[Nfbf-l] Research Volunteers Needed for Web-Based Study on Age-Related Macular Degeneration within Families

[Sherri]

Just passing this along.
Sherri
----- Original Message ----- 
From: Foundation Fighting Blindness 
To: kvharmon54 at gmail.com 
Sent: Wednesday, February 24, 2010 1:06 PM
Subject: Research Volunteers Needed for Web-Based Study on Age-Related Macular Degeneration within Families


            
           
            The Jules Stein Eye Institute at University of California, Los Angeles is Seeking Clinical Research Volunteers for a Nationwide Study on the Genetics and Risks for Age-Related Macular Degeneration
             
            Dr. Michael Gorin at Jules Stein Eye Institute at UCLA is conducting a nationwide study of genetic and other risk factors that contribute to the development of age-related macular degeneration (also known as Age-Related Maculopathy). You or members of your family may be eligible to participate in this observational study (this is not a treatment trial) which does not require that you travel to UCLA, but allows you to participate through a confidential and secure website. 

            The study is looking for:   

              1.. Individuals from 49 to 65 years old who have/had at least one parent with macular degeneration. Spouses or partners will be included. 
              2.. The parent(s) who have Age-Related Macular degeneration or have a first-degree relative with the disease (siblings). 
            If you wish to learn more about this study, you can go to the following website and read about the study with complete anonymity (and even send questions to the research coordinators). https://jseiclinres.jsei.ucla.edu/garm/ 
              
            Call Dr. Michael B. Gorin or a research coordinator at 1-800-286-8581 for more information.
             
            UCLA IRB # 08-11-008- 11
            Approval date: 07/10/2009 



            Renewed annually       

              
     


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Sherri Brun, NFBF Secretary and Newsline® Coordinator
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