[humanser] Intro and a few questions

Mon Sep 19 15:24:07 UTC 2016

Hello,

I too have nystagmus. My eye doctor used to joke that looking at my I reminded him of a roller coaster. He wasn't being malicious. My left eye is shrunken and is closed I tried wearing a shell but I have just enough sensitivity on the I where I could not Telerate the shell I tried wearing a sheath on the eye and it was very difficult to put on. In my younger days I had contemplated having this I removed and wearing a prosthetic eye my ophthalmologist advised against this. My right eye is underdeveloped and clouded over my glasses are sick. I would think if we could put a man on the moon and begin to develop self driving cars certainly there is the technology to develop attractive lenses that would otherwise be sick. I have been judged on my appearance I had a nursing home administrator tell me a long time ago because of my fit glasses she would have never hired me. I apologize for the phone dictates features screw ups I have been trying to say the word sick not sick.

Sent from my iPhone

> On Sep 19, 2016, at 7:48 AM, Marianne - Haas via HumanSer <humanser at nfbnet.org> wrote:
> 
> Hi Danielle,
> I also know what you are talking about as I also have Nystagmus.  I simply
> refuse to wear sun glasses as I can see a little more if there is a great
> contrast.  I struggle all the time with this concept about having to educate
> people.  I am a retired Teacher and I can tell you that I had similar
> experiences when Teachers asked my Assistant about questions they should
> have addressed to me.  If I said something, I was considered difficult.
> Many of those Assistants also tried to put their religious beliefs on me and
> let me know that God could restore my eye sight if I just believed, etc,
> etc. On the other hand, I also do not like some of the organizations for the
> blind telling me what I should or should not be able to do as a blind
> person.  I am in my late fifties.  One time, while volunteering, I did not
> know how to use a particular computer, and where the switch was to turn it
> on.  One sighted person in the  organization said I should have learned this
> already.  I know a lot of sighted people in my age range with difficulties
> in using computers.  Maybe, I have other talents.
> 
> However, I am a positive person.  If anyone blind or sighted, needs extra
> support or someone to rant and rave to here is my personal email.
> advocate at earthlink.net
> 
> Best Regards,
> 
> Marianne
> 
> -----Original Message-----
> From: HumanSer [mailto:humanser-bounces at nfbnet.org] On Behalf Of Reyazuddin,
> Yasmin via HumanSer
> Sent: Monday, September 19, 2016 5:15 AM
> To: Human Services Division Mailing List
> Cc: Reyazuddin, Yasmin
> Subject: Re: [humanser] Intro and a few questions
> 
> Hi Danielle, 
> Working with students is not so difficult but you may want to consider sun
> glasses for the eyes. You do not have wear them all day, but the time you
> spend at the school. Some people have told me that I look more professional
> wearing them. I am also totally blind and the children in my family ask or
> say to me why are my eyes closed. 
> It is a matter of explaining and sometimes we do it by show and tell or
> sometimes we are able to explain our condition. Yes if a student asks you
> about your glasses, you can smile and sy so I could see you better. 
> 
> 
> Yasmin Reyazuddin 
> Aging & Disability Services 
> Montgomery County Government 
> Department of Health & Human Services 
> 401 Hungerford Drive (3rd floor) 
> Rockville MD 20850 
> 240-777-0311 (MC311) 
> 240-777-1556 (personal) 
> 240-777-1495 (fax) 
> office hours 8:30 am 5:00 pm 
> Languages English, Hindi, Urdu, Braille 
> This message may contain protected health information or other information
> that is confidential or privileged. If you are not the intended recipient,
> please contact the sender by return mail and destroy any copies of this
> material. 
> Thank you.
> 
> 
> -----Original Message-----
> From: HumanSer [mailto:humanser-bounces at nfbnet.org] On Behalf Of Danielle
> (Shives) Manke via HumanSer
> Sent: Sunday, September 18, 2016 9:02 PM
> To: humanser at nfbnet.org
> Cc: Danielle (Shives) Manke <shives1 at myactv.net>
> Subject: [humanser] Intro and a few questions
> 
> Hello all,
> I have just joined this list and wanted to introduce myself, as well as ask
> a few questions. My name is Danielle Manke, and I am currently working on a
> graduate degree in school counseling. I have a background in education but
> find counseling to be a good fit for me. I have been working on my
> coursework for a year and should be finished my program in May. Between now
> and then, I am required to complete field experiences in an elementary,a
> middle, and a high school; I am working on the middle school experience now.
> I am wondering if there are any school counselors on this list that I could
> touch base with throughout these experiences and possibly beyond? Also, my
> supervisor for my current experience raised a concern about students being
> uncomfortable because of my eyes. I am totally blind so obviously do not
> make eye contact and, along with that, I have no control over my eyes and
> cannot focus them, and they move all over the place. My supervisor asked if
> I have ever considered glasses. I really haven't considered this; I raised
> it as an issue to some loved ones once and was told they would rather see my
> eyes. My supervisor suggested I simply ask students if my eyes are an issue
> for them, which I will do, but I'm wondering if anyone has any thoughts or
> experiences they can share about something like this? Has anyone dealt with
> a similar situation? Finally, I know that some people in my field have ways
> that people can report things anonymously to them, and this is sometimes
> done in writing. Though technology may replace the written part, I am
> wondering if anyone would have any suggestions in the event someone wanted
> to report something to me? Thank you so much in advance for any
> responses/help.
> Danielle Manke 
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