[nfb-talk] Update on cancer

[Powers, Terry (NIH/OD/DEAS) [E]]

Joseph;
Congratulations that the cancer did not spread!  All the NFB wish you well on a speady recovery.  Take care and get well soon.

Terry Powers from MD

 

-----Original Message-----
From: T. Joseph Carter [mailto:carter.tjoseph at gmail.com] 
Sent: Thursday, July 15, 2010 11:37 PM
To: nfb-or at nfbnet.org; nfb-talk at nfbnet.org
Subject: [nfb-talk] Update on cancer

Hi everyone,

Some of the major details seem to be suffering from a game of telephone, so before giving an update I probably need to recap the major details:  On June 21st, I was diagnosed with a soft tissue sarcoma, a pretty rare form of cancer most doctors have never seen, and therefore don't recognize when they encounter it.

I'm finding that many soft tissue sarcoma survivors have stories about the medical adventure around trying to treat whatever the doctors thought they were dealing with before they discovered the cancer.  I was no exception, with doctors cutting a hole in my right lower back to remove the "cyst" or "abscess" this was thought to be.

So by the time it was diagnosed on the 21st, the tumor had grown to fill the hole, and had begun growing out of it!  So, 32 days after my 32nd birthday, there I am calling the sarcoma specialist's office in a panic.  We did what we could do dress the tumor until we could arrange the tests needed to determine the best treatment approach, which turned out to begin with surgery.

I had that on the 8th, where the doctors cut out a blob roughly the size of a six inch cube.  I was only released from the hospital today after issue related to this thing I've got called a wound vac.  
Basically they left part of the operating site open and put a vacuum sealed dressing over it that connects to a machine that constantly drains it.  This reduces the mess and chances for infection a bit, but requires care and feeding of the machine.  Plus dressing changes hurt a LOT, but that'd be true regardless of the vac!

We have the pathology results back, and thankfully the tissue around the edges of the blob has no sign of cancer cells!  I'm still on heavy pain medication, so you can expect me not to be great conversation if you tried to call me right now!

I'll be staying here a home quite a bit then to recover.  I don't plan to go anywhere for while, and then just the doctor's office.

That's all for now!  Take care everyone!

Joseph


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