[nfb-talk] FW: {Disarmed} FW: A personal report fromChairman Gordon Gund

Mike Freeman k7uij at panix.com
Fri Apr 22 02:03:40 UTC 2011 

Absolutely.  However, I believe one can acknowledge this while still
resenting the terminology of "fighting" blindness.  I get just as irritated
with the all-too-prevalent phraseology of "fighting" diabetes.  One doesn't
fight either blindness or diabetes; one lives with them.

Mike Freeman


-----Original Message-----
From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
Behalf Of Lisa Kidder
Sent: Thursday, April 21, 2011 5:59 PM
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report fromChairman
Gordon Gund

Very good point.  I had to tell a lot of the people I worked with 
that.  Every one is different, and needs to be taken in to 
consideration.  Lisa 

 ----- Original Message -----
From: Ray Foret Jr <rforetjr at att.net
To: NFB Talk Mailing List <nfb-talk at nfbnet.org
Date sent: Thu, 21 Apr 2011 19:40:51 -0500
Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report 
fromChairman	Gordon Gund

Yes, this is true, however, you are overlooking the human fact 
that not every blind person is as comfortable with their 
blindness as we are.  The NFB philosophy is true, and, it's words 
are true; but, human reality has a habit of cutting in every now 
and again.  As a perelell, , if you're used to walking barefooted 
on gravel and rocks and shells because of having toughened the 
soles of your feet by going barefooted all your life, and you 
meet someone who is not used to it, and suddenly, they decide to 
be like you and try it, they're not going to be used to shells 
right away because their soles have not yet toughened up enough 
for it.  You can't expect them to get used to it right away and 
say "well, just deal with it.".  It takes a little time to 
toughen the soles so they can take it.  Frankly, I think it is 
more compationent to realize that a person just gone blind is 
going to need a little while to get used to it then to just say, 
"well, you're blind.  So what?  Here's a tape about the NFB.  
Just get over it.".  To speak frankly, if you haven't lost your 
sight because you never had it, I do not think you can really or 
honestly say you understand what that's like.  I was born blind 
myself, and, to tell the truth, it took me a little while to come 
to the point where I was willing to give a little on this 
question.
Sincerely,
The Constantly Barefooted Ray!!!

Now a very proud and happy Mac user!!!
Skype name:
barefootedray

Facebook:
facebook.com/ray.foretjr.1

On Apr 21, 2011, at 5:13 PM, Gloria Whipple wrote:

 Blindness isn't a tragedy.

 There are a lot of people who could see and then lost their 
sight and
 learned how to deal with it.  Sure, it would be hard at first, 
but it can be
 done.


 Gloria Whipple
 Corresponding Secretary
 Inland Empire chapter
 nfb of WA


 -----Original Message-----
 From: nfb-talk-bounces at nfbnet.org 
[mailto:nfb-talk-bounces at nfbnet.org] On
 Behalf Of Jeanette Fortin
 Sent: Thursday, April 21, 2011 15:04
 To: NFB Talk Mailing List
 Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report 
from Chairman
 Gordon Gund

 well let me say this, why not fight blindness? if there is a way 
some people

 can regain their vision or if doctors can help folks to save the 
vision they

 have, go for it.
 i got a call today from my cousin who works with hazzardess 
materials in his

 job.  he was hit in the face with some costic liquid last week 
and lost his
 vision for a couple of days.  Because he was rushed to a special 
hospital
 and given specific treatment for his eyes which were damaged by 
the costic
 liquid, the doctors are hopeful he will regain all or most of 
his vision.
 from some folks way of thinking it appears they think it would 
be just fine

 for him to have lost  his vision and subsequently his job.  it 
gave him a
 true appreciation of those of us who have dealt with vision loss 
for years
 and has made him grateful for whatever  vision he has.
 i think maybe the name of the organization, fighting blindness 
may offend
 some folks, but if you understand how someone who had vision and 
loses it
 feels maybe you would understand why the foundation is trying to 
find ways
 to help folks either regain or not lose their vision, jeanette
 ----- Original Message -----
 From: "S Baker" <srbaker12 at hotmail.com
 To: "ANFBchat" <nfb-talk at nfbnet.org
 Sent: Thursday, April 21, 2011 3:31 PM
 Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from 
Chairman
 Gordon Gund






