[nfb-talk] What People Fear About Blindness:

Todor Fassl fassl.tod at gmail.com
Tue Feb 4 16:08:00 UTC 2014


Contrast the NFB's approach to that of the AARP. People joke about the 
AARP signing them up the day they turned 50. I'm not suggesting the NFB 
automatically sign people up the moment they lose their vision. Even if 
that were practical, it might not be realistic. My point is to draw 
attention to the difference in approaches. The AARP isn't going to have 
loyalty oaths and call it's members Aarpers or something like that. I 
suppose those things might be done casually but it's not part of the 
identity of the organization.

The NFB encourages it's members to think of being a Federationist as 
part of their identity, right? I'm saying that is ultimately 
destructive. It encourages an "us against them" attitude and it drives 
away casual, moderate people who might otherwise become members.

Probably the best example I can give to illustrate the problem  is the 
fact that there are two, often competing,  advocacy groups for the 
blind. If just getting things done is the #1 priority, why isn't working 
closer with the AC or even merging with it, at the very top of the 
adjenda? Keep in mind that this is just an example I chose to illustrate 
the problem. I know it would be really hard. My point is that not only 
is talking about working with the ACB not on the adjenda, it's  somewhat 
heretical.

Again, that's just an example. I can give many more. The idea that 
braille is obsolete is heretical. Anything Dr. Jernigan once said is 
sacred. I can't tell you how distasteful it is to a casual member to be 
told Dr. jernigan once said something as if that settles the matter. If 
you're thinking, "Well, that's just individuals saying those things," -- 
I'm telling you it's not. While these things may not be official NFB 
policies, they are part of the NFB's organizational structure.


Get what I'm saying? The NFB is the type of organization that would have 
a Dr. Jernigan. Imagine a debate at the convention between people who 
think braille is obsolete and those who do not. There would be a good 
side and a bad side, right? I'm saying it's a bad thing that there would 
be a good side and a bad side. That hurts us.

