[Blind-rollers] New Member

dianesapiro at bellsouth.net dianesapiro at bellsouth.net
Wed Jun 17 12:26:36 UTC 2009 

 I have calls out to EVERYONE!   However, there are no blind persons in our area that use a power chair---except my son ----but he is only legally blind!

ADvocacy Center is involved, but the attorney just cannot  understand how a blind person can get around anywhere safely with only a "stick" or dog!!  

I will not stop pushing for a power chair until she has one!!

Thanks for  replying....Sincerely, Diane

  -------------- Original message from TYGH HALES <mrwheelz63 at msn.com>: --------------


> 
> Hi Diane! 
> 
> My mom's name is Dianne, and it is also my middle name!
> 
>  
> I can't even begin to fathom how someone could possibly 'fix' a video like that, 
> but anyways...
> 
>  
> Is there any possibility that the people at the rehab center advocacy groups/ blind serivces could actually meet her and WITNESS FOR THEIR OWN EYES her using 
> a power chair? 
> 
>  
> 
> Have you written your congressmen/ state Legislators? 
>  
> > From: dianesapiro at bellsouth.net
> > To: blind-rollers at nfbnet.org
> > Date: Mon, 15 Jun 2009 22:56:55 +0000
> > Subject: Re: [Blind-rollers] New Member
> > 
> > 
> > 
> > Hi Becky and Tygh!!
> > > My name is Diane and I have a daughter,Dani---she is 24 years old with spina bifida and totally blind. She just went blind about 2 years ago......so she has alot of catch-up learning braille and JAWS! Now her shoulders are having problems. She has always been in a manual wheelchair but now we are trying to get her into a power chair........she has great cane skills, but Fl State 
> medicaid willl not approve one for her...I am SO frustrated!! 
> > 
> > I have contacted blind serv ices, advocasy groups and everyone thinks it is 
> impossible for her to handle a power chair!! We sent a video of her using one 
> all round her own apartment and the rehab center and they thought it was 
> "fixed"!! She has very good "awareness". We are hoping to get her a service dog 
> as well========and they require a power chair !!!
> > 
> > If you don"t mind, would you please send a letter of support. Thanks so 
> much.......
> > 
> > Diane Sapiro
> > -------------- Original message from TYGH HALES : 
> --------------
> > 
> > 
> > > 
> > > Welcome back, Holly! 
> > > 
> > > 
> > > My name is Becky, and my husband Tygh (pronouced Ty) is a legally blind 
> electric wheelchair user. He has used an electric wheelchair for a good 15 years 
> now, since high school, and he's 35 now. He has had a variety of different 
> electric wheelchairs, and not only one to get to high school, but has also used 
> them on oh, about 6 different college campuses, and travelling to conventions & 
> whatnot, as well as getting around whatever towns we have lived in. Trust me, he 
> wears 
> > > his chairs out! lol. 
> > > In all his 15+ years of using an electric scooter or wheelchair, he has only 
> tipped his chair twice, I believe. The first time was as a freshman college 
> student, he was driving down a sidewalk in a couple inches of freshly fallen 
> snow and wasn't able to tell that he was going off the sidewalk. The second 
> time, he was going down a street and was too far over and on a steep grade. Both 
> times, the chair just tipped on its side. Yes, he was stuck there until someone 
> > > came to help him, but neither time was he injured. 
> > > 
> > > > From: mommaholly at gmail.com
> > > > To: blind-rollers at nfbnet.org
> > > > Date: Sun, 14 Jun 2009 00:06:23 -0400
> > > > Subject: [Blind-rollers] New Member
> > > > 
> > > > Hello everyone. I was on this list once before, but got off of it for
> > > > whatever reason. Now I am back with more questions and needing support.
> > > > 
> > > > I am totally blind and while I was pregnant with my son 2 years ago I
> > > > started losing my hearing. Now I have lost one hear completely and the
> > > > other ear mostly. Since the tuor that I have is an acoustic neuroma on
> > > > the 8th nerve which controls not only hearing, but also balance, well
> > > > I'm vertually drunk all day every day. 
> > > > 
> > > > With each day that passes my balance get worse and worse. I have fallen
> > > > countless times. I am afraid that oone of these day I'm going to fall
> > > > and break my nec or something very very dangerous. Right now I live in
> > > > Asheville, NC which is in the mountains. That is like even worse with
> > > > the balance. Right now I use a walker, but it still can't make me catch
> > > > myself whenever I'm already falling. My vistibular system is wack.
> > > > 
> > > > So I'm leaning more to a power chair. I have tumors in my spine and
> > > > don't think I would be strong enough to push myself, especially up all
> > > > these sloping sidewalks, driveways, etc of the mountains of Asheville.
> > > > I am going to be moving back to Arkansas, flat land, soon though just
> > > > because these mountains are killing me. I'm afraid to go out of my
> > > > house alone afraid of falling. I always feel like crying when I go out.
> > > > It's so hard and I have to concentrate so intently not to lose my
> > > > balance and thinking about it only make the balance worse and I have to
> > > > go sooooo slow.
> > > > 
> > > > So I think really a chair would be best for me. I just am suck because
> > > > balance is terrible now, but being in a chair, will that make it worse?
> > > > My right leg is already weak. The quads are basically non existant and
> > > > PT never could get it back. There's nerve damage and really not way to
> > > > get it back. I have nothing to lock my knees so it can buckle very
> > > > easily. And since that leg is not strong I have trouble keepingthe
> > > > balance, then throw in all the other vistibular problems.
> > > > 
> > > > How does mobility in a chair work? Is it hard? One thing I was
> > > > thinkingabout, I know I'm paranoid. I know there are seat belts, but
> > > > what if the chair tips overand you're strapped in then that heavy chairs
> > > > falls on you. What would you do? How likely is it to tip? Have any of
> > > > you tipped it?
> > > > 
> > > > Also what would be the best type of chair to get considering I'm blind
> > > > and don't have my own car to adapt and also won't have public
> > > > transportation in Arkansas to call a Van and make surethey have a lift
> > > > and those little wheel locks like paratranset. Would a folding
> > > > powerchair be good? Do any of you have one of those?
> > > > 
> > > > Help, I'm full of question. Smiles.
> > > > 
> > > > Holly
> > > > 
> > > > 
> > > > _______________________________________________
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