[blindkid] IEP help needed / thanks

Carol Castellano blindchildren at verizon.net
Tue Nov 25 01:41:10 UTC 2008


You guys are going to be all right!!!!!  Who could beat you at this game?!?

Don't remember if these have been mentioned already, but two good 
sources of IEP info are the Pop-Up IEP and the NOPBC video, Avoiding 
an IEP Disaster, available from nfb.org.

Good luck!
Carol

At 06:19 PM 11/24/2008, you wrote:
>I want to say a huge THANK YOU to those who gave me info for our 
>daughter's goals for the IEP. Many of you said the same things we 
>have been saying ... this child needs to learn print and Braille and 
>I have had in the back of my head the use of a cane.
>
>The cane came up last week in conversation with the TVI/O&M and he 
>emphatically said she does NOT need a cane ... then asked who would 
>teach her to use the cane! I told her that if the school board would 
>not, then I would ask the FL School for the Deaf & Blind as she is 
>NOT SAFE even at home! We are concerned for her safety and how 
>serious the hurt has to be before we can get O&M for her! I did ask 
>him how seriously she does need to be hurt and then what happens ... 
>he didn't say much after that.
>
>As for the Braille ... that is a whole 'nother mountain. We have 
>been saying since April she needs Braille to be taught NOW (as well 
>as print) and that is not happening. The excuses are "she has too 
>much sight, it will be too slow for her and she won't like it" .... 
>which of course are not consistent with IDEA. (I have some Braille 
>books and she is excited to read with her fingers as mommy tells the 
>story!!!!)  I have even tried to tell them about eye fatigue and 
>lighting (she has light sensitivity) for example, and I continue to 
>get "she won't need it!" .... "she won't have fatigue" is what her 
>TVI told me! All I could think of was how wonderful that this TVI 
>can predict what my child will and will not feel!!!!
>
>I did speak to the head of ESE who is also the vision coordinator 
>(although I highly doubt he knows beans about vision services or eye 
>conditions). I voiced some of my concerns and he said to email him 
>all of our concerns about the IEP (not including the goals) as well 
>as the other evals that have been done for Torrie. I am doing that 
>today. I just cannot believe that we have only been in the "school 
>district" since Aug 07 -- 15 mos -- and it has been an uphill 
>battle. WE STILL HAVE 20 YEARS TO GO!!!!!
>
>Please keep all your ideas coming ... they are definitely giving us 
>the support we need to have!!! I may print them and bring them with 
>me to our meeting!
>
>Doreen and David
>
>
>
>
>
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