[Nfbf-l] Updates for Jim Ellsworth from Caringbridge-org

[Jim Ellsworth]

Good morning Jody and all,

I wanted to thank you as well as each and everyone of you.  I will be
keeping your messages to inspire me when things get tough and hard to
handle.

I of course want to extend my heart felt blessings from God to you and
everyone who is going through a trying time.  I am so blessed to have so
many people out there keeping me in their thoughts and prayers.  Life would
be so much more difficult without friends for whom we can care about and in
turn care about us.

Thanks once more and may God bless,
Jim and Kim Ellsworth

-----Original Message-----
From: Nfbf-l [mailto:nfbf-l-bounces at nfbnet.org] On Behalf Of jody milisavic1
Sent: Sunday, September 29, 2013 11:12 PM
To: NFB of Florida Internet Mailing List
Cc: <NFBF-Leaders at yahoogroups.com>; NFB of Florida Internet Mailing List
Subject: Re: [Nfbf-l] Updates for Jim Ellsworth from Caringbridge-org

Hello Jim, you're in my thoughts and prayers.

Sent from my iPhone

> On Sep 29, 2013, at 5:14 PM, Kirk Harmon <kvharmon54 at gmail.com> wrote:
> 
> Sherry, this is really sad news indeed! Gina and  My heart goes out to the
entire family in this struggle they are all facing. I have had friends in
the last few years and survive such devastating
> news with today's modern medicine. Let's all pray and hope that he will be
one of them as well! 
> Sent from my iPhone
> 
>> On Sep 29, 2013, at 2:22 PM, "Sherri" <flmom2006 at gmail.com> wrote:
>> 
>> Hello all,
>> 
>> Jim Ellsworth has contacted me and ask that I send updates to the group
from 
>> Caringbridge.org. This site has updates on how he is doing with his
battle 
>> against cancer. If you want to join the site, be able to post and receive

>> e-mail updates, please follow the link below.
>> http://www.caringbridge.org/visit/jime
>> 
>> 
>> Below is the latest update, thanks to his daughter Jennifer. Please keep
Jim 
>> and family in your prayers. Thank you.
>> 
>> Sherri
>> 
>> Moffitt follow-up
>> September 24, 2013 3:09pm
>> 
>> Family and friends,
>> 
>> Yesterday we headed to Moffitt for the follow-up PET scan and subsequent
>> visit with Dr. Sotomayor. As of our last appointment, we had no reason to

>> believe we would be receiving any news other than which direction we
would 
>> be taking for the maintenance portion of dad's treatment. It is with a 
>> saddened heart that I must tell everyone we received quite the opposite. 
>> Everything went routine as far as the scans and bloodwork. We were
greeted 
>> immediately by Dr. Sotomayor instead of his Fellow like the previous
visit. 
>> He indicated the cancer is coming back at a very rapid rate and that if
we 
>> do not seek a new treatment within the next 2-3 months, we would be right

>> back where we started over a year ago- collapsed lung, etc. Dad has been 
>> feeling great and getting back into the swing of things and to say that
this 
>> was quite a shock would be an understatement. They would like to do 
>> preliminary testing to find out which path we will take from here as
there 
>> are a couple of options. That testing is scheduled for this coming
Friday. 
>> Dr. Sotomayor is requesting an echocardiogram, a bone marrow biopsy, and
an 
>> ultrasound guided biopsy of the lymph node under his right arm. The
results 
>> of these tests will be received within a week or two. The doctor would
like 
>> to begin treatment in the next 2-3 weeks. He says that time is of the 
>> essence.
>> 
>> Our first option is the treatment dad would have had originally if he had

>> been strong enough to endure it due to the harshness. It is called
HyperCVAD 
>> and will be given in the hospital in two parts per round. There will be
four 
>> rounds total. The first half will be four days long with a three week
break 
>> and the second half will be given during a three day stay. A month will 
>> elapse and then another round in the hospital and so on until completed.
The 
>> Dr. would perform another PET scan to determine dad's remission status.
We 
>> will then be looking for a bone marrow donor from the registry as he has
no 
>> full-blooded siblings. They prefer to find someone on the donor list that

>> would be a closer match than trying to match him with Jamie, who would
only 
>> be a 50% match.
>> 
>> The bone marrow transplant would only occur when he reaches remission
status 
>> and of course outweighing the pros and cons of the situation.
>> 
>> The second option we have is a daily pill given in conjunction with the 
>> Rituxan. Unfortunately, this option will only have a 40% success rate and

>> can take months to become effective.
>> 
>> As you can imagine, this news is almost as hard to give as it was to
receive 
>> it. Please keep us in your thoughts and prayers as we continue through
our 
>> journey. We could certainly use it!
>> 
>> Jennifer
>> 
>> 
>> 
>> 
>> Character is the side of yourself you choose to show the world.
>> Integrity is what you do, what you say and how you act when you think no
one 
>> is paying attention.
>> Sherri Brun
>> NFBF Newsline Chair
>> flmom2006 at gmail.com
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