[blindkid] FW: [sensoryintegration] RE: DISNEYLAND RALLY THISSATURDAY

Thu Oct 10 21:56:21 UTC 2013

I also always keep in mind that when the ADA was being debated, Dr. 
Kenneth Jernigan, who was the NFB national president at the time, 
said our organization would not sign on to the bill unless the 
legislators put in a section that ensured the right of disabled 
people to TURN DOWN unwanted accommodations.  (They did.)

Penny, you're right--we must question every accommodation.  My 
questions are usually: What is in the mind of the person offering the 
accommodation?  Does accepting it make Serena look less able in this 
person's mind?  Less like a peer, an equal, someone to HIRE?

Carol

Carol Castellano
Parents of Blind Children-NJ
Director of Programs
National Organization of Parents of Blind Children
973-377-0976
carol_castellano at verizon.net
www.blindchildren.org

At 04:37 PM 10/10/2013, you wrote:
>I wanted to follow up and say question any accommodation.. Some make a a
>blind person more independent like needing things in accessible format.
>While others should simply be questioned. Why does my child need this
>accommodation?  Are they lacking some skill? Where do I go to get this
>skill. Or is an accommodation that looks like a huge bonus (that really
>isn't needed)  that  in the ends perpetuates that blind people are
>incapable.
>
>
>On Thu, Oct 10, 2013 at 4:16 PM, Penny Duffy <pennyduffy at gmail.com> wrote:
>
> >
> > I come to the conclusion that everyone needs to judge for themselves what
> > their comfortable with and when a business decides to do an accommodation
> > its really a judgement call if its an appropriate thing for their child or
> > not.   'Our' kids are all very different. Some have serious sensory issues
> > that the waiting in line can be overwhelming.  Its also important to know
> > when you are posting on a NFB list it should be a surprise your getting
> > these responses. The NFB philosophy makes our kids strong more independent
> > and more respected.  Remember the NFB has had to fight to allow blind
> > riders on some attractions since they were denied entry due to safety.
> >  When we cry something is not safe for our children people feel our
> > children are not capable of doing the simpliest things even shocking
> > getting dressed or eating.
> >
> > The thing is the new plan by Disney addresses the whole staying in line
> > thing by asking the patron to simply return at an assigned time to get
> > right on. Kids will not be put in the fast pass line.  I feel the people
> > this new policy has a the potential to hurt are those that are medically
> > fragile and they simply can not stay in heat very long.  Its not about
> > lines since the new policy doesn't make people with the new pass wait in
> > lines just ask them to return at an assigned time, This makes sure that the
> > patrons with the pass are not getting an advantages to going on a popular
> > time say 20x times when most people can only go on 2 to 4 times in a day.
> >  No one can say that is fair.   Now i know many people feel the new plan
> > isn't appropriate  for their children
> >
> >  I just thinks its wonderful that Disney is trying to be family friendly
> > to all kinds of different times of families.
> >
> > Now I am going to change the topic a bit about getting similar type of
> > accommodations for blind children. This is something I think about often.
> >  I am going to bring up the parking placard/plate issue. I think its always
> > important to ask the questions WHY with such things.  i revisit issue at
> > different times and have different conclusions.   I am going to admit
> > having a disabled parking permit placard.  I have for two reasons. 1. Due
> > to my child's developing cane travel skills parking in odd unsafe spot make
> > my daughter more dependent on me than parking in a disabled parking spot.
> > This became an issues a few years ago when my daughter's school was
> > constructing a new school on the site.   It wasn't safe for her to park at
> > any of the other half hazard spots.  I wanted people to her get out of the
> > car independently and get herself into school not needing the assistance of
> > her parents.
> >
> > 2.  The city we live in offers free parking for those with a handicap
> > placard (and other cities in the area are the same) I think the policy is
> > odd  but its the policy.  Using the placard for parking has allowed my
> > daughter to have more experiences.
> >
> > i have only use the placard when safety is an issue or it promotes my
> > daughters independence. (or using that odd ball parking discount)  Yes you
> > can tell I still have some very strong mix feelings about this lol.
> >
> > -Penny
> >
> >
> >
> >
> > On Thu, Oct 10, 2013 at 1:40 PM, Dr. Denise M Robinson <
> > deniserob at gmail.com> wrote:
> >
> >> Amen Debbie and others who resonant these ideas...yes, this is a fine
> >> line.
> >> I always tell my students that when they ask for those exceptions to the
