[blindkid] blindkid Digest, Vol 123, Issue 9
melissa R Green
lissa1531 at gmail.com
Mon Jul 14 01:44:04 UTC 2014
ashley.
thank you for sharing your feelings. I think that the bright stars are what
we hear about. this is due to the fact that many of the "bright stars" put
themselves in the forefront of everything. I was not a student and I was
involved in the student devision. Also my mom was invited to join the
parent things and she chose not to join. She said that in many cases it was
either my child his super blind person/student, or my child is so low
functioning or would never do anything like go to college or even get a job.
there wasn't any middle ground. And many times the nfb is like this as
well. that is why I got involved and am still involved with the nfb.
Melissa R Green and Pj
Failure is not fatal, but failure to change might be
----- Original Message -----
From: "Ashley Bramlett via blindkid" <blindkid at nfbnet.org>
To: "Lalena Fayre" <lalenas at gmail.com>; "Blind Kid Mailing List,(for parents
of blind children)" <blindkid at nfbnet.org>
Sent: Saturday, July 12, 2014 11:44 PM
Subject: Re: [blindkid] blindkid Digest, Vol 123, Issue 9
Lalena,
I'm sorry to hear you feel so isolated. As I said, I do agree nfb needs to
address multiple disabilities more. I agree all the focus is on normal
developing kids.
I'm actually the child and my parents are the parents, btw.
My dad also felt not all needs were addressed. And, no I have no other
diagnosis, but we feel I'm LD in some respects and spatial deficits are here
too.
I've been lucky to graduate college given the rampant inaccessibility of
software these days.
My dad felt and still feels that NFb only has workshops for the bright stars
who go to college and often grad school.
Its as if blind kids have to do all this stuff and make straight A's to be
normal.
What about the kids who are lucky to make it through community college? NFb
has no place for them, but some cannot, due to a variety of reasons ranging
from academic deficits to advocacy skills to blindness deficits to simply
failure to be accomodated.
I know some kids who only got through community college, and no they're not
nfb.
Where will these kids, now adults, find jobs? its as if the organization
does not care.
Not everyone can get a grad degree and be a professional. Not everyone is
cut to be a lawyer, teacher, It professional, or counselor.
And I could rant about the inaccessibility of entry level employment but I
won't. If you even get that BA degree, you will find most entry level jobs
are too visual like scheduling appointments is often not doable do to the
software issues.
Those kids who are the bright students tend to stay in NFB and be leaders in
nabs.
But, if you are below average, the organization does not have a place; not
as a kid or adult.
Laleana as for your specific situation, it sounds like a severe case. He
acts 3 and he is 11 you say.
Is there any recreation for kids with disabilities in your area? its called
therapeutic recreation. we have a TR division where I live.
They should have some activities he can do. You also might find a mentor
for him through Best Buddies.
In terms of socializing, I'm not sure as most kids will not play with a
child who acts much younger.
My only thought is to get him to play with other kids with disabilities if
possible. For instance high functioning autistic kids might be a good fit.
I know some of them. they tend to do things a little slower and may be
receptive to playing with him.
All blind and low vision kids struggle with socialization; I had few friends
growing up.
I certainly cannot imagine what its like for you and your son.
HTH,
Ashley
-----Original Message-----
From: Lalena Fayre via blindkid
Sent: Saturday, July 12, 2014 7:01 PM
To: Blind Kid Mailing List,(for parents of blind children)
Subject: Re: [blindkid] blindkid Digest, Vol 123, Issue 9
First I have to admit, I'm struggling with how to reply to individual
messages that posted on this list. So any tips on how to do that is great!
At first I was going to let most of the well-intended messages slide by. I
didn't want to explain in detail why many of the suggestions and thoughts
are just wrong. Worse some of the responses were just so inaccurate about
how the national organization responds. But with Barbara's response in
particular (and many of you who sent me private messages) I just have to
respond more.
So my son has no visual acuity. He is totally blind. He was adopted at the
age of 5. At that time he had a development level of a 3-6 month old
children. We knew of his blindness and due to my ex being blind, our
experience in NFB, my ex working at CCB, attending multiple conventions,
etc, I had few fears of his blindness and didn't have the misconception
that blindness would hold him back in any way.
I agree that for some families it is very possible for a school district to
discriminate against blind children and even more so against multiple
handicap children who are also blind. This hasn't been the case with my
son. He is in a Braille enriched environment. I wouldn't allow him to be
otherwise. I wanted my son to "play" with the Perkins brailler. I wanted
him to use the old Library of Congress tape recorders. I wanted him to have
a cane. So I am not going to jump on the NFB bandwagon that of course the
educational system is against blind children and keeping them illiterate.
And honestly that has nothing at all to do with my original post.
My post is about the programs of the NOPBC and the NFB. My post is about
the shadow the MAJORITY of multiple handicap blind children are kept in by
the very advocacy group that should be shining a light on them. As multiple
people have stated, the MAJORITY of blind children now have multiple
handicaps yet as I said the majority of programs, conference seminars,
conference child care, etc. is geared toward fully functioning blind
children. I'm not saying that there is no benefit to the general seminars.
But I can't tell you how frustrating it is to sit in a seminar about your
child going to college, or increasing age appropriate independent travel,
etc.. I might as well sit there and cry feeling as if no one understands
what it's like to have an 11 year old who is developmentally 3. Where are
seminars on long-term care for your child? Finding places where your
heavily disabled child can have independence? Things along those lines.
And I hear the response - the NOPBC is a volunteer group, start your own
group, start your own activities, etc. But talk about victim blaming. I
throw my hands up in exasperation because how in the world can I find time
to do that when I need to provide 24-hour care for my child? How can I
start another branch of NOPBC when I'm dealing with life as a parent to a
11 year old who is developmentally 3?
I love my son and I advocate for my son like no one's business. I have
barked up many trees and been the squeakiest wheel possible, and it's
worked. There are strides that have been made but the social isolation is
what kills me the most. It is that need to belong and feel as if I have
people in my corner who understand what it's like on a daily basis.
