[blindkid] Here Today, Gone Tomorrow; The Day the Lights Went Out

[Lynda Zwinger]

Eric--

this is so eloquent and very encouraging for all of us "pain in the patoot"
parents and for those of us who are beginning to wonder just how "expert"
those experts really are.

I have a blog I've set up for Arizona Parents of Blind Children---would you
allow me to use all or part of this post on it?  I think it would be
incredibly helpful to parents out there who are still feeling lost.  I would
of course remove any identifying information and anything else you would
like removed.

I'd understand completely if you'd rather not, too.

At any rate, thanks so much for sharing your experience!

Lynda Zwinger


On Fri, May 13, 2011 at 8:15 AM, Eric Vasiliauskas <icdx at earthlink.net>wrote:

> Hi All,
> The subject of how hard to push for braille, technology, & other blindness
> skills comes up from time to time from various angles on both parent &
> educator listservs, especially for those kids with functional residual
> vision.
> I think that all too often the focus tends to be on current level of
> functioning & that professionals & parents forget, or don¹t want to think
> about, the reality that for many childhood conditions, vision is not stable
> over time. Some loose vision as part of the underlying eye condition,
> others
> due to retinal detachments, uncontrollable glaucoma, cancer and other
> reasons. The loss may be gradual or sudden.