[stylist] Story, "Help is On the Way"

Debby Phillips semisweetdebby at gmail.com
Fri Sep 16 15:46:12 UTC 2016


I agree. Even at the center in Oregon we were expected to put things in their proper places and if there was a mess we were supposed to clean up. Debby 

Sent from my iPhone

> On Sep 16, 2016, at 7:45 AM, Bridgit Kuenning-Pollpeter via stylist <stylist at nfbnet.org> wrote:
> 
> Well, if there's an expectation to put something back in a certain place,
> then that should be followed. If this drawer is where utensils belong, and
> this cupboard cooking pots, then that's where they should always be put
> back. Organization is good for any kitchen, but especially when blind so you
> don't spend unnecessary time locating items.
> 
> And by filthy, I mean sticky, uncleaned counters, dishes not washed, crumbs
> on surfaces. Like OSHA could shut you down if a restaurant level of filthy.
> I'm not talking about disorganization or slight messes, I'm talking about
> disgusting, gross filthiness that no one should expect, blind or sighted.
> It's amazing they didn't have ants or other vermin. And why the sighted
> staff didn't clean up even if they thought blind people incapable is beyond
> me. It was gross and completely unprofessional.
> 
> I trained at the Iowa Department for the Blind a decade ago, and we were
> expected to keep the kitchen clean and organized. Items had their respective
> places they needed to go back to, dishes and surfaces had to be cleaned then
> double checked to make sure things were clean.
> 
> Bridgit
> 
> -----Original Message-----
> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Vejas via
> stylist
> Sent: Thursday, September 15, 2016 7:53 PM
> To: Writers' Division Mailing List <stylist at nfbnet.org>
> Cc: Vejas <alpineimagination at gmail.com>
> Subject: Re: [stylist] Story, "Help is On the Way"
> 
> Filthy  kitchens are not just a thing of low-quality training centers,
> unfortunately. Whenever you have a kitchen full of lots of  people cooking
> items at different times, it was inevitable that  things would get
> misplaced, we would spend whole days cleaning and things would still not be
> in the right places, LOL. But I think that would definitely go even for a
> kitchen with sighted instructors and sighted  instructors.
> Vejas 
> 
>>> On Sep 15, 2016, at 17:39, Bridgit Kuenning-Pollpeter via stylist
>> <stylist at nfbnet.org> wrote:
>> 
>> My husband worked a summer at the Kansas center, when they had one, 
>> and I spent a week there. Students were advised to leave canes at the 
>> door of the cafeteria and use assistance either from sighted staff or 
>> partially sighted students. Staff referred to totally blind students, 
>> in front of them, as the "unfortunate ones." They would say things 
>> like, "Wait for the unfortunate ones to catch up," or, "Don't exclude 
>> the unfortunate ones." While there, I was referred to with this 
>> description, and my opinion was made clear about it. Students, 
>> especially totally blind ones, were not allowed to leave the facility 
>> without sighted people, and during travel lessons, they could not 
>> venture out on routes they had not first traveled with a sighted 
>> person several times with. Students who had been at the center for 
>> months did not know their way around the facility itself, which was 
>> not huge, because this was not a skill thought necessary because 
>> sighted and partially sighted people were there to help. Staff were 
>> shocked when my husband had students, especially totally blind 
>> students, cooking on their own and cleaning up after themselves. Their 
>> training kitchen, by the way, was filthy. That was one of the first 
>> projects my husband tackled with students when there. They were 
>> equally shocked when he had them travel around town without sighted
> assistance on routes they had not been on before. Many staff wanted him
> fired.
>> 
>> You can imagine what they thought of me, a totally blind person, being 
>> there, doing things their students could not do, and things they 
>> thought unsafe for blind people.
>> 
>> So yeah, while some of Vejas's story is a bit exaggerated, 
>> unfortunately, it's not far off the mark for some training centers. 
