[nfb-talk] observations about Foundation Fighting Blindness

John Heim john at johnheim.net
Sat Apr 23 21:17:00 UTC 2011 

That is just so unfair. What are you basing that on?

I will probably be a waiter at a Dining in the Dark event this summer.  
I'll record it if I can. Lets see what this is all abut. In the mean  
time, lets keep an open minde.


On Apr 22, 2011, at 9:05 PM, Michael Hingson wrote:

> However, I bet the presentation is SIGNIFICANTLY different.
>
> The Michael Hingson Group, INC.
> “Speaking with Vision”
> Michael Hingson, President
> (415) 827-4084
> info at michaelhingson.com
> To learn more about my upcoming book, speaking topics and speaking
> availability please visit www.michaelhingson.com
> Thunder Dog is now available for early ordering on Amazon!!!
> http://www.amazon.com/Thunder-Dog-Blind-Triumph-Ground/dp/140020304X/ref=sr_
> 1_3?s=books&ie=UTF8&qid=1289090352&sr=1-3
>
>
> for info on the new KNFB Reader Mobile, visit:
> http://knfbreader.michaelhingson.com
>
>
> -----Original Message-----
> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk- 
> bounces at nfbnet.org] On
> Behalf Of Jeanette Fortin
> Sent: Friday, April 22, 2011 6:57 PM
> To: NFB Talk Mailing List
> Subject: Re: [nfb-talk] observations about Foundation Fighting  
> Blindness
>
> there are a few nfb chapters doing the dining in the dark thing as  
> well you
> know?
> ----- Original Message -----
> From: "Mike Freeman" <k7uij at panix.com>
> To: <info at michaelhingson.com>; "'NFB Talk Mailing List'"
> <nfb-talk at nfbnet.org>
> Sent: Friday, April 22, 2011 7:45 PM
> Subject: Re: [nfb-talk] observations about Foundation Fighting  
> Blindness
>
>
> Oh my Lord!  Is the RP Foundation fighting Blindness involved in  
> that Dining
> in the Dark nonsense?  I fear me greatly there's no hope for them  
> then.
>
> Mike Freeman
>
>
> -----Original Message-----
> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk- 
> bounces at nfbnet.org] On
> Behalf Of Michael Hingson
> Sent: Friday, April 22, 2011 6:23 PM
> To: 'NFB Talk Mailing List'
> Subject: [nfb-talk] observations about Foundation Fighting Blindness
>
> All,
>
> First, note the subject line change.  I think the issue here is what  
> is
> "fulfilling"?  From the literature I have read from this  
> organization as
> well as from discussions I have had with staff their idea of a  
> "fulfilling
> life" does not contain the high expectations I or many of us have.   
> It all
> goes back to the philosophy of blindness one chooses to have.
>
> If, for example, you think that it is amazing that a blind person  
> can cut
> their food and even find it, but think that because a blind person  
> does eat
> independently their life is in part fulfilling then your view of the  
> true
> nature of blindness differs from mine.  "Dining In The Dark" is a
> fundraising event the Foundation has sponsored in various parts of the
> country.  Putting a group of sighted people under blindfold, then  
> serving
> them food while making statements like "this is what blind people  
> face every
> day" cannot help improve the public's view of the abilities of blind  
> people.
> Nevertheless this is the kind of thing the Foundation Fighting  
> Blindness
> does constantly.
>
> As, I think, Mike Freeman said, it is all in what you mean by  
> "fighting".
> We in the NFB fight blindness every day.  The blindness we fight is  
> that of
> people who let their eye sight get in the way of their vision which  
> has
> become blinded by prejudice and misinformation.  (See Thunder Dog  
> when it is
> released).
>
> The tragedy of blindness is not the loss of eye sight unless we make  
> it so.
> Any "tragedy" is only as serious as we allow it to be.  Those who  
> lose their
> sight can move forward and have as full and productive a life as  
> before if
> they are willing to get the proper training.  There is nothing new  
> here but,
> we need to keep saying it if we expect the world to come around and  
> believe
> that truth.  It's marketing pure and simple.
>
> Happy Easter.
>
>
> Best,
>
>
> Mike Hingson
>
> The Michael Hingson Group, INC.
> "Speaking with Vision"
> Michael Hingson, President
> (415) 827-4084
> info at michaelhingson.com
> To learn more about my upcoming book, speaking topics and speaking
> availability please visit www.michaelhingson.com Thunder Dog is now
> available for early ordering on Amazon!!!
> http://www.amazon.com/Thunder-Dog-Blind-Triumph-Ground/dp/140020304X/ref=sr_
> 1_3?s=books&ie=UTF8&qid=1289090352&sr=1-3
>
>
> for info on the new KNFB Reader Mobile, visit:
> http://knfbreader.michaelhingson.com
>
>
> -----Original Message-----
> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk- 
> bounces at nfbnet.org] On
> Behalf Of Mike Freeman
> Sent: Friday, April 22, 2011 2:01 PM
> To: NFB Talk Mailing List
> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
