[Blind-rollers] New Member

Wed Jun 17 17:13:12 UTC 2009

Hi Diane,

I managed to get the state to buy me one. I was evaluated by a physical 
therapist, who was very impressed, and after about a month of repeatedly 
showing her that I could do it, she ordered the chair. I think it would help 
even more if a mobility instructor was also present at the PT appointments 
if you are able to set this up. Of course, it may be very different in 
Florida than it is in Rhode Island. I did it though, and so it can be done.

Jen

Shop my AVON online store
http://jaberdeen.avonrepresentative.com

Get healthy!
http://jaberdeen.qhealthbeauty.com

Contact me:

Jennifer Aberdeen
PO Box 1184
Woonsocket, RI 02895
401-762-3258 (home)
401-644-5607 (cell)
freespirit328 at gmail.com
SKYPE: J.Aberdeen
----- Original Message ----- 
From: <dianesapiro at bellsouth.net>
To: "Blind wheelchair users list" <blind-rollers at nfbnet.org>
Sent: Wednesday, June 17, 2009 8:26 AM
Subject: Re: [Blind-rollers] New Member

>
> I have calls out to EVERYONE!   However, there are no blind persons in our 
> area that use a power chair---except my son ----but he is only legally 
> blind!
>
> ADvocacy Center is involved, but the attorney just cannot  understand how 
> a blind person can get around anywhere safely with only a "stick" or dog!!
>
> I will not stop pushing for a power chair until she has one!!
>
> Thanks for  replying....Sincerely, Diane
>
>  -------------- Original message from TYGH HALES 
> <mrwheelz63 at msn.com>: --------------
>
>
>>
>> Hi Diane!
>>
>> My mom's name is Dianne, and it is also my middle name!
>>
>>
>> I can't even begin to fathom how someone could possibly 'fix' a video 
>> like that,
>> but anyways...
>>
>>
>> Is there any possibility that the people at the rehab center advocacy 
>> groups/ blind serivces could actually meet her and WITNESS FOR THEIR OWN 
>> EYES her using
>> a power chair?
>>
>>
>>
>> Have you written your congressmen/ state Legislators?
>>
>> > From: dianesapiro at bellsouth.net
>> > To: blind-rollers at nfbnet.org
>> > Date: Mon, 15 Jun 2009 22:56:55 +0000
>> > Subject: Re: [Blind-rollers] New Member
>> >
>> >
>> >
>> > Hi Becky and Tygh!!
>> > > My name is Diane and I have a daughter,Dani---she is 24 years old 
>> > > with spina bifida and totally blind. She just went blind about 2 
>> > > years ago......so she has alot of catch-up learning braille and JAWS! 
>> > > Now her shoulders are having problems. She has always been in a 
>> > > manual wheelchair but now we are trying to get her into a power 
>> > > chair........she has great cane skills, but Fl State
>> medicaid willl not approve one for her...I am SO frustrated!!
>> >
>> > I have contacted blind serv ices, advocasy groups and everyone thinks 
>> > it is
>> impossible for her to handle a power chair!! We sent a video of her using 
>> one
>> all round her own apartment and the rehab center and they thought it was
>> "fixed"!! She has very good "awareness". We are hoping to get her a 
>> service dog
>> as well========and they require a power chair !!!
>> >
>> > If you don"t mind, would you please send a letter of support. Thanks so
>> much.......
>> >
>> > Diane Sapiro
>> > -------------- Original message from TYGH HALES :
>> --------------
>> >
>> >
>> > >
>> > > Welcome back, Holly!
>> > >
>> > >
>> > > My name is Becky, and my husband Tygh (pronouced Ty) is a legally 
>> > > blind
>> electric wheelchair user. He has used an electric wheelchair for a good 
>> 15 years
>> now, since high school, and he's 35 now. He has had a variety of 
>> different
>> electric wheelchairs, and not only one to get to high school, but has 
>> also used
>> them on oh, about 6 different college campuses, and travelling to 
>> conventions &
>> whatnot, as well as getting around whatever towns we have lived in. Trust 
>> me, he
>> wears
>> > > his chairs out! lol.
>> > > In all his 15+ years of using an electric scooter or wheelchair, he 
>> > > has only
>> tipped his chair twice, I believe. The first time was as a freshman 
>> college
>> student, he was driving down a sidewalk in a couple inches of freshly 
>> fallen
>> snow and wasn't able to tell that he was going off the sidewalk. The 
>> second
>> time, he was going down a street and was too far over and on a steep 
>> grade. Both
>> times, the chair just tipped on its side. Yes, he was stuck there until 
>> someone
>> > > came to help him, but neither time was he injured.
>> > >
>> > > > From: mommaholly at gmail.com
>> > > > To: blind-rollers at nfbnet.org
>> > > > Date: Sun, 14 Jun 2009 00:06:23 -0400
>> > > > Subject: [Blind-rollers] New Member
>> > > >
>> > > > Hello everyone. I was on this list once before, but got off of it 
>> > > > for
>> > > > whatever reason. Now I am back with more questions and needing 
>> > > > support.
>> > > >
>> > > > I am totally blind and while I was pregnant with my son 2 years ago 
>> > > > I
>> > > > started losing my hearing. Now I have lost one hear completely and 
>> > > > the
>> > > > other ear mostly. Since the tuor that I have is an acoustic neuroma 
>> > > > on
>> > > > the 8th nerve which controls not only hearing, but also balance, 
