[nfb-talk] A little concerned about this new drug aimed attotally blind population

Larry D. Keeler lkeeler at comcast.net
Sun Feb 2 02:17:56 UTC 2014


As far as most of the studies I have seen are concerned its not a matter of 
blindness but one of pineal misfunction.
----- Original Message ----- 
From: "Karen Rose" <rosekm at earthlink.net>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Cc: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Saturday, February 01, 2014 7:21 PM
Subject: Re: [nfb-talk] A little concerned about this new drug aimed 
attotally blind population


> Have you seen any studies that attempt to understand why some totally 
> blind people have this condition and others do not. I have been totally 
> blind since birth and have never had any problem whatsoever sleeping. 
> Smile. However I have eight fully cited client who seems to exhibit all of 
> the sock of this condition. Karen
>
> Sent from my iPhone
>
>> On Feb 1, 2014, at 4:01 PM, Michael Bullis <bullis.michael at gmail.com> 
>> wrote:
>>
>> I have been following the studies on this subject for almost 40 years
>> now. It is a real and valid problem for some people who have little or
>> no light perception. There have been many studies and much validation.
>> Although I think the advertisements are a bit stupid, the problem they
>> are trying to solve, and it would appear, that the drug they're trying
>> to use, does work.
>>
>> Sent from my iPhone
>>
>>> On Feb 1, 2014, at 6:39 PM, Mike Freeman <k7uij at panix.com> wrote:
>>>
>>> Steve:
>>>
>>> Obviously, I agree with you on all counts.
>>>
>>> In addition, while at the national Center, I heard a number of ads 
>>> pushing
>>> hetlioz and I found it amusing that they start out with a supposedly 
>>> blind
>>> person saying: "You can't see me because this is radio. I can't see you
>>> because I'm totally blind." AS if he wasn't also on the radio!
>>>
>>> While not denying that some may find the drug helpful, I must say that, 
>>> like
>>> you, I do not think nearly enough work has been done using controls and 
>>> I'd
>>> bet good money that no pluscebo-controlled, double-blind studies have 
>>> been
>>> done.
>>>
>>> Mike Freeman
>>>
>>>
>>> -----Original Message-----
>>> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Steve
>>> Jacobson
>>> Sent: Saturday, February 01, 2014 2:24 PM
>>> To: NFB Talk Mailing List
>>> Subject: Re: [nfb-talk] A little concerned about this new drug aimed at
>>> totally blind population
>>>
>>> Hi,
>>>
>>> I have also been uneasy about all of this, but I recognize I don't know 
>>> all
>>> there is to know about all this.  Because One is blind and doesn't seem 
>>> to
>
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