast group of visually impaired people. And even though we
>> don't always
>> agree with one another, we don't have to to stand by one another.
>>
>> Perhaps we have issues with the NFB, but here we are on their list
>> talking
>
>> to people who care about what we say.
>>
>> And if they sent out a notice to call our reps, I'd be dialing away.
>>
>> Change takes time and Scheril is right about fighting for it.
>> Sometimes we
>
>> have to take a rest from the battle. I'm resting right now on the NFB
>> rights thing. I am fortunate to belong to a blind group that doesn't
>> care what you see, what your philosaphies are or your life
>> preferences and so I
>
>> feel content doing all I can for them.
>>
>> The time will come for us to gather a group and approach the upper
>> eshilons of the NFB and speak up again. Maybe we're down but never
>> out.
>>
>> Life is one long adventure!
>> Atty
>>
>> ----- Original Message -----
>> From: "Bridgit Pollpeter" <bpollpeter at hotmail.com>
>> To: "'Writer's Division Mailing List'" <stylist at nfbnet.org>
>> Sent: Thursday, March 13, 2014 11:14 PM
>> Subject: Re: [stylist] Thea, New Kid
>>
>>
>>> Very eloquently said.
>>>
>>> Bridgit
>>>
>>> -----Original Message-----
>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of
>>> Applebutter Hill
>>> Sent: Thursday, March 13, 2014 11:31 AM
>>> To: 'Writer's Division Mailing List'
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>>
>>> Thea,
>>> I understand your perspective, but I disagree with dividing us up
>>> into sub-groups. All of the examples you gave are still viewed as
>>> blind by the general public. Even more importantly, we are already
>>> the smallest minority; we are what is referred to as a
>>> "low-incidence disability. Because of this and the geographic
>>> separation, we are already in a position of not posing much of a
>>> threat to the public. We aren't out there protesting regularly,
>>> sitting in or even (though I don't recommend this ) throwing rocks.
>>> When the calls come for us to write letters to our elected
>>> officials, sign petitions and the like, a very small percentage of
>>> us actually take action (even if you limit it to the NFB
>>> membership). I know for certain that the subset that is willing to
>>> take the time out of their busy days to sign a petition, put notices
>>> on social media, call Congress, etc. is a diversified group that
>>> includes every category you mention. Dividing ourselves is suicide.
>>>
>>> Also, we are essentially expendable, easily overlooked and our
>>> issues are at the bottom of the pecking order when it comes to
>>> social change.
>>>
>>> The goal is to live in a world where blindness is no more of a
>>> barrier than blonde hair. But, I don't think there are many blind
>>> activists who believe that a person can transition from fully
>>> sighted to blind without a significant input of work, dedication and
>>> perseverance. There is also the shock value of those kind of
>>> proclamations, which is how everyone else does it. And, the fact
>>> that we are discriminated against and that the world isn't opening
>>> its arms to welcome us doesn't diminish the truth that, given the
>>> proper training and a can-do attitude, blind people can and do
>>> flourish despite the barriers imposed by a foolish public. Donna
>>>
>>> -----Original Message-----
>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Miss
>>> Thea
>>> Sent: Thursday, March 13, 2014 2:48 AM
>>> To: Writer's Division Mailing List
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>> How the blue blazes can a non-disabled person test for anything
>>> regarding the blind, or any other disability? What are people
>>> smoking these days? Would you, as a blind person, offer to test for
>>> a deaf-user product? Of course you wouldn't. Some people blame
>>> certain things on the militant blind, saying they're the ones who
>>> made it difficult for the rest of us. If blindness is no more than a
>>> nuisance, or a characteristic like blond hair, well then, it
>>> follows. People with blond hair don't use different technology, so
>>> if blindness is truly a mere characteristic like blond hair, as I've
>>> heard at the only NFB convention I ever went to, then why should it
>>> change? We don't need anything. We're rough, tough, independent
>>> blind people. Right?