I don't want the stares or the "tsk tsk" response when I ask for 1:1
assistance for my son to participate in activities to the best of his
ability. I don't want someone to tell me that I should have my son in a
quiet corner when he needs it but basically be ignored the rest of the
time. I don't want the stares when I go to a NFB or NOPBC convention. I
don't want my son to be looked down upon because he isn't a fully
independent blind child. I don't want to hear the gasps when I ask if he
can have 1:1 supervision and hand-over-hand assistance. I don't want to be
lectured as if it's my attitude or lack of Foundation philosophy that is
the problem. I don't want to be treated as if I'm just another "sighty"
parent who doesn't understand blindness and thinks that blind people should
be coddled.
All of these things are wrong. Totally wrong. But based upon past
experience and reading the organization's materials, the problem isn't that
there is a blind spot (forgive the pun) in the organization, it's that
there is a problem with me.
I feel empowered that I'm not alone. That I'm not the only parent of a
multi-disable blind child who has felt this scorn. And I don't think the
solution is to just leave and make your own organization, I think the
solution is for the national office to focus on issues of multiple
disabilities and blindness.
I'm sure I've angered some of you. Seemed like a ranting lunatic but well,
I'm human and I hope that my rant might just dislodge this notion that I'm
not educated on philosophy, unaware that this is a volunteer organization,
or haven't read enough books yet.
Peace and love.
On Thu, Jul 10, 2014 at 5:00 AM, <blindkid-request at nfbnet.org> wrote:
> Send blindkid mailing list submissions to
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> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of blindkid digest..."
>
>
> Today's Topics:
>
> 1. Re: More than just blindness (Bernadette Jacobs)
> 2. Re: More than just blindness (Barbara Hammel)
> 3. Re: More than just blindness (Penny Duffy)
> 4. Re: More than just blindness (Robert Jaquiss)
> 5. Re: More than just blindness (Bernadette Jacobs)
> 6. Re: More than just blindness (Barbara HAMMEL)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Wed, 09 Jul 2014 09:46:04 -0400
> From: Bernadette Jacobs <bernienfb75 at gmail.com>
> To: Ashley Bramlett <bookwormahb at earthlink.net>, "Blind Kid Mailing
> List, \(for parents of blind children\)" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] More than just blindness
> Message-ID: <53BD479C.4080904 at gmail.com>
> Content-Type: text/plain; charset=ISO-8859-1; format=flowed
>
> Dear Blind Parent!!!
>
> I have no idea who you are. But if only you knew how I feel your
> pain!!! I feel your pain to the very depth of my very soul!!! Can't
> very well keep myself a secret though. Everyone here who knows me is
> going to know who's the culprit for these words here, so I might just as
> well let it all out now!!
>
> My husband and I, too, have a blind, autistic, non-verbal son with
> multiple delays whom we adopted from China. We also have an
> eleven-year-old daughter who was adopted from Thailand. Seeing this
> post, I simply can't hold back any longer. The world waits in line for
> whenever it's their turn to take our daughter for an an afternoon, day,
> weekend, week, or whatever. Yet, when we bring both our children
> somewhere, she's welcome with open arms. As for our son, nobody ever
> breathes a word. But, the implication speaks louder than words ever
> will. I can pick out the people, in fact. "Too bad we can't find some
> place for the family dog..." Believe me, Darling. Nobody knows your
> pain better than my husband and I. It's never what they say, because
> they try as hard as they might to be discrete. Believe me!! It's what
> they don't say Darling!! Hurts your heart. Huh??? I don't wish this
> hurt on my worst enemy Darling!! Believe me, I don't!! Between a group
> of us, we "thought" we had everything sewed up with a very competent
> caregiver who, I'm sure, tried to lovingly care for our son and there
> was an episode which took place at our state convention and when my
> husband and I both inquired, people in charge, refused to give us any
> information. I didn't feel I was out of place trying to find out what
> happened. After all, I'm only his mother??? When I inquired the day
> after state convention was over, there was only a lame effort to sweep
> it under the rug with a "TEXT." This upset me even worse. From that
> moment on, I spent the rest of the day writing a letter which I have in
> the bowels of my computer which I never yet sent out. Yes, it's a
> resignation letter from our state NOPC board. I never sent it out yet.
> But, might as well now.
>
> I have another very, very good friend who keeps telling me she'll never
> come to any activities because she's so afraid of the very same things
> we've encountered here. She keeps telling me, "I just don't know how
> you do it... I couldn't bear that hurt in my heart for my son. I
> couldn't stand my heart being crushed like that. How do you do it???"
> Truth is, Darling, there some days I truly do feel absolutely crushed.
> Yes, my only cleansing is to cry. Believe me!! Because if anyone wants
> to participate and be in the middle of activity it's him. If only you
> could see him jump up and down with that huge round grin across that
> little round face and hear that infectious belly-laugh!! Squealing,
> laughing, jumping up and down? The whole scenario is absolutely
> infectiously unforgetable!! What a perfect picture!! Guess ya have to
> be there to get it. But believe me. It's there. We have one friend
> who sat next to him, the last morning of our state convention and he
> spent almost the entire time kissing her hands because he knows how much
> she just loves him. And he loves her that much and more. It was
> absolutely priceless.
>
> Whoever you are, you're most welcome to write me "offlist" and we can
> engage in further dialog. It just warms my heart to know that my
> husband and I are not alone. If only you knew!!
>
> Bernie
> On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
> > Lalena,
> > I've been lurking a little while and will intro myself soon after most
> > of the list get back from convention.
> > I'm actually the child; grown now and career exploring, and my parents
> > are sighted.
> >
> >
> > I agree with you. There are not enough resources for addressing the
> > needs of multiple disabled kids and yes the NFB focusses on bright
> > normal developing kids. But many blind kids have multiple disabilities.
> >
> > You raise some concerns which I'm sure others deal with. So your kid
> > is completely blind? like no vision even of close up objects?
> > How far delayed is he? how old? Where do you live? is bay area ca?