>> When Ross, my husband, visited chicago's center, it was similar. And 
>> many of the school's for the blind operate under similar philosophies.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: stylist [mailto:stylist-bounces at nfbnet.org] On Behalf Of Vejas 
>> via stylist
>> Sent: Thursday, September 15, 2016 7:25 PM
>> To: Writers' Division Mailing List <stylist at nfbnet.org>
>> Cc: Vejas <alpineimagination at gmail.com>
>> Subject: Re: [stylist] Story, "Help is On the Way"
>> 
>> Hi Debbie,
>> No, I have not had any personal experience with a center such as this 
>> one. I am a Louisiana Center for the Blind graduate, and thought that 
>> this would definitely be a problem, me overexaggerating some things. I 
>> based it off things I'd heard. People at seminar when I was at LCB 
>> were talking about how in a lot of places, totally blind students are 
>> treated with less respect, hence the idea of a "mentor" needing to hold
> their hand.
>> I did, however, tour several centers in California for my 
>> justification letter for rehab. The expectations seemed rather low.
>> Vejas
>> 
>>> On Sep 14, 2016, at 06:47, debby via stylist <stylist at nfbnet.org> wrote:
>>> 
>>> I have a couple -ts. I'm not an editor so I won't talk about sentence
>> structure and all that. Have you reY been to a Center like the one you 
>> write about? I've been to a non-federation center and it wasn't like that
> at all.
>> It just felt a below exaggerated to me. But I really do like the character
>> of Maddie.    Debby
>>> 
>>>> On Sep 13, 2016 12:38 PM, Vejas Vasiliauskas via stylist
>> <stylist at nfbnet.org> wrote:
>>>> 
>>>> Hi All,
>>>> I really would like to get back to writing, so I have written the 
>>>> following piece, which I have attached as a Word document and will 
>>>> hopefully go into the email.
>>>> This is a very rough draft.  Any constructive criticism would be 
>>>> appreciated "as well as positive ones, obviously).  I feel that the 
>>>> potential main issue with this story is that I have made too much 
>>>> effort to prove a specific point about the center that is the main 
>>>> focus of this piece.
>>>> Enjoy! 
>>>> Vejas
>>>> Help Is On the Way
>>>> 
>>>> by Vejas Vasiliauskas
>>>> Prologue
>>>> My name is Fiona Itube.  I'm 18 years old, and I live in Montpelier, 
>>>> Vermont.  I have been blind all my life, but beyond getting good 
>>>> grades in school, expectations weren't that important to my parents.
>>>> People all throughout my school career were always willing to let me 
>>>> hold their hands; my cane was always in my other hand, though I 
>>>> admit that I never learned to use it.
>>>> I was indifferent to receiving blindness training, and so were my 
>>>> parents.  It was really my teacher for the visually impaired, Ellie, 
>>>> who insisted I go.  I thought she was a nutty radical, but I applied 
>>>> for the Department of Rehab so that I could get into the Better 
>>>> Blind training center.
>>>> But I never knew what blindness training was, until I met Maddie 
>>>> Maddox.
>>>> Chapter 1
>>>> My start date was September 27.  My parents helped me set up.  I 
>>>> take that back, they set up for me, while I Whats-apped my best 
>>>> friend, Fern Allow.  Fern and I were supposed to have spent the 
>>>> summer together and all that, but then her parents decided that it 
>>>> would be really fun in Italy, so that's where they decided to go.
>>>> After my parents finished unpacking me, they hugged me. 
>>>> "Welove you so much," Dad said.  "Let us know if you need anything."
>>>> "See if there's anyone you want to meet outside," Mom suggested.  
>>>> "You should bring your cane, it will probably make you look better."
>>>> I grabbed my cane and, sure enough, I didn't have to go far.  A girl 
>>>> walked up to me.
>>>> "Hi, I'm Francesca, call me Frankie," she said, but her tone of 
>>>> voice sounded cold.  Finally she asked, "Is that a stick?"
>>>> "Yes, it is," I explained, "but we call it a cane." 
