[blindkid] Lucy
karen muller
karenkzn at telkomsa.net
Mon Aug 1 18:12:53 UTC 2011
Hi Lucy
Yes I am on the son/sod googlegroups and thank you for emailing me back. I
had joined the blind kid site on one of the websites but didnt know how to
use it yet. The googlegroups have been a great support. Just didnt know if
the blind kid was a SA group or international . Thank you . My son is 6yrs
old in November. Partial agenisis of the corpus, hypopituritism, arachnoid
cyst, not walking or talking yet. He started spasm seizures young which
doctors ruled out Infantile spasms as it only happens with girls. He was
iron dificient and now levels are good. His meds are DDAVP, Eltroxin for
thyroid, Rivotril for seizures and now recently Covocort the stress hormone
Is there any special way of giving the covocort as maybe half hour before
meals, or doesnt it matter.? I was searching on the net as well for leg
braces , for a child that does not bare weight. Do you know if anyone uses
these for there kids ? I would love a few pics to show our orthopaedic guy
here in South Africa. They got pics but there is no knee support to keep the
knee pushed in to ensure they stand stiff upright. Would love some pics if
anyone has.
Our medical aid also didnt want to put my son on growth hormone, Humotrope
as he is growing fine but neurologically our endocrinist said it would help
him. Though the person who sits in a desk at the medical aid said no as " he
is blind already and what life has he got anyway " were her comments. I wish
I could find her !!! Thats SA for you. very backward in knowledge . I even
sent her the pdf file from Dr Borchert which didnt help. They just look at
the price of the needed item and thats that.
Was just seeing if there were any SA members here. Hope to chat to all of
you soon. PLEASE send some leg braces pics please.
regards
karen Muller
south africa
-------Original Message-------
From: blindkid-request at nfbnet.org
Date: 2011/08/01 06:19:12 PM
To: blindkid at nfbnet.org
Subject: blindkid Digest, Vol 88, Issue 1
Send blindkid mailing list submissions to
blindkid at nfbnet.org
To subscribe or unsubscribe via the World Wide Web, visit
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
or, via email, send a message with subject or body 'help' to
blindkid-request at nfbnet.org
You can reach the person managing the list at
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When replying, please edit your Subject line so it is more specific
than "Re: Contents of blindkid digest..."
Today's Topics:
1. child with ONH/SOD (lucy)
2. Re: child with ONH (Kelley R)
3. Re: child with ONH (Steve Craig)
4. Brailler repair (Sally Thomas)
5. Re: Brailler repair (Pat Renfranz)
6. Re: Brailler repair (Treva Olivero)
7. Re: Brailler repair (Mary Donahue)
8. Re: Brailler repair (Debby B)
9. Re: Brailler repair (cconley at fuse.net)
10. Re: Brailler repair (dhammelia at aol.com)
11. Re: Brailler repair (Sally Thomas)
12. Re: Brailler repair (Jaquiss, Robert)
13. Re: blindkid Digest, Vol 87, Issue 27 (Maureen Austen)
----------------------------------------------------------------------
Message: 1
Date: Sun, 31 Jul 2011 13:25:28 -0400
From: lucy <gingerlocket at hotmail.com>
To: <blindkid at nfbnet.org>
Subject: [blindkid] child with ONH/SOD
Message-ID: <SNT124-W41DD1B8CBD13271B5AC612C5390 at phx.gbl>
Content-Type: text/plain; charset="iso-8859-1"
Hi Karen,
My daughter, who is 10 yrs. has ONH/SOD, we are in NH, USA. Are you on the
Focus Families group, and there is a facebook group too.
I'm here to help, if I can!!
Lucy
> From: blindkid-request at nfbnet.org
> Subject: blindkid Digest, Vol 87, Issue 30
> To: blindkid at nfbnet.org
> Date: Sun, 31 Jul 2011 12:00:17 -0500
>
> Send blindkid mailing list submissions to
> blindkid at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> blindkid-request at nfbnet.org
>
> You can reach the person managing the list at
> blindkid-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of blindkid digest..."
>
>
> Today's Topics:
>
> 1. Re: how do you teach a child to say yes? (Bonnie Lucas)
> 2. Re: how do you teach a child to say yes? (Deborah Kent Stein)
> 3. ANY KIDS ON THE LIST WITH ONH/SOD (karen muller)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Sat, 30 Jul 2011 16:36:12 -0800
> From: "Bonnie Lucas" <lucas.bonnie at gmail.com>
> To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> children\)'" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] how do you teach a child to say yes?
> Message-ID: <4e34a38c.e730440a.6092.261d at mx.google.com>
> Content-Type: text/plain; charset="us-ascii"
>
> Wow that is such a cool example of having high expectations and helping a
> child to make something important happen. Thank you so much for sharing!
> Bonnie Lucas
> -----Original Message-----
> From: Alison Stephens [mailto:amspencer at yahoo.com]
> Sent: Saturday, July 30, 2011 5:48 AM
> To: blindkid at nfbnet.org
> Subject: Re: [blindkid] how do you teach a child to say yes?
>
> This sounds familiar. A few months ago my son was not able to say yes
> either. He also would repeat the question if he wanted it, or rephrase it
> appropriately as an answer, but could not say yes.
>
> So, his TVI invented a ball game that jumpstarted the process of learning
> this, which he can now do with no trouble. She sat with legs outstretched
> with Nate sitting in front of her, also facing forward and I sat opposite
> about 4 feet away. She helped Nate hold the ball on the floor in front of
> him while she asked "Mommy, would you like the ball?" then I would
respond,
> "Yes, please," then she would assist Nate in rolling the ball to me
across
> the floor. Once I had the ball, it was my turn to ask, "Nate, would you
> like the ball?" The TVI would then suggest to Nate that he say "yes,
> please." He didn't say it initially, so she would say it for him, and
then
> I would immediately roll the ball. We did this back and forth for about
45
> minutes (was it that long?) and by the end of play he started catching on
to
> asking the "would you like the ball" and saying "yes, please," since play
> would not proceed without the question or answer. I suppose that it
helped
> that he liked the rolling ball game.
>
> We played this game a few more times over a few weeks, and we also focused
> on saying "yes, please" at other times during the day, and he got it. The
> game really seemed to get him started with it, though.
>
> Hope that helps,
> Alison
>
>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Sat, 30 Jul 2011 19:46:11 -0500
> From: "Deborah Kent Stein" <dkent5817 at att.net>
> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
> <blindkid at nfbnet.org>
> Subject: Re: [blindkid] how do you teach a child to say yes?
> Message-ID: <013701cc4f1b$3f6afff0$d70aa8c0 at Debbie>
> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> reply-type=original
>
>
>
> In the Winter 2011 issue of Future Reflections there is an article by Mary
> McDonach called "You Can Say That Again" which includes a lot of practical
> ideas for dealing with echolalia and developing meaningful language. If
you
> don't have the hardcopy, you can find the magazine archived at www.nfb.org
> under publications.
>
> Debbie
>
> ----- Original Message -----
> From: "Steve Heesen" <steveheesen at aol.com>
> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
> <blindkid at nfbnet.org>
> Sent: Saturday, July 30, 2011 9:41 AM
> Subject: Re: [blindkid] how do you teach a child to say yes?
>
>
> > Wow, what a great idea. It is amazing how much the kiddos can learn when
> > we
> > make the process fun for them!
> >
> > Steve
> >
> > -----Original Message-----
> > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
On
> > Behalf Of Alison Stephens
> > Sent: Saturday, July 30, 2011 8:48 AM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> > This sounds familiar. A few months ago my son was not able to say yes
> > either. He also would repeat the question if he wanted it, or rephrase
it
> > appropriately as an answer, but could not say yes.
> >
> > So, his TVI invented a ball game that jumpstarted the process of
learning
> > this, which he can now do with no trouble. She sat with legs
outstretched
> > with Nate sitting in front of her, also facing forward and I sat
opposite
> > about 4 feet away. She helped Nate hold the ball on the floor in front
of
> > him while she asked "Mommy, would you like the ball?" then I would
> > respond,
> > "Yes, please," then she would assist Nate in rolling the ball to me
> > across
> > the floor. Once I had the ball, it was my turn to ask, "Nate, would you
> > like the ball?" The TVI would then suggest to Nate that he say "yes,
> > please." He didn't say it initially, so she would say it for him, and
> > then
> > I would immediately roll the ball. We did this back and forth for about
> > 45
> > minutes (was it that long?) and by the end of play he started catching
on
> > to
> > asking the "would you like the ball" and saying "yes, please," since
play
> > would not proceed without the question or answer. I suppose that it
> > helped
> > that he liked th e rolling ball game.
> >
> > We played this game a few more times over a few weeks, and we also
focused
> > on saying "yes, please" at other times during the day, and he got it.
The
> > game really seemed to get him started with it, though.
> >
> > Hope that helps,
> > Alison
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/steveheesen%40aol.
> > com
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/dkent5817%40att.net
>
>
>
>
> ------------------------------
>
> Message: 3
> Date: Sun, 31 Jul 2011 07:02:40 +0100
> From: "karen muller" <karenkzn at telkomsa.net>
> To: "organisation for parents with blind kids" <blindkid at nfbnet.org>
> Subject: [blindkid] ANY KIDS ON THE LIST WITH ONH/SOD
> Message-ID: <4E34EFFF.000001.06100 at KAREN-PC>
> Content-Type: text/plain; charset="iso-8859-1"
>
> Hi everyone
>
> I live in South AFrica. Are there any kids on the list born with ONH/SOD
??
> Hoping to chat soon.
> karen Muller
> Waterfall
>
>
>
>
> -------Original Message-------
>
> From: blindkid-request at nfbnet.org
> Date: 07/30/11 20:10:37
> To: blindkid at nfbnet.org
> Subject: blindkid Digest, Vol 87, Issue 29
>
> Send blindkid mailing list submissions to
> blindkid at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> blindkid-request at nfbnet.org
>
> You can reach the person managing the list at
> blindkid-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of blindkid digest..."
>
>
> Today's Topics:
>
> 1. Fwd: Rubin Museum Verbal Description and Touch tour:
> Thursday, August 18 (Carol Castellano)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Sat, 30 Jul 2011 14:42:04 -0400
> From: Carol Castellano <carol_castellano at verizon.net>
> To: blindkid at nfbnet.org
> Subject: [blindkid] Fwd: Rubin Museum Verbal Description and Touch
> tour: Thursday, August 18
> Message-ID: <406393.39865.qm at smtp102.vzn.mail.bf1.yahoo.com>
> Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
>
> Hi Everyone,
>
> Passing along info about what sounds like a very
> interesting verbal & touch exhibit for people in the NYC area.
>
> Carol
>
> >Subject: Rubin Museum Verbal Description and Touch tour: Thursday, August
> 18
> >Thread-topic: Rubin Museum Verbal Description and Touch tour: Thursday,
> > August 18
> >
> >Hello all, I am delighted to invite you to
> >explore our brand new exhibition, Pilgrimage and
> >Faith: Buddhism, Christianity and Islam through
> >touch and verbal description. A full description
> >of this tour follows, please help us spread the
> >word by forwarding to anyone who may be
> >interested. Please let me know if you have any
> >questions, and I hope to welcome you to the museum soon!
> >Sincerely,
> >Louise.
> >
> >VERBAL DESCRIPTION AND TOUCH TOUR
> >Pilgrimage and Faith
> >Thursday, August 18, 2011
> >2:00?3:30 pm
> >
> >This tour will take visitors on a journey
> >through the culture, history, religion, and art
> >of the Himalayas. Using highly detailed verbal
> >descriptions of works of art and touch objects,
> >including sculptures, art materials, woodblocks,
> >and ritual implements, museum guides help
> >participants form visualizations of art in the museum?s collection.
> >
> >Reservations for this program are recommended as
> >space is limited. Please contact the Group
> >Reservations office at 212.620.5000 x345 or
> ><mailto:reservations at rmanyc.org>reservations at rmanyc.org to secure your
> place.
> >
> >
> >[]
> >
> >
> >
> >
> >
> >
>
> Carol Castellano
> Director of Programs
> National Organization of Parents of Blind Children
> 973-377-0976
> carol_castellano at verizon.net
> www.nopbc.org
> -------------- next part --------------
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>
> ------------------------------
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>
>
> End of blindkid Digest, Vol 87, Issue 29
> ****************************************
> --
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>
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> ------------------------------
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
>
>
> End of blindkid Digest, Vol 87, Issue 30
> ****************************************
------------------------------
Message: 2
Date: Sun, 31 Jul 2011 16:28:04 -0400
From: Kelley R <imcollegebound2006 at hotmail.com>
To: <blindkid at nfbnet.org>
Subject: Re: [blindkid] child with ONH
Message-ID: <SNT134-W455CBB33E82F3F7F7915C9D6390 at phx.gbl>
Content-Type: text/plain; charset="iso-8859-1"
My daughter will be 3 next month and she has ONH. I have a blog about her at
http://raisingablindangel.blogspot.com/ . We live in Utah
> From: gingerlocket at hotmail.com
> To: blindkid at nfbnet.org
> Date: Sun, 31 Jul 2011 13:25:28 -0400
> Subject: [blindkid] child with ONH/SOD
>
>
>
> Hi Karen,
> My daughter, who is 10 yrs. has ONH/SOD, we are in NH, USA. Are you on the
Focus Families group, and there is a facebook group too.
> I'm here to help, if I can!!
> Lucy
>
>
>
> > From: blindkid-request at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 30
> > To: blindkid at nfbnet.org
> > Date: Sun, 31 Jul 2011 12:00:17 -0500
> >
> > Send blindkid mailing list submissions to
> > blindkid at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > blindkid-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > blindkid-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >
> >
> > Today's Topics:
> >
> > 1. Re: how do you teach a child to say yes? (Bonnie Lucas)
> > 2. Re: how do you teach a child to say yes? (Deborah Kent Stein)
> > 3. ANY KIDS ON THE LIST WITH ONH/SOD (karen muller)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Sat, 30 Jul 2011 16:36:12 -0800
> > From: "Bonnie Lucas" <lucas.bonnie at gmail.com>
> > To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> > children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <4e34a38c.e730440a.6092.261d at mx.google.com>
> > Content-Type: text/plain; charset="us-ascii"
> >
> > Wow that is such a cool example of having high expectations and helping
a
> > child to make something important happen. Thank you so much for sharing!
> > Bonnie Lucas
> > -----Original Message-----
> > From: Alison Stephens [mailto:amspencer at yahoo.com]
> > Sent: Saturday, July 30, 2011 5:48 AM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> > This sounds familiar. A few months ago my son was not able to say yes
> > either. He also would repeat the question if he wanted it, or rephrase
it
> > appropriately as an answer, but could not say yes.
> >
> > So, his TVI invented a ball game that jumpstarted the process of
learning
> > this, which he can now do with no trouble. She sat with legs
outstretched
> > with Nate sitting in front of her, also facing forward and I sat
opposite
> > about 4 feet away. She helped Nate hold the ball on the floor in front
of
> > him while she asked "Mommy, would you like the ball?" then I would
respond,
> > "Yes, please," then she would assist Nate in rolling the ball to me
across
> > the floor. Once I had the ball, it was my turn to ask, "Nate, would you
> > like the ball?" The TVI would then suggest to Nate that he say "yes,
> > please." He didn't say it initially, so she would say it for him, and
then
> > I would immediately roll the ball. We did this back and forth for about
45
> > minutes (was it that long?) and by the end of play he started catching
on to
> > asking the "would you like the ball" and saying "yes, please," since
play
> > would not proceed without the question or answer. I suppose that it
helped
> > that he liked the rolling ball game.
> >
> > We played this game a few more times over a few weeks, and we also
focused
> > on saying "yes, please" at other times during the day, and he got it.
The
> > game really seemed to get him started with it, though.
> >
> > Hope that helps,
> > Alison
> >
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Sat, 30 Jul 2011 19:46:11 -0500
> > From: "Deborah Kent Stein" <dkent5817 at att.net>
> > To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <013701cc4f1b$3f6afff0$d70aa8c0 at Debbie>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > reply-type=original
> >
> >
> >
> > In the Winter 2011 issue of Future Reflections there is an article by
Mary
> > McDonach called "You Can Say That Again" which includes a lot of
practical
> > ideas for dealing with echolalia and developing meaningful language. If
you
> > don't have the hardcopy, you can find the magazine archived at www.nfb
org
> > under publications.
> >
> > Debbie
> >
> > ----- Original Message -----
> > From: "Steve Heesen" <steveheesen at aol.com>
> > To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
> > <blindkid at nfbnet.org>
> > Sent: Saturday, July 30, 2011 9:41 AM
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> >
> > > Wow, what a great idea. It is amazing how much the kiddos can learn
when
> > > we
> > > make the process fun for them!
> > >
> > > Steve
> > >
> > > -----Original Message-----
> > > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
On
> > > Behalf Of Alison Stephens
> > > Sent: Saturday, July 30, 2011 8:48 AM
> > > To: blindkid at nfbnet.org
> > > Subject: Re: [blindkid] how do you teach a child to say yes?
> > >
> > > This sounds familiar. A few months ago my son was not able to say yes
> > > either. He also would repeat the question if he wanted it, or
rephrase it
> > > appropriately as an answer, but could not say yes.