> >
> > What are the issues with braille reading? Perhaps with more info
> > someone may be able to help.
> >
> > I've seen those communication devices with pictures. Will he ever
> > speak with intervention, or is this permanent?
> > Does your TVI not have ideas? I mean, surely she or he has encountered
> > nonverbal blind kids before.
> > Maybe he can hold up objects to communicate to start with. For
> > instance, toy food can mean hungry and a common bathroom object like a
> > towel can mean needs to go to the bathroom.
> >
> > I'll also write off list with some more thoughts.
> >
> > Ashley
> > -----Original Message----- From: Lalena Fayre via blindkid
> > Sent: Monday, June 30, 2014 10:19 AM
> > To: blindkid at nfbnet.org
> > Subject: [blindkid] More than just blindness
> >
> > As I read through my latest issue of Future Reflections, I was struck
> > with
> > a further sense of isolation. The same holds true when I read this
> > listserv
> > and review the agenda of the upcoming national conference.
> >
> > My son is totally blind with multiple other disabilities - nonverbal and
> > global developmental delays that impact every area. I'm fortunate to
> > have a
> > good foundation and understanding of blindness education. But when you
> > add
> > the other issues to the blindness, one is struck with how much blindness
> > complicates things. For example, typical adaptive communication
> > devices are
> > vision based. Another, pre-Braille work is important but after 3 years
> > of
> > it and no significant progress made, you are forced to deal with
> > functional
> > skill development which the therapist don't know how to do with a blind
> > child, let allow a blind cognitively delayed child.
> >
> > I turn to the NFB for support and resources, yet publications are full
> > of
> > typically developed children who happen to be blind. I call my local
> > organizations here in the bay area (which I know are inline with NFB
> > philosophy) looking for social opportunities for my son, but he can't
> > participate because of his developmental delays.
> >
> > At the end of the day I'm left wondering......am I the only parent of a
> > child with multiple disabilities, developmental delays, AND blindness?
> > Are
> > the majority of blind child typically developed? And where do I turn
> > for a
> > network of parents who may understand?
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
> >
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
> >
>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Wed, 9 Jul 2014 09:01:48 -0500
> From: "Barbara Hammel" <poetlori8 at msn.com>
> To: "Bernadette Jacobs" <bernienfb75 at gmail.com>, "Blind Kid Mailing
> List, \(for parents of blind children\)" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] More than just blindness
> Message-ID: <SNT148-DS7B33297FE31F99A4FF55BEB0F0 at phx.gbl>
> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> reply-type=response
>
> Bernie, you make me want to cry. You have aptly worded the same feelings
> I
> have. Imagine the only time you feel like a "normal" parent is when your
> kids are the only ones in the hotel pool and you and your husband are in
> the
> hot tub watching them jump around and spin around and laugh with no one
> there to ignore them or goo on the sympathy. Everyone is afraid of your
> child(ren) like they are monsters or something.
> Barbara
>
>
>
>
> Writing free verse is like playing tennis with the net down.--Robert Frost
> -----Original Message-----
> From: Bernadette Jacobs via blindkid
> Sent: Wednesday, July 09, 2014 8:46 AM
> To: Ashley Bramlett ; Blind Kid Mailing List,(for parents of blind
> children)
> Subject: Re: [blindkid] More than just blindness
>
> Dear Blind Parent!!!
>
> I have no idea who you are. But if only you knew how I feel your
> pain!!! I feel your pain to the very depth of my very soul!!! Can't
> very well keep myself a secret though. Everyone here who knows me is
> going to know who's the culprit for these words here, so I might just as
> well let it all out now!!
>
> My husband and I, too, have a blind, autistic, non-verbal son with
> multiple delays whom we adopted from China. We also have an
> eleven-year-old daughter who was adopted from Thailand. Seeing this
> post, I simply can't hold back any longer. The world waits in line for
> whenever it's their turn to take our daughter for an an afternoon, day,
> weekend, week, or whatever. Yet, when we bring both our children
> somewhere, she's welcome with open arms. As for our son, nobody ever
> breathes a word. But, the implication speaks louder than words ever
> will. I can pick out the people, in fact. "Too bad we can't find some
> place for the family dog..." Believe me, Darling. Nobody knows your
> pain better than my husband and I. It's never what they say, because
> they try as hard as they might to be discrete. Believe me!! It's what
> they don't say Darling!! Hurts your heart. Huh??? I don't wish this
> hurt on my worst enemy Darling!! Believe me, I don't!! Between a group
> of us, we "thought" we had everything sewed up with a very competent
> caregiver who, I'm sure, tried to lovingly care for our son and there
> was an episode which took place at our state convention and when my
> husband and I both inquired, people in charge, refused to give us any
> information. I didn't feel I was out of place trying to find out what
> happened. After all, I'm only his mother??? When I inquired the day
> after state convention was over, there was only a lame effort to sweep
> it under the rug with a "TEXT." This upset me even worse. From that
> moment on, I spent the rest of the day writing a letter which I have in
> the bowels of my computer which I never yet sent out. Yes, it's a
> resignation letter from our state NOPC board. I never sent it out yet.
> But, might as well now.
>
> I have another very, very good friend who keeps telling me she'll never
> come to any activities because she's so afraid of the very same things
> we've encountered here. She keeps telling me, "I just don't know how
> you do it... I couldn't bear that hurt in my heart for my son. I
> couldn't stand my heart being crushed like that. How do you do it???"
> Truth is, Darling, there some days I truly do feel absolutely crushed.
> Yes, my only cleansing is to cry. Believe me!! Because if anyone wants
> to participate and be in the middle of activity it's him. If only you
> could see him jump up and down with that huge round grin across that
> little round face and hear that infectious belly-laugh!! Squealing,
> laughing, jumping up and down? The whole scenario is absolutely
> infectiously unforgetable!! What a perfect picture!! Guess ya have to
> be there to get it. But believe me. It's there. We have one friend
> who sat next to him, the last morning of our state convention and he
> spent almost the entire time kissing her hands because he knows how much
> she just loves him. And he loves her that much and more. It was
> absolutely priceless.
