[blindkid] O & M evaluation, FVA
leah at somazen.com
Fri Apr 3 22:57:23 UTC 2009
This is all just opinion from a mom of a just-turned 4-year-old.
If my child could walk and had the vision you listed, I would actually
get a long white cane before even requesting the O&M eval. I would
request the eval, and request services. But, I would be prepared in
case the O&M instructor felt that my child might not need a cane, or
should only have it during lessons, etc. If that happened, I would buy
Joe Cutter's new book and read it and get together with a blind friend
and watch how they used their cane, and I would give my child the cane
for use all the time. But that's just me. And my child is currently
You said it appears that he may be having trouble with balance
outside. Is there any indication with his diagnosis that kids can have
any sort of inner or middle ear malformation? A balance problem is
definitely something to watch out for and get help with. Besides that,
though, maybe he has his hands up to protect himself or to prepare for
I have a balance problem, and I am sighted. I can't balance in open
spaces. The way it looks when I go out is: I try to sit/walk where I
am very close to a wall all the time, or else holding someone's hand.
I don't know if it is exactly echolocation, but I can balance by
feeling the sounds bouncing off close objects (and by vision). I don't
put my arms up in the air, but then kids might do that more than
adults for balance fear. But, if I am playing a game outside with my
daughter where I have to walk around with my eyes closed, then I
instinctively put my hands up in the air. It's funny, when we went on
a blindfolded cane walk at the TX state convention, I thought I was
going to want to put my hands up in the air, but with the cane in my
hand I felt a lot safer and like I could relax my arms.
The differences you stated between indoors and outdoors could provide
some clues for you over time. The cane is such a simple tool, and
there are so many cane users, that I would just try it and continue to
evaluate for a balance problem over time. There can be solutions if
one is found.
<<Jack has fine motor issues which may make holding a cane difficult.
fingers don?t bend. His hands are small.>>
I am guessing you could totally adapt. Get the lightest weight cane,
and get help to make a handhold that works for Jack's hand. If some
educational professional feels that the hand issues are something they
don't know how to deal with with cane use, you can be the expert on
Jack and try to create something. It would be so nice if the
professionals were always ready for our complex kids, but in my
experience, often they're not, and mom has to step in with that
special motivation and expertise to find a practical answer.
<<Jack navigates his current preschool environment just fine except
needs physical assistance descending stairs and curbs. He needs verbal
for going up curbs and surface changes. >>
This is where the cane helps. He won't have to hold it all the time;
he will soon find when he is not needing it to set it somewhere where
he knows where it is.
Going to state or national NFB convention is the best place to just
watch and absorb all the different people using their canes. I learned
so much at our state convention.
<< Since then, I asked for another
FVA but was told that they are done only every three years or unless
is a significant change. >>
There was a significant change because you got accurate data on his
vision for the very first time, and it was very different from the
information you had before. I would request one and I would ask for an
experienced, mentor TVI to do it together with your TVI. One reason
for this is the comment that you made about the TVI stating that he
would be a visual learner when the information at the time indicated
he was legally blind. I would hope for more information than just a
statement like that. John has had one yearly, even though it is only
required every three years, and he has had a mentor TVI present each
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