 SRBaker






 From: srbaker12 at hotmail.com
 To: nfb-talk at nfbnet.org
 Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from 
Chairman
 Gordon Gund
 Date: Thu, 21 Apr 2011 21:29:26 +0000




 This email solicits donations.  It also has links to current 
research to
 correct blindness.There is nothing wrong with being blind, if 
that is what

 you want.  If there is technology that can reverse,cure me, I am 
all for
 it.  There is an old saying "There are none so blind as those 
who will not
 see".  Our eyes may not work but our brains do.
 Steve



 SRBaker



 From: ladygloria at webband.com
 To: nfb-talk at nfbnet.org
 Date: Thu, 21 Apr 2011 14:19:37 -0700
 Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from 
Chairman
 Gordon Gund

 What in the heck is wrong with being blind!


 Gloria Whipple
 Corresponding Secretary
 Inland Empire chapter
 nfb of WA


 -----Original Message-----
 From: nfb-talk-bounces at nfbnet.org 
[mailto:nfb-talk-bounces at nfbnet.org] On
 Behalf Of S Baker
 Sent: Thursday, April 21, 2011 14:14
 To: AMoLList
 Subject: [nfb-talk] {Disarmed} FW: A personal report from 
Chairman Gordon
 Gund





 SRBaker






 Date: Thu, 21 Apr 2011 16:00:24 -0500
 From: GGund at FightBlindness.org
 To: srbaker at charter.net
 Subject: A personal report from Chairman Gordon Gund











 Like you, Steven, I follow the work of the Foundation Fighting 
Blindness
 closely.  As a donor, I want to know that my donations make a 
difference.

 And believe me, they do.  When I reflect on the last year and 
listen to
 this
 video, I am reminded that we have more clinical trials for 
sight-saving
 treatments underway than ever before.  Clearly, hope and 
optimism are
 running high.  Incredible strides have been made in the last few 
years,
 and
 these remarkable advances would not have been made without your 
support
 of
 the Foundation.  They include:

 Vision Restored.  We are continuing to build on remarkable gains 
in gene
 therapy.  As you may recall, in a Foundation-funded trial, 
9-year-old
 Corey
 Haas and 19 others received a gene therapy treatment and can now 
see.  And
 as the trial has expanded, participants have shown sustained 
improvement
 in
 vision.  Building on this success, similar gene therapy 
treatments are
 moving into clinical trials for choroideremia, Stargardt disease 
and
 Usher
 syndrome.

 Innovative Technology.  The high-tech industry has a treatment 
I'm
 incredibly excited about-- the world's first commercially 
available
 artificial or "bionic" eye.  Early funding from the Foundation 
was key to
 getting this engineered retina off the ground.  Building on the 
studies we
 funded, the light-sensing, implantable "chip" has been tested in 
a
 clinical
 trial in Europe with great results.  In the study, people who 
were
 profoundly
 blind experienced improved vision that could help them to be 
more
 independent.  In fact, many can now see shapes and recognize 
large
 letters.

 Groundbreaking Therapies.  A research team funded by the 
Foundation
 Fighting
 Blindness developed an innovative technique for correcting the
 disease-causing gene by using stem cells derived from a person's 
skin.
 While
 more work is needed to ensure safety, this advancement suggests 
that
 doctors
 may someday be able to treat a patient's retinal disease using 
their own
 skin cells.
 These few accomplishments barely begin to tell the story of all 
the
 progress
 that's being made.  And this is why words can never express my 
personal
 gratitude for your passionate and committed support.

 I hope you will take a few minutes to watch the video and see 
the results

 of
 your support and the hope it has generated.  But most 
importantly, I hope
 you
 will see that research is progressing at a terrific rate.  It's 
been a
 long
 time coming, but we crossed a critical threshold when our 
researchers
 actually restored sight.  It launched us into a new era when 
more and more
 people will have their sight saved or restored every year.  A 
lot of work
 remains.  But we'll get there by continuing to work together.

 The Foundation Fighting Blindness values the support you give us 
by
 donating, talking to your friends, and advocating for increased 
research
 funding.  As we continue our relentless pursuit to eradicate 
blindness, we
 hope you will continue your steadfast support of our mission.  
Thanks for
 envisioning a bright future for the millions affected by retinal
 degenerative diseases.




 Sincerely,

 Gordon Gund










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