[nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

Powers, Terry (NIH/OD/DEAS) [E] Terry.Powers at nih.gov
Mon Apr 25 21:01:48 UTC 2011 

Hi Joseph;
I wish you the best of luck with your cancer.  Keep up the good faith.  I had a friend who was heald of a liver disease.
My ride is here.

Terry 


-----Original Message-----
From: T. Joseph Carter [mailto:carter.tjoseph at gmail.com] 
Sent: Monday, April 25, 2011 4:54 PM
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

Likewise Terry, as I have said before on this issue, if I could take a magic pill to fix my acuity, I would probably not bother.  Now if I could take a magic pill to fix light sensitivity, I would, even if it fixed my acuity in the process.  The acuity isn't a big deal to me anymore, but headaches are not fun.

Joseph

On Mon, Apr 25, 2011 at 03:11:00PM -0400, Powers, Terry (NIH/OD/DEAS) [E] wrote:
>I have low partial sight and any day would rather keep what I have than take the risk of loosing what little I have.  I any day would rather be blind and be heald of my epelepsi.  The epelepsi has taken a tole on my memory and caused me to hold a lower paying job than if I just had my blindness and other health problems.
>
>Terry Powers
>
>
>-----Original Message-----
>From: Jeanette Fortin [mailto:jeanette at fortin-home.com]
>Sent: Saturday, April 23, 2011 12:15 AM
>To: NFB Talk Mailing List
>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom 
>ChairmanGordon Gund
>
>there is no way i'd pass up the opportunity  to regain my vision, but i am content to live with what i have.  i do not feel this is a contradiction.
>most blind folks i know would love to see, but are content not seeing, i cannot imagine turning my back on the opportunity to see.
>----- Original Message -----
>From: "Constance Canode" <satin-bear at sbcglobal.net>
>To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>Sent: Friday, April 22, 2011 8:51 PM
>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom 
>ChairmanGordon Gund
>
>
>> If someone came up to me today and said they could give me full 
>> sight, I would tell them unequivocally to get lost.  I am a 
>> well-adjusted person and I have lived my life in a happy and secure 
>> manner, I work, own a home and am happily married.  I have done 
>> everything I want to do as a blind person, travel, shop, etc.  The 
>> part of the brain that knows how to see has never worked on those of 
>> us who have never seen anything and it would be a tremendous 
>> aadjustment, the same as a sighted person losing their vision all at 
>> once.  Besides, they are not restoring what you have never 
>> had...sight. What a shock it would be to see a car coming towards you 
>> or your own face.  I have always joked that my face would probably be 
>> a disappointment, another reason that makeup has always been a priority for me.
>> At 03:45 PM 4/22/2011, you wrote:
>>>I'm  uncertain as to what you mean.  I said I'd rather not be blind.
>>>Are you saying you prefer to be blind?
>>>
>>>----- Original Message ----- From: "Gloria Whipple"
>>><ladygloria at webband.com>
>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>Sent: Friday, April 22, 2011 3:25 PM
>>>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom 
>>>ChairmanGordon Gund
>>>
>>>
>>>>To each his own!
>>>>
>>>>
>>>>Gloria Whipple
>>>>Corresponding Secretary
>>>>Inland Empire chapter
>>>>nfb of WA
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: nfb-talk-bounces at nfbnet.org
>>>>[mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of John Heim
>>>>Sent: Friday, April 22, 2011 12:54
>>>>To: NFB Talk Mailing List
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>>ChairmanGordon Gund
>>>>
>>>>Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks 
>>>>for caring though.
>>>>
>>>>
>>>>
>>>>----- Original Message ----- From: "Gloria Whipple"
>>>><ladygloria at webband.com>
>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>Sent: Friday, April 22, 2011 11:11 AM
>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom 
>>>>ChairmanGordon Gund
>>>>
>>>>
>>>>>Bull. Are you in that category? I feel for you if you are.
>>>>>
>>>>>Sure it would be nice if sight could be given to those who want it, 
>>>>>but it isn't the end of the world!
>>>>>
>>>>>
>>>>>Gloria Whipple
>>>>>Corresponding Secretary
>>>>>Inland Empire chapter
>>>>>nfb of WA
>>>>>
>>>>>
