[blindkid] child with ONH/SOD

lucy gingerlocket at hotmail.com
Sun Jul 31 17:25:28 UTC 2011



Hi Karen,
My daughter, who is 10 yrs. has ONH/SOD, we are in NH, USA. Are you on the Focus Families group, and there is a facebook group too.
I'm here to help, if I can!!
Lucy

 

> From: blindkid-request at nfbnet.org
> Subject: blindkid Digest, Vol 87, Issue 30
> To: blindkid at nfbnet.org
> Date: Sun, 31 Jul 2011 12:00:17 -0500
> 
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> 
> Today's Topics:
> 
>    1. Re: how do you teach a child to say yes? (Bonnie Lucas)
>    2. Re: how do you teach a child to say yes? (Deborah Kent Stein)
>    3. ANY KIDS ON THE LIST WITH ONH/SOD (karen muller)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Sat, 30 Jul 2011 16:36:12 -0800
> From: "Bonnie Lucas" <lucas.bonnie at gmail.com>
> To: "'NFBnet Blind Kid Mailing List,	\(for parents of blind
> 	children\)'" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] how do you teach a child to say yes?
> Message-ID: <4e34a38c.e730440a.6092.261d at mx.google.com>
> Content-Type: text/plain;	charset="us-ascii"
> 
> Wow that is such a cool example of having high expectations and helping a
> child to make something important happen. Thank you so much for sharing!
> Bonnie Lucas
> -----Original Message-----
> From: Alison Stephens [mailto:amspencer at yahoo.com] 
> Sent: Saturday, July 30, 2011 5:48 AM
> To: blindkid at nfbnet.org
> Subject: Re: [blindkid] how do you teach a child to say yes?
> 
> This sounds familiar.  A few months ago my son was not able to say yes
> either.  He also would repeat the question if he wanted it, or rephrase it
> appropriately as an answer, but could not say yes.
> 
> So, his TVI invented a ball game that jumpstarted the process of learning
> this, which he can now do with no trouble.  She sat with legs outstretched
> with Nate sitting in front of her, also facing forward and I sat opposite
> about 4 feet away.  She helped Nate hold the ball on the floor in front of
> him while she asked "Mommy, would you like the ball?"  then I would respond,
> "Yes, please,"  then she would assist Nate in rolling the ball to me across
> the floor.  Once I had the ball, it was my turn to ask, "Nate, would you
> like the ball?"  The TVI would then suggest to Nate that he say "yes,
> please."  He didn't say it initially, so she would say it for him, and then
> I would immediately roll the ball.  We did this back and forth for about 45
> minutes (was it that long?) and by the end of play he started catching on to
> asking the "would you like the ball" and saying "yes, please,"  since play
> would not proceed without the question or answer.  I suppose that it helped
> that he liked the rolling ball game.
> 
> We played this game a few more times over a few weeks, and we also focused
> on saying "yes, please" at other times during the day, and he got it.  The
> game really seemed to get him started with it, though.
> 
> Hope that helps,
> Alison
> 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Sat, 30 Jul 2011 19:46:11 -0500
> From: "Deborah Kent Stein" <dkent5817 at att.net>
> To: "NFBnet Blind Kid Mailing List,	\(for parents of blind children\)"
> 	<blindkid at nfbnet.org>
> Subject: Re: [blindkid] how do you teach a child to say yes?
> Message-ID: <013701cc4f1b$3f6afff0$d70aa8c0 at Debbie>
> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> 	reply-type=original
> 
> 
> 
> In the Winter 2011 issue of Future Reflections there is an article by Mary 
> McDonach called "You Can Say That Again" which includes a lot of practical 
> ideas for dealing with echolalia and developing meaningful language.  If you 
> don't have the hardcopy, you can find the magazine archived at www.nfb.org 
> under publications.
> 
> Debbie
> 
> ----- Original Message ----- 
> From: "Steve Heesen" <steveheesen at aol.com>
> To: "'NFBnet Blind Kid Mailing List,(for parents of blind children)'" 
> <blindkid at nfbnet.org>
> Sent: Saturday, July 30, 2011 9:41 AM
> Subject: Re: [blindkid] how do you teach a child to say yes?
> 
> 
> > Wow, what a great idea. It is amazing how much the kiddos can learn when 
> > we
> > make the process fun for them!
> >
> > Steve
> >
> > -----Original Message-----
> > From: blindkid-bounces at nfbnet.org [mailto:blindkid-bounces at nfbnet.org] On
> > Behalf Of Alison Stephens
> > Sent: Saturday, July 30, 2011 8:48 AM
> > To: blindkid at nfbnet.org
> > Subject: Re: [blindkid] how do you teach a child to say yes?
> >
> > This sounds familiar.  A few months ago my son was not able to say yes
> > either.  He also would repeat the question if he wanted it, or rephrase it
> > appropriately as an answer, but could not say yes.
> >
> > So, his TVI invented a ball game that jumpstarted the process of learning
> > this, which he can now do with no trouble.  She sat with legs outstretched
