[nfb-talk] A little concerned about this new drug aimed at totally blind population

[David Andrews]

hMike:

I won't say you don't know what you are talking about -- but most of 
your, and other people's info is anecdotal.  I have a 5 day a week 
job, and make it in most days (smile,) but have sleep problems.  So, 
I am sure you are right in some cases, but not all.

Dave

At 03:48 PM 2/1/2014, you wrote:
>Beth:
>
>I absolutely agree with you! Although a few blind folks may have a sleep
>disorder (I know of one such person), so do many sighted people and it is my
>experience that when most blind persons with sleeping problems are put on a
>regular schedule (i.e., no odd hours, working a nine-to-five day, etc.) and
>get enough vigorous exercise, either on the job or as a program, their sleep
>problems disappear. For example, I know a lady who used to have sleep
>problems when she wasn't working. But when she started working a regular day
>at a Head Start program, up and down all day with the kids, miracle of
>miracles, her sleep problem disappeared!
>
>So I'm very much a doubter. Trouble is that when I voice such skepticism
>with much vigor, I get a lot of push-back from other blind people (both in
>ACB and NFB),maintaining I don't know what I'm talking about.
>
>Also, I know a couple of people who are participating in their so-called
>studies and haven't received payment yet.
>
>Can you say "snake-oil"?
>
>Mike Freeman
>
>
>-----Original Message-----
>From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of
>beth.wright at mindspring.com
>Sent: Saturday, February 01, 2014 1:33 PM
>To: nfb-talk at nfbnet.org
>Subject: [nfb-talk] A little concerned about this new drug aimed at totally
>blind population
>
>Hi, folks. Just wanted to see if I could get the scoop on this new drug
>that's supposed to correct the sleep/wake cycles in people who are totally
>blind. I'm totally blind myself, but haven't had any problems with my sleep
>patterns, so, even though I've seen lots of ads for it on blindness-related
>web sites and know that they've been a major sponsor at our conventions, I
>wasn't all that concerned about it one way or the other. As far as I can
>tell, their ads have been pretty tastelike and their recruitment techniques,
>fairly low key. Lately, though, they seem to be ramping up the message. From
>what I can tell, they now seem to be claiming that this sleep/wake thing is
>a serious problem, affcting around eighty thousand people in the US, the
>majority ofthe totally-blind population. I think that's deceptive. I know
>that they need to reach the largest number of people possible in order to
>make a sufficient profit, but I don't think they should exaggerate the
>seriousness of this s
>  o-called disorder.