> > >
> > > So, his TVI invented a ball game that jumpstarted the process of
learning
> > > this, which he can now do with no trouble. She sat with legs
outstretched
> > > with Nate sitting in front of her, also facing forward and I sat
opposite
> > > about 4 feet away. She helped Nate hold the ball on the floor in
front of
> > > him while she asked "Mommy, would you like the ball?" then I would
> > > respond,
> > > "Yes, please," then she would assist Nate in rolling the ball to me
> > > across
> > > the floor. Once I had the ball, it was my turn to ask, "Nate, would
you
> > > like the ball?" The TVI would then suggest to Nate that he say "yes,
> > > please." He didn't say it initially, so she would say it for him, and
> > > then
> > > I would immediately roll the ball. We did this back and forth for
about
> > > 45
> > > minutes (was it that long?) and by the end of play he started catching
on
> > > to
> > > asking the "would you like the ball" and saying "yes, please," since
play
> > > would not proceed without the question or answer. I suppose that it
> > > helped
> > > that he liked th e rolling ball game.
> > >
> > > We played this game a few more times over a few weeks, and we also
focused
> > > on saying "yes, please" at other times during the day, and he got it.
The
> > > game really seemed to get him started with it, though.
> > >
> > > Hope that helps,
> > > Alison
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/steveheesen%40aol.
> > > com
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/dkent5817%40att.net
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Sun, 31 Jul 2011 07:02:40 +0100
> > From: "karen muller" <karenkzn at telkomsa.net>
> > To: "organisation for parents with blind kids" <blindkid at nfbnet.org>
> > Subject: [blindkid] ANY KIDS ON THE LIST WITH ONH/SOD
> > Message-ID: <4E34EFFF.000001.06100 at KAREN-PC>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Hi everyone
> >
> > I live in South AFrica. Are there any kids on the list born with ONH/SOD
??
> > Hoping to chat soon.
> > karen Muller
> > Waterfall
> >
> >
> >
> >
> > -------Original Message-------
> >
> > From: blindkid-request at nfbnet.org
> > Date: 07/30/11 20:10:37
> > To: blindkid at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 29
> >
> > Send blindkid mailing list submissions to
> > blindkid at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > blindkid-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > blindkid-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >
> >
> > Today's Topics:
> >
> > 1. Fwd: Rubin Museum Verbal Description and Touch tour:
> > Thursday, August 18 (Carol Castellano)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Sat, 30 Jul 2011 14:42:04 -0400
> > From: Carol Castellano <carol_castellano at verizon.net>
> > To: blindkid at nfbnet.org
> > Subject: [blindkid] Fwd: Rubin Museum Verbal Description and Touch
> > tour: Thursday, August 18
> > Message-ID: <406393.39865.qm at smtp102.vzn.mail.bf1.yahoo.com>
> > Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
> >
> > Hi Everyone,
> >
> > Passing along info about what sounds like a very
> > interesting verbal & touch exhibit for people in the NYC area.
> >
> > Carol
> >
> > >Subject: Rubin Museum Verbal Description and Touch tour: Thursday,
August
> > 18
> > >Thread-topic: Rubin Museum Verbal Description and Touch tour: Thursday,
> > > August 18
> > >
> > >Hello all, I am delighted to invite you to
> > >explore our brand new exhibition, Pilgrimage and
> > >Faith: Buddhism, Christianity and Islam through
> > >touch and verbal description. A full description
> > >of this tour follows, please help us spread the
> > >word by forwarding to anyone who may be
> > >interested. Please let me know if you have any
> > >questions, and I hope to welcome you to the museum soon!
> > >Sincerely,
> > >Louise.
> > >
> > >VERBAL DESCRIPTION AND TOUCH TOUR
> > >Pilgrimage and Faith
> > >Thursday, August 18, 2011
> > >2:00?3:30 pm
> > >
> > >This tour will take visitors on a journey
> > >through the culture, history, religion, and art
> > >of the Himalayas. Using highly detailed verbal
> > >descriptions of works of art and touch objects,
> > >including sculptures, art materials, woodblocks,
> > >and ritual implements, museum guides help
> > >participants form visualizations of art in the museum?s collection.
> > >
> > >Reservations for this program are recommended as
> > >space is limited. Please contact the Group
> > >Reservations office at 212.620.5000 x345 or
> > ><mailto:reservations at rmanyc.org>reservations at rmanyc.org to secure
your
> > place.
> > >
> > >
> > >[]
> > >
> > >
> > >
> > >
> > >
> > >
> >
> > Carol Castellano
> > Director of Programs
> > National Organization of Parents of Blind Children
> > 973-377-0976
> > carol_castellano at verizon.net
> > www.nopbc.org
> > -------------- next part --------------
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> > URL: <http://www.nfbnet.org/pipermail/blindkid_nfbnet
> > org/attachments/20110730/b8b2ca47/attachment.png>
> >
> > ------------------------------
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >
> >
> > End of blindkid Digest, Vol 87, Issue 29
> > ****************************************
> > --
> > This message has been scanned for viruses and
> > dangerous content by Pinpoint, and is
> > believed to be clean.
> >
> > -------------- next part --------------
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org/attachments/20110731/22a1620d/attachment-0001.gif>
> >
> > ------------------------------
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >
> >
> > End of blindkid Digest, Vol 87, Issue 30
> > ****************************************
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/imcollegebound2006%40hotmail.com
------------------------------
Message: 3
Date: Sun, 31 Jul 2011 14:45:04 -0700 (PDT)
From: Steve Craig <ipd4life2006 at yahoo.com>
To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] child with ONH
Message-ID:
<1312148704.55040.YahooMailClassic at web161807.mail.bf1.yahoo.com>
Content-Type: text/plain; charset=iso-8859-1
My daughter is 14 and attends the Indiana School for the Blind and Visually
Impaired. She too is ONH/SOD. If you have any questions, I would be happy to
relay some of our experiences.
Steven L. Craig
--- On Sun, 7/31/11, Kelley R <imcollegebound2006 at hotmail.com> wrote:
From: Kelley R <imcollegebound2006 at hotmail.com>
Subject: Re: [blindkid] child with ONH
To: blindkid at nfbnet.org
Date: Sunday, July 31, 2011, 3:28 PM
My daughter will be 3 next month and she has ONH. I have a blog about her at
http://raisingablindangel.blogspot.com/ . We live in Utah
> From: gingerlocket at hotmail.com
> To: blindkid at nfbnet.org
> Date: Sun, 31 Jul 2011 13:25:28 -0400
> Subject: [blindkid] child with ONH/SOD
>
>
>
> Hi Karen,
> My daughter, who is 10 yrs. has ONH/SOD, we are in NH, USA. Are you on the
Focus Families group, and there is a facebook group too.
> I'm here to help, if I can!!
> Lucy
>
>?
>
> > From: blindkid-request at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 30
> > To: blindkid at nfbnet.org
> > Date: Sun, 31 Jul 2011 12:00:17 -0500
> >
> > Send blindkid mailing list submissions to
> > ??? blindkid at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > ??? http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > ??? blindkid-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > ??? blindkid-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >
> >
> > Today's Topics:
> >
> >? ? 1. Re: how do you teach a child to say yes? (Bonnie Lucas)
> >? ? 2. Re: how do you teach a child to say yes? (Deborah Kent Stein)
> >? ? 3. ANY KIDS ON THE LIST WITH ONH/SOD (karen muller)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Sat, 30 Jul 2011 16:36:12 -0800
> > From: "Bonnie Lucas" <lucas.bonnie at gmail.com>
> > To: "'NFBnet Blind Kid Mailing List,??? \(for parents of blind
> > ??? children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <4e34a38c.e730440a.6092.261d at mx.google.com>
> > Content-Type: text/plain;??? charset="us-ascii"
> >
> > Wow that is such a cool example of having high expectations and helping
a
> > child to make something important happen. Thank you so much for sharing!
> > Bonnie Lucas
> > -----Original Message-----
> > From: Alison Stephens [mailto:amspencer at yahoo.com]
> > Sent: Saturday, July 30, 2011 5:48 AM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> > This sounds familiar.? A few months ago my son was not able to say yes
> > either.? He also would repeat the question if he wanted it, or rephrase
it
> > appropriately as an answer, but could not say yes.
> >
> > So, his TVI invented a ball game that jumpstarted the process of
learning
> > this, which he can now do with no trouble.? She sat with legs
outstretched
> > with Nate sitting in front of her, also facing forward and I sat
opposite
> > about 4 feet away.? She helped Nate hold the ball on the floor in front
of
> > him while she asked "Mommy, would you like the ball?"? then I would
respond,
> > "Yes, please,"? then she would assist Nate in rolling the ball to me
across
> > the floor.? Once I had the ball, it was my turn to ask, "Nate, would you
> > like the ball?"? The TVI would then suggest to Nate that he say "yes,
> > please."? He didn't say it initially, so she would say it for him, and
then
> > I would immediately roll the ball.? We did this back and forth for about
45
> > minutes (was it that long?) and by the end of play he started catching
on to
> > asking the "would you like the ball" and saying "yes, please,"? since
play
> > would not proceed without the question or answer.? I suppose that it
helped
> > that he liked the rolling ball game.
> >
> > We played this game a few more times over a few weeks, and we also
focused
> > on saying "yes, please" at other times during the day, and he got it.?
The
> > game really seemed to get him started with it, though.
> >
> > Hope that helps,
> > Alison
> >
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Sat, 30 Jul 2011 19:46:11 -0500
> > From: "Deborah Kent Stein" <dkent5817 at att.net>
> > To: "NFBnet Blind Kid Mailing List,??? \(for parents of blind children\)
> > ??? <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <013701cc4f1b$3f6afff0$d70aa8c0 at Debbie>
> > Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> > ??? reply-type=original
> >
> >
> >
> > In the Winter 2011 issue of Future Reflections there is an article by
Mary
> > McDonach called "You Can Say That Again" which includes a lot of
practical
> > ideas for dealing with echolalia and developing meaningful language.? If
you
> > don't have the hardcopy, you can find the magazine archived at www.nfb
org
> > under publications.
> >
> > Debbie
> >
> > ----- Original Message -----
> > From: "Steve Heesen" <steveheesen at aol.com>
> > To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'"
> > <blindkid at nfbnet.org>
> > Sent: Saturday, July 30, 2011 9:41 AM
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> >
> > > Wow, what a great idea. It is amazing how much the kiddos can learn
when
> > > we
> > > make the process fun for them!
> > >
> > > Steve
> > >
> > > -----Original Message-----
> > > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
On
> > > Behalf Of Alison Stephens
> > > Sent: Saturday, July 30, 2011 8:48 AM
> > > To: blindkid at nfbnet.org
> > > Subject: Re: [blindkid] how do you teach a child to say yes?
> > >
> > > This sounds familiar.? A few months ago my son was not able to say yes
> > > either.? He also would repeat the question if he wanted it, or
rephrase it
> > > appropriately as an answer, but could not say yes.
> > >
> > > So, his TVI invented a ball game that jumpstarted the process of
learning
> > > this, which he can now do with no trouble.? She sat with legs
outstretched
> > > with Nate sitting in front of her, also facing forward and I sat
opposite
> > > about 4 feet away.? She helped Nate hold the ball on the floor in
front of
> > > him while she asked "Mommy, would you like the ball?"? then I would
> > > respond,
> > > "Yes, please,"? then she would assist Nate in rolling the ball to me
> > > across
> > > the floor.? Once I had the ball, it was my turn to ask, "Nate, would
you
> > > like the ball?"? The TVI would then suggest to Nate that he say "yes,
> > > please."? He didn't say it initially, so she would say it for him, and
> > > then
> > > I would immediately roll the ball.? We did this back and forth for
about
> > > 45
> > > minutes (was it that long?) and by the end of play he started catching
on
> > > to
> > > asking the "would you like the ball" and saying "yes, please,"? since
play
> > > would not proceed without the question or answer.? I suppose that it
> > > helped
> > > that he liked th? e rolling ball game.
> > >
> > > We played this game a few more times over a few weeks, and we also
focused
> > > on saying "yes, please" at other times during the day, and he got it.?
The
> > > game really seemed to get him started with it, though.
> > >
> > > Hope that helps,
> > > Alison
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/steveheesen%40aol.
> > > com
> > >
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > > http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/dkent5817%40att.net
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Sun, 31 Jul 2011 07:02:40 +0100
> > From: "karen muller" <karenkzn at telkomsa.net>
> > To: "organisation for parents with blind kids" <blindkid at nfbnet.org>
> > Subject: [blindkid] ANY KIDS ON THE LIST WITH ONH/SOD
> > Message-ID: <4E34EFFF.000001.06100 at KAREN-PC>
> > Content-Type: text/plain; charset="iso-8859-1"
> >
> > Hi everyone
> >
> > I live in South AFrica. Are there any kids on the list born with ONH/SOD
??
> > Hoping to chat soon.
> > karen Muller
> > Waterfall?
> >?
> >?
> >?
> >?
> > -------Original Message-------
> >?
> > From: blindkid-request at nfbnet.org
> > Date: 07/30/11 20:10:37
> > To: blindkid at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 29
> >?
> > Send blindkid mailing list submissions to
> >???blindkid at nfbnet.org
> >?
> > To subscribe or unsubscribe via the World Wide Web, visit
> >???http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> >???blindkid-request at nfbnet.org
> >?
> > You can reach the person managing the list at
> >???blindkid-owner at nfbnet.org
> >?
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >?
> >?
> > Today's Topics:
> >?
> >? ? 1. Fwd: Rubin Museum Verbal Description and Touch tour:
> >? ? ???Thursday, August 18 (Carol Castellano)
> >?
> >?
> > ----------------------------------------------------------------------
> >?
> > Message: 1
> > Date: Sat, 30 Jul 2011 14:42:04 -0400
> > From: Carol Castellano <carol_castellano at verizon.net>
> > To: blindkid at nfbnet.org
> > Subject: [blindkid] Fwd: Rubin Museum Verbal Description and Touch
> >???tour: Thursday, August 18
> > Message-ID: <406393.39865.qm at smtp102.vzn.mail.bf1.yahoo.com>
> > Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
> >?
> > Hi Everyone,
> >?
> > Passing along info about what sounds like a very
> > interesting verbal & touch exhibit for people in the NYC area.
> >?
> > Carol
> >?
> > >Subject: Rubin Museum Verbal Description and Touch tour: Thursday,
August
> > 18
> > >Thread-topic: Rubin Museum Verbal Description and Touch tour: Thursday,
> > >? August 18
> > >
> > >Hello all, I am delighted to invite you to
> > >explore our brand new exhibition, Pilgrimage and
> > >Faith: Buddhism, Christianity and Islam through
> > >touch and verbal description. A full description
> > >of this tour follows, please help us spread the
> > >word by forwarding to anyone who may be
> > >interested. Please let me know if you have any
> > >questions, and I hope to welcome you to the museum soon!
> > >Sincerely,
> > >Louise.
> > >
> > >VERBAL DESCRIPTION AND TOUCH TOUR
> > >Pilgrimage and Faith
> > >Thursday, August 18, 2011
> > >2:00?3:30 pm
> > >
> > >This tour will take visitors on a journey
> > >through the culture, history, religion, and art
> > >of the Himalayas. Using highly detailed verbal
> > >descriptions of works of art and touch objects,
> > >including sculptures, art materials, woodblocks,
> > >and ritual implements, museum guides help
> > >participants form visualizations of art in the museum?s collection.
> > >
> > >Reservations for this program are recommended as
> > >space is limited. Please contact the Group
> > >Reservations office at 212.620.5000 x345 or
> > ><mailto:reservations at rmanyc.org>reservations at rmanyc.org to secure
your
> > place.
> > >
> > >
> > >[]
> > >
> > >
> > >
> > >
> > >
> > >
> >?
> > Carol Castellano
> > Director of Programs
> > National Organization of Parents of Blind Children
> > 973-377-0976
> > carol_castellano at verizon.net
> > www.nopbc.org
> > -------------- next part --------------
> > A non-text attachment was scrubbed...
> > Name: e4de1.png
> > Type: image/png
> > Size: 1061225 bytes
> > Desc: not available
> > URL: <http://www.nfbnet.org/pipermail/blindkid_nfbnet
> > org/attachments/20110730/b8b2ca47/attachment.png>
> >?
> > ------------------------------
> >?
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >?
> >?
> > End of blindkid Digest, Vol 87, Issue 29
> > ****************************************
> > --
> > This message has been scanned for viruses and
> > dangerous content by Pinpoint, and is
> > believed to be clean.
> >
> > -------------- next part --------------
> > A non-text attachment was scrubbed...
> > Name: stampa_girl_line_en.gif
> > Type: image/gif
> > Size: 46417 bytes
> > Desc: not available
> > URL: <http://www.nfbnet.org/pipermail/blindkid_nfbnet
org/attachments/20110731/22a1620d/attachment-0001.gif>
> >
> > ------------------------------
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >
> >
> > End of blindkid Digest, Vol 87, Issue 30
> > ****************************************
>? ??? ???????? ?????? ??? ?
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/imcollegebound2006%40hotmail.com
??? ???????? ?????? ??? ?
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/ipd4life2006%40yahoo.com
------------------------------
Message: 4
Date: Sun, 31 Jul 2011 19:48:40 -0500
From: "Sally Thomas" <seacknit at gmail.com>
To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
<blindkid at nfbnet.org>
Subject: [blindkid] Brailler repair
Message-ID: <7223AADD33204966A70F95698D94B448 at OwnerPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
I have a Perkins brailler that needs to be reconditioned. We had it worked
on here in Houston but the backspace key has never worked. I'd like to get
it fixed so it is "good as new" (actually the older braillers seem to work
best). Does anyone have experience with a dependable brailler repair
person?
