[nabs-l] College schedule and sleep

Bridget Walker bridgetawalker13 at aol.com
Fri Jan 23 19:24:01 UTC 2015 

This doctor has been treating my migraines from the time I was sixteen. We were unaware of my sleep patterns until I had an ambulatory EEG to rule out seizures. He could track my sleep patterns from that and said I really needed to readjust my sleep pattern. He put me on melatonin.
This was not a go I saw this on the news yesterday I am treating someone who is blind with migraines she must have non 24. I never thought I would get that diagnosis but, guess what.
 

Sent from my iPad

> On Jan 23, 27 Heisei, at 12:16 AM, Arielle Silverman via nabs-l <nabs-l at nfbnet.org> wrote:
> 
> Hi all. This is starting to meander into the off-topic zone. To bring
> it back on track: I've noticed that the non-24 sleep disorder
> diagnosis is getting a lot of hype lately. I do believe there are some
> blind people who genuinely have it. However, there are other medical
> reasons for falling asleep at inappropriate times or having trouble
> sleeping at night. In particular, the migraine disorder itself could
> be messing with your sleep rhythms in unpredictable ways. I'd
> encourage you to get a full investigation done and make sure the
> doctor isn't just presuming you have non-24because you are blind.
> Also, I've done a bit of reading about non-24, and it's not just
> random trouble sleeping. It's a very specific condition in which the
> time when you feel sleepy will shift a half-hour to an hour ahead each
> night until it resets. So you might feel appropriately tired at eleven
> one night, then find you are staying up later and later until a couple
> weeks later you aren't sleepy until the morning. If you suspect
> non-24, perhaps keep a sleep journal for a while to look for patterns.
> And, plenty of healthy people, including sighted people, experience
> insomnia and daytime fatigue just because of stress. I find nighttime
> routines to be very important especially staying out of my bedroom
> until it is time to go to bed.
> Best, Arielle
> 
>> On 1/22/15, Robin via nabs-l <nabs-l at nfbnet.org> wrote:
>> It's NOT "Official" IN the EYES of the FEDS (i.e., Federal Law).
>> 
>> Federal Law overrules State Laws (i.e., JimCrow Laws)
>> 
>> Just Saying
>> At 11:15 PM 1/21/2015, you wrote:
>>> It is legal in a handful of states now for medical purposes like
>>> this. No need for such alarm. Obviously no one is suggesting
>>> non-medical drug use in any region where it's use is not legal under
>>> a doctor's advice.
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Jan 20, 2015, at 1:52 PM, Sophie Trist via nabs-l
>>>> <nabs-l at nfbnet.org> wrote:
>>>> 
>>>> OMG, did you really just say she could use an illegal drug????????
>>>> 
>>>> ----- Original Message -----
>>>> From: Carly Mihalakis via nabs-l <nabs-l at nfbnet.org
>>>> To: Derek Manners <dmanners at jd16.law.harvard.edu>,National
>>> Association of Blind Students mailing list
>>> <nabs-l at nfbnet.org>,Bridget Walker
>>> <bridgetawalker13 at aol.com>,National Association of Blind Students
>>> mailing list <nabs-l at nfbnet.org
>>>> Date sent: Tue, 20 Jan 2015 09:52:47 -0800
>>>> Subject: Re: [nabs-l] College schedule and sleep
>>>> 
>>>> Morning, Bridget,
>>>> 
>>>>       I was bienucleated at age 2 and experienced non-24 during
>>>> high school. Then, I begin using meletonin supplements to regulate my
>>>> sleep. I am not familiar with the migraines you speak of. Try to
>>>> regulate, though, via meds (preferably natural things such as
>>>> meletonin supplements or marijuana) might help your migraines, too!
>>>> Keep us posted?
>>>> Car
>>>> Sorry to hear about this. I wish I could give you some advice
>>>> specific to the illness. However, this may be obvious but make sure
>>>> your disability services provider on campus knows about this and has
>>>> documentation. You may need it to get extensions or makeups etc. in
>>>> the future.
>>>> 
>>>> Best wishes
>>>> Derek
>>>> 
>>>> 
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>> On Jan 20, 2015, at 11:22 AM, Bridget Walker via nabs-l
>>>> <nabs-l at nfbnet.org> wrote:
>>>> 
>>>> Hi everyone,
>>>> This is not my usual kind of thread. I was just diagnosed with a
>>>> very complicated migraine disorder that mimics seizures caused by
>>>> lack of blood flow to parts of my brain due to swelling. Yeah sorry
>>>> it sounds really bad but, I want this to be clear. I had to get an
>>>> EEG to rule out epilepsy. When I got the EEG we found out I had
>>>> very weird sleep patterns. There were some days when I would get no
>>>> sleep at all and others when I would fall asleep at 11:00 in the
>>>> morning without being aware of the time. My neurologist determined
>>>> I had non24 and put me on a supplement I have only been on it sins
>>>> Friday. My body is far from adjusted. When I have a migraine I
>>>> quite literally just crash. I have this seizure like thing then, I
>>>> have to medicate quickly, and then I fall asleep. I can not help
>>>> but sleep with a migraine so powerful.
>>>> Aside from my issues with migraines, I was wondering if anyone
>>>> has dealt with symptoms of non24 while attending college. How did
>>>> you adjust your sleep schedule while completing assignments? Were
>>>> you ever able to train yourself to sleep at the correct time?
>>>> Any advice is appreciated.
>>>> Bridget
>>>> 
>>>> Sent from my iPad
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>> 
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