>>>
>>> I've always considered blindness a major disability. The day it
>>> becomes a mere nuisance or a characteristic like blond hair will be
>>> the day when I can get any job, use any computer, drive a car, read
>>> any type of print including hand writing, and so forth. Till that
>>> day, and especially with websites going backwards instead of
>>> forwards, I'm afraid I disagree with our more militant friends. I'm
>>> not a rough, tough, young independent blind person. I'm on the sunny
>>> side of 50, have illnesses and conditions not related to blindness,
>>> and frankly, I'm having trouble keeping up with all the changes. I'm
>>> doing my best, but the last Windows I liked was Windows XP. Not only
>>> do I remember text-based DOS and the text adventure games I so much
>>> enjoyed, (as an adult in her late twenties), I remember when there
>>> were no such things as computers. I remember when the most exciting
>>> thing I experienced was the Optacon and the talking calculator. I
>>> remember the Braille I read in the 70's, and have no idea why they
>>> need to unify the whole darn Braille code.
>>>
>>> Gays and lesbians for instance, gained the right to marry and put
>>> their spouse under their health insurance at work, and be the next
>>> of kin when an emergency happened, and now have many rights they
>>> didn't when I was growing up, because they fought for the same
>>> things, and they fought in force. One of the complaints I've heard
>>> is that the blind community is too busy fighting among themselves
>>> and spending their energies whining, etc. The problem with blindness
>>> is that it's a continuum, not just one condition. Let's say Al's
>>> totally blind, never so much as seen light, while Tyler sees light
>>> and shadows and therefore probably has better mobility. Tessa can
>>> see enough to read large print, while Bill can do everything but
>>> drive. That's all lumped under the general category of blindness.
>>> Oh, then there's blind-plus. I.E. Lucy's deaf-blind, Samantha's
>>> partially blind and partially deaf, and Tiny Tim there, not only
>>> uses a wheelchair but is stone cold blind. How does one community
>>> address all these needs? Why should the guy who can do everything
>>> but drive care about the guy who's never so much as seen light?
>>> These men perceive the world totally differently, and their needs
>>> are different. I think lumping everyone into the "blindness"
>>> community may be filling a small boat with more people than it can
>>> handle. I propose the idea that there is a blind community, a
>>> partially sighted community, and a blind-plus community. The blind
>>> community would comprise totals and those who have so little vision,
>>> it's not useful to them. Anyway, if we could sort ourselves out,
>>> decide what we need, and go after it in force, we could end up
>>> getting what we want, couldn't we? Sure, there are more LGBT people
>>> than there are blind people, but I'm sure the LGBT community had to
>>> work out differences, too. Bisexuals had different needs than
>>> transgenders, etc. Anyway, that's my story, and I'm sticking to it.
Thea -----Original Message-----
>>> From: Bridgit Pollpeter
>>> Sent: Thursday, March 13, 2014 12:15 AM
>>> To: 'Writer's Division Mailing List'
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>> Donna,
>>>
>>> I never thought of this but you're absolutely correct. Buildings
>>> legally must have so many accessible entrances and bathrooms, but
>>> when it comes to blind accessibility, it's often lacking. Why are
>>> legal standards expected for one disability but not another?
>>> Websites and technology should have to adhere to certain standards,
>>> and yes, actual blind users should be the testers. I get so tired of
>>> non-disabled people doing the work, not thinking they need people
>>> with a given disability to test, comment and assist.
>>>
>>> Bridgit
>>>
>>> -----Original Message-----
>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of
>>> Applebutter Hill
>>> Sent: Wednesday, March 12, 2014 4:19 PM
>>> To: 'Writer's Division Mailing List'
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>>
>>> Jim,
>>> I know what you mean. Getting the most out of our screen readers is
>>> a lot of hard work, because every site is different. It can be
>>> exceptionally frustrating to spend hours trying to get something
>>> done that we know a sighted person can do in ten minutes.
>>> Nevertheless, it is what it is, and it's possible to get a lot
>>> further than many screen reader users get. I get aggravated when
>>> blind people ask me to provide them with a web address, when they
>>> can Google it in the same amount of time as I can. It feels
>>> sometimes like they don't realize that I had to go through the same
>>> grueling and aggravating process they are trying to avoid to get the
>>> knowledge I have and that I have to continue struggling every day
>>> despite the stress of it, because it's the only way I can get
>>> anywhere.
