[nfb-talk] [Nfb-or] More bad news: Round 2

Mon Jan 31 01:22:07 UTC 2011

Again, thanks everyone!

Gloria, you know what they say about political jokes—the problem is 
that they keep getting elected.  *grin*

I’ll get by, I usually do, and a couple of people have already 
offered to help out with the short term problem.  That actually 
raises a philosophical issue, but one I’ll have to write about 
another time.

The real solution, though, is for me to find work without losing my 
apartment in the process.  As I said, though, the jobs I’ve found 
open cannot be done while juggling radiation treatments because the 
duration and timing of these things is just too erratic for the kind 
of work I can find right now.

When this is all done, I should write a book or something.  Nothing 
as exciting as Michael’s story, but it has its moments.  *smile*

Thanks again everyone!

Joseph

On Sat, Jan 29, 2011 at 10:17:50AM -0800, Gloria Whipple wrote:
>Hi Joe,
>
>I just want to wish you the best and hope things get better for you.
>
>The government is a joke!
>
>You take care.
>
>-----Original Message-----
>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of T. Joseph Carter
>Sent: Saturday, January 29, 2011 7:31 AM
>To: linjaynes; NFB of Oregon mailing list
>Cc: 'NFB Talk Mailing List'
>Subject: Re: [nfb-talk] [Nfb-or] More bad news: Round 2
>
>Thanks Lin, Ben, and everyone!
>
>I’m made of some pretty tough stuff, as most of you know probably
>better than most.  If anyone can come out of this okay, it’d be me.
>
>I’m just annoyed because I had some pretty good job prospects, and
>they would be completely incompatible with the probable daily
>radiation schedule I’ll begin just as soon as they know exactly what
>portion(s) of my anatomy they’d like to have glow in the dark.
>
>(No, you don’t actually get to glow in the dark.)
>
>While two of the three jobs I was looking at are likely to still have
>openings in March or April, I’d really prefer not to have another
>delay given that the greatest source of fatigue from radiation last
>time around was that caused by idleness as was still recovering from
>surgery.
>
>It’s also true that I’m in pretty desperate shape financially right
>now.  I cancelled cable television months ago, and my phone will be
>next.  I don’t even have a bus pass anymore.  I just haven’t been
>able to pay the rising costs of EVERYTHING with all of this wonderful
>inflation our government promises us we’re not actually having.  Now
>I’ll have to pay for the bus pass and all sorts of other nickel and
>dime expenses associated with this.  I just don’t have it.  Even now
>the kitchen’s pretty bare and so are both my bank account and Oregon
>Trail card.
>
>Ahh, the joys of trying to survive on government entitlements.  You
>don’t EVEN want to get me started on that topic right now!
>
>Praying that I can find some contract work or something, because if I
>can’t, I’m going to have expenses about $130 higher than my income
>for the next two months, at least.  (Naturally, I’ve got no savings.)
>
>So I’ve got lots of worries, and the cancer is kind of the least of
>them right this moment.
>
>Joseph
>
>On Fri, Jan 28, 2011 at 10:15:50AM -0800, linjaynes wrote:
>>Joseph: God bless you we will continue putting your health & well Being in our prayers. Yes chemo is no Sunday picnic, but I no you are strong & can get through whatever give's you the chance to survive.
>>So many care for you & want you to realize your full potential.
>>Please keep us all informed how your progressing, Remember you are a part of all of us , we are an NFB Family forever.
>> Lin Jaynes
>>Former OR/State Board Member
>>
>>-----Original Message-----
>>>From: "Prows, Bennett (HHS/OCR)" <Bennett.Prows at HHS.GOV>
>>>Sent: Jan 28, 2011 7:14 AM
>>>To: 'NFB Talk Mailing List' <nfb-talk at nfbnet.org>, 'NFB of Oregon mailing list' <nfb-or at nfbnet.org>
>>>Subject: Re: [Nfb-or] [nfb-talk] More bad news: Round 2
>>>
>>>Joseph,
>>>
>>>Wow!  That isn't good news.  But, hang in there.  We're all *with* ...  and behind, (to the extent that won't hurt of course, smile) you.  The next few weeks may be tough, but always know that the Federationists are confident you'll do well in this.  We are praying and pulling for you.
>>>
>>>
>>>/s/
>>>
>>>Bennett Prows
>>>
>>>-----Original Message-----
>>>From: nfb-or-bounces at nfbnet.org [mailto:nfb-or-bounces at nfbnet.org] On Behalf Of T. Joseph Carter
>>>Sent: Friday, January 28, 2011 2:56 AM
>>>To: NFB Talk Mailing List
>>>Subject: [Nfb-or] [nfb-talk] More bad news: Round 2
>>>
>>>Hey everyone,
>>>
>>>Three weeks ago I felt some pain in my leg, the opposite side from
>>>the tumor in my back/side.  A scan showed something very small, but
>>>definitely solid.  The doctor removed it and did a biopsy, given my
>>>history.  Preliminarily, it looked like another sarcoma, so they cut
>>>some margin tissue out as well.  It was so small that a week later,
>>>I've all but recovered from the surgery.
>>>
>>>I've waited to write to everyone until the pathology report came
>>>back, and it did tonight.  It was a sarcoma, and the margins are
>>>clear.  This will mean another round of radiation, and I suspect I'll
>>>be told Tuesday that chemotherapy is not considered optional this
>>>time around.
>>>
>>>The last time around, my whole life was put on hold for several
>>>months.  That was mostly because I was still recovering from surgery
>>>during the radiation.  I don't know how I'll react to chemotherapy,
>>>but I'm told that generally it isn't going to be pleasant.
>>>
>>>Metastasized soft tissue sarcomas have a statistically high mortality
>>>rate.  One study says 73% within six years.  They are considered to
>>>be stage 4, but people can and do survive them.  My lungs were clear
>>>in October; it's a good sign if they still are.  And though we cannot
>>>prove the negative, it is possible that this new tumor resulted
>>>either from metastasis of the original to this and only this
>>>location, or that it is what they call a second primary tumor.
>>>Either of those make the clear margins very important.
>>>
>>>We'll know more after Tuesday, hopefully.  I'm praying for the best,
>>>and would welcome prayers from others as well.
>>>
>>>Thanks everyone,
>>>
>>>Joseph
>>>
>>>
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>>
>>
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