>
> Whoever you are, you're most welcome to write me "offlist" and we can
> engage in further dialog. It just warms my heart to know that my
> husband and I are not alone. If only you knew!!
>
> Bernie
> On 7/7/2014 2:07 AM, Ashley Bramlett via blindkid wrote:
> > Lalena,
> > I've been lurking a little while and will intro myself soon after most
> > of
> > the list get back from convention.
> > I'm actually the child; grown now and career exploring, and my parents
> are
> > sighted.
> >
> >
> > I agree with you. There are not enough resources for addressing the
> > needs
> > of multiple disabled kids and yes the NFB focusses on bright normal
> > developing kids. But many blind kids have multiple disabilities.
> >
> > You raise some concerns which I'm sure others deal with. So your kid is
> > completely blind? like no vision even of close up objects?
> > How far delayed is he? how old? Where do you live? is bay area ca?
> >
> > What are the issues with braille reading? Perhaps with more info someone
> > may be able to help.
> >
> > I've seen those communication devices with pictures. Will he ever speak
> > with intervention, or is this permanent?
> > Does your TVI not have ideas? I mean, surely she or he has encountered
> > nonverbal blind kids before.
> > Maybe he can hold up objects to communicate to start with. For instance,
> > toy food can mean hungry and a common bathroom object like a towel can
> > mean needs to go to the bathroom.
> >
> > I'll also write off list with some more thoughts.
> >
> > Ashley
> > -----Original Message----- From: Lalena Fayre via blindkid
> > Sent: Monday, June 30, 2014 10:19 AM
> > To: blindkid at nfbnet.org
> > Subject: [blindkid] More than just blindness
> >
> > As I read through my latest issue of Future Reflections, I was struck
> with
> > a further sense of isolation. The same holds true when I read this
> > listserv
> > and review the agenda of the upcoming national conference.
> >
> > My son is totally blind with multiple other disabilities - nonverbal and
> > global developmental delays that impact every area. I'm fortunate to
> > have
> > a
> > good foundation and understanding of blindness education. But when you
> add
> > the other issues to the blindness, one is struck with how much blindness
> > complicates things. For example, typical adaptive communication devices
> > are
> > vision based. Another, pre-Braille work is important but after 3 years
> > of
> > it and no significant progress made, you are forced to deal with
> > functional
> > skill development which the therapist don't know how to do with a blind
> > child, let allow a blind cognitively delayed child.
> >
> > I turn to the NFB for support and resources, yet publications are full
> > of
> > typically developed children who happen to be blind. I call my local
> > organizations here in the bay area (which I know are inline with NFB
> > philosophy) looking for social opportunities for my son, but he can't
> > participate because of his developmental delays.
> >
> > At the end of the day I'm left wondering......am I the only parent of a
> > child with multiple disabilities, developmental delays, AND blindness?
> Are
> > the majority of blind child typically developed? And where do I turn for
> a
> > network of parents who may understand?
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bookwormahb%40earthlink.net
> >
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>
>
> _______________________________________________
> blindkid mailing list
> blindkid at nfbnet.org
> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> blindkid:
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/poetlori8%40msn.com
>
>
>
>
> ------------------------------
>
> Message: 3
> Date: Wed, 9 Jul 2014 14:48:50 -0400
> From: Penny Duffy <pennyduffy at gmail.com>
> To: Lalena Fayre <lalenas at gmail.com>, "Blind Kid Mailing List, (for
> parents of blind children)" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] More than just blindness
> Message-ID:
> <CABb_=
> QeBK9g5cfasfgb7T5p62p06heqcM5SmnrrJ8+fxgZkBbQ at mail.gmail.com>
> Content-Type: text/plain; charset=UTF-8
>
> Lelena,
>
> I read through what you said. If i missed anything please let me know.
> Many of the parents i assist in my state experiance more than one
> disability not just blindness. I believe strongly that these children
> heavily discriminated against in educational settings. Very few educators
> feel a child with more than one disability including blindness should be
> taught braille at all which is extremely wrong considering they would
> never
> say the same thing about a child with non blindness related disabilities.
> Its an understanding that literacy is important to all.
>
> The NOPBC always works hard at trying to build program that will benefit
> all kinds of different kids and different learners. I hope you never feel
> we are are not trying to serve your needs.
>
> Below is the NOPBC works shops from this years conference. there was two
> workshops which were geared directly for parents of children with multiple
> disabilities. I would challenge that ALL the rest of the workshops would
> benefit parents with children with multiple disabilities. also. including
> the college one. The NOPBC programming is primarily our parent conference
> and we sponsor Future Reflections which regularly feature stores about
> all
> kids of different kids.
>
> Also if you are talking about NFB direct programming like the great STEM
> programs I am sure Natalie Shaheen, Director of Education at the NFB
> Jernigan Institute would love to hear some ideas. I happen to know this
> area is VERY important to her.
> Let me know if I can be have anymore help. I am very passionate in this
> area.
> -Penny Duffy
>
> --
>
> Independence in the Classroom
> Tools, tips, and techniques for setting up the classroom and training the
> student for independent functioning. Instructor: Jackie Anderson, Teacher
> of Blind Students
>
> Independent Movement & Travel for Children with Additional Disabilities
> Working toward maximum independence and self-determination for the child
> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
>
> Low Vision Toolbox
> Useful items for low vision students and how to determine the most
> efficient method for the task. Instructor: TBA
>
> First Steps
> Exploration and independent movement and travel in early childhood.
> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
>
> Accessible Technology
> Using accessible technology for meaningful participation in school, at
> home, and in the community. Instructor: Eric Guillory, Director, Youth
> Services, LA Center for the Blind
>
> Independence Skills at Home & in the Community
> Teaching and supporting the development of independence skills for full
> participation in home and community life. Instructor: Mary Jo Hartle,
> NOMC,
> TBS
>
> Hands Off!
