[blindkid] Expanded Core Curriculum Feedback

Sat May 12 03:47:20 UTC 2012

Thanks, Christine, and Happy Mother's Day to you and to all the moms 
on our list.

This has been a very interesting discussion--there are so many facets 
to it.  Thanks for bringing up the topic.  Glad to hear yourson is 
having such a good year.

Carol

At 09:31 PM 5/11/2012, you wrote:
>I greatly appreciate all the insight.  I  didn't mean it to sound like
>someone else should always teach my child daily  living skills, in fact our
>family, between four other kids older than him, have  helped to teach him a
>tremendous amount of skills.  Over the  summer I use checklists to work on
>skills such as laundry, chores and other  concepts.    The challenge is
>processing delays and the autism so it  takes many exposures. 
>(things like brushing
>teeth and buttons are not  mastered yet at age 11).
>
>  I have found that there is not one good thorough  resource for IEP goals
>for kids that are blind or visually impaired.(and that's  probably largely
>due to the diversity involved)    I have pieced  together things from
>different resources to educate myself and at times, my  team.  I 
>also want to add
>that I have had an outstanding year with my  team and school.   He is the
>first totally blind child to attend  this elementary school and we have made
>fantastic progress, so much so that I  believe it is a model for 
>other schools.
>
>
>As many parents can attest, we are the first and foremost  advocates for
>our children so we do look under every rock to make sure we are  doing this
>right.  For the professionals out there, thank you for all 
>the  extra care and
>understanding you give to us as we journey with our kids.   Your
>willingness to join this list and give us your insight is  "priceless".
>
>Your comments (and sharing of your experiences) have helped me  to realize
>that what they have proposed is reasonable and placed within the IEP  with
>the OT goals (although they are not specific) and his one week at Perkins
>(although I have asked for one more additional weekend), therefore I feel
>there  is no need to have additional goals (unless a specific issue arises).
>Your  honesty and different points (and links) are very helpful.
>
>Carol, I read and reread your books before every IEP meeting  and this time
>around and I did request an independence timeline (he is only 30%
>"independent" in travel around the school at the end of 4th grade) 
>and they are  so
>afraid he will "fall" or get lost.  They were excellent in understanding
>that he can do it and they need to let him do it, so progress has 
>been  made!
>  So a huge thanks to you for the excellent resources you have  penned!
>
>Thank you all again and Happy Mother's Day to all you  mom's!
>
>Chris
>
>
>In a message dated 5/11/2012 8:25:29 P.M. Eastern Daylight Time,
>doreenproverbs3 at bellsouth.net writes:
>
>Christine,
>I have sent parents the link to a goal bank for kids  of all disabilities
>.... bridges4kids.org/IEP/iep.goal.bank.pdf. There are  numerous domains and
>goals covered and many benchmarks listed under each  domain and goal. I have
>actually taken these into IEP meetings and sometimes  the team is
>receptive. This is a great tool for all our  kiddos!!!
>
>I also applaud the words from Carol, Gayle and Susie!
>
>Good luck ....
>Doreen
>
>
>From:  "SCDUFFLEY at aol.com" <SCDUFFLEY at aol.com>
>To: blindkid at nfbnet.org
>Sent: Friday, May 11, 2012 8:18 AM
>Subject: [blindkid] Expanded Core  Curriculum Feedback
>
>Hello Everyone:
>
>I am having a struggle with  ECC goals that are meaningful and  specific.
>I
>have asked my  team to evaluate his current strengths as it  relates to
>these  goals.  Does anyone know of any specific resources  of IEP sample
>statements for ECC for a 5th grader?  The real struggle  is in  the
>self-help,
>independent and self advocacy area.  No one seems  to  want to touch
>teaching him
>home skills (other than four to five  tasks a year -  like opening a jar).
>
>Thanks for your  input,
>
>Christine   Duffley
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Carol Castellano
President, Parents of Blind Children-NJ
Director of Programs
National Organization of Parents of Blind Children
973-377-0976
carol_castellano at verizon.net
www.blindchildren.org
www.nopbc.org  