[blindkid] ERG questions

[Lenora J. Marten]

Maybe they've improved the procedure since Eric's was done.
That would be nice! 



Lenora 



-----Original Message-----
From: Marie <empwrn at bellsouth.net>
To: Blindkid email <blindkid at nfbnet.org>
Sent: Tue, Aug 17, 2010 2:01 pm
Subject: Re: [blindkid] ERG questions


Hmmm....Jack had an ERG awake and without straps. Wonder what the difference is? 
'll send a link to my erg post from my computer when I am able to get to it.
r you can enter ERG in the search box on my blog if you don't want to wait...
Marie (mother of Jack born May 2005)
ee glimpses of life with my determined son who is developing in his own way at 
is own time at http://allaccesspasstojack.blogspot.com 
ent from my Verizon Wireless BlackBerry
-----Original Message-----
rom: "Lenora J. Marten" <bluegolfshoes at aol.com>
ender: blindkid-bounces at nfbnet.org
ate: Tue, 17 Aug 2010 13:47:43 
o: <blindkid at nfbnet.org>
eply-To: "NFBnet Blind Kid Mailing List,
   \(for parents of blind children\)" <blindkid at nfbnet.org>
ubject: Re: [blindkid] ERG questions

here are two types of ERG's. One where the anesthesia is used and the more 
xtensive ERG is done when the
hild is awake. I do know that the doctor is able to determine much more when 
he child is awake. They place
hat looks like extra large hard contacts over each eye. In the middle of the 
ontact is a probe which is attached
o a wire which is attached to a machine. The reason they try using anesthesia 
irst is that the child cannot move 
uring the test. When Eric had the extensive ERG done, he was strapped to the 
able so tight that he couldn't 
ossibly move anything. He was only 5 so they left a spot open on his stomach 
ig enough for me to rub it during
he test so he didn't freak out. He had an ERG done under anesthesia when he was 
ust a few months old, and 
hat's when the Pediatric Neuro-Ophthalmologist incorrectly determined that 
here was nothing wrong with him. 
 would recommend trying the anesthesia first as it is much less traumatic. But 
f the results are undetermined,
 would ask for the more extensive ERG. 

Lenora 

----Original Message-----
rom: Doreen <doreenproverbs3 at bellsouth.net>
o: NFBnet Blind Kid Mailing List,(for parents of blind children) 
blindkid at nfbnet.org>; BVI-Parents at yahoogroups.com
ent: Mon, Aug 16, 2010 5:46 pm
ubject: [blindkid] ERG questions

i, 
ur 5yr old daughter is having an ERG done in a few weeks. Her pressures were 
igh when the ophthalmologist did the annual exam under anesthesia but mainly 
er acuities have declined drastically without any "reason." The doc was hoping 
o find some kind of an answer for the decline during the exam under anesthesia 
ut did not. (The docs did not "see" glaucoma when comparing her photos of a 
ear ago to this exam; they also found that the macula, retina, optic nerves and 
rainage canals are good.) The ophthalmologist is now ordering an ERG. I have 
otten the information from Bascom Palmer (where she goes for her 
phthalmologist's exams) on what will be done and have googled it also. 
Pressures were: March 09 - near 20/70, distance 20/100; Aug 09 - distance 
0/160OD, 20/250 OS; July 2010 - 20/800 near, 20/400 distance. They also 
eclined in Oct and Dec 2009 but she had been in school for the full day, then 
aw the ophthalmologist which "could" have explained the decrease then. T
he 20/800 and 20/400 are "not explainable" as it is summer time and she was in 
he doc's office at about the same time as normal, so not much fatigue due to 
aving to do work in school). 

 am wondering if anyone's child has had this done and what your experience has 
een. We are looking for any kind of information. She will have to go under 
nesthesia again for the ERG (electroretinography) and the doc may or may not be 
ble to get intraocular pressures as well as doing the ERG. 

hank you .... your help is greatly appreciated! 
oreen 


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