[blindkid] Conformer question?

[vickie.pellicciotti at aglife.com]

This is probably a dumb question...My daughter is also totally blind.  She
rubs her eyes a lot and is getting shadows under her eyes, but I was never
aware that the development of the bone structure would be an issue.  She is
now 13.   Her eyes are there...she has Leber's congenital amarousis (re;
the retina)....would you still use these conformers?
Should children be evaluated by an ocularist or a medical eye doctor?

Vickie



                                                                           
             Kathy B                                                       
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Hi.
My daughter is totally blind as well. She has had conformers for almost 2
yrs now if not longer.  I strongly recommend them. W/o them her eyes are
sunken in and very small.  She bone structure would be very underdeveloped
if she didn't have them.  The eyes look real and she has never shown any
signs of being in pain or having discomfort from them.  I hope this helps.




________________________________
From: Laurie Burns <lburns24 at yahoo.com>
To: blindkid at nfbnet.org
Sent: Wednesday, May 13, 2009 9:30:30 PM
Subject: [blindkid] Conformer question?

Hi there,
Is anyone familiar with conformers?  Our eye doctor suggested it for our
daughter to help keep the eyes healthy.  Hannah is completely blind.  She
explained that these conformers will help to keep the eye healthy and
growing.  If we do nothing, then eventually her eyes may start to set back
in her head further and further.  SHe also said that the eyelids/eyes don't
grow and this helps to stretch out the eye area/lids to make her look more
"normal".  They are a hard, clear, plastic shell that you insert over the
eye.  Eventually you can have them painted different colors if you want.  I
hope this makes sense and someone else has gone through this?  I was just
wondering if this is necessary, cosmetic, a good idea???  Any thoughts
would be helpful!  Thank you!  Laurie Wages






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