[blindkid] Stickler Syndrome

Lisa Rodriguez lisaerikty4 at yahoo.com
Mon Jun 9 20:47:19 UTC 2014


Hi my name is Lisa Wright, I have three children with stickler syndrome. My oldest has congenital glaucoma. It's a syndrome that can be dealt with quite easily. My kids lead normal lives and participate in sports and everything. They just happen to have a visual impairment. If you would like to talk to me privately you can email me and I can give my phone number. Best regards Lisa

Sent from my iPhone

> On Jun 9, 2014, at 4:30 PM, Dani Baisden via blindkid <blindkid at nfbnet.org> wrote:
> 
> Hello all,
> 
> My husband and I are in the process of adopting a 3 year old girl from
> India who has congenital glaucoma. We just received her referral
> information and it includes a diagnosis of Stickler Syndrome.
> 
> I was wondering if anyone on this list had experience with Stickler. We are
> trying to be as prepared as we can be when we bring our daughter home in
> January.
> 
> Do you know of any resources for me to learn more about Stickler Syndrome?
> Are there any doctors out there who specialize in this condition?
> 
> Thank you so much for your time!
> 
> ~Dani Baisden
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