[blindkid] Low Vision Clinic

elizaellett at yahoo.com elizaellett at yahoo.com
Tue Sep 14 15:06:17 UTC 2010


Hello,
 So we just went to our daughter's first low vision clinic appt and I'm not surprised by the results, but I am a little confused about a few things. First off she tested at 20/300, we'll take that, she's only 2yrs old, and they said she could possibly make it up to 20/200-20/100!!!! Briefly about Miranda, she is a very stubborn, determined, humorous, and devilishly adorable little girl. She was born with cong cataracts, aniridia, foveal hypo, optic disc abnormalities, optic nerve colobomas, mild microapthalmia, and is moderate to severely deaf in both ears. So her pressures have been fluctuating a bit the last year, we're waiting to see what is going on there before placing her IOLs and helping on her pretty severe esotropia. What then though? We're trying to teach ASL and  spoken language, we're still on the fence about a cochlear implant. The next ABR will make it easier for us to decide on what path to take.  I guess back to the real question, the optometrist stated she's pretty visual, so she will definitely be a print reader and if I want to back her up with braille I could. I've always planned on her reading print, but I planned on her reading majority braille, am I wrong here? I know the difficulties associated with aniridia, I don't want her being 18 and her pressures high, possible corneal opacification and who knows what else and teaching her braille then.  I would love any ideas and thoughts, what else at this age I should be starting her on. 
Thank you for letting me put my thoughts down, my mind races A LOT!-)
Eliza
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