[blindkid] Sleep pattern for blind 5 month old

[Arielle Silverman]

Non-24 disorder is real. But I suspect it only affects a minority of
blind people who have sleep disorders. Also, this doesn't sound like
non-24 disorder because I think usually with non-24 disorder the
problem is not sleeping enough, or sleeping a normal amount but at
varying times of day or night.
I don't think it's a problem to consider non-24 disorder as one
explanation, but it's important not to assume it's the most likely
explanation just because the affected person is blind.
Arielle

On 2/11/14, Marianne Denning <marianne at denningweb.com> wrote:
> I would hope this diagnosis would never be made for a baby or young child.
>
> On 2/11/14, Peter Donahue <pdonahue2 at satx.rr.com> wrote:
>> Good evening everyone,
>>
>>     And don't let the specialist you consult assume that her sleep
>> irregularities may be due to so-called Non-24 Disorder. This is a classic
>> example of how the assumption being promoted by Vanda Pharmaceuticals
>> that
>> all totally blind individuals suffer from this condition could prevent
>> this
>>
>> girl from receiving a proper diagnosis of her sleep disorder.
>>
>> Peter Donahue
>>
>>
>> ----- Original Message -----
>> From: "Deborah Kent Stein" <dkent5817 at att.net>
>> To: "Blind Kid Mailing List,(for parents of blind children)"
>> <blindkid at nfbnet.org>
>> Sent: Tuesday, February 11, 2014 4:24 PM
>> Subject: Re: [blindkid] Sleep pattern for blind 5 month old
>>
>>
>>>
>>>
>>> Dear Alicia,
>>>
>>> It's important to remember that whether a child is blind or sighted,
>>> babies' sleep patterns differ widely.  It might be a good idea to chart
>>> your daughter's sleep patterns so you can get a clearer sense what is
>>> going on. For instance, if she's waking a lot during the night, she may
>>> sleep more during the day to catch up.  If you continue to be concerned,
>>> you might think about consulting a pediatric sleep specialist.  A number
>>> of hospitals have pediatric sleep clinics.
>>>
>>> Debbie
>>>
>>>
>>>
>>> -----Original Message-----
>>> From: Alicia Trust
>>> Sent: Tuesday, February 11, 2014 1:13 PM
>>> To: Blind Kid Mailing List,(for parents of blind children)
>>> Subject: Re: [blindkid] Sleep pattern for blind 5 month old
>>>
>>> She has clinical bilateral anophthalmia. She has no other medical
>>> conditions. We are working with our county's early intervention program
>>> and
>>> the Maryland School for the Blind. I also contacted MSB and they
>>> suggested
>>> giving her more stimulation during the day but not too much, obviously.
>>> She
>>> will eat and play and 'talk" when she is awake.
>>> On Feb 11, 2014 3:37 PM, "Marianne Denning" <marianne at denningweb.com>
>>> wrote:
>>>
>>>> Many blind children develop at a slower rate than their sighted peers.
>>>>  Does she interact with people and toys when she is awake?  What is
>>>> the cause of her blindness?  Are you involved with any agencies for
>>>> the blind that offer support for the family?
>>>>
>>>> On 2/11/14, Alicia Trust <aliciatrust08 at gmail.com> wrote:
>>>> > All,
>>>> >
>>>> > We have a blind baby girl who is 5 months old now. I hate to seem
>>>> > like
>>>> I'm
>>>> > complaining, but she seems to be sleeping a lot. We don't want to be
>>>> > missing signs of a problem. How much really is too much? I don't
>>>> > remember
>>>> > our sighted daughter (now 4 years old) sleeping so much.
>>>> >
>>>> > Thanks,
>>>> > Alicia and Matt
>>>> > _______________________________________________
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>>>>
>>>>
>>>> --
>>>> Marianne Denning, TVI, MA
>>>> Teacher of students who are blind or visually impaired
>>>> (513) 607-6053
>>>>
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>
>
> --
> Marianne Denning, TVI, MA
> Teacher of students who are blind or visually impaired
> (513) 607-6053
>
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