Sally Thomas
------------------------------
Message: 5
Date: Sun, 31 Jul 2011 19:44:20 -0600
From: Pat Renfranz <dblair2525 at msn.com>
To: NFBnet Blind Kid Mailing List <blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID: <BLU0-SMTP171DD03AE7D276C7C5CCBACD5380 at phx.gbl>
Content-Type: text/plain; charset="US-ASCII"
We used
ACKLEY APPLIANCE SERVICE
4301 Park Avenue #540
Des Moines, IA 50321
Email: aackley at braillerman.com
Phone: 515-288-3931
Excellent service from Mr. Ackley.
Contact info is from 2008.
Pat
On 7/31/11 6:48 PM, "Sally Thomas" <seacknit at gmail.com> wrote:
> I have a Perkins brailler that needs to be reconditioned. We had it
worked
> on here in Houston but the backspace key has never worked. I'd like to
get
> it fixed so it is "good as new" (actually the older braillers seem to work
> best). Does anyone have experience with a dependable brailler repair
> person?
>
> Sally Thomas
>
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dblair2525%40msn
com
>
------------------------------
Message: 6
Date: Sun, 31 Jul 2011 21:49:22 -0400
From: "Treva Olivero" <treva at olivero.us>
To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
children\)'" <blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID: <002701cc4fed$3dec46c0$b9c4d440$@us>
Content-Type: text/plain; charset="us-ascii"
Below is a link to a list of Brailler repair services. I have used Ackley,
which is located in Iowa, in the past to recondition an old Braille writer,
and they've done well. They're on the list.
http://www.nfb.org/nfb/braille_writer_repair_resources.asp
-----Original Message-----
From: Sally Thomas [mailto:seacknit at gmail.com]
Sent: Sunday, July 31, 2011 8:49 PM
To: NFBnet Blind Kid Mailing List, (for parents of blind children)
Subject: [blindkid] Brailler repair
I have a Perkins brailler that needs to be reconditioned. We had it worked
on here in Houston but the backspace key has never worked. I'd like to get
it fixed so it is "good as new" (actually the older braillers seem to work
best). Does anyone have experience with a dependable brailler repair
person?
Sally Thomas
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/treva%40olivero.us
------------------------------
Message: 7
Date: Sun, 31 Jul 2011 20:51:01 -0500
From: "Mary Donahue" <braille at satx.rr.com>
To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID: <AC4FE4EA583D45C1BBC03884698116C3 at valued3a11ee5d>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=response
Hello Sally and everyone,
We had both of our Braille writers repaired and reconditioned by Alan
Ackley of Ackley Appliance Service, and both Braillers are still working
fine. His Web site is
http://www.braillerman.com
Unfortunately, he is in Des Moines, Iowa. Because a school friend of
mine had hers repaired there, I called Alan Ackley back in 1994. We had
enough money to send the Braillers to Iowa and get them both fixed. In
addition, Alan will want you to send a Braille note about what's wrong with
the Brailler and insert the note into the Brailler. That note would be the
first thing he will look at. He is also a certified Braille transcriber, so
he knows and reads Braille well.
I hope this information helps. There may also be a Brailler repair
service in El Paso, but do not have the name.
Mary Donahue
----- Original Message -----
From: "Sally Thomas" <seacknit at gmail.com>
To: "NFBnet Blind Kid Mailing List,(for parents of blind children)"
<blindkid at nfbnet.org>
Sent: Sunday, July 31, 2011 7:48 PM
Subject: [blindkid] Brailler repair
>I have a Perkins brailler that needs to be reconditioned. We had it worked
>on here in Houston but the backspace key has never worked. I'd like to get
>it fixed so it is "good as new" (actually the older braillers seem to work
>best). Does anyone have experience with a dependable brailler repair
>person?
>
> Sally Thomas
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/braille%40satx
rr.com
>
------------------------------
Message: 8
Date: Sun, 31 Jul 2011 19:21:20 -0700 (PDT)
From: Debby B <bwbddl at yahoo.com>
To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID:
<1312165280.70026.YahooMailRC at web112507.mail.gq1.yahoo.com>
Content-Type: text/plain; charset=us-ascii
We also used Ackley when we bought Winona's first brailler on ebay. 12 years
later it still works great!
Debby
bwbddl at yahoo.com
~"Kindness is a language which the deaf can hear and the blind can read.
~Mark
Twain
________________________________
From: Pat Renfranz <dblair2525 at msn.com>
To: NFBnet Blind Kid Mailing List <blindkid at nfbnet.org>
Sent: Sun, July 31, 2011 9:44:20 PM
Subject: Re: [blindkid] Brailler repair
We used
ACKLEY APPLIANCE SERVICE
4301 Park Avenue #540
Des Moines, IA 50321
Email: aackley at braillerman.com
Phone: 515-288-3931
Excellent service from Mr. Ackley.
Contact info is from 2008.
Pat
On 7/31/11 6:48 PM, "Sally Thomas" <seacknit at gmail.com> wrote:
> I have a Perkins brailler that needs to be reconditioned. We had it
worked
> on here in Houston but the backspace key has never worked. I'd like to
get
> it fixed so it is "good as new" (actually the older braillers seem to work
> best). Does anyone have experience with a dependable brailler repair
> person?
>
> Sally Thomas
>
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dblair2525%40msn
com
>
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/bwbddl%40yahoo.com
------------------------------
Message: 9
Date: Mon, 1 Aug 2011 02:47:08 +0000
From: cconley at fuse.net
To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID:
<313389565-1312166645-cardhu_decombobulator_blackberry.rim
net-1882016444- at b18.c1.bise6.blackberry>
Content-Type: text/plain
Paul and Bernie Dressell in Cincinnati do a fantastic job repairing perkins
braillers.
Sent from my BlackBerry device from Cincinnati Bell Wireless
-----Original Message-----
From: "Sally Thomas" <seacknit at gmail.com>
Sender: blindkid-bounces at nfbnet.org
Date: Sun, 31 Jul 2011 19:48:40
To: NFBnet Blind Kid Mailing List,\(for parents of blind
children\)<blindkid at nfbnet.org>
Reply-To: "NFBnet Blind Kid Mailing List,
\(for parents of blind children\)" <blindkid at nfbnet.org>
Subject: [blindkid] Brailler repair
I have a Perkins brailler that needs to be reconditioned. We had it worked
on here in Houston but the backspace key has never worked. I'd like to get
it fixed so it is "good as new" (actually the older braillers seem to work
best). Does anyone have experience with a dependable brailler repair
person?
Sally Thomas
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/cconley%40fuse.net
------------------------------
Message: 10
Date: Sun, 31 Jul 2011 23:41:49 -0400 (EDT)
From: dhammelia at aol.com
To: blindkid at nfbnet.org
Subject: Re: [blindkid] Brailler repair
Message-ID: <8CE1E14142430C0-11EC-1DEF9 at webmail-d172.sysops.aol.com>
Content-Type: text/plain; charset="us-ascii"
We can third or fourth for Allan Ackley. He is a good chapter member in Des
Moines NFB.
He has repaired Barbara's Braille Writer for years.
He used to work for the Department for the blind repairing braille writers
but has retired from the department so now works on his own.
Dave
-----Original Message-----
From: Debby B <bwbddl at yahoo.com>
To: NFBnet Blind Kid Mailing List, (for parents of blind children)
<blindkid at nfbnet.org>
Sent: Sun, Jul 31, 2011 9:22 pm
Subject: Re: [blindkid] Brailler repair
We also used Ackley when we bought Winona's first brailler on ebay. 12 years
ater it still works great!
Debby
wbddl at yahoo.com
"Kindness is a language which the deaf can hear and the blind can read.
~Mark
wain
_______________________________
rom: Pat Renfranz <dblair2525 at msn.com>
o: NFBnet Blind Kid Mailing List <blindkid at nfbnet.org>
ent: Sun, July 31, 2011 9:44:20 PM
ubject: Re: [blindkid] Brailler repair
We used
CKLEY APPLIANCE SERVICE
301 Park Avenue #540
es Moines, IA 50321
mail: aackley at braillerman.com
hone: 515-288-3931
Excellent service from Mr. Ackley.
Contact info is from 2008.
at
On 7/31/11 6:48 PM, "Sally Thomas" <seacknit at gmail.com> wrote:
> I have a Perkins brailler that needs to be reconditioned. We had it
worked
on here in Houston but the backspace key has never worked. I'd like to
get
it fixed so it is "good as new" (actually the older braillers seem to work
best). Does anyone have experience with a dependable brailler repair
person?
Sally Thomas
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dblair2525%40msn
com
_______________________________________________
lindkid mailing list
lindkid at nfbnet.org
ttp://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
o unsubscribe, change your list options or get your account info for
blindkid:
ttp://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/bwbddl%40yahoo.com
______________________________________________
lindkid mailing list
lindkid at nfbnet.org
ttp://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
o unsubscribe, change your list options or get your account info for
blindkid:
ttp://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dhammelia%40aol.com
------------------------------
Message: 11
Date: Mon, 1 Aug 2011 06:16:30 -0500
From: "Sally Thomas" <seacknit at gmail.com>
To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID: <F718E25DA4A24EFC9FE64756C62214D7 at OwnerPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Thanks everyone for your responses. I was leaning towards Mr. Ackley and
I'm glad he gets such enthusiastic endorsement.
Sally Thomas
----- Original Message -----
From: <dhammelia at aol.com>
To: <blindkid at nfbnet.org>
Sent: Sunday, July 31, 2011 10:41 PM
Subject: Re: [blindkid] Brailler repair
>
> We can third or fourth for Allan Ackley. He is a good chapter member in
> Des Moines NFB.
>
> He has repaired Barbara's Braille Writer for years.
>
> He used to work for the Department for the blind repairing braille writers
> but has retired from the department so now works on his own.
>
> Dave
>
>
>
>
>
>
> -----Original Message-----
> From: Debby B <bwbddl at yahoo.com>
> To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> <blindkid at nfbnet.org>
> Sent: Sun, Jul 31, 2011 9:22 pm
> Subject: Re: [blindkid] Brailler repair
>
>
> We also used Ackley when we bought Winona's first brailler on ebay. 12
> years
> ater it still works great!
> Debby
> wbddl at yahoo.com
>
> "Kindness is a language which the deaf can hear and the blind can
> read."~Mark
> wain
>
>
> _______________________________
> rom: Pat Renfranz <dblair2525 at msn.com>
> o: NFBnet Blind Kid Mailing List <blindkid at nfbnet.org>
> ent: Sun, July 31, 2011 9:44:20 PM
> ubject: Re: [blindkid] Brailler repair
> We used
> CKLEY APPLIANCE SERVICE
> 301 Park Avenue #540
> es Moines, IA 50321
> mail: aackley at braillerman.com
> hone: 515-288-3931
> Excellent service from Mr. Ackley.
> Contact info is from 2008.
> at
>
> On 7/31/11 6:48 PM, "Sally Thomas" <seacknit at gmail.com> wrote:
>> I have a Perkins brailler that needs to be reconditioned. We had it
>> worked
> on here in Houston but the backspace key has never worked. I'd like to
> get
> it fixed so it is "good as new" (actually the older braillers seem to work
> best). Does anyone have experience with a dependable brailler repair
> person?
>
> Sally Thomas
>
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dblair2525%40msn
com
>
>
> _______________________________________________
> lindkid mailing list
> lindkid at nfbnet.org
> ttp://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> o unsubscribe, change your list options or get your account info for
> blindkid:
> ttp://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/bwbddl%40yahoo
com
> ______________________________________________
> lindkid mailing list
> lindkid at nfbnet.org
> ttp://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> o unsubscribe, change your list options or get your account info for
> blindkid:
> ttp://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/dhammelia%40aol
com
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/seacknit%40gmail
com
------------------------------
Message: 12
Date: Mon, 1 Aug 2011 05:05:13 -0700
From: "Jaquiss, Robert" <RJaquiss at nfb.org>
To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
<blindkid at nfbnet.org>
Subject: Re: [blindkid] Brailler repair
Message-ID:
<15131457E4DA6B4EBD8776E13F2B3E100CD416C22D at VA3DIAXVS751.RED001.local>
Content-Type: text/plain; charset="us-ascii"
Hello:
I have used both Alan Ackley and the Selective Doctor for brailler
repairs. Both do fine work.
Regards,
Robert
Robert Jaquiss
National Federation of the Blind
200 East Wells Street at Jernigan Place
Baltimore, Maryland 21230
Phone: 410-659-9314, ext. 2422
-----Original Message-----
From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
Behalf Of Sally Thomas
Sent: Sunday, July 31, 2011 8:49 PM
To: NFBnet Blind Kid Mailing List, (for parents of blind children)
Subject: [blindkid] Brailler repair
I have a Perkins brailler that needs to be reconditioned. We had it worked
on here in Houston but the backspace key has never worked. I'd like to get
it fixed so it is "good as new" (actually the older braillers seem to work
best). Does anyone have experience with a dependable brailler repair
person?
Sally Thomas
_______________________________________________
blindkid mailing list
blindkid at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
To unsubscribe, change your list options or get your account info for
blindkid:
http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/rjaquiss%40nfb.org
------------------------------
Message: 13
Date: Mon, 1 Aug 2011 11:36:22 -0400
From: Maureen Austen <mkausten at gmail.com>
To: blindkid at nfbnet.org
Subject: Re: [blindkid] blindkid Digest, Vol 87, Issue 27
Message-ID:
<CANbwnGAZzCrp9BA0TLtek+upCH9_RktY+cTxyeBxjO7ku8GGxA at mail.gmail.com>
Content-Type: text/plain; charset=ISO-8859-1
Hi, I recently came across this low vision aid for reading sheet music. I
suggested it to my son who thought it sounded worth investigating:
www.dancingdots.com//limelighter/limelightermain.htm
Maureen Austen
On Sat, Jul 30, 2011 at 12:32 AM, <blindkid-request at nfbnet.org> wrote:
> Send blindkid mailing list submissions to
> blindkid at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> blindkid-request at nfbnet.org
>
> You can reach the person managing the list at
> blindkid-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of blindkid digest..."
>
>
> Today's Topics:
>
> 1. Re: interesting article (Carol Castellano)
> 2. Re: Print Music (Moses Whitaker Jr)
> 3. US Dept of Justice's & US Dept of Education's New Accessible
> Technology Guidelines (DrV)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Fri, 29 Jul 2011 13:40:49 -0400
> From: Carol Castellano <carol.joyce.castellano at gmail.com>
> To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
> <blindkid at nfbnet.org>
> Subject: Re: [blindkid] interesting article
> Message-ID: <4e32f0a4.a9b3340a.7df7.0815 at mx.google.com>
> Content-Type: text/plain; charset="us-ascii"; format=flowed
>
> Hi Heidi,
>
> Glad you posted this article. Our family heard about ONCE at an NFB
> convention way back when. In 2002, we took a family trip to Spain
> and visited their incredible museum in Madrid.
>
> There they had beautifully crafted scale models of Spain's most
> famous buildings and in another room, the famous buildings and
> monuments of the world, such as the Leaning Tower of Pisa and the
> Eiffel Tower. My personal favorite was the Roman Aqueduct of
> Segovia, Spain, which was set in a giant diarama showing the start
> of the aqueduct up in the hills and following it all the way down to
> the city. Truly incredible.
>
> Our daughter Serena was in heaven because they also had audio, which
> she could listen to in Spanish (she loves languages), and a guide in
> Spanish braille that she could take home. So she ended up with her
> own tour book of all the places we were going to visit. It was just
> terrific. We advise, if anyone is going to Spain, to go directly to
> this museum from the airport and then on to the rest of your
> trip. That way your blind child will have as good an introduction to
> the touring you will do as the rest of the family. We had a most
> wonderful time.
>
> Carol
>
>
> At 02:05 PM 7/11/2011, you wrote:
>
> >I found this article very interesting, thought I share.
> >
> >
> >
> >Heidi
> >
> >
> >http://articles.latimes.com/2000/jul/02/news/mn-46882
> >_______________________________________________
> >blindkid mailing list
> >blindkid at nfbnet.org
> >http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >To unsubscribe, change your list options or get your account info
> >for blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/carol.joyce
castellano%40gmail.com
>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Fri, 29 Jul 2011 14:35:29 -0400
> From: Moses Whitaker Jr <mwhitakerj at hotmail.com>
> To: blind Kids Request NFB <blindkid at nfbnet.org>
> Subject: Re: [blindkid] Print Music
> Message-ID: <COL111-W388AFEFCC1E24120E46640D7370 at phx.gbl>
> Content-Type: text/plain; charset="Windows-1252"
>
>
> Hi Holly,Contact Dr. Dalia Sakas (Coordinator of the Comprehensive Music
> Program for Young People), at The Filomen M. D?Agostino Greenberg Music
> School at Lighthouse International. It's one of the schools Matthew
attends
> every Saturday. They teach blind/visually impaired students music. I'm
> sure she can help...tell her that we asked you to call her. They are very
> good people. Dalia's # is 212-821-9368
> > From: blindkid-request at nfbnet.org
> > Subject: blindkid Digest, Vol 87, Issue 26
> > To: blindkid at nfbnet.org
> > Date: Fri, 29 Jul 2011 12:00:15 -0500
> >
> > Send blindkid mailing list submissions to
> > blindkid at nfbnet.org
> >
> > To subscribe or unsubscribe via the World Wide Web, visit
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > or, via email, send a message with subject or body 'help' to
> > blindkid-request at nfbnet.org
> >
> > You can reach the person managing the list at
> > blindkid-owner at nfbnet.org
> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of blindkid digest..."
