[blindkid] Hello

DrV icdx at earthlink.net
Fri Dec 30 03:49:46 UTC 2011


Hi Sarah,
Welcome.
You may want to check out the DVD at www.babymilagro.org/DVD & try to
contact Milagro's mom Grace -> Grace are you out there?
Eric V

On 12/29/11 6:12 PM, "Sarah Dallis" <sarah.dallis at gmail.com> wrote:

>Hi. My daughter, Ellie, is almost 16 months old and completely blind. She
>had a VEP two months ago and it came back inconclusive. She may have had
>her eyes closed or she's completely blind with no light perception. It
>helps me to go ahead and think she's completely blind, I'd rather have the
>surprise then to have to lose an expectation, if that makes any sense.
>Anyway, she has other health issues (septo-optic dysplasia, optic nerve
>hypoplasia, hypo-pit, diabetes insipidus, so on and so forth). Those are
>all back seat drivers to her vision in the sense of development.
>
>She doesn't walk, crawl, or stand. She likes laying on her tummy but more
>for sleep so we're working on her pushing up and reaching for things. She
>can roll.
>
>My husband and I are both active duty Air Force so she goes to daycare
>about 10 hours a day. I'm having problems with my confidence in her
>daycare
>and therapists. I'm debating on whether or not I should switch my
>daughter's OT and PT. She is always unhappy and crying during therapy.
>They
>force her hands and body into positions and make her stay there or do
>something. She's not quite 16 months and her PT session lasts 45 minutes.
>What do you all think? She also receives feeding therapy but she's showing
>more progress withth at then she is with OT or PT.
>
>In my signature block the second link is to Ellie's blog if you want to
>read more about her. Thanks for your time and I look forward to hearing
>from you all!
>-- 
>
>Sarah Dallis
>
>Pampered Chef Consultant
>
>Order 24/7 Online: http://www.pamperedchef.biz/sarahdallis
>
>Mom to Ellie: http://elliesgrace.blogspot.com
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