[NFBAZ-EastValleyChapter] Attention! Attention! Attention! important survey from the NFB Diabetes Action Network Division

[mark feliz]

Hello Federation family,

I would greatly appreciate it if you take the time and read through Gary’s
message pasted below. The NFB Diabetes Action Network Division is striving
to refine our annual seminar and to draw in more attendance.

If you are not subscribed to the list serv you can send your comments to me
at: mafeliz0641 at gmail.com.

Thank you.

Mark Feliz, Board member, NFB Diabetes Action Network Division



On behalf of the Diabetes Action Network Board of Directors, I've been
asked to send along the two agendas we have used in the 2024 and 2025
seminars. Please look these over and tell us what you want to see that
would be enough to get your attendance.
Please be creative. What vital presentations are we missing? What should we
be asking to inform our community? Are you more interested in an in-person
event or one that is done virtually? Will the time of year influence
whether or not you will attend?

Please reply to the list with the subject
Knowledge is Sweet.

Thank you.

Gary Wunder

Seminar one:

*AGENDA*

*National Federation of the Blind*

*Diabetes Action Network*

*First Annual*

*Knowledge is Sweet Seminar*

*St. Louis, Missouri*

*April 26 and 27, 2024*



Welcome. We are delighted you are here to learn about how better to control
your diabetes and to contribute to the learning of others by sharing what
you know. We believe our experience and encouragement are valuable tools to
share. We know that growth comes from taking in new ideas, synthesizing
them into the knowledge we have about this disease, factoring in what we
know about our bodies, and then being active participants in our health
care.



Your registration gets you four plated meals, meaning you are already
coming out ahead for the $99 you have paid. You get breakfast and lunch on
both Friday and Saturday. The lunch break will be long enough to eat
leisurely, make new friends, and renew old ones.



*Friday, April 26*



*Morning Session*



7:00      Breakfast



8:30      Time for an after Breakfast Stretch



9:00      Welcome: Debbie Wunder, President, Diabetes Action Network



9:10      Strategies for Living Your Best Life: David De Notaris, Chief
Innovations Officer at Sky's the Limit Communications



9:40      The Importance of Sleep in Diabetes Control and so Much More:
Jennifer Lyman, RN, BS, Non-24 Nurse Educator, Vanda Pharmaceuticals Inc.



10:10    The Difference Between Medicare and Medicare Advantage: Marc
Mantiaa, Independent Agent, Review Medicare Benefits



10:30    The Medical Device Nonvisual Accessibility Act: Anil Lewis,
Director of Blindness Initiatives, National Federation of the Blind



10:50    Better Management of our Diabetes that Should be Available to
Everyone: Mary Davis, Contractor and Consultant with the Nebraska
Commission for the Blind and Visually Impaired working in Alternative
Techniques with Diabetics in the Management of Their Diabetes; and Melanie
Torrance, RN Retired and the Head of the Diabetes Action Network of South
Carolina



11:25    Strategies for Effective Finger Sticks When  You are Blind:
Danielle McCann, Treasurer, National Federation of the Blind Diabetes
Action Network



11:40    Recognizing the Doctor as the Expert but I'm Still in Charge of My
Body: Mark Feliz, Retired School Teacher and a Member of the Board of
Directors of the Diabetes Action Network



12:00    Lunch



*Friday Afternoon*



2:00      Rethinking Diabetes: Gary Taubes, Journalist and Author



3:00      Questions from the Floor



3:15      I'm Not a Diabetic but I am an Advocate for you as You are an
Advocate for Me: Ever Lee Hairston, Former Member of the National Board of
Directors and Former President of the National Federation of the Blind of
California



3:30      When Diabetes Takes Your Sight, Your Sense of Touch, and You
Still Can Function: Curtis Chong, retired computer programmer, technology
center director, and technology teacher



4:10      Being a Kidney Donor and Taking Care of Your Kidneys: Tim McGue,
National Kidney Foundation



5:00      Recess for the Evening





*Saturday, April 27*

*Morning Session*



7:00      Breakfast



8:30      Time for an after Breakfast Stretch



9:00      The Psychology of Blindness and Diabetes: Gary Wunder, Practicing
Diabetic and the Editor of the *Braille Monitor* magazine



9:30      Yes I'm Diabetic but Living my Best Life: Amber Woods, Mark
Feliz, and Curtis Chong



10:15    All Things Diabetes from the Perspective of a Endocrinologist:
Michael Gardner, Associate Professor of Clinical Medicine in the Department
of Internal Medicine; Medial Director of the Cosmopolitan International
Endocrinology and Diabetes Center



 11:15   Identifying Gaps and Strengths: Characterizing Diabetes Technology
Use and Self-management Education in Blind Adults: Dr. Naz Heydarian,
University of Texas Rio Grande Valley School of Social Work; and Dr. Ally
Hughes, Ohio University Heritage School of Osteopathic Medicine



12:00    Lunch



*Afternoon Session*



2:00      : What is Accessible Pharmacy—Medication Management, Seminars,
and Diabetes Programs: Lynn Heightz, Director of Business Engagement and
Certified Diabetes Lifestyle Coach



3:00      How to Control the Sound of your CGM in Meetings: A Group
Discussion



3:25      All About our Listserv: What is it, How to Join, and Ways you can
Help and be Helped



3:35      Summing Up the Seminar: What Did you Like, What Could We have
Done Differently, and Should We do This again:



5:00      Adjourn

National Federation of the Blind

Diabetes Action Network

Second Annual Knowledge is Sweet Seminar

NFB Jernigan Institute

Baltimore, Maryland

May 16–17, 2025

*Agenda*

Times listed are in Eastern Daylight Time

All meetings will take place in Members Hall.



