[blindkid] Conformer question?

[Nelly Gamino]

Laurie, my son (7 years old) wore a conformer for a couple of years and is now on to prosthetic (painted conformer) eye. He also has microphthalmia. And the conformer does help to keep the eye socket growing in relation to the child's face which will be important for cosmetic purposes as she grows up.  What state are you in? How old is your daughter? ican - international children's anophthalmia/microphthalmia network is having a conference in LA in June if you are interested in attending please contact me. There will be tons of information, a free clinic at the children's hospital, workshops and research updates by the genetecists who work with us. 

 

Nelly
 
> To: blindkid at nfbnet.org
> Date: Wed, 13 May 2009 22:12:30 -0400
> From: dhammelia at aol.com
> Subject: Re: [blindkid] Conformer question?
> 
> 
> I'm sure my wife will weigh in on this as she has prosthetic eyes which are the end result after having conformers.
> 
> Our two adopted children also have conformers they have the same condition as my wife microopthalmia (small eyes).
> 
> They don't take the conformers out except once in a great while to clean them or if they fall out.
> 
> They do act to protect the eye as well as increase the eye socket to normal size.
> 
> Initially they have to be increased in size several times as the eye socket grows.
> 
> Eventually they become stable and then can be replaced by a prosthetic eye which appears just like a normal eye.
> 
> I would recommend them.
> 
> David Hammel
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> -----Original Message-----
> From: Laurie Burns <lburns24 at yahoo.com>
> To: blindkid at nfbnet.org
> Sent: Wed, 13 May 2009 8:30 pm
> Subject: [blindkid] Conformer question?
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> Hi there,
> Is anyone familiar with conformers?? Our eye doctor suggested it for our 
> daughter to help keep the eyes healthy.? Hannah is completely blind.? She 
> explained that these conformers will help to keep the eye healthy and growing.? 
> If we do nothing, then eventually her eyes may start to set back in her head 
> further and further.? SHe also said that the eyelids/eyes don't grow and this 
> helps to stretch out the eye area/lids to make her look more "normal".? They are 
> a hard, clear,?plastic shell that you insert over the eye.? Eventually you can 
> have them painted different colors if you want.? I hope this makes sense and 
> someone else has gone through this?? I was just wondering if this is necessary, 
> cosmetic, a good idea???? Any thoughts would be helpful!? Thank you!? Laurie 
> Wages
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> ?
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