>>>> "Oh." She huffed.  "These.  So, you mean, you're totally blind." 
>>>> "So?" 
>>>> "Well," she said hesitantly, "I will explain this because you are 
>>>> new, but typically we don't regard you kind of people very well."
>>>> "Will I get bullied?" 
>>>> "Not really bullied per se, but we're supposed to have one and it's 
>>>> quite a job.  I'm yours.  Whenever we have to go anywhere, I need to 
>>>> hold your hand to take you there.
>>>> "And also, we do have to use these things, but we call them sticks.  
>>>> Canes, we consider way too radical."
>>>> Chapter 2
>>>> I got really used to the way of life at the center.  I learned and 
>>>> understood that, as a totally blind person, I would never be 
>>>> altogether too successful.  We were told our center's welcome sign 
>>>> over and over again.
>>>> Help Is on the Way For Blind People
>>>> What to Do to Get a Sighted Person's Attention 1.  Look lost, even 
>>>> if you know where you're going.
>>>> 2.  Smile, always smile.  Maybe you will charm a sighted person into 
>>>> giving you a job.
>>>> 3.  Accept the fact that this will always be your life. 
>>>> We were also told that in a few years, surgery would allow us to 
>>>> gain sight and lead a better life.
>>>> Chapter 2
>>>> "Honey, I'm so, so sorry," Lesley Clockhammer, the director of the 
>>>> blindness center, told me as she looked at my apartment.  She looked 
>>>> around.  "Did Maggie clean your apartment?"
>>>> "Yes, she did," I said, "but I spilled grape juice all over and 
>>>> didn't know what to do."
>>>> "Oh, that's OK," Lesley laughed.  "I'll call her right now to get 
>>>> back and clean it up.  If I don't, we could have some problems."
>>>> She sighed.  "Anyway, I'm so sorry but you are going to be getting a 
>>>> new roommate in a couple of hours.  Her name is Maddie Maddox and 
>>>> she is from St.  Albans, Vermont.  I know people like to have their 
>>>> privacy.  I'm so, so sorry."
>>>> Maddie impressed me from the start.  For starters, she didn't come 
>>>> with her parents.  Lesley and Maggie, the cleaner, fussed all over 
>>>> her.
>>>> "Nope, I can do it myself," Maddie said over, and over, and over 
>>>> again.
>>>> When they finally left, Maddie came over to my room. 
>>>> "How's life here, Fiona?" she asked me. 
>>>> "It's fine, I guess.  For a blindness training center." 
>>>> "I really wanted to go to Ruston, Louisiana for the Louisiana Center 
>>>> for the Blind," Maddie explained.  "But my Department of 
>>>> Rehabilitation absolutely insistedon no.  My dad is friends with 
>>>> Lesley Clockhammer's husband, and they said I could come here for 
>>>> free! I hope that I at least can have some great experiences."
>>>> It didn't look like it.  Later, as the day progressed, I saw that 
>>>> there was very little that could satisfy Maddie Maddox.
>>>> "No," she insisted to her mentor, Davina.  "I don't need any help, 
>>>> thank you very much! I can walk to the dining hall all by myself."
>>>> "With this stick thing?" 
>>>> "Yes, it's called a cane," Maddie said, "and it's here to help me.  
>>>> Do you have any sight?"
>>>> "Some," Davina said meekly. 
>>>> "I find it helps me and it should help you too," explained Maddie.  
>>>> "That certainly beats stumbling around."
>>>> Davina retreated. 
>>>> "I got what I wanted!" Maddie was happy.  "Fiona, you need to tell 
>>>> your mentor person similarly."
>>>> "I'm too scared to." 
>>>> "Oh, come on, girl, you need to learn to speak up for yourself." 
>>>> "Frankie," I said when she came by for dinner, "I would like to use 
>>>> my cane from now on.  Thank you for being my mentor."
>>>> "Suit yourself," she said and walked off. 