> >
> >
> > Today's Topics:
> >
> > 1. Re: how do you teach a child to say yes? (Barbara Hammel)
> > 2. Re: Large Print music (Doreen Franklin)
> > 3. Re: Large Print music (Holly Baker Miller)
> > 4. Re: Large Print music (Kayleigh Joiner)
> > 5. Re: Large Print music (Doreen Frappier)
> > 6. Re: art class: Danger! (insert irony here) (Joy Orton)
> > 7. Re: art class: Danger! (insert irony here) (Dr. S. Merchant)
> > 8. Re: art class: Danger! (insert irony here) (Penny Duffy)
> > 9. Re: "Its not safe...." (Debbie Gabe)
> > 10. Re: Independence Check Lists (Debbie Gabe)
> > 11. Re: Independence Check Lists (DrV)
> > 12. Re: Independence Check Lists (Debbie Gabe)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Thu, 28 Jul 2011 12:07:17 -0500
> > From: "Barbara Hammel" <poetlori8 at msn.com>
> > To: <rholloway at gopbc.org>, "NFBnet Blind Kid Mailing List, \(for
> > parents of blind children\)" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> > Message-ID: <SNT139-ds642E3F4A2514AEC989D0BEB340 at phx.gbl>
> > Content-Type: text/plain; format=flowed; charset="utf-8";
> > reply-type=original
> >
> > Yeah, I'm familiar with the term. Twins are 9 and on the autism
> spectrum.
> > Barbara
> >
> >
> >
> >
> > Let every nation know whether it wishes us well or ill, that we shall
pay
> > any price, bear any burden, meet any hardship, support any friend,
oppose
> > any foe, in order to assure the survival and the success of
> liberty.--John
> > F. Kennedy
> > -----Original Message-----
> > From: rholloway at gopbc.org
> > Sent: Wednesday, July 27, 2011 9:51 PM
> > To: NFBnet Blind Kid Mailing List,(for parents of blind children)
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> > Sounds like something called "echolalia" which is really common with
> blind
> > kids. Before you begin to worry about some new diagnosis, it is a
> behavior
> > that is generally outgrown.
> >
> > My best guess is it happens so much with blind kids because they may be
> > getting words very clearly, but attaching the words to actual physical
> > things and concepts comes more slowly, especially at first, because it
> takes
> > time to fill in the gaps caused by missing visual information as
compared
> to
> > the knowledge base and timeline for typically sighted kids.
> >
> > If you're not familiar with it, definitely google that term and see if
it
> > sounds familiar. Again, no need to panic over this one, it happens a lot
> > Sent on the Sprint? Now Network from my BlackBerry?
> >
> > -----Original Message-----
> > From: "Barbara Hammel" <poetlori8 at msn.com>
> > Sender: blindkid-bounces at nfbnet.org
> > Date: Wed, 27 Jul 2011 21:21:28
> > To: <blindkid at nfbnet.org>
> > Reply-To: "NFBnet Blind Kid Mailing List,
> > \(for parents of blind children\)" <blindkid at nfbnet.org>
> > Subject: [blindkid] how do you teach a child to say yes?
> >
> > Our semiverbal twin has ?no thank you please? down pat. He uses it very
> > appropriately but if he wants the thing we?re asking him about he?ll
just
> > repeat the name of the thing.
> > I?m just wondering if anyone has ideas about how to choose between yes
> and
> > no. For example ?do you want a beef stick?? The inferred choices are
> yes
> > and no but he doesn?t know what to do with that kind of question. So
> far, I?ve
> > asked if he wants something and if he repeats it, I tell him we?re going
> to
> > try again and I want you to say yes. I repeat the question and say the
y
> > sound to prompt him before he has a chance to think of copying the
> requested
> > item?s name.
> > I forgot the name of those books that nonverbal people use that has all
> the
> > pictures of things and if you choose say the hurt picture, you?d turn to
> the
> > correct page to point out a body part. He needs to know how to say yes
> or
> > no to be able to do the book with his teachers.
> > Would you say I?m on the right track, or do you have other tips for
> teaching
> > this skill?
> > Barbara
> >
> > Let every nation know whether it wishes us well or ill, that we shall
pay
> > any price, bear any burden, meet any hardship, support any friend,
oppose
> > any foe, in order to assure the survival and the success of
> liberty.--John
> > F. Kennedy
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/rholloway%40gopbc.org
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn
com
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Thu, 28 Jul 2011 10:08:16 -0700 (PDT)
> > From: Doreen Franklin <doreenproverbs3 at bellsouth.net>
> > To: "NFBnet Blind Kid Mailing List, \(for parents of blind children\)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Large Print music
> > Message-ID:
> > <1311872896.64493.YahooMailRC at web180202.mail.gq1.yahoo.com>
> > Content-Type: text/plain; charset=iso-8859-1
> >
> > Holly
> > just thought of something .... collect your own data .... take a video
> camera
> > into?Hanks next lesson and tape how he is reading/straining to see?...
> you know
> > ... then after the lesson?- while teacher is still there, have teacher
> come over
> > and ask Hank "how do you think you did ... how was the music on the
stand
> -
> > could you see it easily, what can "I" as teacher?do to help you?" --
kind
> of
> > another way to build your case .... that way, it's not PROMPTED from MOM
> but
> > from the teacher. Don't tell?Hank about questions so that he is
answering
> off
> > the cuff .... just some random thoughts to help.
> >
> >
> > I would start to video tape EVERYTHING and download to?cds that can be
> "given"
> > to whoever ... another way to collect your data and document everything!
> >
> >
> > Let me know how it goes ....
> > ?Doreen
> >
> >
> >
> >
> > ________________________________
> > From: Holly Baker Miller <hollym12 at gmail.com>
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > <blindkid at nfbnet.org>
> > Sent: Thu, July 28, 2011 11:37:21 AM
> > Subject: [blindkid] Large Print music
> >
> > We have a budding drummer on our hands and are running into sheet music
> > issues.
> > Hank (going into 5th) normally needs 20-ish point font when he reads and
> > will hold that 6-8 inches from his face to read.? The music teacher made
> > enlarged copies of the pages onto 11x17 paper, laminated it to give it
> some
> > body and put a spiral binding at the top.? Problem is once it's on a
> music
> > stand it's too far for him to see and I think the lamination is creating
> > glare that doesn't help the situation. Add to that it's a photo copy so
> not
> > the greatest contrast.
> > Today I watched his lesson and he was leaning way over the drum and
> > squinting hard just to see some very basic beats.
> >
> > Any thoughts on how to better format sheet music for him?? I'm thinking
> > maybe landscape pages would be easier to put on a music stand but
copying
> > from the book puts it in portrait.? Can large print blank music sheets
be
> > bought or printed somewhere?? I'm wondering if I can bribe my older
> drummer
> > son to hand transcribe the music with a 20/20 marker to get bolder print
> > I have zero musical talent myself so all of this is confusing to begin
> with!
> >
> > Braille is not an option at this point unfortunately as we are still in
> > dispute with the district about him learning/using braille (long story,
> we
> > do have a lawyer)
> >
> > Thanks!
> > Holly
> >
> > --
> > We are raising funds for the National Federation of the Blind
> > http://www.raceforindependence.org/goto/hankspage
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/doreenproverbs3%40bellsouth.net
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Thu, 28 Jul 2011 15:08:11 -0400
> > From: Holly Baker Miller <hollym12 at gmail.com>
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Large Print music
> > Message-ID:
> > <CA+Xp9po14bscAK=Z+6iBtODQMrJYVgncfi9wbhAh=
> i46r0iztg at mail.gmail.com>
> > Content-Type: text/plain; charset=ISO-8859-1
> >
> > I appreciate the thought but unfortunately today was the last day of
> lessons
> > until school start, it was just a short summer intro.
> >
> > To be fair, the music teacher is great and she wants to be helpful, she
> just
> > doesn't know a better way to do things. I'm sure she'll be receptive to
> any
> > ideas I can come up with :-)
> >
> > Holly
> >
> > On Thu, Jul 28, 2011 at 1:08 PM, Doreen Franklin <
> > doreenproverbs3 at bellsouth.net> wrote:
> >
> > > Holly
> > > just thought of something .... collect your own data .... take a video
> > > camera
> > > into Hanks next lesson and tape how he is reading/straining to see ...
> you
> > > know
> > > ... then after the lesson - while teacher is still there, have teacher
> come
> > > over
> > > and ask Hank "how do you think you did ... how was the music on the
> stand -
> > > could you see it easily, what can "I" as teacher do to help you " --
> kind
> > > of
> > > another way to build your case .... that way, it's not PROMPTED from
> MOM
> > > but
> > > from the teacher. Don't tell Hank about questions so that he is
> answering
> > > off
> > > the cuff .... just some random thoughts to help.
> > >
> > >
> > > I would start to video tape EVERYTHING and download to cds that can be
> > > "given"
> > > to whoever ... another way to collect your data and document
> everything!
> > >
> > >
> > > Let me know how it goes ....
> > > Doreen
> > >
> > >
> > >
> > >
> > > ________________________________
> > > From: Holly Baker Miller <hollym12 at gmail.com>
> > > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > > <blindkid at nfbnet.org>
> > > Sent: Thu, July 28, 2011 11:37:21 AM
> > > Subject: [blindkid] Large Print music
> > >
> > > We have a budding drummer on our hands and are running into sheet
music
> > > issues.
> > > Hank (going into 5th) normally needs 20-ish point font when he reads
> and
> > > will hold that 6-8 inches from his face to read. The music teacher
> made
> > > enlarged copies of the pages onto 11x17 paper, laminated it to give it
> some
> > > body and put a spiral binding at the top. Problem is once it's on a
> music
> > > stand it's too far for him to see and I think the lamination is
> creating
> > > glare that doesn't help the situation. Add to that it's a photo copy
so
> not
> > > the greatest contrast.
> > > Today I watched his lesson and he was leaning way over the drum and
> > > squinting hard just to see some very basic beats.
> > >
> > > Any thoughts on how to better format sheet music for him? I'm
thinking
> > > maybe landscape pages would be easier to put on a music stand but
> copying
> > > from the book puts it in portrait. Can large print blank music sheets
> be
> > > bought or printed somewhere? I'm wondering if I can bribe my older
> drummer
> > > son to hand transcribe the music with a 20/20 marker to get bolder
> print.
> > > I have zero musical talent myself so all of this is confusing to begin
> > > with!
> > >
> > > Braille is not an option at this point unfortunately as we are still
in
> > > dispute with the district about him learning/using braille (long story
> we
> > > do have a lawyer)
> > >
> > > Thanks!
> > > Holly
> > >
> > > --
> > > We are raising funds for the National Federation of the Blind
> > > http://www.raceforindependence.org/goto/hankspage
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/doreenproverbs3%40bellsouth.net
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/hollym12%40gmail
com
> > >
> >
> >
> >
> > --
> > We are raising funds for the National Federation of the Blind
> > http://www.raceforindependence.org/goto/hankspage
> >
> >
> > ------------------------------
> >
> > Message: 4
> > Date: Thu, 28 Jul 2011 14:10:41 -0500
> > From: Kayleigh Joiner <kayleigh281 at yahoo.com>
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Large Print music
> > Message-ID:
> > <CAAQMvFAC7ECbKdukEoThfQ9rZCQz+=
> KQnCXtKzebRMSb-Dih0Q at mail.gmail.com>
> > Content-Type: text/plain; charset=ISO-8859-1
> >
> > Here is the link to a product called Lime Lighter that Dancing Dots just
> > came out with.
> http://www.dancingdots.com//limelighter/limelightermain.htm
> > This might be able to help.
> > Kayleigh
> >
> > On Thu, Jul 28, 2011 at 12:08 PM, Doreen Franklin <
> > doreenproverbs3 at bellsouth.net> wrote:
> >
> > > Holly
> > > just thought of something .... collect your own data .... take a video
> > > camera
> > > into Hanks next lesson and tape how he is reading/straining to see ...
> you
> > > know
> > > ... then after the lesson - while teacher is still there, have teacher
> come
> > > over
> > > and ask Hank "how do you think you did ... how was the music on the
> stand -
> > > could you see it easily, what can "I" as teacher do to help you " --
> kind
> > > of
> > > another way to build your case .... that way, it's not PROMPTED from
> MOM
> > > but
> > > from the teacher. Don't tell Hank about questions so that he is
> answering
> > > off
> > > the cuff .... just some random thoughts to help.
> > >
> > >
> > > I would start to video tape EVERYTHING and download to cds that can be
> > > "given"
> > > to whoever ... another way to collect your data and document
> everything!
> > >
> > >
> > > Let me know how it goes ....
> > > Doreen
> > >
> > >
> > >
> > >
> > > ________________________________
> > > From: Holly Baker Miller <hollym12 at gmail.com>
> > > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > > <blindkid at nfbnet.org>
> > > Sent: Thu, July 28, 2011 11:37:21 AM
> > > Subject: [blindkid] Large Print music
> > >
> > > We have a budding drummer on our hands and are running into sheet
music
> > > issues.
> > > Hank (going into 5th) normally needs 20-ish point font when he reads
> and
> > > will hold that 6-8 inches from his face to read. The music teacher
> made
> > > enlarged copies of the pages onto 11x17 paper, laminated it to give it
> some
> > > body and put a spiral binding at the top. Problem is once it's on a
> music
> > > stand it's too far for him to see and I think the lamination is
> creating
> > > glare that doesn't help the situation. Add to that it's a photo copy
so
> not
> > > the greatest contrast.
> > > Today I watched his lesson and he was leaning way over the drum and
> > > squinting hard just to see some very basic beats.
> > >
> > > Any thoughts on how to better format sheet music for him? I'm
thinking
> > > maybe landscape pages would be easier to put on a music stand but
> copying
> > > from the book puts it in portrait. Can large print blank music sheets
> be
> > > bought or printed somewhere? I'm wondering if I can bribe my older
> drummer
> > > son to hand transcribe the music with a 20/20 marker to get bolder
> print.
> > > I have zero musical talent myself so all of this is confusing to begin
> > > with!
> > >
> > > Braille is not an option at this point unfortunately as we are still
in
> > > dispute with the district about him learning/using braille (long story
> we
> > > do have a lawyer)
> > >
> > > Thanks!
> > > Holly
> > >
> > > --
> > > We are raising funds for the National Federation of the Blind
> > > http://www.raceforindependence.org/goto/hankspage
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/doreenproverbs3%40bellsouth.net
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/kayleigh281%40yahoo.com
> > >
> >
> >
> > ------------------------------
> >
> > Message: 5
> > Date: Thu, 28 Jul 2011 12:21:41 -0700 (PDT)
> > From: Doreen Frappier <dcfrappier at yahoo.com>
> > To: " \(for parents of blind children\)NFBnet Blind Kid Mailing List"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Large Print music
> > Message-ID:
> > <1311880901.97844.YahooMailClassic at web35603.mail.mud.yahoo.com>
> > Content-Type: text/plain; charset=iso-8859-1
> >
> > Hi Holly,
> > My VI twins took sax and clarinet in school. They had their music books
> printed in large print through American Printing House for the Blind????
> http://www.aph.org/
> > The VI teacher had the books enlarged just like any other school book.
> The pages are in landscape on 8.5 x 14 in paper. The books are spiral
bound.
> One is taking guitar lessons right now, not associated with the school. I
> spoke with the state rehabilitation services for the blind and they had
the
> lesson book printed free of charge. It took a little while to get this
done,
> so I scanned the first few pages into the computer, and then enlarged the
> print. Then I printed that landscape style onto the paper.? Hope this
helps.
> >
> > The other Doreen
> >
> > --- On Thu, 7/28/11, Holly Baker Miller <hollym12 at gmail.com> wrote:
> >
> > From: Holly Baker Miller <hollym12 at gmail.com>
> > Subject: [blindkid] Large Print music
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)" <
> blindkid at nfbnet.org>
> > Date: Thursday, July 28, 2011, 10:37 AM
> >
> > We have a budding drummer on our hands and are running into sheet music
> > issues.
> > Hank (going into 5th) normally needs 20-ish point font when he reads and
> > will hold that 6-8 inches from his face to read.? The music teacher made
> > enlarged copies of the pages onto 11x17 paper, laminated it to give it
> some
> > body and put a spiral binding at the top.? Problem is once it's on a
> music
> > stand it's too far for him to see and I think the lamination is creating
> > glare that doesn't help the situation. Add to that it's a photo copy so
> not
> > the greatest contrast.
> > Today I watched his lesson and he was leaning way over the drum and
> > squinting hard just to see some very basic beats.
> >
> > Any thoughts on how to better format sheet music for him?? I'm thinking
> > maybe landscape pages would be easier to put on a music stand but
copying
> > from the book puts it in portrait.? Can large print blank music sheets
be
> > bought or printed somewhere?? I'm wondering if I can bribe my older
> drummer
> > son to hand transcribe the music with a 20/20 marker to get bolder print
> > I have zero musical talent myself so all of this is confusing to begin
> with!
> >
> > Braille is not an option at this point unfortunately as we are still in
> > dispute with the district about him learning/using braille (long story,
> we
> > do have a lawyer)
> >
> > Thanks!
