[blindkid] New member

[Carol Castellano]

Hi Lesley,

I don't have any information on the eye test, but I wanted to welcome 
you to the list and to our organization.  I hope that we will be of 
assistance and support to you and your family.  Have you signed up to 
receive our magazine Future Reflections?

Best wishes,

Carol

Carol Castellano, President
National Organization of Parents of Blind Children
973-377-0976
carol_castellano at verizon.net
www.nfb.org/nopbc


At 08:31 AM 10/21/2009, you wrote:
>Hello,
>I am new to the group. I have a 13 year old daughter with Bardet-Biedl
>Syndrome. We live in MN. Kristy is legally blind. I have a question
>regarding tests that the eye doctor wants to do on her eyes due to her fast
>vision loss compared to last year. She has RP from the syndrome & we were
>told by a different doctor last year not to allow any test to be done on her
>eyes that a bright light is shined into them because it speeds up the RP
>leading to faster deterioration of what vision she has left. Can anyone help
>with advise regarding this?
>Thanks
>Lesley
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