[nfb-talk] FW: {Disarmed} FW: A personal reportfromChairmanGordon Gund

Jeanette Fortin jeanette at fortin-home.com
Fri Apr 22 20:47:26 UTC 2011 

the people i have  met who work for  this organization feel it is great fro 
blind people to live fullfilling lives. some of thema re blind themselves.
----- Original Message ----- 
From: "John Heim" <john at johnheim.net>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Friday, April 22, 2011 2:10 PM
Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal 
reportfromChairmanGordon Gund


> I'm sure the Foundation Fighting Blindness is very much in favor of  blind 
> people living rich and fullfilling lives. What makes you think they're 
> not?
>
> ----- Original Message ----- 
> From: "James Aldrich" <jajkaldrich at gmail.com>
> To: "Jeanette Fortin" <jeanette at fortin-home.com>; "NFB Talk Mailing List" 
> <nfb-talk at nfbnet.org>
> Sent: Friday, April 22, 2011 11:20 AM
> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report 
> fromChairmanGordon Gund
>
>
>> Hello all!
>>
>> I greatly dislike how this organization the foundation fighting blindness 
>> reinforces how terrible it is to be blind!  Yes!  It is no picnic at 
>> first when one loses vision I'm certain but we in the NFB are here to 
>> show there is life after vision loss or there is life when one is blind! 
>> We have a more positive message!  Yes!  I'm all for preserving one's 
>> vision but if this isn't possible, I for one wish to see someone continue 
>> to live a full and enriching life as much as possible!  There are many 
>> who can't cope but there are more who do and they live quite well!  At 
>> least, they have a life! It is far better to be blind today than it was a 
>> hundred years ago but even at that time, I'm certain some lived 
>> meaningful lives even then!
>>
>> Jim
>>
>>
>> ----- Original Message ----- 
>> From: "Jeanette Fortin" <jeanette at fortin-home.com>
>> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>> Sent: Thursday, April 21, 2011 4:03 PM
>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from 
>> ChairmanGordon Gund
>>
>>
>>> well let me say this, why not fight blindness? if there is a way some 
>>> people can regain their vision or if doctors can help folks to save the 
>>> vision they have, go for it.
>>> i got a call today from my cousin who works with hazzardess materials in 
>>> his job.  he was hit in the face with some costic liquid last week and 
>>> lost his vision for a couple of days.  Because he was rushed to a 
>>> special hospital and given specific treatment for his eyes which were 
>>> damaged by the costic liquid, the doctors are hopeful he will regain all 
>>> or most of his vision.
>>> from some folks way of thinking it appears they think it would be just 
>>> fine for him to have lost  his vision and subsequently his job.  it gave 
>>> him a true appreciation of those of us who have dealt with vision loss 
>>> for years and has made him grateful for whatever  vision he has.
>>> i think maybe the name of the organization, fighting blindness may 
>>> offend some folks, but if you understand how someone who had vision and 
>>> loses it feels maybe you would understand why the foundation is trying 
>>> to find ways to help folks either regain or not lose their vision, 
>>> jeanette
>>> ----- Original Message ----- 
>>> From: "S Baker" <srbaker12 at hotmail.com>
>>> To: "ANFBchat" <nfb-talk at nfbnet.org>
>>> Sent: Thursday, April 21, 2011 3:31 PM
>>> Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from Chairman 
>>> Gordon Gund
>>>
>>>
>>>>
>>>>
>>>>
>>>>
>>>> SRBaker
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> From: srbaker12 at hotmail.com
>>>> To: nfb-talk at nfbnet.org
>>>> Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>> Gordon Gund
>>>> Date: Thu, 21 Apr 2011 21:29:26 +0000
>>>>
>>>>
>>>>
>>>>
>>>> This email solicits donations. It also has links to current research to 
>>>> correct blindness.There is nothing wrong with being blind, if that is 
>>>> what you want. If there is technology that can reverse,cure me, I am 
>>>> all for it. There is an old saying "There are none so blind as those 
>>>> who will not see". Our eyes may not work but our brains do.
>>>> Steve
>>>>
>>>>
>>>>
>>>> SRBaker
>>>>
>>>>
>>>>
>>>>> From: ladygloria at webband.com
>>>>> To: nfb-talk at nfbnet.org
>>>>> Date: Thu, 21 Apr 2011 14:19:37 -0700
>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>>> Gordon Gund
>>>>>
>>>>> What in the heck is wrong with being blind!
>>>>>
>>>>>
>>>>> Gloria Whipple
>>>>> Corresponding Secretary
>>>>> Inland Empire chapter
>>>>> nfb of WA
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] 
>>>>> On
>>>>> Behalf Of S Baker
