[nfbwatlk] FW: [Nfb-or] [nfb-talk] More bad news: Round 2
Prows, Bennett (HHS/OCR)
Bennett.Prows at HHS.GOV
Fri Jan 28 18:48:38 UTC 2011
For those of you who know Joseph.
From: nfb-or-bounces at nfbnet.org [mailto:nfb-or-bounces at nfbnet.org] On Behalf Of T. Joseph Carter
Sent: Friday, January 28, 2011 2:56 AM
To: NFB Talk Mailing List
Subject: [Nfb-or] [nfb-talk] More bad news: Round 2
Three weeks ago I felt some pain in my leg, the opposite side from
the tumor in my back/side. A scan showed something very small, but
definitely solid. The doctor removed it and did a biopsy, given my
history. Preliminarily, it looked like another sarcoma, so they cut
some margin tissue out as well. It was so small that a week later,
I've all but recovered from the surgery.
I've waited to write to everyone until the pathology report came
back, and it did tonight. It was a sarcoma, and the margins are
clear. This will mean another round of radiation, and I suspect I'll
be told Tuesday that chemotherapy is not considered optional this
The last time around, my whole life was put on hold for several
months. That was mostly because I was still recovering from surgery
during the radiation. I don't know how I'll react to chemotherapy,
but I'm told that generally it isn't going to be pleasant.
Metastasized soft tissue sarcomas have a statistically high mortality
rate. One study says 73% within six years. They are considered to
be stage 4, but people can and do survive them. My lungs were clear
in October; it's a good sign if they still are. And though we cannot
prove the negative, it is possible that this new tumor resulted
either from metastasis of the original to this and only this
location, or that it is what they call a second primary tumor.
Either of those make the clear margins very important.
We'll know more after Tuesday, hopefully. I'm praying for the best,
and would welcome prayers from others as well.
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