> > Holly
> >
> > --
> > We are raising funds for the National Federation of the Blind
> > http://www.raceforindependence.org/goto/hankspage
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/dcfrappier%40yahoo.com
> >
> >
> > ------------------------------
> >
> > Message: 6
> > Date: Thu, 28 Jul 2011 14:48:33 -0500
> > From: Joy Orton <ortonsmom at gmail.com>
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] art class: Danger! (insert irony here)
> > Message-ID:
> > <
> CANYJZ-d6QPQUELFcqRUTB4PhaAMk7YyKKpe+KabMCgfd908kgA at mail.gmail.com>
> > Content-Type: text/plain; charset=ISO-8859-1
> >
> > Dear Penny,
> > Ouch! It does hurt our hearts as parents when someone makes such a
> > broad statement, denying access for our children!
> >
> > One response would be to write a letter to the park director,
> > outlining the facts of your interaction with the artist-in-residence.
> > (If you are still emotional, try letting the letter sit for a couple
> > of days before you send it.) Put it on paper, not email, if you can,
> > and hand-write the address on the envelope. Possibly it would be more
> > likely to be read. Notice I said outlining the facts. Facts are, I
> > said this, she said that, I felt this. More facts you can include are
> > "the law says this."
> >
> > You might want to take it as just a note to the park director, telling
> > him or her that you KNOW that it is not park policy to discriminate
> > against people with disabilities, and so you just KNOW that the artist
> > in residence was not aware or informed of the policy. This is an
> > opportunity for the director to train his staff about dealing with all
> > kinds of people, eh?
> >
> > It sounds like the person you talked to didn't even know how to sign
> > up for the class or whether it was full or empty, so try to realize
> > that she was just as uninformed about the appropriate audience for the
> > class. Art class is dangerous? Really? Also try to keep your sense of
> > humor. I know, easier said than done.
> >
> > Good job on not making it an issue on a day that was supposed to be
> > about your son.
> >
> > Hope this helps.
> >
> > Joy
> >
> >
> > Penny wrote:
> > I really don't feel this artist was projecting official national park
> policy
> > but she is still an employee of the park so she should have just not
said
> > anything. ...
> >
> > I feel I should say something. I just don't know what is a proper
> response
> > and what is me over reacting.
> >
> >
> >
> > ------------------------------
> >
> > Message: 7
> > Date: Thu, 28 Jul 2011 17:19:53 -0500
> > From: "Dr. S. Merchant" <smerchant at vetmed.lsu.edu>
> > To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> > children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] art class: Danger! (insert irony here)
> > Message-ID: <00df01cc4d74$79766890$6c6339b0$@lsu.edu>
> > Content-Type: text/plain; charset="us-ascii"
> >
> > Just to add to the misinformed bordering on ridiculous things that
people
> > say about the blind, we visited Epcot while at the national Convention
> this
> > year. My 18 year old 6 foot 2 inch blind son and my family went to the
> > entrance of an exhibit. It was one that had a tunnel or walkway to
walk
> > through and wait in until the main area was reached. A female employee
> at
> > the entrance to this exhibit said that it would be better to use the
side
> > handicapped entrance because the tunnel/walkway was DARK and may be
> trouble
> > for Michael to navigate. Really???? We all had a good laugh
> >
> > -----Original Message-----
> > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On
> > Behalf Of Joy Orton
> > Sent: Thursday, July 28, 2011 2:49 PM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] art class: Danger! (insert irony here)
> >
> > Dear Penny,
> > Ouch! It does hurt our hearts as parents when someone makes such a
> > broad statement, denying access for our children!
> >
> > One response would be to write a letter to the park director,
> > outlining the facts of your interaction with the artist-in-residence.
> > (If you are still emotional, try letting the letter sit for a couple
> > of days before you send it.) Put it on paper, not email, if you can,
> > and hand-write the address on the envelope. Possibly it would be more
> > likely to be read. Notice I said outlining the facts. Facts are, I
> > said this, she said that, I felt this. More facts you can include are
> > "the law says this."
> >
> > You might want to take it as just a note to the park director, telling
> > him or her that you KNOW that it is not park policy to discriminate
> > against people with disabilities, and so you just KNOW that the artist
> > in residence was not aware or informed of the policy. This is an
> > opportunity for the director to train his staff about dealing with all
> > kinds of people, eh?
> >
> > It sounds like the person you talked to didn't even know how to sign
> > up for the class or whether it was full or empty, so try to realize
> > that she was just as uninformed about the appropriate audience for the
> > class. Art class is dangerous? Really? Also try to keep your sense of
> > humor. I know, easier said than done.
> >
> > Good job on not making it an issue on a day that was supposed to be
> > about your son.
> >
> > Hope this helps.
> >
> > Joy
> >
> >
> > Penny wrote:
> > I really don't feel this artist was projecting official national park
> policy
> > but she is still an employee of the park so she should have just not
said
> > anything. ...
> >
> > I feel I should say something. I just don't know what is a proper
> response
> > and what is me over reacting.
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/smerchant%40vetmed
> > .lsu.edu
> >
> >
> >
> > ------------------------------
> >
> > Message: 8
> > Date: Thu, 28 Jul 2011 22:03:44 -0400
> > From: Penny Duffy <pennyduffy at gmail.com>
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] art class: Danger! (insert irony here)
> > Message-ID:
> > <CABb_=QfJ=c=NfOUJj3-R14=NBK_PM=
> tAw0cnhO-on-iYF36+rg at mail.gmail.com>
> > Content-Type: text/plain; charset=ISO-8859-1
> >
> > Ok Joy you rename of my subject is making me giggle so much. I like
your
> > idea about a letter. I wonder if I should cc someone higher up in the
> > National Park service then just the park its self. I think sometimes
> being
> > reminded about issues is never a bad thing.
> >
> > I walked out of the studio and I had this horrible horrible knot in my
> > gut. I am so glad I remember to talk with Sam about it. After we
talked
> in
> > the car he asked me about an hour later "I don't understand why she said
> > Abby couldn't take that class" That mean he thought about it and he saw
> it
> > as wrong and in the end of the day that is an important lesson.
> >
> > I am a pretty reasonable person.
> >
> > If anyone is wondering we visited Saint-Gaudens Historic Site Its
really
> > a beautiful historic place about an artist that many people don't know
> > anymore. I was reading the accessibility section and they will let
> > blind/VI visitor touch some of the artwork with special gloves. We are
> > thinking about going back with Abby on Sunday and it would offer
> > an interesting thing to share her actual experience at the Park.
> >
> >
> > On Thu, Jul 28, 2011 at 3:48 PM, Joy Orton <ortonsmom at gmail.com> wrote:
> >
> > > Dear Penny,
> > > Ouch! It does hurt our hearts as parents when someone makes such a
> > > broad statement, denying access for our children!
> > >
> > > One response would be to write a letter to the park director,
> > > outlining the facts of your interaction with the artist-in-residence.
> > > (If you are still emotional, try letting the letter sit for a couple
> > > of days before you send it.) Put it on paper, not email, if you can,
> > > and hand-write the address on the envelope. Possibly it would be more
> > > likely to be read. Notice I said outlining the facts. Facts are, I
> > > said this, she said that, I felt this. More facts you can include are
> > > "the law says this."
> > >
> > > You might want to take it as just a note to the park director, telling
> > > him or her that you KNOW that it is not park policy to discriminate
> > > against people with disabilities, and so you just KNOW that the artist
> > > in residence was not aware or informed of the policy. This is an
> > > opportunity for the director to train his staff about dealing with all
> > > kinds of people, eh?
> > >
> > > It sounds like the person you talked to didn't even know how to sign
> > > up for the class or whether it was full or empty, so try to realize
> > > that she was just as uninformed about the appropriate audience for the
> > > class. Art class is dangerous? Really? Also try to keep your sense of
> > > humor. I know, easier said than done.
> > >
> > > Good job on not making it an issue on a day that was supposed to be
> > > about your son.
> > >
> > > Hope this helps.
> > >
> > > Joy
> > >
> > >
> > > Penny wrote:
> > > I really don't feel this artist was projecting official national park
> > > policy
> > > but she is still an employee of the park so she should have just not
> said
> > > anything. ...
> > >
> > > I feel I should say something. I just don't know what is a proper
> response
> > > and what is me over reacting.
> > >
> > > _______________________________________________
> > > blindkid mailing list
> > > blindkid at nfbnet.org
> > > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > > To unsubscribe, change your list options or get your account info for
> > > blindkid:
> > >
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/pennyduffy%40gmail.com
> > >
> >
> >
> >
> > --
> > --Penny
> > ----------
> > Adventures with Abby - visionfora.blogspot.com
> >
> >
> > ------------------------------
> >
> > Message: 9
> > Date: Thu, 28 Jul 2011 20:04:11 -0700
> > From: "Debbie Gabe" <gabe808 at hawaiiantel.net>
> > To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> > children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] "Its not safe...."
> > Message-ID: <002a01cc4d9c$31e267e0$95a737a0$@net>
> > Content-Type: text/plain; charset="us-ascii"
> >
> > Unfortunately, many sighted people do not understand anything about
> > blindness, other than their own fears.
> > The word "safety" andfolks. "liability" usually come up in classes such
> as
> > this, job applications, volunteer work, etc, for us blind people.
> > My suggestion is, depending on the age of your daughter, is to discuss
> the
> > situation and ask her what did she think about that and what could you
or
> > she do the next time she runs into this problem. She needs to become
> aware
> > of thse prejudices early and start learning how to handle them with
class
> > and dignity yet still be assertive. Because I guarantee it will happen
> again
> > and again hundreds of times during her life, as it has happened to all
of
> us
> > blind
> >
> > -----Original Message-----
> > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On
> > Behalf Of Penny Duffy
> > Sent: Thursday, July 28, 2011 7:26 AM
> > To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> > Subject: [blindkid] "Its not safe...."
> >
> > I posted this on the wrong list serv (blind talk) last night oops LOL.
> Here
> > is my original message. I wanted to follow up and say the reason I even
> > threw in there and mentioned Abby's blindness was I was I saw the class
> as
> > great way for her to non-visually learn something. I was more sharing
> > my excitement not asking permission. I think that is what made the
> > whole situation so upsetting. I realize these things will happen again
> I
> > just wasn't prepared for it to happen yesterday for that activity or
> > prepared for it to happen to us.
> >
> >
> > ------
> >
> >
> > I am still very upset over this but I want to know what a good response
> > would be.
> >
> > Today I had a wonderful visit to an historic site that is part of the
> > National Park service with my son Sam. My daughter Abby who is blind is
> > away this week at the Perkins School. There was an artist in residence
> > there. She was a little odd but i heard her mention that they where
> having
> > a class there for children . the children would make casts of their
> hands.
> > It seemed like a great activity for Abby.
> >
> > The artist didn't know if there was space or if they where even having
> the
> > class (due to no enrollment) really she didn't know anything (there is a
> > number you call to make reservations) When I mentioned my daughter who
> is
> > blind would really love to go to this class she told me she would NOT
> > recommend it. That it was unsafe for blind person and said but your son
> is
> > welcome to take part if there is space and its sill going on. I should
> have
> > responded right away I should have went right to visitor center and
> > complained. I was shocked. I am still shocked. The only reason I didn
t
> > talk to someone there is the day was about my son Sam and having an
Abby
> > Free" day. That and honestly I was so taken back by what happened. I
> spoke
> > with Sam in the car so he understood that what was said was WRONG.
> >
> > I really don't feel this artist was projecting official national park
> policy
> > but she is still an employee of the park so she should have just not
said
> > anything. I would never have mentioned Abby's blindness when making
> > reservations because I would have seen it has irrelevant. If its safe
> for a
> > sighted child 6 to 11 then it would be safe to a blind child 6 to 11. We
> are
> > talking about an art class not driving a car over a single lane bridge
> over
> > glass.
> >
> > We are not really interested in the class anymore (we have a lot of
stuff
> > going on) I am just really upset over comments by this artist. I have
> never
> > had any one say Abby couldn't do anything. I know there was people who
> > thought that but no one ever pretty much implied "Your child is not
> welcome"
> > Mind you I am only been dealing with Abby being blind for a year.
> >
> > I feel I should say something. I just don't know what is a proper
> response
> > and what is me over reacting.
> >
> > --
> > --Penny
> > ----------
> > Adventures with Abby - visionfora.blogspot.com
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/gabe808%40hawaiian
> > tel.net
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 10
> > Date: Thu, 28 Jul 2011 20:31:35 -0700
> > From: "Debbie Gabe" <gabe808 at hawaiiantel.net>
> > To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> > children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Independence Check Lists
> > Message-ID: <002b01cc4da0$054a8e20$0fdfaa60$@net>
> > Content-Type: text/plain; charset="UTF-8"
> >
> > Well, these are the million dollar questions.....
> >
> > I would begin with the basics. I don't know how old your child is or
what
> he or she can and cannot do, but....
> > Just thinking back to when my kids were in school, there were always
kids
> from the class who went to the office to deliver things, counted the lunch
> money, delivered messages to the library or school nurse, etc. So if your
> kid needs help with mobility, I would expect him/her to be included in the
> rotation to take on any and all classroom chores, as any other kid would
do.
> > If he's learning about money and food, he should learn how to count
> money, about decimals, identifying coins, how to fold money, how to shop
> with customer service, the layout of most grocery stores, etc. Don't let
the
> teacher teach him how to use wallets with a bunch of different zippered
> pockets. Make sure he learns how to fold his currency. So it all depends
on
> what his curriculum is. ADL and mobility skills can be fitted in in a lot
of
> places in different subjects.
> > A trip to the grocery store includes mobility, money, math, percentages
> for sale prices, use of talking calculators, , besides nutrition,
> classifying fruits, vegetables, etc., learning to read nutrition labels,
> math again (percentage of calories from fat, etc), cchemical names of
> ingredients or vitamins and minerals, geography (where is the food grown,
> packaged, bottled, etc), ecology (how did the food get to your store, how
> long did it have to travel, how did it travel, what kind of energy was
used
> to transport it, what kind of carbon "footprint" does it leave).
> >
> > And whatever lessons were being done at school, I would try to do them
at
> home as well. I think a lot of ADL tasks can be taught just as part of
> living. If school is working on math at the store, take the kid with you
and
> talk about figuring out costs with the 20% off sale or how much you saved
at
> the market when you used your store awards card, what percentage does that
> equal, or what is the family budget for groceries for the week and did you
> make it or overspend, and what happens when you overspend or have money
left
> over for the week? Let him ask for customer service for help shopping for
> at first, just one or two items, and then increase the number. Have him
help
> you unpack the groceries at home, identify them, put them away, discuss
what
> they will be used for in what recipes, which foods support goodhealth and
> which are special treat items, which are grown locally and which are
> imported, etc. Is there a nearby store you can walk to so he can get used
> to that, as well as carrying packages home after shopping? Does he know
how
> to listen for parallel and perpendicular traffic at street corners and
> listening to the flow of traffic as the lights change?
> >
> > This is where a good blind mentor might be able to help you.
> >
> > Don't know if any of that helps.
> >
> >
> >
> >
> > I appreciate your enthusiasm & passion, & also agree with much of what
> you
> > say, but as far as ADLs, what would you suggest adding to a child's IEP
> > that would actually accomplish something of significance?
> > How would you phrase goals?
> > Young adults may catch on quickly, but many kids require lots of
practice
> > & repetition to really master ADLs independently.
> > Beyond the "lack of time" issue that I hear oh too often in TVI forums,
> > the unspoken, but very real reality is that many, likely most, VI
> teachers
> > don't have the experience and training to teach ADLs any better than a
> > parent. They also don't have the experience and training to explain to a
> > parent how to teach these activities at home. ADLs are a huge deficiency
> > gap in their training.
> > Respectfully,
> > Eric V
> >
> >
> > On 7/25/11 8:29 PM, "Debbie Gabe" <gabe808 at hawaiiantel.net> wrote:
> >
> > >Hi,
> > >I work with your kids when they get out of high school. I am a personal
> > >and
> > >home management instructor at an adult blind orientation center in
> > >Honolulu.
> > >And I'm also partially blind myself.
> > >
> > >I hope that no one takes what I will say the wrong way. But my primary
> > >concern is for the blind kid. My center is built on the belief that
> > >blindness can be reduced to a mere inconvenience with the proper
> training,
> > >and we have high expectations for all of our students. We encourage
them
> > >to
> > >problem solve as often as possible in all sorts of situations. We
> > >encourage
> > >them to strive for independence and self confidence. So what I have to
> say
> > >comes from those thoughts and intentions, not to put anyone down.
> Because
> > >I
> > >am also a parent, and I know how hard raising kids is.
> > >
> > >It's really a struggle for those kids who grew up blind and have been
> > >overprotected. They often do not know how to explore. And moving their
> > >bodies to explore a countertop or cabinet or floor is really crucial to
> > >learning how to sweep, clean, wipe counters, mop, look for items in a
> > >closet
> > >or cabinet or refrigerator, clean a stove, etc, etc. It's even crucial
> > >when
> > >trying to teach them how to stir fry, saut?, turn over hamburgers they
> > >have
> > >placed on a grill, scrambling eggs, ironing.
> > >
> > >Please, please let them, teach them how to explore, encourage them to
> > >move,
> > >let them try anything their sighted peers or siblings would try (within
> > >reason, of course, like not driving). Encourage them, no expect them,
> to
> > >do
> > >their chores (or face the consequences), to help out around the house,
> > >setting the table, clearning the table, cleaning dishes, scrubbing the
> > >toilet and tub, loading and starting the washer. Teach them how to
label
> > >their clothes so they can separate their own clothes for laundry loads.
> > >They
> > >will need to know how to do this when they go off to college anyway.