> > with Nate sitting in front of her, also facing forward and I sat opposite
> > about 4 feet away.  She helped Nate hold the ball on the floor in front of
> > him while she asked "Mommy, would you like the ball?"  then I would 
> > respond,
> > "Yes, please,"  then she would assist Nate in rolling the ball to me 
> > across
> > the floor.  Once I had the ball, it was my turn to ask, "Nate, would you
> > like the ball?"  The TVI would then suggest to Nate that he say "yes,
> > please."  He didn't say it initially, so she would say it for him, and 
> > then
> > I would immediately roll the ball.  We did this back and forth for about 
> > 45
> > minutes (was it that long?) and by the end of play he started catching on 
> > to
> > asking the "would you like the ball" and saying "yes, please,"  since play
> > would not proceed without the question or answer.  I suppose that it 
> > helped
> > that he liked th  e rolling ball game.
> >
> > We played this game a few more times over a few weeks, and we also focused
> > on saying "yes, please" at other times during the day, and he got it.  The
> > game really seemed to get him started with it, though.
> >
> > Hope that helps,
> > Alison
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> > http://www.nfbnet.org/mailman/options/blindkid_nfbnet.org/steveheesen%40aol.
> > com
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for 
> > blindkid:
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> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Sun, 31 Jul 2011 07:02:40 +0100
> From: "karen muller" <karenkzn at telkomsa.net>
> To: "organisation for parents with blind kids" <blindkid at nfbnet.org>
> Subject: [blindkid] ANY KIDS ON THE LIST WITH ONH/SOD
> Message-ID: <4E34EFFF.000001.06100 at KAREN-PC>
> Content-Type: text/plain; charset="iso-8859-1"
> 
> Hi everyone
> 
> I live in South AFrica. Are there any kids on the list born with ONH/SOD ?? 
> Hoping to chat soon.
> karen Muller
> Waterfall  
>  
>  
>  
>  
> -------Original Message-------
>  
> From: blindkid-request at nfbnet.org
> Date: 07/30/11 20:10:37
> To: blindkid at nfbnet.org
> Subject: blindkid Digest, Vol 87, Issue 29
>  
> Send blindkid mailing list submissions to
>   blindkid at nfbnet.org
>  
> To subscribe or unsubscribe via the World Wide Web, visit
>   http://www.nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>   blindkid-request at nfbnet.org
>  
> You can reach the person managing the list at
>   blindkid-owner at nfbnet.org
>  
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of blindkid digest..."
>  
>  
> Today's Topics:
>  
>    1. Fwd: Rubin Museum Verbal Description and Touch tour:
>       Thursday, August 18 (Carol Castellano)
>  
>  
> ----------------------------------------------------------------------
>  
> Message: 1
> Date: Sat, 30 Jul 2011 14:42:04 -0400
> From: Carol Castellano <carol_castellano at verizon.net>
> To: blindkid at nfbnet.org
> Subject: [blindkid] Fwd: Rubin Museum Verbal Description and Touch
>   tour: Thursday, August 18
> Message-ID: <406393.39865.qm at smtp102.vzn.mail.bf1.yahoo.com>
> Content-Type: text/plain; charset="iso-8859-1"; Format="flowed"
>  
> Hi Everyone,
>  
> Passing along info about what sounds like a very
> interesting verbal & touch exhibit for people in the NYC area.
>  
> Carol
>  
> >Subject: Rubin Museum Verbal Description and Touch tour: Thursday, August
> 18
> >Thread-topic: Rubin Museum Verbal Description and Touch tour: Thursday,
> >  August 18
> >
> >Hello all, I am delighted to invite you to
> >explore our brand new exhibition, Pilgrimage and
> >Faith: Buddhism, Christianity and Islam through
> >touch and verbal description. A full description
> >of this tour follows, please help us spread the
> >word by forwarding to anyone who may be
> >interested. Please let me know if you have any
> >questions, and I hope to welcome you to the museum soon!
> >Sincerely,
> >Louise.
> >
> >VERBAL DESCRIPTION AND TOUCH TOUR
> >Pilgrimage and Faith
> >Thursday, August 18, 2011
> >2:00?3:30 pm
> >
> >This tour will take visitors on a journey
> >through the culture, history, religion, and art
> >of the Himalayas. Using highly detailed verbal
> >descriptions of works of art and touch objects,
> >including sculptures, art materials, woodblocks,
> >and ritual implements, museum guides help
> >participants form visualizations of art in the museum?s collection.
> >
> >Reservations for this program are recommended as
> >space is limited. Please contact the Group
> >Reservations office at 212.620.5000 x345 or
> ><mailto:reservations at rmanyc.org>reservations at rmanyc.org to secure your
> place.
> >
> >
> >[]
> >
> >
> >
> >
> >
> >
>  
> Carol Castellano
> Director of Programs
> National Organization of Parents of Blind Children
> 973-377-0976
> carol_castellano at verizon.net
> www.nopbc.org
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