>>>
>>> On the other hand, people who want to build a hospital want their
>>> building to be accessible to everyone too, and they don't know how
>>> to do it either. The difference is that the architects of brick and
>>> mortor facilities have to meet standards which are scrutinized by
>>> licensing officials prior to one brick being laid. Website
>>> designers, whose jobs involve putting 1s and0s in the right places,
>>> are on their own. They either don't consider accessibility or they
>>> hire someone to test the accessibility who is not a user of the
>>> adaptive software on a regular basis. It's difficult to force
>>> yourself to not notice things if you can see them, and difficult to
>>> be conscious of when your sight has influenced something you do with
>>> the screen reader. IMO, websites should be tested for accessibility
>>> by blind people and some of them should have average screen reader
>>> skills.
>>>
>>> Also, there are other accessibility issues in addition to screen
>>> readers. Sites need to work for people using magnification and voice
>>> recognition as well. Donna
>>>
>>> -----Original Message-----
>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of
>>> Homme, James
>>> Sent: Wednesday, March 12, 2014 8:16 AM
>>> To: Writer's Division Mailing List
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>> Hi,
>>> I do accessibility work a lot. In my experience, most people want to
>>> make their stuff accessible. They just don't know what accessibility
>>> is, or how it affects people with disabilities. Most people assume,
>>> naturally enough, that whoever wants to can simply just use their
>>> stuff. And one of my pet peeves is when someone who should know how
>>> to use their screen reader better complains that something is
>>> inaccessible, because they don't want to take the time to use the
>>> help available to them. We make ourselves look bad when this
>>> happens.
>>>
>>> Sorry. I'm a little cranky today. I need to do my journaling.
>>>
>>> Jim
>>>
>>>
>>>
>>> -----Original Message-----
>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Miss
>>> Thea
>>> Sent: Tuesday, March 11, 2014 2:43 PM
>>> To: Writer's Division Mailing List
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>> Think I'll document my experiences with Triond on my new blog, then
>>> spread it on Social Media like butter on bread. Hahahaha. Thea
>>>
>>> -----Original Message-----
>>> From: Atty Rose
>>> Sent: Monday, March 10, 2014 11:33 AM
>>> To: Writer's Division Mailing List
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>> Hi Thea,
>>>
>>> Welcome. I get so frustrated when this happens. If writing letters
>>> isn't working and there is no phone, all you can do really put a
>>> claim against them, or have all your blind friends write them too. I
>>> always write a letter if I run into issues. Even if nothing happens
>>> I stand up for our comunity. Sometimes it works great! Sometimes I
>>> get nothing back.
>>>
>>> All you can do is your best!
>>>
>>> Well met,
>>> Atty
>>>
>>>
>>>
>>> ----- Original Message -----
>>> From: "Miss Thea" <thearamsay at rogers.com>
>>> To: "Writer's Division Mailing List" <stylist at nfbnet.org>
>>> Sent: Monday, March 10, 2014 3:45 AM
>>> Subject: Re: [stylist] Thea, New Kid
>>>
>>>
>>>> Hi, Donna.
>>>> There is a place where you can upload photos, but it is still
>>>> inaccessible, as you have to drag and drop images.
>>>>
>>>> All I want is my name in print--a hardcover or paperback with my
>>>> John Hancock and a great story inside, that people can get lost in.
>>>> I don't
>>>
>>>> mind doing the work; I don't mind doing hard work. But I DO mind
>>>> wasting my time, and there's not even a way for me to express my
>>>> displeasure by cancelling my account. I guess I could just let it
>>>> go, and concentrate on the things I can do, which is why I'm here.
>>>> Nice to
>>>
>>>> meet you, too. Thea
>>>>
>>>> -----Original Message-----
>>>> From: Applebutter Hill
>>>> Sent: Sunday, March 09, 2014 8:11 PM
>>>> To: 'Writer's Division Mailing List'
>>>> Subject: Re: [stylist] Thea, New Kid
>>>>
>>>> Hi Thea,
>>>> Welcome to Stylist. I wrote for a bunch of online magazines for
>>>> years,
>>>
>>>> but not this one. I'm thinking of a couple of things.