>>>>>-----Original Message-----
>>>>>From: nfb-talk-bounces at nfbnet.org
>>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>>On
>>>>>Behalf Of John Heim
>>>>>Sent: Friday, April 22, 2011 07:02
>>>>>To: NFB Talk Mailing List
>>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from 
>>>>>ChairmanGordon Gund
>>>>>
>>>>>A lot of people don't like being blind. In fact, I would say that 
>>>>>most people who are blind would prefer not to be blind.
>>>>>
>>>>>----- Original Message ----- From: "Gloria Whipple"
>>>>><ladygloria at webband.com>
>>>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>>Sent: Thursday, April 21, 2011 4:19 PM
>>>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from 
>>>>>ChairmanGordon
>>>>>
>>>>>Gund
>>>>>
>>>>>
>>>>>>What in the heck is wrong with being blind!
>>>>>>
>>>>>>
>>>>>>Gloria Whipple
>>>>>>Corresponding Secretary
>>>>>>Inland Empire chapter
>>>>>>nfb of WA
>>>>>>
>>>>>>
>>>>>>-----Original Message-----
>>>>>>From: nfb-talk-bounces at nfbnet.org
>>>>>>[mailto:nfb-talk-bounces at nfbnet.org]
>>>>>>On
>>>>>>Behalf Of S Baker
>>>>>>Sent: Thursday, April 21, 2011 14:14
>>>>>>To: AMoLList
>>>>>>Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman 
>>>>>>Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>SRBaker
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>>From: GGund at FightBlindness.org
>>>>>>To: srbaker at charter.net
>>>>>>Subject: A personal report from Chairman Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Like you, Steven, I follow the work of the Foundation Fighting 
>>>>>>Blindness closely. As a donor, I want to know that my donations 
>>>>>>make a difference.
>>>>>>
>>>>>>And believe me, they do.  When I reflect on the last year and 
>>>>>>listen to this video, I am reminded that we have more clinical 
>>>>>>trials for sight-saving treatments underway than ever before.
>>>>>>Clearly, hope and optimism are running high.  Incredible strides 
>>>>>>have been made in the last few years, and these remarkable 
>>>>>>advances would not have been made without your support of the Foundation.
>>>>>>They include:
>>>>>>
>>>>>>Vision Restored.  We are continuing to build on remarkable gains 
>>>>>>in gene therapy.  As you may recall, in a Foundation-funded trial, 
>>>>>>9-year-old Corey Haas and 19 others received a gene therapy 
>>>>>>treatment and can now see.
>>>>>>And
>>>>>>as the trial has expanded, participants have shown sustained 
>>>>>>improvement in vision.  Building on this success, similar gene 
>>>>>>therapy treatments are moving into clinical trials for 
>>>>>>choroideremia, Stargardt disease and Usher syndrome.
>>>>>>
>>>>>>Innovative Technology.  The high-tech industry has a treatment I'm 
>>>>>>incredibly excited about-- the world's first commercially 
>>>>>>available artificial or "bionic" eye. Early funding from the 
>>>>>>Foundation was key to getting this engineered retina off the 
>>>>>>ground.  Building on the studies we funded, the light-sensing, 
>>>>>>implantable "chip" has been tested in a clinical trial in Europe 
>>>>>>with great results. In the study, people who were profoundly blind 
>>>>>>experienced improved vision that could help them to be more 
>>>>>>independent.  In fact, many can now see shapes and recognize large letters.
>>>>>>
>>>>>>Groundbreaking Therapies.  A research team funded by the 
>>>>>>Foundation Fighting Blindness developed an innovative technique 
>>>>>>for correcting the disease-causing gene by using stem cells 
>>>>>>derived from a person's skin.
>>>>>>While
>>>>>>more work is needed to ensure safety, this advancement suggests 
>>>>>>that doctors may someday be able to treat a patient's retinal 
>>>>>>disease using their own skin cells.
>>>>>>These few accomplishments barely begin to tell the story of all 
>>>>>>the progress that's being made.  And this is why words can never 
>>>>>>express my personal gratitude for your passionate and committed 
>>>>>>support.
>>>>>>
>>>>>>I hope you will take a few minutes to watch the video and see the 
>>>>>>results of your support and the hope it has generated. But most 
>>>>>>importantly, I hope you will see that research is progressing at a 
>>>>>>terrific rate.  It's been a long time coming, but we crossed a 
>>>>>>critical threshold when our researchers actually restored sight. 
>>>>>>It launched us into a new era when more and more people will have 