> >> rule...they are asking to be thought of as weak or pitied--even worse and
> >> when the big opportunity comes along...they will not be asked to do it
> >> because they have gotten out of so many things before. No one has any idea
> >> of what they are truly capable of.
> >>
> >> Be very careful with asking for those exceptions to the general rule---if
> >> you bypass people in line, get out of homework, have less work, have that
> >> get of free jail card because of blindness, etc....do you think others
> >> will
> >> be a bit angry with you...pity you? Would kids or others want you to join
> >> with them socially?
> >>
> >> What do you want to exemplify in life? How do you want others to perceive
> >> you? Questions we all must ask ourselves whether sighted or blind.
> >>
> >>
> >> On Thu, Oct 10, 2013 at 12:52 PM, Deborah Kent Stein <dkent5817 at att.net
> >> >wrote:
> >>
> >> >
> >> >
> >> > I share your concern.  We work very hard to break down barriers and win
> >> > equal opportunities for blind people in society.  Part of equality is
> >> > sharing the same responsibilities as everyone else.  I feel it is
> >> important
> >> > to teach our blind kids that they are perfectly capable of dealing with
> >> the
> >> > inconveniences and annoyances of life that everyone else is subject to.
> >> > That includes doing homework, cleaning up messes, and standing in line
> >> even
> >> > when the line is long and you're getting bored.
> >> >
> >> > Debbie
> >> >
> >> >
> >> > ----- Original Message ----- From: "Jill Fass" <jillfass at gmail.com>
> >> > To: "Blind Kid Mailing List,(for parents of blind children)" <
> >> > blindkid at nfbnet.org>
> >> > Sent: Thursday, October 10, 2013 9:19 AM
> >> > Subject: Re: [blindkid] FW: [sensoryintegration] RE: DISNEYLAND RALLY
> >> > THISSATURDAY
> >> >
> >> >
> >> >  Why can't a blind child stand in line? They have help. I can see it if
> >> >> they
> >> >> are by themselves. But if you have someone with you why cant they
> >> stand in
> >> >> line. If they have other issues that is different, but just being blind
> >> >> should not be a way to avoid lines??
> >> >>
> >> >> On Thu, Oct 10, 2013 at 10:08 AM, Brandy W., with Discovery Toys <
> >> >> ballstobooks at gmail.com> wrote:
> >> >>
> >> >>  Starting yesterday they have taken this away and now no one will get
> >> >>> this.
> >> >>> You will have to use a kind of fast pass program whare you have to
> >> get a
> >> >>> time and come back thus making more walking for those can't, more
> >> >>> navagating
> >> >>> for blind people who are still developing skills etc. If it were the
> >> way
> >> >>> it
> >> >>> used to be all would be fine as it was when I visited. Children with
> >> >>> sensory
> >> >>> conditions have been included since the early 90s, and all of this is
> >> >>> going
> >> >>> away!
> >> >>>
> >> >>> -----Original Message-----
> >> >>> From: blindkid [mailto:blindkid-bounces@**nfbnet.org<
> >> blindkid-bounces at nfbnet.org>]
> >> >>> On Behalf Of Marianne
> >> >>> Denning
> >> >>> Sent: Thursday, October 10, 2013 9:53 AM
> >> >>> To: Blind Kid Mailing List, (for parents of blind children)
> >> >>> Subject: Re: [blindkid] FW: [sensoryintegration] RE: DISNEYLAND RALLY
> >> >>> THIS
> >> >>> SATURDAY
> >> >>>
> >> >>> The last time I went to Disney I could walk up and get on rides due
> >> to my
> >> >>> visual impairment.  This has been available to people with
> >> disabilities
> >> >>> for
> >> >>> many years.  This group is trying to expand it to include children
> >> with
> >> >>> sensory integration issues.  I hope they are successful.
> >> >>>
> >> >>> On 10/10/13, Brandy W., with Discovery Toys <ballstobooks at gmail.com>
> >> >>> wrote:
> >> >>> > While I understand that blindness alone doesn't need a special pass
> >> at
> >> >>> > Disney many of our children have other disabilities that do make the
> >> >>> > pass make their trip a special and equal experience. Please if you
> >> >>> > have children who will be effected by this pass please write to the
> >> >>> > information in this email.
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > Thanks,
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > Bran
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > From: sensoryintegrationgroup@**yahoogroups.com<
> >> sensoryintegrationgroup at yahoogroups.com>
> >> >>> > [mailto:sensoryintegrationgrou**p at yahoogroups.com<
> >> sensoryintegrationgroup at yahoogroups.com>]
> >> >>> On Behalf Of
> >> >>> > girllofgod at yahoo.com
> >> >>> > Sent: Thursday, October 10, 2013 12:45 AM
> >> >>> > To: sensoryintegrationgroup@**yahoogroups.com<
> >> sensoryintegrationgroup at yahoogroups.com>
> >> >>> > Subject: [sensoryintegration] RE: DISNEYLAND RALLY THIS SATURDAY
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > Hi Everyone,
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > We are putting a rally together at Disneyland on Saturday. We need
> >> as
> >> >>> > many supporters as possible. We are going have a few leaders in
> >> >>> > different locations like possibly the 7/11 location again and