> Honoring the child's right to personal space and control over his/her
> body.
> Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
>
> Independent Movement & Travel for the School-Age Student
> High expectations, real-life goals, and how to achieve them in the area of
> independent movement and travel. Instructor: TBA
>
> Tactile Graphics?The Good, the Bad, & the Ugly
> The basics of creating a good tactile graphic that will really work for
> the
> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
>
> I Get Around
> Getting around independently when you do not drive. Instructors: Pam
> Allen,
> Director, LA Center for the Blind; Roland Allen, NOMC
>
> Low Vision Technology
> >From low tech to high tech, learn about the many options for the low
> vision
> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
>
> Saying It My Way
> Encouraging communication, learning, and play in children with
> communication needs. Instructor: Natalie Shaheen, Director of Education,
> NFB Jernigan Institute
>
> Social Skills for the School-Age Child
> Encouraging appropriate social interaction and play. Instructor: Sheena
> Manuel, Outreach Specialist, Professional Development and Research
> Institute on Blindness
>
> How to Set Up a Saturday School
> Empowering families to learn and teach the skills of independence.
> Instructor: Jackie Anderson, Teacher of Blind Students
>
> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> Preparing for heading off to college?what parents and students need to
> know, with a special visit from one of "the roommates from hell."
> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> Joiner,
> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
> Editor, Future Reflections
>
> Unified English Braille (UEB)
> It's new. It's coming. What is it, how will the transition be made, and
> what will it mean to your child? Instructor: Casey Robertson, Teacher of
> Blind Students
>
> IEP Basics for Parents of Blind/VI Students
> The sections of the IEP, essential assessments, how assessment information
> is used, how to be an active and effective participant. Instructor:
> Carlton
> Walker, Attorney, Teacher of Blind Students
>
> IEP Development and Legal Process Overview
> Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
> process, appeal, etc; overview of the legal process; how to prepare for a
> due process hearing so you don't have to have one! Instructor: Carlton
> Walker, Attorney, Teacher of Blind Students
>
>
> Spanish Language Session
> This session will cover a range of subjects of interest to parents of
> blind
> children. Instructor: Conchita Hernandez, Special Educator
>
>
> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> blindkid at nfbnet.org> wrote:
>
> > As I read through my latest issue of Future Reflections, I was struck
> with
> > a further sense of isolation. The same holds true when I read this
> listserv
> > and review the agenda of the upcoming national conference.
> >
> > My son is totally blind with multiple other disabilities - nonverbal and
> > global developmental delays that impact every area. I'm fortunate to
> have a
> > good foundation and understanding of blindness education. But when you
> add
> > the other issues to the blindness, one is struck with how much blindness
> > complicates things. For example, typical adaptive communication devices
> are
> > vision based. Another, pre-Braille work is important but after 3 years
> > of
> > it and no significant progress made, you are forced to deal with
> functional
> > skill development which the therapist don't know how to do with a blind
> > child, let allow a blind cognitively delayed child.
> >
> > I turn to the NFB for support and resources, yet publications are full
> > of
> > typically developed children who happen to be blind. I call my local
> > organizations here in the bay area (which I know are inline with NFB
> > philosophy) looking for social opportunities for my son, but he can't
> > participate because of his developmental delays.
> >
> > At the end of the day I'm left wondering......am I the only parent of a
> > child with multiple disabilities, developmental delays, AND blindness?
> Are
> > the majority of blind child typically developed? And where do I turn for
> a
> > network of parents who may understand?
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > blindkid:
> >
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
> >
>
>
> ------------------------------
>
> Message: 4
> Date: Wed, 9 Jul 2014 16:26:43 -0700
> From: "Robert Jaquiss" <rjaquiss at earthlink.net>
> To: "'Penny Duffy'" <pennyduffy at gmail.com>, "'Blind Kid Mailing List,
> \(for parents of blind children\)'" <blindkid at nfbnet.org>,
> "'Lalena
> Fayre'" <lalenas at gmail.com>
> Subject: Re: [blindkid] More than just blindness
> Message-ID: <000201cf9bcd$3f19cc50$bd4d64f0$@earthlink.net>
> Content-Type: text/plain; charset="UTF-8"
>
> Hello:
>
> I thought I would pass on this link for the Active Learning
> Foundation in case it is useful:
> http://www.lilliworks.org/
> The Active Learning Foundation (ALF) promotes the work of Dr. Lilli
> Nielsen. Four of her books are available from BookShare. The materials
> developed by Dr. Nielsen are specifically intended for use with
> multihandicapped blind children.
>
> Some years ago, I knew a lady who made tactile versions of Bliss
> Symbolics. The system allows a person to communicate their wants or needs
> by selecting a "symbol" from a board. The symbols consist of ovals,
> circles, squares, hearts etc. Each of the shapes is movified by gluing
> something to the surface. There are for instance shapes for requesting
> people. Each shape has something on it to indicate the particular person
> of
> interest.
>
> There is also intelitools which can be produced using tactile
> overlays. Hope this is useful.
>
> Regards,
>
> Robert
>
> Robert Jaquiss
> Tactile Graphics Solutions LLC.
> Email: rjaquiss at earthlink.net
> *** Specializing in computerized production of tactile graphics, ALT
> development, technology assessments, product evaluations and web site
> certification. ***
>
>
>
>
> ------------------------------
>
> Message: 5
> Date: Wed, 09 Jul 2014 19:39:40 -0400
> From: Bernadette Jacobs <bernienfb75 at gmail.com>
> To: Penny Duffy <pennyduffy at gmail.com>, "Blind Kid Mailing List,
> \(for
> parents of blind children\)" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] More than just blindness
> Message-ID: <53BDD2BC.9080502 at gmail.com>
> Content-Type: text/plain; charset=UTF-8; format=flowed
>
> God Bless you Penny. Ya just don't get it do ya Darling? All the books
> in the world and all the human instruction can be a wonderful thing?
