[blindkid] Bureau of blindness Services

[Sally Thomas]

When I started reading your note, I assumed you were in Texas since your
experience is similar to ours.  Although we should be able to rely on the
Department of Blindness Service to do what they say they will do, I haven't
found that to be the case.  Our experience has been that we need to do
things for our son ourselves.  It's not fair or right.  Sometimes you can
fight and get the things you need from outside groups.  Sometimes you can
find out about opportunities like programs at the Jernigan Center in
Baltimore by watching this list and subscribing to Future Reflections.

One suggestion for next summer--if your daughter is old enough, she might
enjoy attending one of the Buddy programs.  If your bureau of blindness
doesn't have people in PA to provide services, they might pay for this
program.  One year when my son attended there was a boy from PA at the
program.

Best of luck.  It can be a struggle but seeing your child make progress is
so rewarding.

Sally Thomas

On Fri, Aug 10, 2012 at 9:25 PM, Cheryl <cherylrenee24 at yahoo.com> wrote:

> I went for a meeting with our bureau of blindness yesterday to "tell our
> story", and didn't hear or get the results I wanted, what I had wanted s
> someone to say sorry we haven't shown up to your house for your daughter.
> She was enrolled in their summer program however, no one ever showed up, on
> top of that the director looked me in the eye and stated that she was
> serving us. How?! There were individuals that said we need to educate the
> parents tell them whe to find the resources, well I do, but sometimes that
> costs money we don't have and they don't know what we go through for our
> kids to get what they need. It's always get the help and spend the time and
> money, or don't get the help at all.. On top of that in pa apparently
> services have been for the last fifteen years helping children in two other
> cities but not ours, why should ours lose out while the other children in
> those areas get the services??  Our program, so they say, has been running
> for five years here, and they can't show up to our house once in the summer
> for what was supposed to be my daughters summer program, instead she got
> nothing....except for the luck in finding a summer tvi, that I drve to Ohio
> for because they had no one else to serve her...and by the way she is
> awesome, my daughter learned more in the past month than the past year
> spent with her other tvi. What do you do when it's not you and just your
> area? Do you change your way of life? Had my daughter been born blind in
> those other two towns she would have been served...
>
> Cheryl
>
> Sent from my iPad
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