[blindkid] Arianna's new battle

jjordan_pa at yahoo.com jjordan_pa at yahoo.com
Thu Apr 9 02:24:03 UTC 2009


Carrie and Blindkid Family & friends:

Thank you all for your love, support and prayers with Ari's surgery. Tumor was bigger than they anticipated and appears to not be a Wilm's but does look malignant. Will know more by Friday (preliminary report) and final by next week but I am not going to worry at this point. One day at a time.  She is currently in ICU well sedated for pain.  She has stolen the hearts of all the staff with her resiliency and cheerful spirit. I will keep you posted. Janice

PS: I am getting these emails on my Blackberry and many are being screened as spam.  I will check my email from a computer and settings. Thank you to all for even those I have not received nor read. You are all blessings to us. 
Sent via BlackBerry by AT&T

-----Original Message-----
From: "Carrie Gilmer" <carrie.gilmer at gmail.com>

Date: Wed, 8 Apr 2009 19:33:33 
To: 'NFBnet Blind Kid Mailing List,\(for parents of blind children\)'<blindkid at nfbnet.org>
Subject: Re: [blindkid] Arianna's new battle


I rejoice the surgery was successful and she is holding her own. Good bye
tumor! Prayers will continue!
 We breathe a breath of relief and joy with you Janice. Maybe your email
missed it but there were many others who posted and prayed too. Thank you
God.

Keep us updated.
Love,

 
 
Carrie Gilmer, President
National Organization of Parents of Blind Children
A Division of the National Federation of the Blind
NFB National Center: 410-659-9314
Home Phone: 763-784-8590
carrie.gilmer at gmail.com
www.nfb.org/nopbc

-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of jjordan_pa at yahoo.com
Sent: Wednesday, April 08, 2009 5:38 PM
To: NFBnet Blind Kid Mailing List,(for parents of blind children)
Subject: Re: [blindkid] Arianna's new battle

Debby, Carrie, Leah & robert:  Tumor is out and she is holding well. Thank
you, you wonderful people for your support and prayers. 
Sent via BlackBerry by AT&T

-----Original Message-----
From: Debby B <bwbddl at yahoo.com>

Date: Tue, 7 Apr 2009 10:13:18 
To: NFBnet Blind Kid Mailing List,\(for parents of blind
children\)<blindkid at nfbnet.org>
Subject: Re: [blindkid] Arianna's new battle


Praying that all goes well with Ari's surgery and that she's able to make a
full recovery quickly. It's so hard when our little ones are so sick.

 Debby 
bwbddl at yahoo.com
www.nfbflorida.org/parents

Please support Braille literacy and programs for our youth by sponsoring me
in
the Motor City March for Independence! Better yet, join the team of the FL
Parents of Blind Children!
http://www.marchforindependence.org/goto/debbyb




________________________________
From: janice jordan <jjordan_pa at yahoo.com>
To: blindkid at nfbnet.org
Sent: Tuesday, April 7, 2009 2:24:06 AM
Subject: [blindkid] Arianna's new battle

Some of you know that my little girl, Arianna, was born blind due to a rare
disease of the bones (osteopetrosis) and she underwent a then experimental
bone marrow transplant to prolong her precious life. June would mark her 7th
anniversary of success. She has been a real trooper through it all. Well,
today we received some not-so-good news during a routine ultra-sound. They
found a large tumor on her left kidney. We have a surgical consult tomorrow
and surgery scheduled for Wednesday to remove the tumor and the kidney.  You
have all become like family to me, to us and I felt a need to share with the
group. You all have helped me make some very important decisions regarding
her schooling, her social interactions and her general well-being. Thank you
all, for sharing with me and allowing me to make more informed decisions
regarding Ari's life. I look forward to lots more wisdom and true-life
experiences from you all.
 
Janice and Ari


      
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/bwbddl%40yahoo.com



      
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/jjordan_pa%40yahoo
.com
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/carrie.gilmer%40gm
ail.com


_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/jjordan_pa%40yahoo.com


More information about the BlindKid mailing list