> fromChairmanGordon Gund
>
> The choice of the word "fighting".  It's not the they're against the  
> blind
> leading fulfilled lives; they can't conceive of it.
>
> Mike Freeman
> sent from my iPhone
>
>
> On Apr 22, 2011, at 13:10, "John Heim" <john at johnheim.net> wrote:
>
>> I'm sure the Foundation Fighting Blindness is very much in favor of
>> blind
> people living rich and fullfilling lives. What makes you think  
> they're not?
>>
>> ----- Original Message ----- From: "James Aldrich"
>> <jajkaldrich at gmail.com>
>> To: "Jeanette Fortin" <jeanette at fortin-home.com>; "NFB Talk Mailing  
>> List"
> <nfb-talk at nfbnet.org>
>> Sent: Friday, April 22, 2011 11:20 AM
>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report
> fromChairmanGordon Gund
>>
>>
>>> Hello all!
>>>
>>> I greatly dislike how this organization the foundation fighting
>>> blindness
> reinforces how terrible it is to be blind!  Yes!  It is no picnic at  
> first
> when one loses vision I'm certain but we in the NFB are here to show  
> there
> is life after vision loss or there is life when one is blind!  We  
> have a
> more positive message!  Yes!  I'm all for preserving one's vision  
> but if
> this isn't possible, I for one wish to see someone continue to live  
> a full
> and enriching life as much as possible!  There are many who can't  
> cope but
> there are more who do and they live quite well!  At least, they have  
> a life!
> It is far better to be blind today than it was a hundred years ago  
> but even
> at that time, I'm certain some lived meaningful lives even then!
>>>
>>> Jim
>>>
>>>
>>> ----- Original Message ----- From: "Jeanette Fortin"
> <jeanette at fortin-home.com>
>>> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>>> Sent: Thursday, April 21, 2011 4:03 PM
>>> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from
> ChairmanGordon Gund
>>>
>>>
>>>> well let me say this, why not fight blindness? if there is a way
>>>> some
> people can regain their vision or if doctors can help folks to save  
> the
> vision they have, go for it.
>>>> i got a call today from my cousin who works with hazzardess
>>>> materials in
> his job.  he was hit in the face with some costic liquid last week  
> and lost
> his vision for a couple of days.  Because he was rushed to a special
> hospital and given specific treatment for his eyes which were  
> damaged by the
> costic liquid, the doctors are hopeful he will regain all or most of  
> his
> vision.
>>>> from some folks way of thinking it appears they think it would be
>>>> just
> fine for him to have lost  his vision and subsequently his job.  it  
> gave him
> a true appreciation of those of us who have dealt with vision loss  
> for years
> and has made him grateful for whatever  vision he has.
>>>> i think maybe the name of the organization, fighting blindness may
> offend some folks, but if you understand how someone who had vision  
> and
> loses it feels maybe you would understand why the foundation is  
> trying to
> find ways to help folks either regain or not lose their vision,  
> jeanette
>>>> ----- Original Message ----- From: "S Baker"  
>>>> <srbaker12 at hotmail.com>
>>>> To: "ANFBchat" <nfb-talk at nfbnet.org>
>>>> Sent: Thursday, April 21, 2011 3:31 PM
>>>> Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from
>>>> Chairman
> Gordon Gund
>>>>
>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> SRBaker
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> From: srbaker12 at hotmail.com
>>>>> To: nfb-talk at nfbnet.org
>>>>> Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from
>>>>> Chairman
> Gordon Gund
>>>>> Date: Thu, 21 Apr 2011 21:29:26 +0000
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> This email solicits donations. It also has links to current
>>>>> research to
> correct blindness.There is nothing wrong with being blind, if that  
> is what
> you want. If there is technology that can reverse,cure me, I am all  
> for it.
> There is an old saying "There are none so blind as those who will  
> not see".
> Our eyes may not work but our brains do.
>>>>> Steve
>>>>>
>>>>>
>>>>>
>>>>> SRBaker
>>>>>
>>>>>
>>>>>
>>>>>> From: ladygloria at webband.com
>>>>>> To: nfb-talk at nfbnet.org
>>>>>> Date: Thu, 21 Apr 2011 14:19:37 -0700
>>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>> Chairman
> Gordon Gund
>>>>>>
>>>>>> What in the heck is wrong with being blind!
>>>>>>
>>>>>>
>>>>>> Gloria Whipple
>>>>>> Corresponding Secretary
>>>>>> Inland Empire chapter
>>>>>> nfb of WA
>>>>>>
>>>>>>
>>>>>> -----Original Message-----
>>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>>> [mailto:nfb-talk-bounces at nfbnet.org]
> On
>>>>>> Behalf Of S Baker
>>>>>> Sent: Thursday, April 21, 2011 14:14
>>>>>> To: AMoLList
>>>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from  
>>>>>> Chairman
> Gordon
>>>>>> Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> SRBaker