> Let
> > >them help you in the kitchen: chopping, using real chef knives even,
> > >stirring, frying, baking, grilling, lighting birthday cake candles. Yes
> > >there are ways to do these things safely. If you are worried about
> fires,
> > >teach them simple first aid and by all means, please teach them how to
> > >use a
> > >fire extinguisher and let them find out where your are. Speaking of
> that,
> > >teach them how to change the batteries in the smoke alarms and how to
> > >check
> > >the batteries once a month. Let them help you mark the microwave and
> oven
> > >controls, washer and dryer controls, iron controls, etc so that they
can
> > >use
> > >these independently after learning how.
> > >
> > >Believe me, you are hindering your child by not allowing and expecting
> > >him/her to learn how to do these simple household/family activities.
> > >And if you just don't know how to teach some of these things, or don't
> > >have
> > >the time, ask to have some of these things put on their IEPs. I have
had
> > >several school teachers of the blind contact me for suggestions and
> > >tip-sharing for teaching these activities.
> > >But the most important thing to teach is how to be inquisitive and to
> > >explore anything and everything!
> > >
> > >Sorry to go on so long, but I had to add my 2 cents.
> > >Good luck to you all.
> > >Debbie
> > >
> > >-----Original Message-----
> > >From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On
> > >Behalf Of Bonnie Lucas
> > >Sent: Monday, July 25, 2011 4:09 PM
> > >To: 'NFBnet Blind Kid Mailing List, (for parents of blind children)'
> > >Subject: Re: [blindkid] Independence Check Lists
> > >
> > >That is so cool. I know he won't regret learning these things while he
> is
> > >young. He will be able to truly fit in with his peers.
> > >Bonnie
> > >
> > >-----Original Message-----
> > >From: DrV [mailto:icdx at earthlink.net]
> > >Sent: Monday, July 25, 2011 6:40 AM
> > >To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> > >Subject: [blindkid] Independence Check Lists
> > >
> > >Hi All,
> > >I'm sure most, if not all, of the parents on this listserv can relate
to
> > >the
> > >sentiment of "there is just not enough time to teach my son or daughter
> > >everything". While I don't have "the answer", I wanted to share an
> > >approach
> > >that seems to be working out well for us.
> > >As my older son is about to start his freshman year at high school, I
> keep
> > >asking myself "Where has all the time gone? How could it possibly have
> > >slipped by so quickly?" In 4 short years collage tuition will be due.
> > >It is also becoming increasingly clear that there is still a lot to
> cover
> > >on
> > >the non-academic side in order for him (& us) to feel comfortable with
> him
> > >living & getting around on his own, potentially in a new city. There is
> > >shopping, laundry, & a host of other stuff he will need to be able to
do
> > >on
> > >his own.
> > >My older son really wants be ready on a social level for high school.
> > >Those
> > >that know him are quite aware he is very talkative & social, but it is
> all
> > >the other skills that need work (independent mobility, organization,
> more
> > >advanced technology awareness, more appropriate table manners &
> > >independence
> > >so he can confidently, comfortably go out to eat & party with friends,
> > >maintain a neat room & bathroom for when friends come over, etc). There
> > >is a
> > >lot that still needs to be covered - these are things that for many
> blind
> > >kids end up not really getting covered to a truly adequate degree at
> > >school.
> > >I'm sure some of you have heard of the "Expanded Core Curriculum for
> Blind
> > >and VI Children and Youths" ? it?s supposed to be part of every IEP? As
> > >someone who is slowly becoming a more seasoned veteran (as a parent), I
> > >hope
> > >no one is holding his or her breath for the educational system to
> address
> > >everything.
> > >For years we have been approaching this is in "baby steps" you might
> say;
> > >we
> > >sit down several times a year & list out a finite number of things that
> we
> > >want to specifically address with our boys for the next few months (the
> > >number varies with what is on the list). If we don't go through that
> > >process, then the time just seems to slip by without really actively
> > >addressing all but the most pressing issues. In recent years we have
had
> > >the
> > >boys contribute their wishes to that process ? figuring everyone has
> > >different priorities & because they will likely put more effort into
> what
> > >they perceive to be most important. We try to when possible make it fun
> ?
> > >walking to the local minimart to buy a Sunday newspaper involves O&M as
> > >well
> > >as manipulation of money (& it is amazing what comes up on conversation
> > >during those walks where we are not focused on other things). Some
> things
> > >turn in to expected chores ? the list gradually expands over time. It
is
> > >never too early to start. Some things like learning to zip a vest or
> > >organize a backpack or tie shoes just have to be barreled through. &
> yes,
> > >we
> > >too can relate to toothpaste challenges.
> > >This summer my younger son is out of town with my wife due to his
recent
> > >eye
> > >surgery; the older one is too old for the Buddy Program & not old
enough
> > >for
> > >the next level up. Since he is motivated & this is an important
> transition
> > >year before high school, we decide to make the most of this summer &
our
> > >focus is to tackle a longer list of things to address.
> > >At the beginning of the summer I asked my older son to generate a list
> of
> > >things he wanted to & he felt he needed work on. I asked him to think
> big
> > >&
> > >to be ambitious. That he did!
> > >We were pleasantly surprised to get his list ? much of what was on
there
> > >were things that my wife & I too felt needed to be addressed, but
> > >importantly, it is his list. We sat down & categorized the items on the
> > >list
> > >& are working through those. He is now downloading books on his own,
> > >working
> > >on his laptop skills (getting a handle on iTunes & Bookshare are both
> > >motivating & empowering). He has been making his own breakfast everyday
> > >working on other meals, & even cleaning off the table. (He did share
> with
> > >me
> > >that he is now consciously trying to eat neater, so that there is less
> to
> > >wipe off the table - & it has been totally clean even before he wiped
it
> > >off
> > >a number of times now). ?Kitchen O&M? is a great experience & he now is
> > >beginning to realize how much effort is takes to prepare for meals
(with
> > >my
> > >wife out of town, he & I have to go buy everything as well). He has
> really
> > >taken ownership for his list & is enthusiastically pursuing things that
> my
> > >otherwise have been taxing.
> > >An unanticipated "side-effect" of being apart for a few weeks is that
> when
> > >the boys talk to each other on the phone, they each are somewhat
envious
> > >of
> > >what the other is doing or learning & now are asking to try things on
> the
> > >other is working on! :-)
> > >We still have about a month to go before the start of the upcoming
> school
> > >year. Both boys will have accomplished & learned a lot of skills by
that
> > >time. We are making nice progress through the list, taking on items on
> as
> > >seems most natural throughout the course of this summer. They will have
> > >mastered some, but not all. We will however at least address each item
> > >more
> > >than just superficially - to a level that will be their solid
foundation
> > >for
> > >this next year when they can follow through & practice until they reach
> > >proficiency.
> > >Honestly, the sense of pride & confidence that emanates from each of
> them
> > >the first time they do the task totally on their own is precious. It is
> > >very
> > >gratifying to see how with time & further practice they refine each new
> > >skill until it becomes commonplace. What once provoked anxiety or
unease
> > >has
> > >been transformed into their routine. They actually seem to enjoy coming
> up
> > >with goals to work on.
> > >It?s never too early to start working on things in a more focused
> fashion.
> > >Time flies by oh so fast?
> > >Eric V
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >_______________________________________________
> > >blindkid mailing list
> > >blindkid at nfbnet.org
> > >http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >To unsubscribe, change your list options or get your account info for
> > >blindkid:
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/gabe808%40hawaii
> > >an
> > >tel.net
> > >
> > >
> > >_______________________________________________
> > >blindkid mailing list
> > >blindkid at nfbnet.org
> > >http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >To unsubscribe, change your list options or get your account info for
> > >blindkid:
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/icdx%40earthlink
> > >.net
> >
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet
org/gabe808%40hawaiiantel.net
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 11
> > Date: Thu, 28 Jul 2011 22:34:53 -0700
> > From: DrV <icdx at earthlink.net>
> > To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> > <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Independence Check Lists
> > Message-ID: <CA578528.6BB9%icdx at earthlink.net>
> > Content-Type: text/plain; charset="UTF-8"
> >
> > Hi Debbie,
> > Thanks for elaborating & for the thoughtful response. It is great to
have
> > you as a resource.
> > I agree that those are important things to think about & to learn.
> > Perhaps our definitions of what constitutes ADLs (activities of daily
> > living) differs a bit.
> > While learning is certainly intertwined, & while mobility is critical
for
> > independence, my understanding is that in the ECC, ADLs are separated
out
> > from O&M.
> > The Expanded Core Curriculum is broken down into 9 categories
> > (
> www.afb.org/Section.asp?SectionID=44&TopicID=189&SubTopicID=4&DocumentID=2
> > 117):
> > My opinion of the ECC & who really addresses the components hasn't
> changed
> > much over time.
> > Here's my take on this:
> > 1. Compensatory or functional academic skills, including communication
> > modes -> something that the whole IEP Team works on.
> > 2. Orientation and mobility -> Hopefully O&M Instructor addresses this,
> > though by the time many students graduate they still don t really have
> the
> > independent travel skills they need. Too often the childhood O&M
> > instructors don't cover all that needs to be covered to be truly
> > independent & essentially pass the buck to rehab. The educational
systems
> > largely overlooks the reality that many kids will have traveled in far
> > more environments & will have covered many more miles with their parents
> > than with a formally trained O&M instructor.
> > 3. Social interaction skills -> Addressed be parents & hopefully by the
> > school.
> > 4. Independent living skills -> I still am of the belief that the bulk
of
> > this rests on the parents & summer programs like the Buddy Program (If
> > this were appropriately addressed, fewer young adults would need to take
> > 6-9 months or so off work on these skills in post-high school programs).
> > In the school setting an OT is probably better trained to address these
> > skills than the average VI teacher.
> > 5. Recreation and leisure skills -> This one is mostly the up to the
> > parents.
> > 6. Career education -> Parents & rehab.
> > 7. Use of assistive technology -> TVI though often only because of the
> > persistence of the parents - unfortunately many TVIs struggle with
> > technology, especially the newer stuff, but often even the basics.
> > 8. Sensory efficiency skills (unless one includes echolocation as part
of
> > this skill set, short of a hearing aide or special magnification devises
> > I'm not clear to me how often or formally this one is addressed)
> > 9. Self-determination -> This one is again mostly the parents & youth
> > programs like those put on by the NFB that both role model & foster this
> > Obviously the buy-in & attitude of the student is critical, for they are
> > the most important component, but the reality is that most TVIs don't
> > really have the time or experience to cover all the components of the
> ECC.
> > Given the current caseloads & the limited time: 45-60 minutes with a TVI
> 2
> > or 3 times a week, or even daily & 45-90 minutes with an O&M instructor
a
> > week, it is no great surprise that this is not adequately covered.
Beyond
> > that, many (perhaps most) General Ed administrators & teachers have
never
> > heard of the ECC.
> > A number of the components of The Expanded Core Curriculum are covered
> > indirectly & superficially, if at all, by the formal IEP process & the
> ECC
> > is rarely covered with the same vigor & level of high expectations as
the
> > General Education Curriculum.
> >
> >
> > I couldn't agree with you more that the input of good blind mentors &
> > blind peers are an amazing asset for a blind child & their families -
> > unfortunately I don't know of many IEP teams that actively incorporate
or
> > encourage blind mentors.
> > I wish things were different, but such is my perspective.
> > Eric
> >
> > On 7/28/11 8:31 PM, "Debbie Gabe" <gabe808 at hawaiiantel.net> wrote:
> >
> > >Well, these are the million dollar questions.....
> > >
> > >I would begin with the basics. I don't know how old your child is or
> what
> > >he or she can and cannot do, but....
> > >Just thinking back to when my kids were in school, there were always
> kids
> > >from the class who went to the office to deliver things, counted the
> > >lunch money, delivered messages to the library or school nurse, etc. So
> > >if your kid needs help with mobility, I would expect him/her to be
> > >included in the rotation to take on any and all classroom chores, as
any
> > >other kid would do.
> > >If he's learning about money and food, he should learn how to count
> > >money, about decimals, identifying coins, how to fold money, how to
shop
> > >with customer service, the layout of most grocery stores, etc. Don't
let
> > >the teacher teach him how to use wallets with a bunch of different
> > >zippered pockets. Make sure he learns how to fold his currency. So it
> all
> > >depends on what his curriculum is. ADL and mobility skills can be
fitted
> > >in in a lot of places in different subjects.
> > >A trip to the grocery store includes mobility, money, math, percentages
> > >for sale prices, use of talking calculators, , besides nutrition,
> > >classifying fruits, vegetables, etc., learning to read nutrition labels
> > >math again (percentage of calories from fat, etc), cchemical names of
> > >ingredients or vitamins and minerals, geography (where is the food
> grown,
> > >packaged, bottled, etc), ecology (how did the food get to your store,
> how
> > >long did it have to travel, how did it travel, what kind of energy was
> > >used to transport it, what kind of carbon "footprint" does it leave).
> > >
> > >And whatever lessons were being done at school, I would try to do them
> at
> > >home as well. I think a lot of ADL tasks can be taught just as part of
> > >living. If school is working on math at the store, take the kid with
you
> > >and talk about figuring out costs with the 20% off sale or how much you
> > >saved at the market when you used your store awards card, what
> percentage
> > >does that equal, or what is the family budget for groceries for the
week
> > >and did you make it or overspend, and what happens when you overspend
or
> > >have money left over for the week? Let him ask for customer service
for
> > >help shopping for, at first, just one or two items, and then increase
> the
> > >number. Have him help you unpack the groceries at home, identify them,
> > >put them away, discuss what they will be used for in what recipes,
which
> > >foods support goodhealth and which are special treat items, which are
> > >grown locally and which are imported, etc. Is there a nearby store you
> > >can walk to so he can get used to that, as well as carrying packages
> home
> > >after shopping? Does he know how to listen for parallel and
> perpendicular
> > >traffic at street corners and listening to the flow of traffic as the
> > >lights change?
> > >
> > >This is where a good blind mentor might be able to help you.
> > >
> > >Don't know if any of that helps.
> > >
> > >
> > >
> > >
> > >I appreciate your enthusiasm & passion, & also agree with much of what
> you
> > >say, but as far as ADLs, what would you suggest adding to a child's IEP
> > >that would actually accomplish something of significance?
> > >How would you phrase goals?
> > >Young adults may catch on quickly, but many kids require lots of
> practice
> > >& repetition to really master ADLs independently.
> > >Beyond the "lack of time" issue that I hear oh too often in TVI forums,
> > >the unspoken, but very real reality is that many, likely most, VI
> teachers
> > >don't have the experience and training to teach ADLs any better than a
> > >parent. They also don't have the experience and training to explain to
a
> > >parent how to teach these activities at home. ADLs are a huge
deficiency
> > >gap in their training.
> > >Respectfully,
> > >Eric V
> > >
> > >
> > >On 7/25/11 8:29 PM, "Debbie Gabe" <gabe808 at hawaiiantel.net> wrote:
> > >
> > >>Hi,
> > >>I work with your kids when they get out of high school. I am a
personal
> > >>and
> > >>home management instructor at an adult blind orientation center in
> > >>Honolulu.
> > >>And I'm also partially blind myself.
> > >>
> > >>I hope that no one takes what I will say the wrong way. But my primary
> > >>concern is for the blind kid. My center is built on the belief that
> > >>blindness can be reduced to a mere inconvenience with the proper
> > >>training,
> > >>and we have high expectations for all of our students. We encourage
> them
> > >>to
> > >>problem solve as often as possible in all sorts of situations. We
> > >>encourage
> > >>them to strive for independence and self confidence. So what I have to
> > >>say
> > >>comes from those thoughts and intentions, not to put anyone down.
> Because
> > >>I
> > >>am also a parent, and I know how hard raising kids is.
> > >>
> > >>It's really a struggle for those kids who grew up blind and have been
> > >>overprotected. They often do not know how to explore. And moving their
> > >>bodies to explore a countertop or cabinet or floor is really crucial
to
> > >>learning how to sweep, clean, wipe counters, mop, look for items in a
> > >>closet
> > >>or cabinet or refrigerator, clean a stove, etc, etc. It's even crucial
> > >>when
> > >>trying to teach them how to stir fry, saut?, turn over hamburgers they
> > >>have
> > >>placed on a grill, scrambling eggs, ironing.
> > >>
> > >>Please, please let them, teach them how to explore, encourage them to
> > >>move,
> > >>let them try anything their sighted peers or siblings would try
(within
> > >>reason, of course, like not driving). Encourage them, no expect them,
> to
> > >>do
> > >>their chores (or face the consequences), to help out around the house,
> > >>setting the table, clearning the table, cleaning dishes, scrubbing the
> > >>toilet and tub, loading and starting the washer. Teach them how to
> label
> > >>their clothes so they can separate their own clothes for laundry loads
> > >>They
> > >>will need to know how to do this when they go off to college anyway.
> Let
> > >>them help you in the kitchen: chopping, using real chef knives even,
> > >>stirring, frying, baking, grilling, lighting birthday cake candles.
> Yes,
> > >>there are ways to do these things safely. If you are worried about
> fires,
> > >>teach them simple first aid and by all means, please teach them how to
> > >>use a
> > >>fire extinguisher and let them find out where your are. Speaking of
> that,
> > >>teach them how to change the batteries in the smoke alarms and how to
> > >>check
> > >>the batteries once a month. Let them help you mark the microwave and
> > >>oven
> > >>controls, washer and dryer controls, iron controls, etc so that they
> can
> > >>use
> > >>these independently after learning how.
