[blindkid] Medical ID bracelets/necklaces

[Carol Castellano]

Yes, and I'd add the head between the knees position, too.
Carol

At 11:55 AM 6/11/2013, you wrote:
>I think most sighted people assume someone is totally blind if they
>see a cane. Most people unfamiliar with blindness don't know much
>about low vision. So I think her cane will be a good identifier.
>Also, as I've mentioned off-line, I have some experience with
>vasovagal spells. I think it's possible your daughter knows when one
>is about to happen or at least knows that something is off. She may
>not be able to say anything because it happens fast and because the
>vasovagal process can cause confusion. I would suggest trying to train
>her to lie down on the floor or at least come to a seated position on
>the floor if she is at all feeling dizzy. If she lies down flat on her
>back or tilts her head back in a sitting position, this will let
>gravity restore blood flow to her brain preventing her from losing
>consciousness. Also, if she does pass out, she will be safer if she is
>on the floor. You could practice with her while she is feeling well so
>it becomes automatic.
>
>Best,
>Arielle
>
>On 6/11/13, Julie Yanez <jyanez112 at gmail.com> wrote:
> > She does use her cane. But I don't want her to be confused with low vision.
> > She's blind. And she comes to fairly quick. But that's only because I've
> > always caught her fall. She doesn't know when an episode is coming on. So
> > when it does, she's lights out and just timbers over. If I wasn't there,
> > she would have surely done some damage on the fall.
> > On Jun 11, 2013 5:38 AM, "Carol Castellano" <carol_castellano at verizon.net>
> > wrote:
> >
> >> Hi Julie,
> >>
> >> Does your daughter use a cane?  If she were to pass out, the cane would
> >> be
> >> a good identifier for her blindness.
> >>
> >> Also, how quickly does she come to when she passes out?  If it's pretty
> >> quick, then there's probably not too much cause for worry that the level
> >> of
> >> her eye responsiveness would be a problem.  I'm a fainter, too, but
> >> always
> >> wake up again right away.
> >>
> >> Carol
> >>
> >> Carol Castellano
> >> Parents of Blind Children-NJ
> >> Director of Programs
> >> National Organization of Parents of Blind Children
> >> 973-377-0976
> >> carol_castellano at verizon.net
> >> www.blindchildren.org
> >> 
> www.nfb.org/parents-and-**teachers<http://www.nfb.org/parents-and-teachers>
> >>
> >> At 12:45 AM 6/11/2013, you wrote:
> >>
> >>> Hello there listers. I'm looking into getting a medical alert bracelet
> >>> for
> >>> my daughter and was told by a pharmacist that because her only major
> >>> medical issue is blindness from ROP, that it was not necessary. I was a
> >>> bit
> >>> disturbed by that answer.
> >>>   I feel as is for some reason my girl is unable to respond or speak for
> >>> herself in an emergency, I would want a medic or Dr to know her eyes may
> >>> not be as responsive due to her condition. She also has
> >>> VasoVagal(episodes
> >>> of passing out). So my question is, how many of you all have a medical
> >>> ID
> >>> for being blind and has it been useful? (Both listers and parents)
> >>> -Julie
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> >>
> >>
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Carol Castellano
Parents of Blind Children-NJ
Director of Programs
National Organization of Parents of Blind Children
973-377-0976
carol_castellano at verizon.net
www.blindchildren.org
www.nfb.org/parents-and-teachers