[blindkid] Arianna's new battle

janice jordan jjordan_pa at yahoo.com
Tue Apr 7 06:24:06 UTC 2009

Some of you know that my little girl, Arianna, was born blind due to a rare disease of the bones (osteopetrosis) and she underwent a then experimental bone marrow transplant to prolong her precious life. June would mark her 7th anniversary of success. She has been a real trooper through it all. Well, today we received some not-so-good news during a routine ultra-sound. They found a large tumor on her left kidney. We have a surgical consult tomorrow and surgery scheduled for Wednesday to remove the tumor and the kidney.  You have all become like family to me, to us and I felt a need to share with the group. You all have helped me make some very important decisions regarding her schooling, her social interactions and her general well-being. Thank you all, for sharing with me and allowing me to make more informed decisions regarding Ari's life. I look forward to lots more wisdom and true-life experiences from you all.
Janice and Ari


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