> But Honey, I ask you. What about these kids who actually exist? When
> we bring our children with these multiple handicaps/issues along with us
> because they're actually part of our families, The activities and
> childcare that are provided for the families is Okay for the typical
> children. But what about these children with other issues are left to
> fall through the cracks? But, that's Okay? Hmmm.
>
> As for Natalie, I can't think of a dearer lady. I have the utmost
> respect for her experteese and advice. I feel it such an honor and
> privilege to know her and call her a very dear friend to me and my
> husband. She's spent time with David and has struck up a nice little
> friendship with David. She is one very caring lady and she's one of the
> hardest, profficient people I know. As for Carlton Walker, she's
> another very bright, dear lady. Her daughter and our daughter have also
> struck up a good friendship. But, as Barbara has said, where David is
> concerned, David appears to scare the tar out of the rest of the world.
> That's putting it nicely. But this, does at times, forces me to
> consider when and where we go as a family and sometimes, I do stay back
> and let Bill take Virginia. For, sometimes, I just don't think my heart
> can stand anymore hurt. Some days I can let it roll off. But there are
> others, I simply can't. After all, I might actually be human and have
> feelings too? And they're not in a book or in some training???
>
> Bernie
> On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
> > Lelena,
> >
> > I read through what you said. If i missed anything please let me know.
> > Many of the parents i assist in my state experiance more than one
> > disability not just blindness. I believe strongly that these children
> > heavily discriminated against in educational settings. Very few
> educators
> > feel a child with more than one disability including blindness should be
> > taught braille at all which is extremely wrong considering they would
> never
> > say the same thing about a child with non blindness related
> disabilities.
> > Its an understanding that literacy is important to all.
> >
> > The NOPBC always works hard at trying to build program that will benefit
> > all kinds of different kids and different learners. I hope you never
> > feel
> > we are are not trying to serve your needs.
> >
> > Below is the NOPBC works shops from this years conference. there was
> > two
> > workshops which were geared directly for parents of children with
> multiple
> > disabilities. I would challenge that ALL the rest of the workshops
> would
> > benefit parents with children with multiple disabilities. also.
> > including
> > the college one. The NOPBC programming is primarily our parent
> conference
> > and we sponsor Future Reflections which regularly feature stores about
> all
> > kids of different kids.
> >
> > Also if you are talking about NFB direct programming like the great
> STEM
> > programs I am sure Natalie Shaheen, Director of Education at the NFB
> > Jernigan Institute would love to hear some ideas. I happen to know this
> > area is VERY important to her.
> > Let me know if I can be have anymore help. I am very passionate in this
> > area.
> > -Penny Duffy
> >
> > --
> >
> > Independence in the Classroom
> > Tools, tips, and techniques for setting up the classroom and training
> > the
> > student for independent functioning. Instructor: Jackie Anderson,
> > Teacher
> > of Blind Students
> >
> > Independent Movement & Travel for Children with Additional Disabilities
> > Working toward maximum independence and self-determination for the child
> > with additional disabilities. Instructor: Denise Mackenstadt, NOMC
> >
> > Low Vision Toolbox
> > Useful items for low vision students and how to determine the most
> > efficient method for the task. Instructor: TBA
> >
> > First Steps
> > Exploration and independent movement and travel in early childhood.
> > Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
> >
> > Accessible Technology
> > Using accessible technology for meaningful participation in school, at
> > home, and in the community. Instructor: Eric Guillory, Director, Youth
> > Services, LA Center for the Blind
> >
> > Independence Skills at Home & in the Community
> > Teaching and supporting the development of independence skills for full
> > participation in home and community life. Instructor: Mary Jo Hartle,
> NOMC,
> > TBS
> >
> > Hands Off!
> > Honoring the child's right to personal space and control over his/her
> body.
> > Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
> >
> > Independent Movement & Travel for the School-Age Student
> > High expectations, real-life goals, and how to achieve them in the area
> of
> > independent movement and travel. Instructor: TBA
> >
> > Tactile Graphics?The Good, the Bad, & the Ugly
> > The basics of creating a good tactile graphic that will really work for
> the
> > blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
> >
> > I Get Around
> > Getting around independently when you do not drive. Instructors: Pam
> Allen,
> > Director, LA Center for the Blind; Roland Allen, NOMC
> >
> > Low Vision Technology
> > From low tech to high tech, learn about the many options for the low
> vision
> > student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
> >
> > Saying It My Way
> > Encouraging communication, learning, and play in children with
> > communication needs. Instructor: Natalie Shaheen, Director of Education,
> > NFB Jernigan Institute
> >
> > Social Skills for the School-Age Child
> > Encouraging appropriate social interaction and play. Instructor: Sheena
> > Manuel, Outreach Specialist, Professional Development and Research
> > Institute on Blindness
> >
> > How to Set Up a Saturday School
> > Empowering families to learn and teach the skills of independence.
> > Instructor: Jackie Anderson, Teacher of Blind Students
> >
> > College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> > Preparing for heading off to college?what parents and students need to
> > know, with a special visit from one of "the roommates from hell."
> > Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> Joiner,
> > Student; Arielle Silverman, Fellow, University of WA; Debbie Kent Stein,
> > Editor, Future Reflections
> >
> > Unified English Braille (UEB)
> > It's new. It's coming. What is it, how will the transition be made, and
> > what will it mean to your child? Instructor: Casey Robertson, Teacher of
> > Blind Students
> >
> > IEP Basics for Parents of Blind/VI Students
> > The sections of the IEP, essential assessments, how assessment
> information
> > is used, how to be an active and effective participant. Instructor:
> Carlton
> > Walker, Attorney, Teacher of Blind Students
> >
> > IEP Development and Legal Process Overview
> > Do's & Don'ts for the IEP meeting; preparing for possible mediation, due
> > process, appeal, etc; overview of the legal process; how to prepare for
> > a
> > due process hearing so you don't have to have one! Instructor: Carlton
> > Walker, Attorney, Teacher of Blind Students
> >
> >
> > Spanish Language Session
> > This session will cover a range of subjects of interest to parents of
> blind
> > children. Instructor: Conchita Hernandez, Special Educator
> >
> >
> > On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> > blindkid at nfbnet.org> wrote:
> >
> >> As I read through my latest issue of Future Reflections, I was struck
> with
> >> a further sense of isolation. The same holds true when I read this
> listserv
> >> and review the agenda of the upcoming national conference.