>>>> "See? It was easy!" Maddie cheered.  "Let's go for dinner!" 
>>>> Chapter 3
>>>> Julia Spinner, the kitchen instructor, came into our apartment at
>>>> 10 for kitchen class.  I was still sleeping. 
>>>> "You missed breakfast," she said.  "No worries, though.  Do you want 
>>>> some privacy to change, or would you like me to dress you?"
>>>> From the kitchen, Maddie snickered. 
>>>> "I'll dress myself, thanks," I said. 
>>>> "Cool.  I have a spinach cheddar bake for you to make." 
>>>> "Spinach and cheddar is awesome!" Maddie said.  She was writing out 
>>>> an ingredients list for the center's grocery store on a large, 
>>>> old-fashioned typewriter-like machine.  "I love helping my mom make 
>>>> spinach quiche!"
>>>> Julia laughed.  "Oh, that's the funniest thing I've heard all day! 
>>>> No, you're supposed to put it in the oven for 45 minutes."
>>>> "Got it," I said. 
>>>> "Just curious," Maddie said, "but what are you having Fiona do for 
>>>> the next 45 minutes?"
>>>> "The waiting game," Julia explained patiently.  "As a blind person, 
>>>> you need to learn to spend more time waiting and less on your mobile 
>>>> devices."
>>>> Chapter 4
>>>> "I'm disgusted with this center!" Maddie ranted and raved that night.  
>>>> "If I didn't have any self-motivation, I don't think I'd be anywhere! 
>>>> I was hoping that I could help others in a positive way, and, Fiona, 
>>>> you have come such a long way.  But I guess not."
>>>> Maddie had been lectured by Lesley Clockhammer that she was 
>>>> "overdoing it", and "expressing a form of free thinking which served 
>>>> as a threat to the center." But then Maddie calked down.
>>>> "I'm going to get permission to go to the National Federation of the 
>>>> Blind convention in Orlando this year," she twittered excitedly.  "I 
>>>> have always gone to them, and they are amazing! I learn so much?"
>>>> "How are you going to do that?" I asked.  You needed a day pass to 
>>>> go anywhere.
>>>> "Both of my grandparents are conviently going to die that day," 
>>>> Maddie explained, "so I have no option but to go to their funeral.  
>>>> That's actually what my grandparent suggested.  There's no other way 
>>>> I can think of that the center would let me go."
>>>> "Don't you feel strange ly-?was
>>>> "You gotta do what you gotta do." Maddie sighed.  "But I can't 
>>>> believe that this is a 9-month program, and the convention is not 
>>>> for another 7."
>>>> "Tell me more about this NFB." 
>>>> So that's what we talked about all night.  This organization wasn't 
>>>> full of crazy radicals; they actually wanted more expectations of 
>>>> blind students so that they could live a happy and fulfilled 
>>>> lifestyle.
>>>> Chapter 5
>>>> A month later, and I was even closer to Maddie.  On the outside, we 
>>>> did what was required: hold our mentors' hands and, in my case, that 
>>>> of my new mentor Caroline-thank God Frankie graduated.
>>>> But on the outside, we did what we could.  We split the money to buy 
>>>> pots, pans and other everyday uses for the kitchen, so that we could 
>>>> cook for ourselves.  We cleaned and cleaned and cleaned, so much so 
>>>> that Maggie had nothing to do.  One day she told us that she hated 
>>>> this job, that she knew students could do much better, but coming to 
>>>> our apartment made her day.
>>>> It was an ordinary Saturday night when I was woken up by my phone 
>>>> vibrating to signalize a text from Maddie.
>>>> "Hi Fiona it's me.  I have decided to leave.  I just can't take it 
>>>> anymore.  I am going to fight for the Louisiana Center for the Blind 
>>>> and while I wait, I will do what I can.  Good luck.  Talk to me 
>>>> anytime."
>>>> And at that point I knew what to do.  I pulled out my suitcases and 
>>>> began to pack them.
>>>> The End
>>>> 
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