> > >>
> > >>Believe me, you are hindering your child by not allowing and expecting
> > >>him/her to learn how to do these simple household/family activities.
> > >>And if you just don't know how to teach some of these things, or don't
> > >>have
> > >>the time, ask to have some of these things put on their IEPs. I have
> had
> > >>several school teachers of the blind contact me for suggestions and
> > >>tip-sharing for teaching these activities.
> > >>But the most important thing to teach is how to be inquisitive and to
> > >>explore anything and everything!
> > >>
> > >>Sorry to go on so long, but I had to add my 2 cents.
> > >>Good luck to you all.
> > >>Debbie
> > >>
> > >>-----Original Message-----
> > >>From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On
> > >>Behalf Of Bonnie Lucas
> > >>Sent: Monday, July 25, 2011 4:09 PM
> > >>To: 'NFBnet Blind Kid Mailing List, (for parents of blind children)'
> > >>Subject: Re: [blindkid] Independence Check Lists
> > >>
> > >>That is so cool. I know he won't regret learning these things while he
> is
> > >>young. He will be able to truly fit in with his peers.
> > >>Bonnie
> > >>
> > >>-----Original Message-----
> > >>From: DrV [mailto:icdx at earthlink.net]
> > >>Sent: Monday, July 25, 2011 6:40 AM
> > >>To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> > >>Subject: [blindkid] Independence Check Lists
> > >>
> > >>Hi All,
> > >>I'm sure most, if not all, of the parents on this listserv can relate
> to
> > >>the
> > >>sentiment of "there is just not enough time to teach my son or
daughter
> > >>everything". While I don't have "the answer", I wanted to share an
> > >>approach
> > >>that seems to be working out well for us.
> > >>As my older son is about to start his freshman year at high school, I
> > >>keep
> > >>asking myself "Where has all the time gone? How could it possibly have
> > >>slipped by so quickly?" In 4 short years collage tuition will be due.
> > >>It is also becoming increasingly clear that there is still a lot to
> cover
> > >>on
> > >>the non-academic side in order for him (& us) to feel comfortable with
> > >>him
> > >>living & getting around on his own, potentially in a new city. There
is
> > >>shopping, laundry, & a host of other stuff he will need to be able to
> do
> > >>on
> > >>his own.
> > >>My older son really wants be ready on a social level for high school.
> > >>Those
> > >>that know him are quite aware he is very talkative & social, but it is
> > >>all
> > >>the other skills that need work (independent mobility, organization,
> more
> > >>advanced technology awareness, more appropriate table manners &
> > >>independence
> > >>so he can confidently, comfortably go out to eat & party with friends,
> > >>maintain a neat room & bathroom for when friends come over, etc).
There
> > >>is a
> > >>lot that still needs to be covered - these are things that for many
> blind
> > >>kids end up not really getting covered to a truly adequate degree at
> > >>school.
> > >>I'm sure some of you have heard of the "Expanded Core Curriculum for
> > >>Blind
> > >>and VI Children and Youths" ? it?s supposed to be part of every IEP?
As
> > >>someone who is slowly becoming a more seasoned veteran (as a parent),
I
> > >>hope
> > >>no one is holding his or her breath for the educational system to
> address
> > >>everything.
> > >>For years we have been approaching this is in "baby steps" you might
> say;
> > >>we
> > >>sit down several times a year & list out a finite number of things
that
> > >>we
> > >>want to specifically address with our boys for the next few months
(the
> > >>number varies with what is on the list). If we don't go through that
> > >>process, then the time just seems to slip by without really actively
> > >>addressing all but the most pressing issues. In recent years we have
> had
> > >>the
> > >>boys contribute their wishes to that process ? figuring everyone has
> > >>different priorities & because they will likely put more effort into
> what
> > >>they perceive to be most important. We try to when possible make it
fun
> ?
> > >>walking to the local minimart to buy a Sunday newspaper involves O&M
as
> > >>well
> > >>as manipulation of money (& it is amazing what comes up on
conversation
> > >>during those walks where we are not focused on other things). Some
> things
> > >>turn in to expected chores ? the list gradually expands over time. It
> is
> > >>never too early to start. Some things like learning to zip a vest or
> > >>organize a backpack or tie shoes just have to be barreled through. &
> yes,
> > >>we
> > >>too can relate to toothpaste challenges.
> > >>This summer my younger son is out of town with my wife due to his
> recent
> > >>eye
> > >>surgery; the older one is too old for the Buddy Program & not old
> enough
> > >>for
> > >>the next level up. Since he is motivated & this is an important
> > >>transition
> > >>year before high school, we decide to make the most of this summer &
> our
> > >>focus is to tackle a longer list of things to address.
> > >>At the beginning of the summer I asked my older son to generate a list
> of
> > >>things he wanted to & he felt he needed work on. I asked him to think
> big
> > >>&
> > >>to be ambitious. That he did!
> > >>We were pleasantly surprised to get his list ? much of what was on
> there
> > >>were things that my wife & I too felt needed to be addressed, but
> > >>importantly, it is his list. We sat down & categorized the items on
the
> > >>list
> > >>& are working through those. He is now downloading books on his own,
> > >>working
> > >>on his laptop skills (getting a handle on iTunes & Bookshare are both
> > >>motivating & empowering). He has been making his own breakfast
> everyday,
> > >>working on other meals, & even cleaning off the table. (He did share
> with
> > >>me
> > >>that he is now consciously trying to eat neater, so that there is less
> to
> > >>wipe off the table - & it has been totally clean even before he wiped
> it
> > >>off
> > >>a number of times now). ?Kitchen O&M? is a great experience & he now
is
> > >>beginning to realize how much effort is takes to prepare for meals
> (with
> > >>my
> > >>wife out of town, he & I have to go buy everything as well). He has
> > >>really
> > >>taken ownership for his list & is enthusiastically pursuing things
that
> > >>my
> > >>otherwise have been taxing.
> > >>An unanticipated "side-effect" of being apart for a few weeks is that
> > >>when
> > >>the boys talk to each other on the phone, they each are somewhat
> envious
> > >>of
> > >>what the other is doing or learning & now are asking to try things on
> the
> > >>other is working on! :-)
> > >>We still have about a month to go before the start of the upcoming
> school
> > >>year. Both boys will have accomplished & learned a lot of skills by
> that
> > >>time. We are making nice progress through the list, taking on items on
> as
> > >>seems most natural throughout the course of this summer. They will
have
> > >>mastered some, but not all. We will however at least address each item
> > >>more
> > >>than just superficially - to a level that will be their solid
> foundation
> > >>for
> > >>this next year when they can follow through & practice until they
reach
> > >>proficiency.
> > >>Honestly, the sense of pride & confidence that emanates from each of
> them
> > >>the first time they do the task totally on their own is precious. It
is
> > >>very
> > >>gratifying to see how with time & further practice they refine each
new
> > >>skill until it becomes commonplace. What once provoked anxiety or
> unease
> > >>has
> > >>been transformed into their routine. They actually seem to enjoy
coming
> > >>up
> > >>with goals to work on.
> > >>It?s never too early to start working on things in a more focused
> > >>fashion.
> > >>Time flies by oh so fast?
> > >>Eric V
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>_______________________________________________
> > >>blindkid mailing list
> > >>blindkid at nfbnet.org
> > >>http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >>To unsubscribe, change your list options or get your account info for
> > >>blindkid:
> > >>
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> > >>i
> > >>an
> > >>tel.net
> > >>
> > >>
> > >>_______________________________________________
> > >>blindkid mailing list
> > >>blindkid at nfbnet.org
> > >>http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >>To unsubscribe, change your list options or get your account info for
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> > >>
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> > >>k
> > >>.net
> > >
> > >
> > >
> > >_______________________________________________
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> > >blindkid at nfbnet.org
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> > >
> > >
> > >_______________________________________________
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> >
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 12
> > Date: Thu, 28 Jul 2011 23:51:08 -0700
> > From: "Debbie Gabe" <gabe808 at hawaiiantel.net>
> > To: "'NFBnet Blind Kid Mailing List, \(for parents of blind
> > children\)'" <blindkid at nfbnet.org>
> > Subject: Re: [blindkid] Independence Check Lists
> > Message-ID: <000a01cc4dbb$e5ff5200$b1fdf600$@net>
> > Content-Type: text/plain; charset="utf-8"
> >
> > Hi Eric,
> > Is there a local NFB chapter in your area? I would contact them and ask
> for help, in the form of either a blind mentor for the family and an
> advocate for the IEP meetings.
> >
> > I've never been part of the school system, always been outside of it,
and
> I've always seen school systems as a big mystery.
> > I know that in the schools, the OT is probably the best professional to
> deal with certail ADL tasks, but OTs as a rule have low expectations for
> blind people and no little about blindness. Believe, I used to work with
> some very good OTs, and they knew nothing about blindness and what blind
> people were capable of.
> >
> > If I was in your boat, I'd try to make friends with some blind adults
and
> pick their brains and invite them on family outings and over for dinners
as
> a friend and as a role model for your child and as a resource for you.
> >
> > I do know that here in Hawaii, we did have a few high school students
> attend our adult orientation center on a part time basis during their
senior
> years. All different schedules: one was 2 days a week, one was every
> afternoon, and one was 2 mornings and 3 afternoons. It got into their IEPs
> thanks to someone from the local NFB chapter who went to IEP meetings
along
> with a VR counselor from our center.
> > But it's great for your kid that at least you are connected with the NFB
> and their parents division. It's a great division - I've attended a few of
> their meetings at national conventions. So you are doing more for your kid
> just from that that many parents are I'm talking about the parents who
> don't get their kid or themselves involved with NFB type activities. Good
> for you!
> > Being a parent of anyone is a challenge, regardless of whether they are
> sighted or blind!
> > debs
> >
> > -----Original Message-----
> > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On Behalf Of DrV
> > Sent: Thursday, July 28, 2011 10:35 PM
> > To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> > Subject: Re: [blindkid] Independence Check Lists
> >
> > Hi Debbie,
> > Thanks for elaborating & for the thoughtful response. It is great to
have
> > you as a resource.
> > I agree that those are important things to think about & to learn.
> > Perhaps our definitions of what constitutes ADLs (activities of daily
> > living) differs a bit.
> > While learning is certainly intertwined, & while mobility is critical
for
> > independence, my understanding is that in the ECC, ADLs are separated
out
> > from O&M.
> > The Expanded Core Curriculum is broken down into 9 categories
> > (
> www.afb.org/Section.asp?SectionID=44&TopicID=189&SubTopicID=4&DocumentID=2
> > 117):
> > My opinion of the ECC & who really addresses the components hasn't
> changed
> > much over time.
> > Here's my take on this:
> > 1. Compensatory or functional academic skills, including communication
> > modes -> something that the whole IEP Team works on.
> > 2. Orientation and mobility -> Hopefully O&M Instructor addresses this,
> > though by the time many students graduate they still don t really have
> the
> > independent travel skills they need. Too often the childhood O&M
> > instructors don't cover all that needs to be covered to be truly
> > independent & essentially pass the buck to rehab. The educational
systems
> > largely overlooks the reality that many kids will have traveled in far
> > more environments & will have covered many more miles with their parents
> > than with a formally trained O&M instructor.
> > 3. Social interaction skills -> Addressed be parents & hopefully by the
> > school.
> > 4. Independent living skills -> I still am of the belief that the bulk
of
> > this rests on the parents & summer programs like the Buddy Program (If
> > this were appropriately addressed, fewer young adults would need to take
> > 6-9 months or so off work on these skills in post-high school programs).
> > In the school setting an OT is probably better trained to address these
> > skills than the average VI teacher.
> > 5. Recreation and leisure skills -> This one is mostly the up to the
> > parents.
> > 6. Career education -> Parents & rehab.
> > 7. Use of assistive technology -> TVI though often only because of the
> > persistence of the parents - unfortunately many TVIs struggle with
> > technology, especially the newer stuff, but often even the basics.
> > 8. Sensory efficiency skills (unless one includes echolocation as part
of
> > this skill set, short of a hearing aide or special magnification devises
> > I'm not clear to me how often or formally this one is addressed)
> > 9. Self-determination -> This one is again mostly the parents & youth
> > programs like those put on by the NFB that both role model & foster this
> > Obviously the buy-in & attitude of the student is critical, for they are
> > the most important component, but the reality is that most TVIs don't
> > really have the time or experience to cover all the components of the
> ECC.
> > Given the current caseloads & the limited time: 45-60 minutes with a TVI
> 2
> > or 3 times a week, or even daily & 45-90 minutes with an O&M instructor
a
> > week, it is no great surprise that this is not adequately covered.
Beyond
> > that, many (perhaps most) General Ed administrators & teachers have
never
> > heard of the ECC.
> > A number of the components of The Expanded Core Curriculum are covered
> > indirectly & superficially, if at all, by the formal IEP process & the
> ECC
> > is rarely covered with the same vigor & level of high expectations as
the
> > General Education Curriculum.
> >
> >
> > I couldn't agree with you more that the input of good blind mentors &
> > blind peers are an amazing asset for a blind child & their families -
> > unfortunately I don't know of many IEP teams that actively incorporate
or
> > encourage blind mentors.
> > I wish things were different, but such is my perspective.
> > Eric
> >
> > On 7/28/11 8:31 PM, "Debbie Gabe" <gabe808 at hawaiiantel.net> wrote:
> >
> > >Well, these are the million dollar questions.....
> > >
> > >I would begin with the basics. I don't know how old your child is or
> what
> > >he or she can and cannot do, but....
> > >Just thinking back to when my kids were in school, there were always
> kids
> > >from the class who went to the office to deliver things, counted the
> > >lunch money, delivered messages to the library or school nurse, etc. So
> > >if your kid needs help with mobility, I would expect him/her to be
> > >included in the rotation to take on any and all classroom chores, as
any
> > >other kid would do.
> > >If he's learning about money and food, he should learn how to count
> > >money, about decimals, identifying coins, how to fold money, how to
shop
> > >with customer service, the layout of most grocery stores, etc. Don't
let
> > >the teacher teach him how to use wallets with a bunch of different
> > >zippered pockets. Make sure he learns how to fold his currency. So it
> all
> > >depends on what his curriculum is. ADL and mobility skills can be
fitted
> > >in in a lot of places in different subjects.
> > >A trip to the grocery store includes mobility, money, math, percentages
> > >for sale prices, use of talking calculators, , besides nutrition,
> > >classifying fruits, vegetables, etc., learning to read nutrition labels
> > >math again (percentage of calories from fat, etc), cchemical names of
> > >ingredients or vitamins and minerals, geography (where is the food
> grown,
> > >packaged, bottled, etc), ecology (how did the food get to your store,
> how
> > >long did it have to travel, how did it travel, what kind of energy was
> > >used to transport it, what kind of carbon "footprint" does it leave).
> > >
> > >And whatever lessons were being done at school, I would try to do them
> at
> > >home as well. I think a lot of ADL tasks can be taught just as part of
> > >living. If school is working on math at the store, take the kid with
you
> > >and talk about figuring out costs with the 20% off sale or how much you
> > >saved at the market when you used your store awards card, what
> percentage
> > >does that equal, or what is the family budget for groceries for the
week
> > >and did you make it or overspend, and what happens when you overspend
or
> > >have money left over for the week? Let him ask for customer service
for
> > >help shopping for, at first, just one or two items, and then increase
> the
> > >number. Have him help you unpack the groceries at home, identify them,
> > >put them away, discuss what they will be used for in what recipes,
which
> > >foods support goodhealth and which are special treat items, which are
> > >grown locally and which are imported, etc. Is there a nearby store you
> > >can walk to so he can get used to that, as well as carrying packages
> home
> > >after shopping? Does he know how to listen for parallel and
> perpendicular
> > >traffic at street corners and listening to the flow of traffic as the
> > >lights change?
> > >
> > >This is where a good blind mentor might be able to help you.
> > >
> > >Don't know if any of that helps.
> > >
> > >
> > >
> > >
> > >I appreciate your enthusiasm & passion, & also agree with much of what
> you
> > >say, but as far as ADLs, what would you suggest adding to a child's IEP
> > >that would actually accomplish something of significance?
> > >How would you phrase goals?
> > >Young adults may catch on quickly, but many kids require lots of
> practice
> > >& repetition to really master ADLs independently.
> > >Beyond the "lack of time" issue that I hear oh too often in TVI forums,
> > >the unspoken, but very real reality is that many, likely most, VI
> teachers
> > >don't have the experience and training to teach ADLs any better than a
> > >parent. They also don't have the experience and training to explain to
a
> > >parent how to teach these activities at home. ADLs are a huge
deficiency
> > >gap in their training.
> > >Respectfully,
> > >Eric V
> > >
> > >
> > >On 7/25/11 8:29 PM, "Debbie Gabe" <gabe808 at hawaiiantel.net> wrote:
> > >
> > >>Hi,
> > >>I work with your kids when they get out of high school. I am a
personal
> > >>and
> > >>home management instructor at an adult blind orientation center in
> > >>Honolulu.
> > >>And I'm also partially blind myself.
> > >>
> > >>I hope that no one takes what I will say the wrong way. But my primary
> > >>concern is for the blind kid. My center is built on the belief that
> > >>blindness can be reduced to a mere inconvenience with the proper
> > >>training,
> > >>and we have high expectations for all of our students. We encourage
> them
> > >>to
> > >>problem solve as often as possible in all sorts of situations. We
> > >>encourage
> > >>them to strive for independence and self confidence. So what I have to
> > >>say
> > >>comes from those thoughts and intentions, not to put anyone down.