> >>
> >> My son is totally blind with multiple other disabilities - nonverbal
> >> and
> >> global developmental delays that impact every area. I'm fortunate to
> have a
> >> good foundation and understanding of blindness education. But when you
> add
> >> the other issues to the blindness, one is struck with how much
> >> blindness
> >> complicates things. For example, typical adaptive communication devices
> are
> >> vision based. Another, pre-Braille work is important but after 3 years
> of
> >> it and no significant progress made, you are forced to deal with
> functional
> >> skill development which the therapist don't know how to do with a blind
> >> child, let allow a blind cognitively delayed child.
> >>
> >> I turn to the NFB for support and resources, yet publications are full
> of
> >> typically developed children who happen to be blind. I call my local
> >> organizations here in the bay area (which I know are inline with NFB
> >> philosophy) looking for social opportunities for my son, but he can't
> >> participate because of his developmental delays.
> >>
> >> At the end of the day I'm left wondering......am I the only parent of a
> >> child with multiple disabilities, developmental delays, AND blindness?
> Are
> >> the majority of blind child typically developed? And where do I turn
> for a
> >> network of parents who may understand?
> >> _______________________________________________
> >> blindkid mailing list
> >> blindkid at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> blindkid:
> >>
> >>
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/pennyduffy%40gmail.com
> >>
> > _______________________________________________
> > blindkid mailing list
> > blindkid at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blindkid_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> blindkid:
> >
> http://nfbnet.org/mailman/options/blindkid_nfbnet.org/bernienfb75%40gmail.com
>
>
>
>
> ------------------------------
>
> Message: 6
> Date: Wed, 9 Jul 2014 18:53:55 -0500
> From: Barbara HAMMEL <poetlori8 at msn.com>
> To: Bernadette Jacobs <bernienfb75 at gmail.com>, "Blind Kid Mailing
> List, (for parents of blind children)" <blindkid at nfbnet.org>
> Subject: Re: [blindkid] More than just blindness
> Message-ID: <SNT407-EAS162535AB58E67A24690ABECEB0F0 at phx.gbl>
> Content-Type: text/plain; charset="utf-8"
>
> I have a thought and wonder who to present it to. I'd even be willing to
> be a worker full-time. My thought is, could we have a room in child-care
> just for the Pauls, Jesses and Davids of the world? A room where the
> parents don't have to worry about how many toys will be eaten or chairs
> tipped over. A room where spinning in circles or rocking on your head all
> day is okay. Aroom where a tantrum isn't going to clear the room and leave
> the rest of the kids crying. A room where no activities really need to be
> planned because the kids won't want to do them any way.
> Barbara
>
> Sent from my iPhone
>
> > On Jul 9, 2014, at 6:40 PM, "Bernadette Jacobs via blindkid" <
> blindkid at nfbnet.org> wrote:
> >
> > God Bless you Penny. Ya just don't get it do ya Darling? All the books
> in the world and all the human instruction can be a wonderful thing? But
> Honey, I ask you. What about these kids who actually exist? When we
> bring
> our children with these multiple handicaps/issues along with us because
> they're actually part of our families, The activities and childcare that
> are provided for the families is Okay for the typical children. But what
> about these children with other issues are left to fall through the
> cracks?
> But, that's Okay? Hmmm.
> >
> > As for Natalie, I can't think of a dearer lady. I have the utmost
> respect for her experteese and advice. I feel it such an honor and
> privilege to know her and call her a very dear friend to me and my
> husband.
> She's spent time with David and has struck up a nice little friendship
> with David. She is one very caring lady and she's one of the hardest,
> profficient people I know. As for Carlton Walker, she's another very
> bright, dear lady. Her daughter and our daughter have also struck up a
> good friendship. But, as Barbara has said, where David is concerned,
> David
> appears to scare the tar out of the rest of the world. That's putting it
> nicely. But this, does at times, forces me to consider when and where we
> go as a family and sometimes, I do stay back and let Bill take Virginia.
> For, sometimes, I just don't think my heart can stand anymore hurt. Some
> days I can let it roll off. But there are others, I simply can't. After
> all, I might actually be human and have feelings too? And they're not in
> a
> book or in some training???
> >
> > Bernie
> >> On 7/9/2014 2:48 PM, Penny Duffy via blindkid wrote:
> >> Lelena,
> >>
> >> I read through what you said. If i missed anything please let me know.
> >> Many of the parents i assist in my state experiance more than one
> >> disability not just blindness. I believe strongly that these children
> >> heavily discriminated against in educational settings. Very few
> educators
> >> feel a child with more than one disability including blindness should
> >> be
> >> taught braille at all which is extremely wrong considering they would
> never
> >> say the same thing about a child with non blindness related
> disabilities.
> >> Its an understanding that literacy is important to all.
> >>
> >> The NOPBC always works hard at trying to build program that will
> >> benefit
> >> all kinds of different kids and different learners. I hope you never
> feel
> >> we are are not trying to serve your needs.
> >>
> >> Below is the NOPBC works shops from this years conference. there was
> two
> >> workshops which were geared directly for parents of children with
> multiple
> >> disabilities. I would challenge that ALL the rest of the workshops
> would
> >> benefit parents with children with multiple disabilities. also.
> including
> >> the college one. The NOPBC programming is primarily our parent
> conference
> >> and we sponsor Future Reflections which regularly feature stores about
> all
> >> kids of different kids.
> >>
> >> Also if you are talking about NFB direct programming like the great
> STEM
> >> programs I am sure Natalie Shaheen, Director of Education at the NFB
> >> Jernigan Institute would love to hear some ideas. I happen to know
> >> this
> >> area is VERY important to her.