>>>>
>>>> First, what would a person do if they had their own photos? Is
>>>> there an uploader? It seems bogus that they would force people to
>>>> pick and choose from stock photos and not have an option to upload
>>>> photos of their
>>> own.
>>>>
>>>> I'm saying this, because, if there is an uploader that you can use,
>>>> there are sites where you can get free, high quality photos that
>>>> you could download and then upload to this site. The captions are
>>>> usually clear enough to get the idea what the photo is, and as long
>>>> as you credit the photographer or the group, you can use them
>>>> without fear.
>>>>
>>>> As far as your efforts to bring this to the attention of the site
>>>> go, it is something we need to do, but it rarely results in
>>>> positive changes. I used to write for Suite 101, which had revenue
>>>> sharing and required a photo with each article. It was accessible
>>>> until they re designed their site. I wrote to them many times, and
>>>> I was assured that accessibility was a priority for them. They even
>>>> asked me to do beta testing on the new site, which I did. Nothing
>>>> ever changed. Ultimately they dropped their journalistic standards,
>>>> such as they were, and at that point, I really wasn't interested in
>>>> writing for them anyway.
>>>>
>>>> Suite 101 is a Canadian company, so they don't fall under our laws.
>>>> But, the laws we have in the US are not being enforced even on
>>>> government websites. The irony to me was that when Suite 101
>>>> started becoming less accessible, I was in the midst of writing a
>>>> series of articles on web accessibility.
>>>>
>>>> Anyway, it's nice to meet you, and I look forward to getting to
>>>> know you. Donna
>>>>
>>>> -----Original Message-----
>>>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Miss
>>>> Thea
>>>> Sent: Sunday, March 09, 2014 5:36 PM
>>>> To: stylist at nfbnet.org
>>>> Subject: [stylist] Thea, New Kid
>>>>
>>>> Hi, everyone.
>>>> I'm Thea, I just joined the list, and I write all kinds of stuff:
>>>> fiction, nonfiction, and fan fiction. I guess that about covers it,
>>>> eh? I used to publish articles and short stories on www.triond.com
>>>> but
>>>
>>>> they require an image with each submission. I had sighted help for
>>>> a while, but once the sighted help disappeared, I found I could not
>>>> use this site because of its image requirement. It's not a Captcha
>>>> I have to fill in. This site requires, along with the article, your
>>>> selection
>>>
>>>> of a category, which you can choose from a combo
>>>> box: health, news, politics, women ... Then after the body of your
>>>> article, you add tags. Let's say you've chosen "women". Your tags
>>>> could be birth control, birth control devices, IUD, etc. Then
>>>> there's a question mark where a chosen image should go. You hit the
>>>> "get image
>>>
>>>> suggestions" button, and images are supposed to present themselves.
>>>> At this time, you have to be able to see the image and drag it to
>>>> the question mark. Last but not least, you have to check the box
>>>> that says you are the original creator of this work, and click
>>>> submit. Piece o' cake ... if you can see. Has anyone ever tried or
>>>> found some way around this difficulty? The site is www.triond.com
>>>> My emails to them about this barrier have netted me no response.
>>>> The site is free, and supposedly, you can create a following, if
>>>> you're prolific enough, and you can earn money, be it ever so
small.
>>>> I don't mind that. I DO mind this inaccessibility, and the
company's
>>>> apparent lack of interest.
>>>> Anyone ever tried this www.triond.com
>>>> While I had sighted help, I published articles and stories, so I
have
>>>> a small portfolio if you like.
>>>> Now the sighted help is gone, and I'm stuck.
>>>> Any help appreciated,
>>>> Thea
>>>> _______________________________________________
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>>>>
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>>>
>>>
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>>>
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>>
>>
>> _______________________________________________
>> Writers Division web site
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> 40hud.
> gov
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>> stylist:
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>> et
>
>
> _______________________________________________
> Writers Division web site
> http://writers.nfb.org/
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> stylist at nfbnet.org
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> Writers Division web site
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