> Because
> > >>I
> > >>am also a parent, and I know how hard raising kids is.
> > >>
> > >>It's really a struggle for those kids who grew up blind and have been
> > >>overprotected. They often do not know how to explore. And moving their
> > >>bodies to explore a countertop or cabinet or floor is really crucial
to
> > >>learning how to sweep, clean, wipe counters, mop, look for items in a
> > >>closet
> > >>or cabinet or refrigerator, clean a stove, etc, etc. It's even crucial
> > >>when
> > >>trying to teach them how to stir fry, saut?, turn over hamburgers they
> > >>have
> > >>placed on a grill, scrambling eggs, ironing.
> > >>
> > >>Please, please let them, teach them how to explore, encourage them to
> > >>move,
> > >>let them try anything their sighted peers or siblings would try
(within
> > >>reason, of course, like not driving). Encourage them, no expect them,
> to
> > >>do
> > >>their chores (or face the consequences), to help out around the house,
> > >>setting the table, clearning the table, cleaning dishes, scrubbing the
> > >>toilet and tub, loading and starting the washer. Teach them how to
> label
> > >>their clothes so they can separate their own clothes for laundry loads
> > >>They
> > >>will need to know how to do this when they go off to college anyway.
> Let
> > >>them help you in the kitchen: chopping, using real chef knives even,
> > >>stirring, frying, baking, grilling, lighting birthday cake candles.
> Yes,
> > >>there are ways to do these things safely. If you are worried about
> fires,
> > >>teach them simple first aid and by all means, please teach them how to
> > >>use a
> > >>fire extinguisher and let them find out where your are. Speaking of
> that,
> > >>teach them how to change the batteries in the smoke alarms and how to
> > >>check
> > >>the batteries once a month. Let them help you mark the microwave and
> > >>oven
> > >>controls, washer and dryer controls, iron controls, etc so that they
> can
> > >>use
> > >>these independently after learning how.
> > >>
> > >>Believe me, you are hindering your child by not allowing and expecting
> > >>him/her to learn how to do these simple household/family activities.
> > >>And if you just don't know how to teach some of these things, or don't
> > >>have
> > >>the time, ask to have some of these things put on their IEPs. I have
> had
> > >>several school teachers of the blind contact me for suggestions and
> > >>tip-sharing for teaching these activities.
> > >>But the most important thing to teach is how to be inquisitive and to
> > >>explore anything and everything!
> > >>
> > >>Sorry to go on so long, but I had to add my 2 cents.
> > >>Good luck to you all.
> > >>Debbie
> > >>
> > >>-----Original Message-----
> > >>From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org]
> On
> > >>Behalf Of Bonnie Lucas
> > >>Sent: Monday, July 25, 2011 4:09 PM
> > >>To: 'NFBnet Blind Kid Mailing List, (for parents of blind children)'
> > >>Subject: Re: [blindkid] Independence Check Lists
> > >>
> > >>That is so cool. I know he won't regret learning these things while he
> is
> > >>young. He will be able to truly fit in with his peers.
> > >>Bonnie
> > >>
> > >>-----Original Message-----
> > >>From: DrV [mailto:icdx at earthlink.net]
> > >>Sent: Monday, July 25, 2011 6:40 AM
> > >>To: NFBnet Blind Kid Mailing List, (for parents of blind children)
> > >>Subject: [blindkid] Independence Check Lists
> > >>
> > >>Hi All,
> > >>I'm sure most, if not all, of the parents on this listserv can relate
> to
> > >>the
> > >>sentiment of "there is just not enough time to teach my son or
daughter
> > >>everything". While I don't have "the answer", I wanted to share an
> > >>approach
> > >>that seems to be working out well for us.
> > >>As my older son is about to start his freshman year at high school, I
> > >>keep
> > >>asking myself "Where has all the time gone? How could it possibly have
> > >>slipped by so quickly?" In 4 short years collage tuition will be due.
> > >>It is also becoming increasingly clear that there is still a lot to
> cover
> > >>on
> > >>the non-academic side in order for him (& us) to feel comfortable with
> > >>him
> > >>living & getting around on his own, potentially in a new city. There
is
> > >>shopping, laundry, & a host of other stuff he will need to be able to
> do
> > >>on
> > >>his own.
> > >>My older son really wants be ready on a social level for high school.
> > >>Those
> > >>that know him are quite aware he is very talkative & social, but it is
> > >>all
> > >>the other skills that need work (independent mobility, organization,
> more
> > >>advanced technology awareness, more appropriate table manners &
> > >>independence
> > >>so he can confidently, comfortably go out to eat & party with friends,
> > >>maintain a neat room & bathroom for when friends come over, etc).
There
> > >>is a
> > >>lot that still needs to be covered - these are things that for many
> blind
> > >>kids end up not really getting covered to a truly adequate degree at
> > >>school.
> > >>I'm sure some of you have heard of the "Expanded Core Curriculum for
> > >>Blind
> > >>and VI Children and Youths" ? it?s supposed to be part of every IEP?
As
> > >>someone who is slowly becoming a more seasoned veteran (as a parent),
I
> > >>hope
> > >>no one is holding his or her breath for the educational system to
> address
> > >>everything.
> > >>For years we have been approaching this is in "baby steps" you might
> say;
> > >>we
> > >>sit down several times a year & list out a finite number of things
that
> > >>we
> > >>want to specifically address with our boys for the next few months
(the
> > >>number varies with what is on the list). If we don't go through that
> > >>process, then the time just seems to slip by without really actively
> > >>addressing all but the most pressing issues. In recent years we have
> had
> > >>the
> > >>boys contribute their wishes to that process ? figuring everyone has
> > >>different priorities & because they will likely put more effort into
> what
> > >>they perceive to be most important. We try to when possible make it
fun
> ?
> > >>walking to the local minimart to buy a Sunday newspaper involves O&M
as
> > >>well
> > >>as manipulation of money (& it is amazing what comes up on
conversation
> > >>during those walks where we are not focused on other things). Some
> things
> > >>turn in to expected chores ? the list gradually expands over time. It
> is
> > >>never too early to start. Some things like learning to zip a vest or
> > >>organize a backpack or tie shoes just have to be barreled through. &
> yes,
> > >>we
> > >>too can relate to toothpaste challenges.
> > >>This summer my younger son is out of town with my wife due to his
> recent
> > >>eye
> > >>surgery; the older one is too old for the Buddy Program & not old
> enough
> > >>for
> > >>the next level up. Since he is motivated & this is an important
> > >>transition
> > >>year before high school, we decide to make the most of this summer &
> our
> > >>focus is to tackle a longer list of things to address.
> > >>At the beginning of the summer I asked my older son to generate a list
> of
> > >>things he wanted to & he felt he needed work on. I asked him to think
> big
> > >>&
> > >>to be ambitious. That he did!
> > >>We were pleasantly surprised to get his list ? much of what was on
> there
> > >>were things that my wife & I too felt needed to be addressed, but
> > >>importantly, it is his list. We sat down & categorized the items on
the
> > >>list
> > >>& are working through those. He is now downloading books on his own,
> > >>working
> > >>on his laptop skills (getting a handle on iTunes & Bookshare are both
> > >>motivating & empowering). He has been making his own breakfast
> everyday,
> > >>working on other meals, & even cleaning off the table. (He did share
> with
> > >>me
> > >>that he is now consciously trying to eat neater, so that there is less
> to
> > >>wipe off the table - & it has been totally clean even before he wiped
> it
> > >>off
> > >>a number of times now). ?Kitchen O&M? is a great experience & he now
is
> > >>beginning to realize how much effort is takes to prepare for meals
> (with
> > >>my
> > >>wife out of town, he & I have to go buy everything as well). He has
> > >>really
> > >>taken ownership for his list & is enthusiastically pursuing things
that
> > >>my
> > >>otherwise have been taxing.
> > >>An unanticipated "side-effect" of being apart for a few weeks is that
> > >>when
> > >>the boys talk to each other on the phone, they each are somewhat
> envious
> > >>of
> > >>what the other is doing or learning & now are asking to try things on
> the
> > >>other is working on! :-)
> > >>We still have about a month to go before the start of the upcoming
> school
> > >>year. Both boys will have accomplished & learned a lot of skills by
> that
> > >>time. We are making nice progress through the list, taking on items on
> as
> > >>seems most natural throughout the course of this summer. They will
have
> > >>mastered some, but not all. We will however at least address each item
> > >>more
> > >>than just superficially - to a level that will be their solid
> foundation
> > >>for
> > >>this next year when they can follow through & practice until they
reach
> > >>proficiency.
> > >>Honestly, the sense of pride & confidence that emanates from each of
> them
> > >>the first time they do the task totally on their own is precious. It
is
> > >>very
> > >>gratifying to see how with time & further practice they refine each
new
> > >>skill until it becomes commonplace. What once provoked anxiety or
> unease
> > >>has
> > >>been transformed into their routine. They actually seem to enjoy
coming
> > >>up
> > >>with goals to work on.
> > >>It?s never too early to start working on things in a more focused
> > >>fashion.
> > >>Time flies by oh so fast?
> > >>Eric V
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>
> > >>_______________________________________________
> > >>blindkid mailing list
> > >>blindkid at nfbnet.org
> > >>http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >>To unsubscribe, change your list options or get your account info for
> > >>blindkid:
> > >>
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/gabe808%40hawai
> > >>i
> > >>an
> > >>tel.net
> > >>
> > >>
> > >>_______________________________________________
> > >>blindkid mailing list
> > >>blindkid at nfbnet.org
> > >>http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >>To unsubscribe, change your list options or get your account info for
> > >>blindkid:
> > >>
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/icdx%40earthlin
> > >>k
> > >>.net
> > >
> > >
> > >
> > >_______________________________________________
> > >blindkid mailing list
> > >blindkid at nfbnet.org
> > >http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > >To unsubscribe, change your list options or get your account info for
> > >blindkid:
> > >
> http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/gabe808%40hawaii
> > >antel.net
> > >
> > >
> > >_______________________________________________
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> > >To unsubscribe, change your list options or get your account info for
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> >
> >
> >
> > _______________________________________________
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> > blindkid at nfbnet.org
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> > To unsubscribe, change your list options or get your account info for
> blindkid:
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> >
> >
> >
> >
> > ------------------------------
> >
> > _______________________________________________
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> > blindkid at nfbnet.org
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> >
> >
> > End of blindkid Digest, Vol 87, Issue 26
> > ****************************************
>
>
> ------------------------------
>
> Message: 3
> Date: Fri, 29 Jul 2011 21:31:48 -0700
> From: DrV <icdx at earthlink.net>
> To: "NFBnet Blind Kid Mailing List, (for parents of blind children)"
> <blindkid at nfbnet.org>
> Subject: [blindkid] US Dept of Justice's & US Dept of Education's New
> Accessible Technology Guidelines
> Message-ID: <CA58D744.6C62%icdx at earthlink.net>
> Content-Type: text/plain; charset="iso-8859-1"
>
> Hi All,
>
> I sat down & read through the documents & have to say "WOW!" Take the time
> to read these eye-opening documents ? especially the FAQ (Frequently Asked
> Questions). What a powerful set of guidelines for students, parents, &
> TVIs!
>
> The bar of expectations set forth by the US Departments of Justice &
> Education has been set surprisingly high! I would love to know whose input
> went into composing the guidelines - for it looks like they did a Great
> Job!
>
> The FAQ is a MUST Read - The statements of what is expected of school
> districts & universities & the examples they use are very clear.
>
> I have attached PDFs of the 2 letters & of the FAQ & took the liberty of
> highlighting some points & examples (the links are at the end of this if
> you
> want clean copies).
>
> In summary, the FAQ makes the following points:
>
> Point #1: The FAQ makes the point the Dear Colleague Letters do not impose
> new legal obligations, but rather reflect long-standing law as it applies
> to
> new technologies.
>
> 2. Does the DCL apply in the context of students with other disabilities
> that affect the ability to use printed materials?
> Electronic Book Reader vs. Audiobook Example: The school is replacing the
> history textbooks with electronic book readers as the principal means of
> conveying curriculum content, including all homework assignments. In this
> example, the electronic book readers provide greater functionality than
> audiobooks provide, with the result that an audiobook would not afford the
> benefits of the educational program in an equally effective and equally
> integrated manner. For this reason the school may not continue to rely on
> audiobooks to provide equal access to the curriculum. (Presumably this
> would
> apply to embossed books as well ? ie: an embossed textbook or even
> electronic file of a textbook is not the same as an electronic book reader
> file.)
>
> 3. Does the DCL mean that schools cannot use emerging technology?
> Answer: No. On the contrary, the Department encourages schools to employ
> innovative learning tools. The purpose of the DCL is to remind everyone
> that
> equal access for students with disabilities is the law and must be
> considered as new technology is integrated into the educational
> environment.
>
> 4. Does the DCL apply to elementary and secondary schools?
> Answer: Yes.
>
> 5. Does the DCL apply to all school operations and all faculty and staff?
> Answer: Yes - all faculty and staff must comply with these requirements.
> The law applies to all faculty and staff - So, for example, if an adjunct
> faculty member denies a student who is blind an equal opportunity to
> participate in a course by assigning inaccessible course content, the
> school
> can be held legally responsible for the faculty member's actions.
> Therefore,
> schools should provide, and faculty and staff should participate in,
> professional development about accessibility and emerging technology, and
> about the role of faculty and staff in helping the school to comply with
> disability discrimination laws.
>
> 6. Does the DCL apply beyond electronic book readers to other forms of
> emerging technology?
> Answer: Yes - whether in a ?brick and mortar,? online, or other ?virtual?
> context - must be operated in a manner that complies with Federal
> disability
> discrimination laws.
>
> 7. Does the DCL apply to ? online content, such as online ?. class
> assignments??
> Answer: Yes
>
> 8. Does the DCL apply to pilot programs ? ?
> Answer: Yes
>
> 9. Does the DCL apply when planning to use an emerging technology in a
> class
> or school where no students with visual impairments are currently
enrolled?
> Answer: Yes - the legal obligations described in the DCL always apply.
Just
> as a school system would not design a new school without addressing
> physical
> accessibility, the implementation of an emerging technology should always
> include planning for accessibility.
>
> 10. What questions should a school ask in determining whether emerging
> technology is accessible, or can be made accessible, to students with
> disabilities?
> Answer: Schools should begin by considering accessibility issues up front,
> when they are deciding whether to create or acquire emerging technology
and
> when they are planning how the technology will be used. To that end,
> schools
> should include accessibility requirements and analyses as part of their
> acquisition procedures.
>
> Example: A school intends to establish a Web mail system so that students
> can: communicate with each other and with faculty and staff; receive
> important messages from the school (e.g., a message about a health or
> safety
> concern); and communicate with individuals outside the school. The school
> must ensure that the educational benefits, services, and opportunities
> provided to students through a Web mail system are provided in an equally
> effective and equally integrated manner. Before deciding what system to
> purchase, the school should make an initial inquiry into whether the
system
> is accessible to students who are blind or have low vision, e.g., whether
> the system is compatible with screen readers and whether it gives users
the
> option of using large fonts.
>
> 11. The DCL states that where accessible technology is not available, a
> school can comply with Section 504 and the ADA if it provides students
with
> disabilities ?accommodations or modifications that permit them to receive
> all the educational benefits provided by the technology in an equally
> effective and equally integrated manner.?
>
> Example: A high school teacher creates an online course that includes
> instruction, posting of assignments and other course content, and a forum
> where students can discuss their course work with the teacher and each
> other. The teacher would like to incorporate video clips into the course,
> but is unable to obtain the video clips with audio descriptions. As a
> modification, the teacher creates separate audio descriptions for each
> video
> clip that narrate what is taking place in the video, and places them in a
> separate section of the online course. The online course includes links
> that
> enable persons who use screen readers to bypass the video clips completely
> and instead listen to the audio descriptions. Here, the use of detailed
> audio descriptions that are a part of the online course would provide
> students with disabilities access to the same opportunities and benefits
in
> an equally effective and equally integrated manner.
>
> In short:
> 1. Each teacher's webpage, the assignments they post, & websites
> (including all video materials) they suggest or require have to all be
> accessible.
>
> 2. Calendar ? assignment ? grade posting programs that
> schools/districts use, such as Edline, Grade Book Wizard, and others need
> to
> be fully accessible.
>
> 3. If a teacher refers students to textbook publisher websites
the
> web-based materials such as quizzes, study guides, and videos have to be
> fully accessible.
>
>
> The bar has appropriately been set high by the US Dept of Justice & the US
> Dept of Education.
> I wonder how many, if any, districts are truly in compliance with these
> guidelines?
> I'd love to hear VI teacher input & VI program administrator on this topic
> Respectfully,
> Eric V
> -----
> 1. June 29, 2010 US Department of Education Dear Colleague
> letter:
> www2.ed.gov/about/offices/list/ocr/letters/colleague-20100629.html.
>
> 2. Guidelines in the form of Frequently Asked Questions:
> www2.ed.gov/about/offices/list/ocr/docs/dcl-ebook-faq-201105.html.
>
> 3. May 26, 2011 second US DOE Dear Colleague letter stating that
> the same legal obligations apply to elementary and secondary schools:
>
> www2.ed.gov/about/offices/list/ocr/letters/colleague-201105-ese.html
>
>
>
>
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>
> ------------------------------
>
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>
>
> End of blindkid Digest, Vol 87, Issue 27
> ****************************************
>
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