[blindkid] Arianna's new battle

[Mark Feliz]

Dear Janice,

I know you will make the best decisions for Ari. Always remember to be 
confident and comfortable in whatever you do.

Mark Feliz
Mark Feliz

HAPPY DOTS BRAILLE SERVICES

First Vice-PRESIDENT, NATIONAL FEDERATION OF THE BLIND OF ARIZONA
EAST VALLEY CHAPTER

1038 WEST HILLVIEW STREET
MESA, ARIZONA  85201

VOICE: 480-890-8943
FAX: 480-835-3036
----- Original Message ----- 
From: "janice jordan" <jjordan_pa at yahoo.com>
To: <blindkid at nfbnet.org>
Sent: Monday, April 06, 2009 11:24 PM
Subject: [blindkid] Arianna's new battle


Some of you know that my little girl, Arianna, was born blind due to a rare 
disease of the bones (osteopetrosis) and she underwent a then experimental 
bone marrow transplant to prolong her precious life. June would mark her 7th 
anniversary of success. She has been a real trooper through it all. Well, 
today we received some not-so-good news during a routine ultra-sound. They 
found a large tumor on her left kidney. We have a surgical consult tomorrow 
and surgery scheduled for Wednesday to remove the tumor and the kidney. You 
have all become like family to me, to us and I felt a need to share with the 
group. You all have helped me make some very important decisions regarding 
her schooling, her social interactions and her general well-being. Thank you 
all, for sharing with me and allowing me to make more informed decisions 
regarding Ari's life. I look forward to lots more wisdom and true-life 
experiences from you all.

Janice and Ari



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