> >> Downtown
> >> >>> > Disney and somewhere else. Please message me if you want to
> >> >>> > participate and please, please spread the word. Time T.B.A.
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > I believe all entertainment venues are watching this and are
> >> >>> > children's freedom is in jeopardy. For those of you who cannot
> >> >>> > participate, we are asking to hold rally's at your local Disney
> >> >>> > Stores. Please voice your concerns by calling the park and sending
> >> >>> > your letter and sharing your stories how the Disability Passes need
> >> to
> >> >>> > be made available for any person with Special Needs.
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > Here is the information to let your voices be heard. Feel to flood
> >> >>> > their Facebook page under the recommendations section as well.
> >> >>> >
> >> >>> > CALL (714) 781-4636. Select the option to speak to a cast member
> >> about
> >> >>> > general questions. Once you get a live person on the other end, ask
> >> to
> >> >>> > be transferred to "Guest Relations In the Park." This is some kind
> >> of
> >> >>> > code for them. But also ask for them to stay on the line while you
> >> are
> >> >>> > being transferred to make sure it goes through. You should then be
> >> >>> > talking to someone else who will know a lot more about the proposed
> >> >>> > discontinuation of the guest services program than the initial
> >> people
> >> >>> > you
> >> >>> reach will.
> >> >>> >
> >> >>> > For those people with annual passes, I tried to call the number for
> >> >>> > help with that, (714) 781-7277, but ended up back at the same voice
> >> >>> > menu you get when you call the general number.
> >> >>> >
> >> >>> > MAIL YOUR LETTERS WITH YOUR PERSONAL STORIES TO
> >> >>> >
> >> >>> > Mailing Address:
> >> >>> > Disneyland Resort
> >> >>> > P.O. Box 3232
> >> >>> > Anaheim, CA 92802-3232
> >> >>> >
> >> >>> > AND
> >> >>> > CC:
> >> >>> > Robert A. Iger
> >> >>> > Chief Executive Officer
> >> >>> > The Walt Disney Company
> >> >>> > 500 South Buena Vista Street
> >> >>> > Burbank, CA 91521-4873
> >> >>> >
> >> >>> > AND
> >> >>> > cc:Thomas O. Staggs
> >> >>> > Chairman
> >> >>> > Walt Disney Parks & Resorts
> >> >>> > 500 South Buena Vista Street
> >> >>> > Burbank, CA 91521-4873
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > Nancy
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> >
> >> >>> > __._,_.___
> >> >>> >
> >> >>> >
> >> >>> > 
> <http://groups.yahoo.com/**group/sensoryintegrationgroup/**>> >>> 
> post;_ylc=X3oDM<
> >> http://groups.yahoo.com/group/sensoryintegrationgroup/post;_ylc=X3oDM>
> >> >>> > TJxMnZiZnJ1BF9TAzk3MzU5NzE0BGd**ycElkAzk0MDE5MzkEZ3Jwc3BJZAMxN**
> >> >>> zA1MDYxNDk
> >> >>> > 4BG1zZ0lkAzM0NjU1BHNlYwNmdHIEc**2xrA3JwbHkEc3RpbWUDMTM4MTM4MDM**
> >> >>> 0OA--?act=
> >> >>> > reply&messageNum=34655>
> >> >>> > Reply via web post
> >> >>> >
> >> >>> > <mailto:girllofgod at yahoo.com?**subject=RE%3A%20DISNEYLAND%**
> >> >>> 20RALLY%20THIS
> >> >>> > %20SATURDAY>
> >> >>> > Reply to sender
> >> >>> >
> >> >>> > <mailto:sensoryintegrationgrou**p at yahoogroups.com<>> 
> sensoryintegrationgroup at yahoogroups.com>
> >> >>> ?subject=RE%**3A%20DISNEY
> >> >>> > LAND%20RALLY%20THIS%**20SATURDAY>
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> >> >>> >
> >> >>> > 
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> >> >>> --
> >> >>> Marianne Denning, TVI, MA
> >> >>> Teacher of students who are blind or visually impaired
> >> >>> (513) 607-6053
> >> >>>
> >> >>> ______________________________**_________________
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> >> >>> om
> >> >>>
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> >>
> >>
> >>
> >> --
> >> *Dr Denise*
> >>
> >> Denise M. Robinson, TVI, Ph.D.
> >> CEO, TechVision, LLC
> >> Specialist in Technology/Training/Teaching for blind/low vision
> >> Private training to your needs
> >> 423-573-6413
> >>
> >> Website with hundreds of informational articles & lessons on PC, Office
> >> products, Mac, iPad/iTools and more, all done with
> >> keystrokes: www.yourtechvision.com
> >>
> >> "The person who says it cannot be done, shouldn't interrupt the one who is
> >> doing it." --Chinese Proverb
> >>
> >> Computers are incredibly fast, accurate, and stupid: humans are incredibly
> >> slow, inaccurate and brilliant; together they are powerful beyond
> >> imagination.
> >> --Albert Einstein
> >>
> >> It's kind of fun to do the impossible.
> >> --Walt Disney
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> >>
> >
> >
> >
> > --
> > --
> > --Penny
> > ----------
> > My Blog - visionfora.blogspot.com
> >
> > NH Parents of Blind Children http://www.nhpobc.org/
> > NHPOBC on facebook   https://www.facebook.com/nhpobc
> >
>
>
>
>--
>--
>--Penny
>----------
>My Blog - visionfora.blogspot.com
>
>NH Parents of Blind Children http://www.nhpobc.org/
>NHPOBC on facebook   https://www.facebook.com/nhpobc
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