On 02/03/14 16:19, Mike Freeman wrote:
> Toder:
>
> The goal of NFB has always been the complete integration of the blind into
> society on a basis of equality with the sighted.
>
> However, it is in the American tradition for people with common interests
> and/or problems to band together in asssociations to advocate for these
> interests or to solve these problems. NFB is in that tradition.
>
> However, I agree with you that blind people should *also* join in groups
> catering to things they -- the blind people -- are interested in.
>
> Mike
>
>
> -----Original Message-----
> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Todor Fassl
> Sent: Wednesday, January 29, 2014 7:52 AM
> To: NFB Talk Mailing List
> Cc: Kenneth Chrane
> Subject: Re: [nfb-talk] What People Fear About Blindness:
>
> This is why I think it's time for the NFB to move on to the next phase of
> advocacy. We need to work toward integrating blind people into society. We
> need to be against anything that tends to seperate us from society and for
> anything that makes it easier for us to take part in society.  I wouldn't
> say we need to try to be "normal". I'd say "mainstream".
>
> You might be saying, "But the NFB already does that." Well, somewhat.
> But I think this is a greater paradym shift that it might seem at first.
> We tend to think of ourselves as a community onto ourselves. I think it
> might be hard for the NFB to shift toward a position where it's telling
> blind people to think of themselves as members of society first and
> Federationists second. But I think that's where we need to go now.
> You're not a blind person. You're a person who happens to have this trait
> that binds you with the rest of us into a common cause.
>
> On 01/29/14 01:31, Kenneth Chrane wrote:
>> I am way behind with email, but that is nothing new. Just To:
>> Undisclosed-Recipient:;
>> Subject: [Stitchers] OT why people fear the blind
>>
>>
>>
>> Why Do We Fear The Blind?
>> This is an article taken from the New York Times.
>> BRISTOL, R. I. - A FEW years ago, when I mentioned to a woman I met at
>> a party that I was teaching in a school for the blind, she seemed
> confused.
>> "Can I just ask you one question?" she said. "How do you talk to your
>> students?"
>> I explained that the students were blind, not deaf. Raising the palms
>> of her hands at me, as if to stem further misunderstanding, she said:
>> "Yes, I know they're not deaf. But what I really mean is, how do you
>> actually talk to them?"
>>
>> I knew, because I had been asked this question before by reasonably
>> intelligent people, that the woman didn't know exactly what she meant.
> All
>> she knew
>> was that in her mind there existed a substantial intellectual barrier
>> between the blind and the sighted. The blind could hear, yes. But
>> could they properly understand?
>>
>> Throughout history and across cultures the blind have been traduced by
>> a host of mythologies such as this. They have variously been perceived
>> as pitiable idiots incapable of learning, as artful masters of
>> deception or as mystics possessed of supernatural powers. One of the
>> most persistent misconceptions about blindness is that it is a curse
>> from God for misdeeds perpetrated  in a past life, which cloaks the
>> blind person in spiritual darkness and  makes him not just dangerous but
> evil.
>> A majority of my blind students at the International Institute for
>> Social ntrepreneurs in Trivandrum, India, a branch of Braille Without
>> Borders, came from the developing world: Madagascar, Colombia, Tibet,
>> Liberia, Ghana, Kenya, Nepal and India. One of my students, the
>> 27-year-old Sahr, lost  most of his eyesight to measles when he was a
>> child. (Like many children in rural West Africa, Sahr had not been
>> vaccinated.) The residents of  Sahr's village were certain that his
>> blindness - surely the result of witchcraft or immoral actions on his
>> family's part - would adversely affect the entire village.
>> They surrounded his house and shouted threats and abuse. They
>> confiscated a considerable portion of his parents' land. Eventually,
>> the  elders decreed that Sahr's father must take the child out to the
>> bush, "where the demons live," and abandon him there. The parents
>> refused and fled the village with their son.
>>
>> Many of my students had similar experiences. Marco's parents, devout
>> Colombian Catholics, begged a priest to say a Mass so that their blind
>> infant son would die before his existence brought shame and hardship
>> on their household. The villagers in Kyile's remote Tibetan village
>> insisted that she, her two blind brothers and their blind father
>> should all just commit suicide because they were nothing but a burden
>> to the sighted members of the family. When, as a child in Sierra
>> Leone, James began to see objects upside down because of an ocular
>> disease, the villagers were certain that he was  possessed by demons.
>>
>> In these places, schools for blind children were deemed a preposterous
>> waste of resources and effort. Teachers in regular schools refused to
>> educate them.
>>
>> Sighted children ridiculed them, tricked them, spat at them and threw
>> stones at them. And when they reached working age, no one would hire
> them.
>> During
>> a visit to the Braille Without Borders training center in Tibet, I met
>> blind children who had been beaten, told they were idiots, locked in
>> rooms for years on end and abandoned by their parents. These stories,
>> which would have been commonplace in the Dark Ages, took place in the
>> 1980s, 1990s and 2000s.
>> They
>> are taking place now. Nine out of 10 blind children in the developing
>> world still have no access to education, many for no other reason than
>> that they are blind.
>>
>> The United States has one of the lowest rates of visual impairment in
>> the world, and yet blindness is still among the most feared physical
>> afflictions.
>>
>> Even in this country, the blind are perceived as a people apart.
