[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Ray Foret Jr]

I do keep sleep hours that are sometimes rather strange:  but, I hold with Mike and the other skeptiks here whehter or not this is a good thing.  Frankly, I am very doubtful.


Sent from my Mac, the only computer with full accessibility for the blind built-in!

Sincerely,
The Constantly Barefooted Ray, still a very happy Mac and Iphone 5 user!

On Feb 1, 2014, at 5:24 PM, Loren Wakefield <theweird1 at mediacombb.net> wrote:

> I am going to go against the flow here.  To say this is not a problem is for
> lack of a nicer word, stupid .  If you have it, you just cannot function
> when you are in the worst of it.  If the NFB is against this known fact, it
> should give back the funds it got for the research from it.  My wife and I
> both took the survey; so,I know they received at least $50.00 from it.  If
> it does not affect you, count your blessings.  It's more than not being able
> to stay on a regular sleeping schedule.  I'm sorry if this sounds wrong.
> But this is sounding like because we are members of NFB, we are super humans
> and can't be bothered by anything.  I know way to many in the NFB to think
> that we do not care about our fellow human beings.  If you are not currently
> bothered by it, be glad and pray you never are.  
> 
> Loren  
> 
> 
> 
> -----Original Message-----
> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of David
> Andrews
> Sent: Saturday, February 01, 2014 5:05 PM
> To: NFB Talk Mailing List
> Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
> totally blind population
> 
> hMike:
> 
> I won't say you don't know what you are talking about -- but most of your,
> and other people's info is anecdotal.  I have a 5 day a week job, and make
> it in most days (smile,) but have sleep problems.  So, I am sure you are
> right in some cases, but not all.
> 
> Dave
> 
> At 03:48 PM 2/1/2014, you wrote:
>> Beth:
>> 
>> I absolutely agree with you! Although a few blind folks may have a 
>> sleep disorder (I know of one such person), so do many sighted people 
>> and it is my experience that when most blind persons with sleeping 
>> problems are put on a regular schedule (i.e., no odd hours, working a 
>> nine-to-five day, etc.) and get enough vigorous exercise, either on the 
>> job or as a program, their sleep problems disappear. For example, I 
>> know a lady who used to have sleep problems when she wasn't working. 
>> But when she started working a regular day at a Head Start program, up 
>> and down all day with the kids, miracle of miracles, her sleep problem
> disappeared!
>> 
>> So I'm very much a doubter. Trouble is that when I voice such 
>> skepticism with much vigor, I get a lot of push-back from other blind 
>> people (both in ACB and NFB),maintaining I don't know what I'm talking
> about.
>> 
>> Also, I know a couple of people who are participating in their 
>> so-called studies and haven't received payment yet.
>> 
>> Can you say "snake-oil"?
>> 
>> Mike Freeman
>> 
>> 
>> -----Original Message-----
>> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of 
>> beth.wright at mindspring.com
>> Sent: Saturday, February 01, 2014 1:33 PM
>> To: nfb-talk at nfbnet.org
>> Subject: [nfb-talk] A little concerned about this new drug aimed at 
>> totally blind population
>> 
>> Hi, folks. Just wanted to see if I could get the scoop on this new drug 
>> that's supposed to correct the sleep/wake cycles in people who are 
>> totally blind. I'm totally blind myself, but haven't had any problems 
>> with my sleep patterns, so, even though I've seen lots of ads for it on 
>> blindness-related web sites and know that they've been a major sponsor 
>> at our conventions, I wasn't all that concerned about it one way or the 
>> other. As far as I can tell, their ads have been pretty tastelike and 
>> their recruitment techniques, fairly low key. Lately, though, they seem 
>> to be ramping up the message. From what I can tell, they now seem to be 
>> claiming that this sleep/wake thing is a serious problem, affcting 
>> around eighty thousand people in the US, the majority ofthe 
>> totally-blind population. I think that's deceptive. I know that they 
>> need to reach the largest number of people possible in order to make a 
>> sufficient profit, but I don't think they should exaggerate the 
>> seriousness of this s
>> o-called disorder.
> 
> 
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