[blindkid] question about possible symptoms

[Cynthia Davis]

Oh, Lynda, I'm so sorry to learn that Isaac is having these episodes.  Being 14 is hard enough on kids (and moms!) that this is not a very pleasant intrusion onto the entire scene.  It certainly sounds as though you are tapping all the resources, and the NFB listserv is surely one of the best out there.

That said, I'll mention that Jack (coloboma, nystagmus, esotropia) has episodes of sudden pain and blacking out or darkening of the vision.  In his case, the doctors first have to rule out a detached retina.  But, in the absence of that, thank God, they have only been able to suggest it could be ophthalmic migraines.  This has happened every few months for a couple of years, and this is all we have come up with so far.  

I hope Isaac's condition is temporary and reverses.   I know you are well-connected medically.  Please keep us informed.

Much love to you and your family,
Cynthia Davis


 
On Apr 3, 2013, at 11:50 AM, Lynda Zwinger wrote:

> thanks, Julie--Yes, he's being monitored by his glaucoma specialist, and
> he's the first doctor we called.  He's going to find us someone who will do
> an ultrasound of the eye area to see if something else is going on as well.
> 
> Lynda
> 
> On Wed, Apr 3, 2013 at 9:52 AM, Julie Yanez <jyanez112 at gmail.com> wrote:
> 
>> Has the pressure been measured? With my daughter, when her eye pressure
>> rises, she gets headaches and dizziness as well.
>> On Apr 3, 2013 9:50 AM, "Lynda Zwinger" <lyndaz918 at gmail.com> wrote:
>> 
>>> Good morning everyone,
>>> 
>>> I'm writing to ask if anyone recognizes some symptoms my son has been
>>> having.  We do have him lined up with three doctors (and counting, lol),
>>> but parents have always been my "go-to" when I need to start figuring
>>> things out.
>>> 
>>> My 14-year old (yikes! how did that happen?) son's blindness is of
>> unknown
>>> origin, though we do know he has glaucoma (he's taking drops for it). He
>>> has significant corneal scarring (also unknown origin) and some physical
>>> anomalies in the part of the eyes that his doctors have been able to look
>>> at (the scarring is an obstruction).
>>> 
>>> He's had two episodes now, very brief ones a couple of weeks apart, of:
>>> sharp pain in one eye (his "good" one which has a little sight)
>> accompanied
>>> by a very brief blackout of vision (like when you stand up too suddenly
>>> sometimes--but he hasn't been changing positions in either episode), and
>>> mild dizziness. No headache.
>>> 
>>> I'm not one to worry over every little thing, and this may be one of
>> those,
>>> but it's twice now, so I'm on the scent.
>>> 
>>> Is this kind of thing familiar to anyone?
>>> 
>>> thanks very much,
>>> Lynda
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