[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Karen Rose]

Have you seen any studies that attempt to understand why some totally blind people have this condition and others do not. I have been totally blind since birth and have never had any problem whatsoever sleeping. Smile. However I have eight fully cited client who seems to exhibit all of the sock of this condition. Karen

Sent from my iPhone

> On Feb 1, 2014, at 4:01 PM, Michael Bullis <bullis.michael at gmail.com> wrote:
> 
> I have been following the studies on this subject for almost 40 years
> now. It is a real and valid problem for some people who have little or
> no light perception. There have been many studies and much validation.
> Although I think the advertisements are a bit stupid, the problem they
> are trying to solve, and it would appear, that the drug they're trying
> to use, does work.
> 
> Sent from my iPhone
> 
>> On Feb 1, 2014, at 6:39 PM, Mike Freeman <k7uij at panix.com> wrote:
>> 
>> Steve:
>> 
>> Obviously, I agree with you on all counts.
>> 
>> In addition, while at the national Center, I heard a number of ads pushing
>> hetlioz and I found it amusing that they start out with a supposedly blind
>> person saying: "You can't see me because this is radio. I can't see you
>> because I'm totally blind." AS if he wasn't also on the radio!
>> 
>> While not denying that some may find the drug helpful, I must say that, like
>> you, I do not think nearly enough work has been done using controls and I'd
>> bet good money that no pluscebo-controlled, double-blind studies have been
>> done.
>> 
>> Mike Freeman
>> 
>> 
>> -----Original Message-----
>> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Steve
>> Jacobson
>> Sent: Saturday, February 01, 2014 2:24 PM
>> To: NFB Talk Mailing List
>> Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
>> totally blind population
>> 
>> Hi,
>> 
>> I have also been uneasy about all of this, but I recognize I don't know all
>> there is to know about all this.  Because One is blind and doesn't seem to