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>> From: GGund at FightBlindness.org
>>>>>> To: srbaker at charter.net
>>>>>> Subject: A personal report from Chairman Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Like you, Steven, I follow the work of the Foundation Fighting
> Blindness
>>>>>> closely. As a donor, I want to know that my donations make a
> difference.
>>>>>>
>>>>>> And believe me, they do. When I reflect on the last year and
>>>>>> listen to
> this
>>>>>> video, I am reminded that we have more clinical trials for
> sight-saving
>>>>>> treatments underway than ever before. Clearly, hope and optimism
>>>>>> are running high. Incredible strides have been made in the last
>>>>>> few years,
> and
>>>>>> these remarkable advances would not have been made without your
> support of
>>>>>> the Foundation. They include:
>>>>>>
>>>>>> Vision Restored. We are continuing to build on remarkable gains  
>>>>>> in
> gene
>>>>>> therapy. As you may recall, in a Foundation-funded trial,
>>>>>> 9-year-old
> Corey
>>>>>> Haas and 19 others received a gene therapy treatment and can  
>>>>>> now see.
> And
>>>>>> as the trial has expanded, participants have shown sustained
> improvement in
>>>>>> vision. Building on this success, similar gene therapy treatments
>>>>>> are moving into clinical trials for choroideremia, Stargardt
>>>>>> disease and
> Usher
>>>>>> syndrome.
>>>>>>
>>>>>> Innovative Technology. The high-tech industry has a treatment I'm
>>>>>> incredibly excited about-- the world's first commercially
>>>>>> available artificial or "bionic" eye. Early funding from the
>>>>>> Foundation was key
> to
>>>>>> getting this engineered retina off the ground. Building on the
>>>>>> studies
> we
>>>>>> funded, the light-sensing, implantable "chip" has been tested  
>>>>>> in a
> clinical
>>>>>> trial in Europe with great results. In the study, people who were
> profoundly
>>>>>> blind experienced improved vision that could help them to be more
>>>>>> independent. In fact, many can now see shapes and recognize large
> letters.
>>>>>>
>>>>>> Groundbreaking Therapies. A research team funded by the  
>>>>>> Foundation
> Fighting
>>>>>> Blindness developed an innovative technique for correcting the
>>>>>> disease-causing gene by using stem cells derived from a  
>>>>>> person's skin.
> While
>>>>>> more work is needed to ensure safety, this advancement suggests
>>>>>> that
> doctors
>>>>>> may someday be able to treat a patient's retinal disease using
>>>>>> their
> own
>>>>>> skin cells.
>>>>>> These few accomplishments barely begin to tell the story of all
>>>>>> the
> progress
>>>>>> that's being made. And this is why words can never express my
>>>>>> personal gratitude for your passionate and committed support.
>>>>>>
>>>>>> I hope you will take a few minutes to watch the video and see the
> results of
>>>>>> your support and the hope it has generated. But most importantly,
>>>>>> I
> hope you
>>>>>> will see that research is progressing at a terrific rate. It's
>>>>>> been a
> long
>>>>>> time coming, but we crossed a critical threshold when our
>>>>>> researchers actually restored sight. It launched us into a new  
>>>>>> era
>>>>>> when more and
> more
>>>>>> people will have their sight saved or restored every year. A lot
>>>>>> of
> work
>>>>>> remains. But we'll get there by continuing to work together.
>>>>>>
>>>>>> The Foundation Fighting Blindness values the support you give us
>>>>>> by donating, talking to your friends, and advocating for  
>>>>>> increased
> research
>>>>>> funding. As we continue our relentless pursuit to eradicate
>>>>>> blindness,
> we
>>>>>> hope you will continue your steadfast support of our mission.
>>>>>> Thanks
> for
>>>>>> envisioning a bright future for the millions affected by retinal
>>>>>> degenerative diseases.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Sincerely,
>>>>>>
>>>>>> Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> Check us out on:
>>>>>>
>>>>>> Tell a Friend | Subscribe | Change email address | Unsubscribe
>>>>>> Foundation Fighting Blindness www.FightBlindness.org
>>>>>> 7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>> 1-800-683-5555
>>>>>>
>>>>>> nonprofit software
>>>>>> _______________________________________________
>>>>>> nfb-talk mailing list
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>>>>>> for
>>>>>> nfb-talk:
>>>>>>
> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria%40webba
>>>>>> nd.com
>>>>>>
>>>>>>
>>>>>> _______________________________________________
>>>>>> nfb-talk mailing list
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> l.com
>>>>>
>>>>> _______________________________________________
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>>>>
>>>>
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>>
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