> >> Let me know if I can be have anymore help. I am very passionate in
> >> this
> >> area.
> >> -Penny Duffy
> >>
> >> --
> >>
> >> Independence in the Classroom
> >> Tools, tips, and techniques for setting up the classroom and training
> the
> >> student for independent functioning. Instructor: Jackie Anderson,
> Teacher
> >> of Blind Students
> >>
> >> Independent Movement & Travel for Children with Additional Disabilities
> >> Working toward maximum independence and self-determination for the
> >> child
> >> with additional disabilities. Instructor: Denise Mackenstadt, NOMC
> >>
> >> Low Vision Toolbox
> >> Useful items for low vision students and how to determine the most
> >> efficient method for the task. Instructor: TBA
> >>
> >> First Steps
> >> Exploration and independent movement and travel in early childhood.
> >> Instructor: Mary Jo Hartle, NOMC, Teacher of Blind Students
> >>
> >> Accessible Technology
> >> Using accessible technology for meaningful participation in school, at
> >> home, and in the community. Instructor: Eric Guillory, Director, Youth
> >> Services, LA Center for the Blind
> >>
> >> Independence Skills at Home & in the Community
> >> Teaching and supporting the development of independence skills for full
> >> participation in home and community life. Instructor: Mary Jo Hartle,
> NOMC,
> >> TBS
> >>
> >> Hands Off!
> >> Honoring the child's right to personal space and control over his/her
> body.
> >> Instructor: Carlton Walker, Teacher of Blind Students, President, NOPBC
> >>
> >> Independent Movement & Travel for the School-Age Student
> >> High expectations, real-life goals, and how to achieve them in the area
> of
> >> independent movement and travel. Instructor: TBA
> >>
> >> Tactile Graphics?The Good, the Bad, & the Ugly
> >> The basics of creating a good tactile graphic that will really work for
> the
> >> blind child. Instructor: Carol Castellano, Director of Programs, NOPBC
> >>
> >> I Get Around
> >> Getting around independently when you do not drive. Instructors: Pam
> Allen,
> >> Director, LA Center for the Blind; Roland Allen, NOMC
> >>
> >> Low Vision Technology
> >> From low tech to high tech, learn about the many options for the low
> vision
> >> student. Instructor: Janet Bernhardt, Owner, Low Vision, Etc.
> >>
> >> Saying It My Way
> >> Encouraging communication, learning, and play in children with
> >> communication needs. Instructor: Natalie Shaheen, Director of
> >> Education,
> >> NFB Jernigan Institute
> >>
> >> Social Skills for the School-Age Child
> >> Encouraging appropriate social interaction and play. Instructor: Sheena
> >> Manuel, Outreach Specialist, Professional Development and Research
> >> Institute on Blindness
> >>
> >> How to Set Up a Saturday School
> >> Empowering families to learn and teach the skills of independence.
> >> Instructor: Jackie Anderson, Teacher of Blind Students
> >>
> >> College Checklist: Is Your Blind Child Ready? Are YOU Ready?
> >> Preparing for heading off to college?what parents and students need to
> >> know, with a special visit from one of "the roommates from hell."
> >> Instructors: Kim Cunningham, second vice president, NOPBC; Kayleigh
> Joiner,
> >> Student; Arielle Silverman, Fellow, University of WA; Debbie Kent
> >> Stein,
> >> Editor, Future Reflections
> >>
> >> Unified English Braille (UEB)
> >> It's new. It's coming. What is it, how will the transition be made, and
> >> what will it mean to your child? Instructor: Casey Robertson, Teacher
> >> of
> >> Blind Students
> >>
> >> IEP Basics for Parents of Blind/VI Students
> >> The sections of the IEP, essential assessments, how assessment
> information
> >> is used, how to be an active and effective participant. Instructor:
> Carlton
> >> Walker, Attorney, Teacher of Blind Students
> >>
> >> IEP Development and Legal Process Overview
> >> Do's & Don'ts for the IEP meeting; preparing for possible mediation,
> >> due
> >> process, appeal, etc; overview of the legal process; how to prepare for
> a
> >> due process hearing so you don't have to have one! Instructor: Carlton
> >> Walker, Attorney, Teacher of Blind Students
> >>
> >>
> >> Spanish Language Session
> >> This session will cover a range of subjects of interest to parents of
> blind
> >> children. Instructor: Conchita Hernandez, Special Educator
> >>
> >>
> >> On Mon, Jun 30, 2014 at 10:19 AM, Lalena Fayre via blindkid <
> >> blindkid at nfbnet.org> wrote:
> >>
> >>> As I read through my latest issue of Future Reflections, I was struck
> with
> >>> a further sense of isolation. The same holds true when I read this
> listserv
> >>> and review the agenda of the upcoming national conference.
> >>>
> >>> My son is totally blind with multiple other disabilities - nonverbal
> and
> >>> global developmental delays that impact every area. I'm fortunate to
> have a
> >>> good foundation and understanding of blindness education. But when you
> add
> >>> the other issues to the blindness, one is struck with how much
> blindness
> >>> complicates things. For example, typical adaptive communication
> devices are
> >>> vision based. Another, pre-Braille work is important but after 3 years
> of
> >>> it and no significant progress made, you are forced to deal with
> functional
> >>> skill development which the therapist don't know how to do with a
> >>> blind
> >>> child, let allow a blind cognitively delayed child.
> >>>
> >>> I turn to the NFB for support and resources, yet publications are full
> of
> >>> typically developed children who happen to be blind. I call my local
> >>> organizations here in the bay area (which I know are inline with NFB
> >>> philosophy) looking for social opportunities for my son, but he can't
> >>> participate because of his developmental delays.
> >>>
> >>> At the end of the day I'm left wondering......am I the only parent of
> >>> a
> >>> child with multiple disabilities, developmental delays, AND blindness?
> Are
> >>> the majority of blind child typically developed? And where do I turn
> for a
> >>> network of parents who may understand?
> >>> _______________________________________________
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> End of blindkid Digest, Vol 123, Issue 9
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