*Friday, May 16, 2025*

*7:00 a.m. *Breakfast

*8:30 a.m. *Welcome to the Knowledge is Sweet Seminar and Some  Logistics,
Debbie Wunder, President, Diabetes Action Network, Columbia, Missouri

*9:00 a.m. *Collective Collaboration is the Answer, Mark Riccobono,
President, National Federation of the Blind, Baltimore, Maryland

*9:30 a.m. *Tandem Mobi: Bringing Accessible Insulin Pump Technology to the
Blind, Kerry Harrison, MS, RDN, CDCES, Tandem Diabetes Care, Baltimore
Territory Manager

*10:30 a.m. *Break

*10:45 a.m. *I'm a Type 2 Diabetic Living an A1 Life, Mark Feliz, Board
Member, Diabetes Action Network, Mesa, Arizona

*11:00 a.m. *We’re in This Together: Being a Supportive Partner Emotionally
and Financially, Jesse Shirek, Governmental Affairs Specialist, National
Federation of the Blind,
Baltimore, Maryland

*11:45 a.m.        Questions and getting ready for lunch*

*12:00 p.m. *Lunch and Exhibits

*2:00 p.m. *Dialysis: My Part in Needing It and What I’ve Learned While
Giving My Kidneys a Rest, John Tebockhorst, Secretary, Diabetes Action
Network, Minneapolis, Minnesota

*2:15 p.m. *Hearing the Words “You Are a Diabetic”: My Reaction and Then
Taking Control, Jean Brown, First Vice President, Diabetes Action Network,
Indianapolis, Indiana

*2:30 p.m. *Life After Pancreas Rejection and Returning to the Insulin
Pump, Sherry Shirek, Member, Diabetes Action Network, Baltimore, Maryland

*2:55 p.m. *Break

*3:10 p.m. *Diabetes on the Move: Accessories, Emergency Kits, Snacks, and
More, Anil Lewis, Second Vice President, Diabetes Action Network, Atlanta,
Georgia

*3:25 p.m. Snack Packing and Socializing*

*3:50 p.m.* Exhibitors Presentations from Top Level Sponsors

*4:*05 p.m.          Special Fit Break

*4:*10 p.m.          Latent Autoimmune Diabetes in Adults: When Type 1 is
Diagnosed as Type 2, Debbie Wunder, Columbia, Missouri

*5:00 p.m. *Break

*6:00 p.m. *Dinner

*Saturday, May 17, 2025*

*7:00 a.m. *Breakfast

*8:30 a.m. *Welcome to Day Two, Debbie Wunder

*9:00 a.m. *The Importance of Exercise to the Blind Person with Diabetes,
Gary Scheiner, MS, CDCES, Owner and Clinical Director, Integrated Diabetes
Services, Philadelphia, Pennsylvania

*10:00 a.m. *Pushing the Bounds of Accessibility through the Medical Device
Nonvisual Accessibility Act and Taking Action, John Paré, Executive
Director of Advocacy and Policy, National Federation of the Blind,
Baltimore, Maryland

*10:45 a.m. *Break

*11:00 a.m. *The Carb Count Challenge, Liz Moyer, Teaching Assistant,
Chimes, and Board Member, Diabetes Action Network, Baltimore, Maryland

*11:30 a.m. *Sugar Sugar, Danielle McCann, Membership Building Coordinator,
National Federation of the Blind, and Treasurer, Diabetes Action Network,
Baltimore, Maryland

*12:00 p.m. *Lunch and Exhibits

*2:00 p.m. *New Medications, Dietary Guidelines, and the Future of Blind
People Using Insulin Pumps for Type 1 and Type 2 Diabetes, Kiya Rivera, RD,
CDCES, CPT, Certified Diabetes Educator, UM Midtown Center for Diabetes and
Endocrinology, Baltimore, Maryland

*3:00 p.m. *My Baby, Me, and Gestational Diabetes: The Shock, My Baby’s
Health, My Health, and the Future for Us Both, Julie Orozco, JD, Brown,
Goldstein & Levy, Baltimore, Maryland

*3:25 p.m. *Strategies for Combating Fatigue, Neuropathy, and Other
Complications of Diabetes, Panel Discussion, Debbie Wunder, President,
Diabetes Action Network, Columbia, Missouri, Danielle McCann, Treasurer,
Diabetes Action Network, Baltimore, Maryland, Gary Wunder, Board Member,
Diabetes Action Network, Columbia, Missouri

*3:55 p.m. *After the Seminar: Ways to Get and Stay Involved with the
National Federation of the Blind and the Diabetes Action Network, Danielle
McCann and Mark Feliz

*4:15 p.m.* Summing Up the Seminar: What Did You Like, What Could We Have
Done Differently, and Should We Do This Again?
Debbie Wunder and Other Members of the Board

*5:00 p.m. Adjourn*





-- 
Mark Feliz
NFBA. East Valley Chapter President
NFBA. Affiliate Board member
Cell: 480-560-0641
LIVE THE LIFE YOU WANT
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