[blindkid] blindkid HELLO

[L]

Hi Sarah,
My feelings on therapy are that you should get as much as you can as many times as you can while they are still young!  My daughter has ROP and is now inKindergarten, she did therapy of all sorts for the first five years of her life and still does.  but, once they get into school, you really want to focus on other things so getting all the PT, OT and speech that you may need and pre-braille/O and M if you can, will be so helpful!  My daughter is exhausted after school from the long day and doesn't want to do therapy sessions every night, so I am glad we did so much when she was really young.  If you don't feel comfortable with a therapist, you should go with your gut!  They may not enjoy the therapy, but they should like/enjoy the therapist!  Good luck!
 
Laurie Wages
 
Sent: Thursday, December 29, 2011 8:12 PM
To: blindkid at nfbnet.org
Subject: [blindkid] Hello

Hi. My daughter, Ellie, is almost 16 months old and completely blind. She
had a VEP two months ago and it came back inconclusive. She may have had
her eyes closed or she's completely blind with no light perception. It
helps me to go ahead and think she's completely blind, I'd rather have the
surprise then to have to lose an expectation, if that makes any sense.
Anyway, she has other health issues (septo-optic dysplasia, optic nerve
hypoplasia, hypo-pit, diabetes insipidus, so on and so forth). Those are
all back seat drivers to her vision in the sense of development.

She doesn't walk, crawl, or stand. She likes laying on her tummy but more
for sleep so we're working on her pushing up and reaching for things. She
can roll.

My husband and I are both active duty Air Force so she goes to daycare
about 10 hours a day. I'm having problems with my confidence in her daycare
and therapists. I'm debating on whether or not I should switch my
daughter's OT and PT. She is always unhappy and crying during therapy. They
force her hands and body into positions and make her stay there or do
something. She's not quite 16 months and her PT session lasts 45 minutes.
What do you all think? She also receives feeding therapy but she's showing
more progress withth at then she is with OT or PT.

In my signature block the second link is to Ellie's blog if you want to
read more about her. Thanks for your time and I look forward to hearing
from you all!
-- 
Sarah Dallis

Pampered Chef Consultant

Order 24/7 Online: http://www.pamperedchef.biz/sarahdallis

Mom to Ellie: http://elliesgrace.blogspot.com