>>>>>>their sight saved or restored every year.  A lot of work remains.
>>>>>>But we'll get there by continuing to work together.
>>>>>>
>>>>>>The Foundation Fighting Blindness values the support you give us 
>>>>>>by donating, talking to your friends, and advocating for increased 
>>>>>>research funding.  As we continue our relentless pursuit to 
>>>>>>eradicate blindness, we hope you will continue your steadfast 
>>>>>>support of our mission. Thanks for envisioning a bright future for 
>>>>>>the millions affected by retinal degenerative diseases.
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Sincerely,
>>>>>>
>>>>>>Gordon Gund
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>Check us out on:
>>>>>>
>>>>>>Tell a Friend  |  Subscribe  |  Change email address  | 
>>>>>>Unsubscribe Foundation Fighting Blindness www.FightBlindness.org
>>>>>>7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>>1-800-683-5555
>>>>>>
>>>>>>nonprofit software
>>>>>>_______________________________________________
>>>>>>nfb-talk mailing list
>>>>>>nfb-talk at nfbnet.org
>>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>>To unsubscribe, change your list options or get your account info 
>>>>>>for
>>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria
>>>>%
>>>>40webba
>>>>>>nd.com
>>>>>>
>>>>>>
>>>>>>_______________________________________________
>>>>>>nfb-talk mailing list
>>>>>>nfb-talk at nfbnet.org
>>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>>To unsubscribe, change your list options or get your account info 
>>>>>>for
>>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40joh
>>>>n
>>>>heim.ne
>>>>>t
>>>>>
>>>>>
>>>>>_______________________________________________
>>>>>nfb-talk mailing list
>>>>>nfb-talk at nfbnet.org
>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>To unsubscribe, change your list options or get your account info 
>>>>>for
>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria
>>>>%
>>>>40webba
>>>>>nd.com
>>>>>
>>>>>
>>>>>_______________________________________________
>>>>>nfb-talk mailing list
>>>>>nfb-talk at nfbnet.org
>>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>>To unsubscribe, change your list options or get your account info 
>>>>>for
>>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40joh
>>>>n
>>>>heim.ne
>>>>t
>>>>
>>>>
>>>>_______________________________________________
>>>>nfb-talk mailing list
>>>>nfb-talk at nfbnet.org
>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>To unsubscribe, change your list options or get your account info 
>>>>for
>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/ladygloria
>>>>%
>>>>40webba
>>>>nd.com
>>>>
>>>>
>>>>_______________________________________________
>>>>nfb-talk mailing list
>>>>nfb-talk at nfbnet.org
>>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>>To unsubscribe, change your list options or get your account info 
>>>>for
>>>>nfb-talk:
>>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/john%40joh
>>>>n
>>>>heim.net
>>>
>>>
>>>_______________________________________________
>>>nfb-talk mailing list
>>>nfb-talk at nfbnet.org
>>>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>>>To unsubscribe, change your list options or get your account info for
>>>nfb-talk:
>>>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/satin-bear%
>>>4
>>>0sbcglobal.net
>>
>>
>>
>> _______________________________________________
>> nfb-talk mailing list
>> nfb-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> nfb-talk:
>> http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/jeanette%40
>> f
>> ortin-home.com
>
>
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>To unsubscribe, change your list options or get your account info for nfb-talk:
>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/terry.powers%
>40nih.gov
>
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
>To unsubscribe, change your list options or get your account info for nfb-talk:
>http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/carter.tjosep
>h%40gmail.com

_______________________________________________
nfb-talk mailing list
nfb-talk at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/nfb-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for nfb-talk:
http://www.nfbnet.org/mailman/options/nfb-talk_nfbnet.org/terry.powers%40nih.gov

More information about the nFB-Talk mailing list