[blindkid] SSI question

melissa R green graduate56 at juno.com
Tue Jun 25 17:56:04 UTC 2013


I agree.  SSSI is not a crutch.
Even though some would use it as a crutch.
That is what makes me mad.

Blessings,
Melissa Green and PJ
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----- Original Message ----- 
From: "Julie Yanez" <jyanez112 at gmail.com>
To: "Support For The Blind:)" <blindkid at nfbnet.org>
Sent: Tuesday, June 25, 2013 11:38 AM
Subject: Re: [blindkid] SSI question


I think there were some pretty negative implications on parents receiving
SSI as the payee of a child. I am one of those parents and I do it all by
the book according to my states requirements.
I need to report my income and hers if she receives any. In our case, it's
been a big help. As much as I would like to hope and think my pretty is
only blind, she is not. She has other medical issues and many educational
obstacles. I work full time but from home. The SSI has been able to allow a
single mom like me to still work from home to be able to focus on her and
her needs. A big portion of her check is put aside each month in a complete
different account for her future needs.
Finding a sitter or paying a nurse to be able to take care of her if I left
to work full time would be out of my budget. So the SSI has been just that.
SUPPLEMENTAL. As she gets older, my hope will be that she will be as
independent as possible. Not all of us were born with a silver spoon or
have had all the opportunities as some. I have an 11 year old who was
extremely preemie, suffered brain damage from birth and has rental
detachment from ROP. Had I had a full term healthy child with vision,
things would be different. But it was the hand we were felt and she's done
amazing things since.
So bottom line, SSI like any form of assistance is assistance. Not a
crutch.
On Jun 25, 2013 8:32 AM, "Arielle Silverman" <arielle71 at gmail.com> wrote:

> Hi Leah,
>
> As someone without direct SSI experience, I would be interested to
> know what facts have been misrepresented in this article and what the
> correct information is?
>
> Arielle
>
> On 6/25/13, Leah Pratt Roberts <hikingshoes at gmail.com> wrote:
> > First, my child is young. I have no direct experience with the problems
> of
> > lack of independence in blind young adults in the US, and I realize they
> do
> > exist.
> >
> > But I am shocked that FR would publish  a piece that 1) factually
> > misrepresents SSI to such a great extent; and 2) subtly encourages that
> > noninvolvement and ignorance about rules related to SSI is acceptable.
> >
> > The piece is filled with propaganda. I understand the value of dramatic
> > stories in warning people, but the misinformation in the piece could 
> > harm
> > families.
> >
> > I'll rejoin the discussion after I've picked my jaw up off the floor.
> >
> > Leah
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
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> >
>
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