>>>>> Sent: Thursday, April 21, 2011 14:14
>>>>> To: AMoLList
>>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>>> Gordon
>>>>> Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> SRBaker
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>> From: GGund at FightBlindness.org
>>>>> To: srbaker at charter.net
>>>>> Subject: A personal report from Chairman Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Like you, Steven, I follow the work of the Foundation Fighting 
>>>>> Blindness
>>>>> closely. As a donor, I want to know that my donations make a 
>>>>> difference.
>>>>>
>>>>> And believe me, they do. When I reflect on the last year and listen to 
>>>>> this
>>>>> video, I am reminded that we have more clinical trials for 
>>>>> sight-saving
>>>>> treatments underway than ever before. Clearly, hope and optimism are
>>>>> running high. Incredible strides have been made in the last few years, 
>>>>> and
>>>>> these remarkable advances would not have been made without your 
>>>>> support of
>>>>> the Foundation. They include:
>>>>>
>>>>> Vision Restored. We are continuing to build on remarkable gains in 
>>>>> gene
>>>>> therapy. As you may recall, in a Foundation-funded trial, 9-year-old 
>>>>> Corey
>>>>> Haas and 19 others received a gene therapy treatment and can now see. 
>>>>> And
>>>>> as the trial has expanded, participants have shown sustained 
>>>>> improvement in
>>>>> vision. Building on this success, similar gene therapy treatments are
>>>>> moving into clinical trials for choroideremia, Stargardt disease and 
>>>>> Usher
>>>>> syndrome.
>>>>>
>>>>> Innovative Technology. The high-tech industry has a treatment I'm
>>>>> incredibly excited about-- the world's first commercially available
>>>>> artificial or "bionic" eye. Early funding from the Foundation was key 
>>>>> to
>>>>> getting this engineered retina off the ground. Building on the studies 
>>>>> we
>>>>> funded, the light-sensing, implantable "chip" has been tested in a 
>>>>> clinical
>>>>> trial in Europe with great results. In the study, people who were 
>>>>> profoundly
>>>>> blind experienced improved vision that could help them to be more
>>>>> independent. In fact, many can now see shapes and recognize large 
>>>>> letters.
>>>>>
>>>>> Groundbreaking Therapies. A research team funded by the Foundation 
>>>>> Fighting
>>>>> Blindness developed an innovative technique for correcting the
>>>>> disease-causing gene by using stem cells derived from a person's skin. 
>>>>> While
>>>>> more work is needed to ensure safety, this advancement suggests that 
>>>>> doctors
>>>>> may someday be able to treat a patient's retinal disease using their 
>>>>> own
>>>>> skin cells.
>>>>> These few accomplishments barely begin to tell the story of all the 
>>>>> progress
>>>>> that's being made. And this is why words can never express my personal
>>>>> gratitude for your passionate and committed support.
>>>>>
>>>>> I hope you will take a few minutes to watch the video and see the 
>>>>> results of
>>>>> your support and the hope it has generated. But most importantly, I 
>>>>> hope you
>>>>> will see that research is progressing at a terrific rate. It's been a 
>>>>> long
>>>>> time coming, but we crossed a critical threshold when our researchers
>>>>> actually restored sight. It launched us into a new era when more and 
>>>>> more
>>>>> people will have their sight saved or restored every year. A lot of 
>>>>> work
>>>>> remains. But we'll get there by continuing to work together.
>>>>>
>>>>> The Foundation Fighting Blindness values the support you give us by
>>>>> donating, talking to your friends, and advocating for increased 
>>>>> research
>>>>> funding. As we continue our relentless pursuit to eradicate blindness, 
>>>>> we
>>>>> hope you will continue your steadfast support of our mission. Thanks 
>>>>> for
>>>>> envisioning a bright future for the millions affected by retinal
>>>>> degenerative diseases.
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Sincerely,
>>>>>
>>>>> Gordon Gund
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Check us out on:
>>>>>
>>>>> Tell a Friend | Subscribe | Change email address | Unsubscribe
>>>>> Foundation Fighting Blindness
>>>>> www.FightBlindness.org
>>>>> 7168 Columbia Gateway Drive, Suite 100
>>>>> Columbia, MD 21046
>>>>> 1-800-683-5555
>>>>>
>>>>> nonprofit software
>>>>> _______________________________________________
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>>>>> nd.com
>>>>>
>>>>>
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>>>>
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>>
>>
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>
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