>> Aversion toward the blind exists for the same reason that most  prejudices
> exist:
>> lack
>> of knowledge. Ignorance is a powerful generator  of fear. And fear
>> slides easily into aggression and contempt. Anyone who has not spent
>> more than five minutes with a blind person might be forgiven for
>> believing - like the woman I met at the party - that there is an
>> unbridgeable gap between  us and them.
>>
>> For most of us, sight is the primary way we interpret the world. How
>> can  we even begin to conceive of a meaningful connection with a
>> person who  cannot see? Before I began living and working among blind
>> people, I, too,  wondered this. Whenever I saw a blind person on the
>> street I would  stare, transfixed, hoping, out of a vague and visceral
>> discomfort, that I wouldn't have to engage with him. In his 1930 book
>> "The World of the Blind," Pierre Villey, a blind French professor of
>> literature, summarized the lurid carnival of prejudices and
>> superstitions about the blind that were passed down the centuries.
>> "The sighted person judges the blind not for what they are but by the
>> fear blindness inspires. ... The revolt of his sensibility in the face
>> of  'the most atrocious of maladies' fills a sighted person with
>> prejudice and gives rise to a  thousand legends." The blind author
>> Georgina Kleege, a lecturer at the  University of California at
>> Berkeley, more tersely wrote, "The blind are either  supernatural or
> subhuman, alien or animal."
>> WE take our eyesight so much for granted, cling to it so slavishly and
>> are so overwhelmed by its superficial data, that even the most
>> brilliant sighted person can take a stupidly long time to recognize
>> the obvious: There is usually a perfectly healthy, active and normal
>> human mind behind that  pair of unseeing eyes.
>>
>> Christopher Hitchens called blindness "one of the oldest and most
>> tragic disorders known to man." How horribly excluded and bereft we
>> would feel  to lose the world and the way of life that sight brings
>> us. Blindness can happen  to any one of us. Myself, I used to be
>> certain I'd rather die than be  blind; I could not imagine how I would
>> have the strength to go on in the face of such a loss.
>>
>> And yet people do. In 1749, the French philosopher Denis Diderot
>> published an essay, "Letter on the Blind for the Benefit of Those Who
>> See," in which he described a visit he and a friend made to the house
>> of a blind man, the son of a professor of philosophy at the University
>> of Paris. The blind  man was married, had a son, had many
>> acquaintances, was versed in chemistry and botany, could read  and
>> write with an alphabet of raised type and made his living distilling
>> liqueurs. Diderot wrote with wonder of the man's "good solid sense,"
>> of his tidiness, of his "surprising memory for sounds" and voices, of
>> his ability to tell the weight of any object and the capacity of any
>> vessel just by holding them in his hands, of his ability to dismantle
>> and reassemble small machines, of his musical acuity and of his extreme
> sensitivity to atmospheric change.
>> The blind man, perhaps weary of being interrogated by Diderot and his
>> friend as if he were a circus animal, eventually asked them a question  of
> his own.
>> "I perceive, gentlemen, that you are not blind. You are astonished at
>> what I do, and why not as much at my speaking?" More than any of his
>> sensory skills, it was the blind man's self-esteem that surprised Diderot
> most.
>> "This  blind man," he wrote, "values himself as much as, and perhaps
>> more than,  we who see."
>>
>> I've learned from my blind friends and colleagues that blindness
>> doesn't have to remain tragic. For those who can adapt to it,
>> blindness becomes  a path to an alternative and equally rich way of
> living.
>> One of the many misconceptions about the blind is that they have
>> greater hearing, sense of smell and sense of touch than sighted
>> people. This is  not strictly true. Their blindness simply forces them
>> to recognize gifts they always  had but had heretofore largely ignored.
>>
>> A few years ago, I allowed myself to be blindfolded and led through
>> the streets of Lhasa by two blind Tibetan teenage girls, students at
>> Braille Without Borders. The girls had not grown up in the city, and
>> yet they traversed  it with ease, without stumbling or getting lost.
>> They had a specific destination in mind, and each time they announced,
>> "Now we turn left" or "Now we  turn right," I was compelled to ask
>> them how they knew this. Their  answers startled me, chiefly because
>> the clues they were following - the sound of many televisions in an
>> electronics shop, the smell of leather in a shoe shop, the feel of
>> cobblestones suddenly underfoot - though out in the open for anyone
>> to perceive, were virtually hidden from me.
>>
>> For the first time in my life, I realized how little notice I paid to
>> sounds, to smells, indeed to the entire world that lay beyond my
>> ability  to see.
>>
>> The French writer Jacques Lusseyran, who lost his sight at the age of
>> 8, understood that those of us who have sight are, in some ways,
>> deprived  by it.
>>
>> "In return for all the benefits that sight brings we are forced to
>> give up others whose existence we don't even suspect."
>>
>> I do not intend to suggest there is something wonderful about blindness.
>> There is only something wonderful about human resilience, adaptability
>> and daring.
>> The blind are no more or less other worldly, stupid, evil, gloomy,
>> pitiable or deceitful than the rest of us. It is only our ignorance
>> that  has cloaked them in these ridiculous garments. When Helen Keller
>> wrote, "It is more difficult to teach ignorance to think than to teach
>> an intelligent blind man to see the grandeur of Niagara," she was
>> speaking, obviously, of the uplifting and equalizing value of knowledge.
>>
>> Victor Gouveia
>> Vice-Presi
>>
>> --
>> --
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