>> > > > well
>> > > > I'm vertually drunk all day every day.
>> > > >
>> > > > With each day that passes my balance get worse and worse. I have 
>> > > > fallen
>> > > > countless times. I am afraid that oone of these day I'm going to 
>> > > > fall
>> > > > and break my nec or something very very dangerous. Right now I live 
>> > > > in
>> > > > Asheville, NC which is in the mountains. That is like even worse 
>> > > > with
>> > > > the balance. Right now I use a walker, but it still can't make me 
>> > > > catch
>> > > > myself whenever I'm already falling. My vistibular system is wack.
>> > > >
>> > > > So I'm leaning more to a power chair. I have tumors in my spine and
>> > > > don't think I would be strong enough to push myself, especially up 
>> > > > all
>> > > > these sloping sidewalks, driveways, etc of the mountains of 
>> > > > Asheville.
>> > > > I am going to be moving back to Arkansas, flat land, soon though 
>> > > > just
>> > > > because these mountains are killing me. I'm afraid to go out of my
>> > > > house alone afraid of falling. I always feel like crying when I go 
>> > > > out.
>> > > > It's so hard and I have to concentrate so intently not to lose my
>> > > > balance and thinking about it only make the balance worse and I 
>> > > > have to
>> > > > go sooooo slow.
>> > > >
>> > > > So I think really a chair would be best for me. I just am suck 
>> > > > because
>> > > > balance is terrible now, but being in a chair, will that make it 
>> > > > worse?
>> > > > My right leg is already weak. The quads are basically non existant 
>> > > > and
>> > > > PT never could get it back. There's nerve damage and really not way 
>> > > > to
>> > > > get it back. I have nothing to lock my knees so it can buckle very
>> > > > easily. And since that leg is not strong I have trouble keepingthe
>> > > > balance, then throw in all the other vistibular problems.
>> > > >
>> > > > How does mobility in a chair work? Is it hard? One thing I was
>> > > > thinkingabout, I know I'm paranoid. I know there are seat belts, 
>> > > > but
>> > > > what if the chair tips overand you're strapped in then that heavy 
>> > > > chairs
>> > > > falls on you. What would you do? How likely is it to tip? Have any 
>> > > > of
>> > > > you tipped it?
>> > > >
>> > > > Also what would be the best type of chair to get considering I'm 
>> > > > blind
>> > > > and don't have my own car to adapt and also won't have public
>> > > > transportation in Arkansas to call a Van and make surethey have a 
>> > > > lift
>> > > > and those little wheel locks like paratranset. Would a folding
>> > > > powerchair be good? Do any of you have one of those?
>> > > >
>> > > > Help, I'm full of question. Smiles.
>> > > >
>> > > > Holly
>> > > >
>> > > >
>> > > > _______________________________________________
>> > > > Blind-rollers mailing list
>> > > > Blind-rollers at nfbnet.org
>> > > > http://www.nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
>> > > > To unsubscribe, change your list options or get your account info 
>> > > > for
>> > > Blind-rollers:
>> > > >
>> > >
>> http://www.nfbnet.org/mailman/options/blind-rollers_nfbnet.org/mrwheelz63%40msn.
>> > > com
>> > >
>> > > _________________________________________________________________
>> > > Hotmail® has ever-growing storage! Don’t worry about storage limits.
>> > >
>> http://windowslive.com/Tutorial/Hotmail/Storage?ocid=TXT_TAGLM_WL_HM_Tutorial_St
>> > > orage_062009
>> > > _______________________________________________
>> > > Blind-rollers mailing list
>> > > Blind-rollers at nfbnet.org
>> > > http://www.nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
>> > > To unsubscribe, change your list options or get your account info for
>> > > Blind-rollers:
>> > >
>> http://www.nfbnet.org/mailman/options/blind-rollers_nfbnet.org/dianesapiro%40bel
>> > > lsouth.net
>> > _______________________________________________
>> > Blind-rollers mailing list
>> > Blind-rollers at nfbnet.org
>> > http://www.nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
>> > To unsubscribe, change your list options or get your account info for
>> Blind-rollers:
>> >
>> http://www.nfbnet.org/mailman/options/blind-rollers_nfbnet.org/mrwheelz63%40msn.
>> com
>>
>> _________________________________________________________________
>> Bing™  brings you maps, menus, and reviews organized in one place.   Try 
>> it now.
>> http://www.bing.com/search?q=restaurants&form=MLOGEN&publ=WLHMTAG&crea=TEXT_MLOG
>> EN_Core_tagline_local_1x1
>> _______________________________________________
>> Blind-rollers mailing list
>> Blind-rollers at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Blind-rollers:
>> http://www.nfbnet.org/mailman/options/blind-rollers_nfbnet.org/dianesapiro%40bel
>> lsouth.net
> _______________________________________________
> Blind-rollers mailing list
> Blind-rollers at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/blind-rollers_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Blind-rollers:
> http://www.nfbnet.org/mailman/options/blind-rollers_nfbnet.org/freespirit328%40gmail.com
> 