[nfb-talk] A little concerned about this new drug aimed at totally blind population

[ckrugman at sbcglobal.net]

this sleep wake disorder also known as circadian sleep disorder has been 
around for many years and has affected many people. I first became aware of 
it in the 1970s when my secretary at the time found an early research 
article about it. Considering the number of blind people 80,000 is probably 
not a high estimate and shouldn't be alarming. AS you said the copany has 
been totally above board in its research and marketing activities. I think 
that there was a headline this week that the FDA approved this drug for 
public use.
Chuck
----- Original Message ----- 
From: <beth.wright at mindspring.com>
To: <nfb-talk at nfbnet.org>
Sent: Saturday, February 01, 2014 1:33 PM
Subject: [nfb-talk] A little concerned about this new drug aimed at totally 
blind population


> Hi, folks. Just wanted to see if I could get the scoop on this new drug 
> that's supposed to correct the sleep/wake cycles in people who are totally 
> blind. I'm totally blind myself, but haven't had any problems with my 
> sleep patterns, so, even though I've seen lots of ads for it on 
> blindness-related web sites and know that they've been a major sponsor at 
> our conventions, I wasn't all that concerned about it one way or the 
> other. As far as I can tell, their ads have been pretty tastelike and 
> their recruitment techniques, fairly low key. Lately, though, they seem to 
> be ramping up the message. From what I can tell, they now seem to be 
> claiming that this sleep/wake thing is a serious problem, affcting around 
> eighty thousand people in the US, the majority ofthe totally-blind 
> population. I think that's deceptive. I know that they need to reach the 
> largest number of people possible in order to make a sufficient profit, 
> but I don't think they should exaggerate the seriousness of this so-called 
> disorder.
>
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